Patients experience of home-based palliative care in Ireland.
Abstract:This research proposal examines the lived experience of caregivers and patients receivinghome-based palliative care in Ireland. A number of studies have revealed that home-basedpalliative care can have beneficial and positive outcomes for both the patient and caregiver,and is regarded as the best place of care for dying patients when adequate support structuresare present (Peters and Sellick, 2006). Review of the literature reveals that very little researchhas been carried out in Ireland in the area of home-based palliative care. In order to gaindeeper understanding of the experience of home-based palliative care, true data from the
patients‟ perspective is essential. A qualit
ative phenomenological approach is proposed forthis study. A purposive sample of patients (n=10) will be selected for this study once ethicalapproval has been granted. Data will be collected using in-depth semi-structured interviews.IntroductionDying is part of living and it is a very natural, unique and special experience for eachindividual (Neuberger, 2005). The terminal phase of an illness is considered to be the last journey of a
person‟s life on earth (Furst and Doyle, 2004). There are many chal
lengesassociated with the physical and psychological wellbeing of the dying patient includinghis/her family during this sensitive time, and various determining factors will influence their journey (Sivesind and Baile, 2001).According to the International Association for Hospice and Palliative Care (2009), WorldHealth Organisation (2009) and Travis and Mitchell (2007) palliative care is a human rightand is provided to those who have been diagnosed with a terminal illness. Palliative carefocuses on easing the transition from life to death. According to Clarke (2009) palliative careis a healthcare service that many people are unaware of, yet could be considered as one of themost important healthcare services one might ever receive. Palliative care promotes patientsdignity, respect and autonomy, providing the physical and emotional support to achieve a