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conselho nacional de ética para as ciências da vida 2012_parecer [64 2012], sobre um modelo de deliberação para financiamento do custo dos medicamentos [21 setembro]

conselho nacional de ética para as ciências da vida 2012_parecer [64 2012], sobre um modelo de deliberação para financiamento do custo dos medicamentos [21 setembro]

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Published by luiz carvalho

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Published by: luiz carvalho on Sep 29, 2012
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10/03/2012

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JNKZDELN KMJHNKME FD ÈVHJM _MPM MZ JHÁKJHMZ FM SHFM
36.JKDJS.0?=0
JNKZDELN KMJHNKME FD ÈVHJM_MPM MZ JHÁKJHMZ FM SHFM
_MPDJDP ZN@PD TG GNFDEN FD FDEH@DPMÉÊN_MPM CHKMKJHMGDKVN FN JTZVNFNZ GDFHJMGDKVNZ
,Zdvdg`n fd 0?=0(
 
 
JNKZDELN KMJHNKME FD ÈVHJM _MPM MZ JHÁKJHMZ FM SHFM
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Hkvnftéên
 N pdfhfn cngtemfn pn Ztm D|jdeákjhm n Ghkhzvn fm Zmñfd fhq dzpdhvn ï dem`nméên fd tg _mdjdzn`d m ctkfmgdkvméên èvhjm pmm n chkmkjhmgdkvn fd váz itpnz fd cígmjnz% m zm`d dvnshmhz pmmfndkvdz SHL"% gdfhjmgdkvnz nkjneúihjnz d gdfhjmgdkvnz `hneúihjnz dg fndkvdz jng mvhvd dtgmvnh'fd+Kên cnmg d|pehjhvmfnz dg fdvmeld nz jhvèhnz aí tzmfnz pn meitkz lnzphvmhz dzvmvmhz ,
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( km m}thzhéên fdmeitkz fdzvdz cígmjnz% gmz mpdkmz hkfhjmfnz nz itpnz cmgmjneúihjnz dksneshfnz% fnz }tmhz è jnkldjh'fm m dsnetéên fnz jtzvnz ,sd Mkd|n H
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( }td dpdzdkvm dedsmfm cmvhm km cmvtm fnz jthfmfnz fd zmñfdlnzphvmemdz dzpdjhmehqmfnz+N pdfhfn fd _mdjd dcdd jemmgdkvd }td mz gdfhfmz dg mpdén zd dk}tmfmg km kdjdzzhfmfd fd ztzvdk'vm`hehfmfd fn ZKZ d mpnkvm jngn dzzdkjhme m immkvhm fd mjdzzn mnz jthfmfnz fd zmñfd pn pmvd fd vnfnznz jhfmfênz+N JKDJS fdfhjnt aí pmvhjtem mvdkéên ï dced|ên zn`d
dzvm vdgívhjm kn zdt zdghkíhn ―
CtkfmgdkvnzÈvhjnz kmz _hnhfmfdz dg
Zmñfd‗%
dmehqmfn dg 08 fd knsdg`n fd 0?== km Ctkfméên Jmentzvd Ite`dk'bhmk% dg Ehz`nm ,JKDJS% 0?=0(+Kdzvd zdkvhfn% vdg'
zd pdzdkvd }td ―
m dzvhéên némgdkvme dzví jemmgdkvd dzvm`dedjhfm mn kçsde fm fdzpd'zm pñ`ehjm dg gdfhjmgdkvnz% pn shm fn Gdgnmkfn fd Dkvdkfhgdkvn mzzhkmfn jng m Jnghzzên Vhpm'vhfm Jnghzzên Dtnpdhm
 ‖ 
@mkjn Jdkvme Dtnpdt
 ‖ 
Ctkfn Gnkdvíhn Hkvdkmjhnkme+ Fmfm dzvm dzvh'éên jemm% è hgpnvmkvd zm`d }tme n imt fd d|hiákjhm pdzdkvd+ M dzpnzvm è hitmegdkvd jemm
 ‚ 
è tgmjnkfhéên fd imkfd d|hiákjhm+ N`him m `mh|m dg jdjm fd =.: m fdzpdzm pñ`ehjm dg gdfhjmgdkvnz cmjd mntvt`n fd 0?=?+
Smed m pdkm sd jng meitgm mvdkéên nz kñgdnz dksneshfnz+‗
,_hvm @mnz% 0?==(+Dg }tme}td jmzn% pn}td lí tgm fhgdkzên èvhjm kn mjhnkmgdkvn fnz jthfmfnz fd zmñfd }td hgpnvmd|pehjhvm% dzvd mjhnkmgdkvn
 ‚ 
}tmkfn d|hzvm
 ‚ 
fdsd zd vnkmfn vmkzpmdkvd mnz jhfmfênz d pnchzzhnkmhzfd zmñfd% smenhqmkfn nz djtznz fhzpnkçsdhz jngn tg hkdzvhgísde `dg znjhme mn zdshén fm znehfmhdfm'fd d tkhsdzmehfmfd+Mpdzm fd m gmhn pmvd fn fd`mvd zn`d imzvnz d phnhfmfdz dg zmñfd zd jdkvm knz dsdkvtmhz imzvnzmfhjhnkmhz% lí vmg`èg }td% kn jnkvd|vn fn Zdshén Kmjhnkme fd Zmñfd ,ZKZ(% dmsmehm d hkvdsh fd cn'gm vmkzpmdkvd km dsdkvtme zt`zvhvthéên% fdzhksdzvhgdkvn% nt ztzpdkzên fd zdshénz nt hkvdsdkéôdz mvt'megdkvd aí jtzvdmfnz pden ZKZ+ Zdg dg`min fn fdzhksdzvhgdkvn kmz fdzpdzmz fd zmñfd pnfd njnd
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Jdkvn Lnzphvmem fd Z+ Anên% D_D2 Jdkvn Lnzphvmem fd _úsnm fd Smqhg.Shem fn Jnkfd% D_D2 Jdkvn Lnzphvmem fd Dkvd n Fntn d Sntim%D_D2 Jdkvn Lnzphvmem fd Víz'nz'Gnkvdz d Mevn Fntn% D_D2 Jdkvn Lnzphvmem fd Shem Knsm fd Imhm.Dzphkln% D_D2 Jdkvn Lnzphvmem fn MevnMsd% D_D2 Jdkvn Lnzphvmem fn Gèfhn Msd% D_D2 Jdkvn Lnzphvmem fn _nvn% D_D2 Jdkvn Lnzphvmem fn Vàgdim d Zntzm% D_D2 Lnzphvme fd@mim2 Lnzphvme Zmkvm Gmhm Gmhn% D_D2 Tkhfmfd Enjme fd Zmñfd fn Knfdzvd% D_D2 Tkhfmfd Enjme fd Zmñfd fd Gmvnzhklnz% D_D2 TkhfmfdEnjme fd Zmñfd fn Mevn Ghkln% D_D+
 
 
JNKZDELN KMJHNKME FD ÈVHJM _MPM MZ JHÁKJHMZ FM SHFM
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dg }tme}td gngdkvn nt dg }tme}td jnkvd|vn% ded è gmhz pdgdkvd dg jnkvd|vnz fd dftéên nt dzjmz'zdq fd djtznz+M d|pehjhvméên fd phnhfmfdz kn pemkdmgdkvn d km hgpedgdkvméên fnz jthfmfnz fd zmñfd jnkzvhvth tgpnjdfhgdkvn ediçvhgn d kdjdzzíhn dg }tme}td pneçvhjm fd zmñfd jnkvdgpnàkdm ,Yheehmgz% 0?=0(+M }tdzvên kên dzví km jnkvdkéên fd jtzvnz dg zh gdzgm% zdgpd hkdshvísde pn gmhndz }td zdamg nzdjtznz% gmz km dzpnkzm`hehfmfd mjhnkme fm dzjnelm fd phnhfmfdz d km dchjíjhm fm etvm jnkvm m hkdchjh'ákjhm d fdzpdfçjhn km ídm fm zmñfd+ N pnkvn dzví dg }td zd pmzzd fn mvtme mjhnkmgdkvn hgpeçjhvn
 ‚ 
}tdgthvnz fdcdkfdg lí fèjmfmz jngn dvhjmgdkvd d pnehvhjmgdkvd hkmjdhvísde ,Ztegmzx% =880( d }td dzví mnzm`n fd jnkvhkiákjhmz gñevhpemz% pn sdqdz tkhemvdmhz% fnz jeçkhjnz nt fd ntvnz fdjhzndz lnzphvmemdz
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 pmm tgm dzjnelm d mjhnkmgdkvn d|peçjhvn d vmkzpmdkvd% dg fhíenin jng nz jhfmfênz }td fdsdg zdhkcngmfnz ,pn}td kmfm zt`zvhvth m pmvhjhpméên fdgnjívhjm(% pmm }td mzzhg zd gmkvdklm hkvmjvm m jnk'chmkém fnz fndkvdz knz pnchzzhnkmhz fd zmñfd d kn ZKZ d gm|hghqd m dzpnkzm`hehfmfd fnz fdjhzndz+_mm m dem`nméên fn fnjtgdkvn cnmg hfdkvhchjmfnz jngn dzvtvtmkvdz nz zdithkvdz pnkvnz1
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Gnfdenz fd atzvhém
1 mz gdfhfmz mfnvmfmz ,mjhnkmehqméên fm ncdvm fd vdjknenihmz fm zmñfd% mid'iméên fd pnjdzzn fd m}thzhéên fd gdfhjmgdkvnz% dzjnelm d fhzpdkzm fd tg kñgdn ehghvmfn fd midkvdzvdmpátvhjnz jng m gdzgm chkmehfmfd( pmdjdg jnkzt`zvmkjhm tgm gtfmkém fd pmmfhigm dg deméên mtgm shzên hitmehvmhzvm fn phkjçphn fm atzvhém
,―gmhn `dg pmm n gmhn kñgdn‗(
2 mn gnfden mkvdhnvnkm'zd kdjdzzíhn hkvnftqh ntvnz pdzztpnzvnz }td mzzdkvmg dg gnfdenz jng jmívd jnkzd}tdkjhmehz'vm d tvhehvmhzvm+ Fd mjnfn jng Gmhm fn Jèt _mvên Kdsdz d Ymevd Nzzymef ,0??9(% nz fhsdznz gnfdenzfd atzvhém km fhzvh`théên fd djtznz fdsdg zd jnkzhfdmfnz dg jnkatkvn km pnjtm fd tgm dzpnzvmzmvhzcmvúhm ïz fhcddkvdz pdnjtpméôdz+
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M hkfdpdkfákjhm vèjkhjm fnz pdzjhvndz
1 Nz gèfhjnz vág n fdsd fd pmvhjhpm% pdem pnkfdméênfm ztm mvhshfmfd fd pdzjhvndz% km jnkvdkéên fd jtzvnz ,
0
(+ M hkvdihfmfd% m vmkzpmákjhm% m pt`ehjhfmfd%m jnkzhzvákjhm d m ghkñjhm zên }tdzvôdz }td fdsdên dzvm km `mzd fnz pnvnjnenz }td ctkfmgdkvdg mzmkíehzdz fd jtzvn'dcdvhshfmfd dg }td zd ztzvdkvmg mz fdjhzôdz pneçvhjmz d }td zdên n`advn fd mkíehzd kdzvdpmdjd+
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N fhdhvn mnz gdelndz jthfmfnz
1 N pmpde jdkvme fd tg Zdshén Kmjhnkme fd Zmñfd% jng mz jmm'vdçzvhjmz jnkzvhvtjhnkmhz fn jmzn pnvtitáz% km immkvhm fd tkhsdzmehfmfd fd mjdzzn d km diteméên kmd}thfmfd fm fhzvh`théên fd djtznz% kên pnfd fdh|m fd zd vhfn dg jnkzhfdméên+ N fhdhvn fd mjdzzn fdvnfnz nz jhfmfênz mnz jthfmfnz fd zmñfd% mhkfm }td mjhnkme d vmkzpmdkvd% kên dznesd% pn zh zú% n pn'
 
,
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( Júfhin Fdnkvneúihjn fm Nfdg fnz Gèfhjnz ' Pditemgdkvn k+± =6.0??8% Fhíhn fm Pdpñ`ehjm% 0+¡ zèhd ' K+± < '=: fd amkdhn fd 0??8 ' Mvhin ===+± ,Pdzpnkzm`hehfmfd(+

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