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Table Of Contents

Foreword
Preface
Phil
Juaquetter
Linda
Bill
Laural
Judy
John
Kathleen
Barbie
Jane
Kelly
Hilary
Robert
Annie
Eric
Jackie
Liane
Richard
Wendy
Kris
Maureen
Luis
Amelia
Kaley
Lisa
Julie
Margot
P. 1
My Story: A Photographic Essay on Life with Multiple Sclerosis

My Story: A Photographic Essay on Life with Multiple Sclerosis

Ratings:

4.38

(13)
|Views: 34 |Likes:
Published by Demos Health
"In a series of dramatic essays and photographs by the renowned San Francisco-based photographer Amelia Davis, My Story is an evocative description of what it is like to live with multiple sclerosis (MS), a disease that affects about 350,000 Americans and whose cause is still not entirely known. The essays and accompanying photographs in this highly engaging, beautifully illustrated book poignantly portray the lives of thirty-two men and women from the ages of seventeen to seventy and of various ethnicities, and socio-economic backgrounds who share the challenge of living with MS. Some, like Amelia, use no mobility aids, while others use canes, wheelchairs, or electric scooters. All have had to face the challenges and limitations that MS has imposed upon their lives, and each has devised unique and often creative coping strategies.Accompanying each essay are commentaries by family members and friends that express their own personal feelings and experiences of living with this disease.Here are the inspirational stories of women, men, and children who live with this disease. Many have children; one or two are currently expecting them. Treatments and therapies for slowing the progression of the disease are revealed and shared, from the latest advances in prescription medication to alternative methods of coping, including yoga, exercise and competitive sports, creative activities such as writing and art, and even community activism. A wide range of accompanying stories by spouses, children, and other loved ones depict the ups and downs of living and caring for someone who has MS, from the moment of first diagnosis to dealing with its ongoing challenges. All are strong reminders of the selflessness of the human spirit, and its ability to nurture and remain strong under even adverse circumstances.Highly motivating and deeply inspirational, My Story will be welcomed by anyone who lives with or shares the life of someone who has MS. ";"One box of tissues wasn't nearly enough. -- about.com""Amelia Davis was diagnosed with multiple sclerosis five years ago, just before her 30th birthday. After that, she learned she could live a full life with the disease, and to share that fact with others she undertook a personal project to photograph people living with MS, including such public figures as NASCAR driver Liane Mark, actor David Lander (Squiggy of Laverne and Shirley TV fame), and comedian Richanrd Pryor. Her images have been collected in a warm and enlightening new book, My Story, which has been receiving strong reviews."" -- American Photo ""This positive and inspiring portrait will be welcomed by anyone who lives with MS or shares the life of someone who has MS. Highly recommended for all general collections."" -- Library Journal""In creating her new book, 'My Story: A Photographic Essay of Life With Multiple Sclerosis', Davis learned a lot more about MS and the people who have it. Thirty-one of them -- and many of their caregivers -- join her to trash stereotypes, confront fears, offer hope, tell the truth and put 32 faces on a mysterious illness that is often misunderstood."" -- San Francisco Chronicle""...My Story is a browsable compilation of essays depicting the many humanfaces of MS. Although the complexity of language varies throughout, thephotographs are accessible, even to new readers. The images greatly enrichthe text, offering encouragement and inspiration for anyone coming to termswith what it means to be a person with multiple sclerosis."" -- Consumer Connections ""You will keep this book in easy reach to read repeatedly - keep it by your bed, near your desk, close to your recliner, but buy it and keep it nearby because when you need inspiration, you will find it in these pages."" -- MS World"
"In a series of dramatic essays and photographs by the renowned San Francisco-based photographer Amelia Davis, My Story is an evocative description of what it is like to live with multiple sclerosis (MS), a disease that affects about 350,000 Americans and whose cause is still not entirely known. The essays and accompanying photographs in this highly engaging, beautifully illustrated book poignantly portray the lives of thirty-two men and women from the ages of seventeen to seventy and of various ethnicities, and socio-economic backgrounds who share the challenge of living with MS. Some, like Amelia, use no mobility aids, while others use canes, wheelchairs, or electric scooters. All have had to face the challenges and limitations that MS has imposed upon their lives, and each has devised unique and often creative coping strategies.Accompanying each essay are commentaries by family members and friends that express their own personal feelings and experiences of living with this disease.Here are the inspirational stories of women, men, and children who live with this disease. Many have children; one or two are currently expecting them. Treatments and therapies for slowing the progression of the disease are revealed and shared, from the latest advances in prescription medication to alternative methods of coping, including yoga, exercise and competitive sports, creative activities such as writing and art, and even community activism. A wide range of accompanying stories by spouses, children, and other loved ones depict the ups and downs of living and caring for someone who has MS, from the moment of first diagnosis to dealing with its ongoing challenges. All are strong reminders of the selflessness of the human spirit, and its ability to nurture and remain strong under even adverse circumstances.Highly motivating and deeply inspirational, My Story will be welcomed by anyone who lives with or shares the life of someone who has MS. ";"One box of tissues wasn't nearly enough. -- about.com""Amelia Davis was diagnosed with multiple sclerosis five years ago, just before her 30th birthday. After that, she learned she could live a full life with the disease, and to share that fact with others she undertook a personal project to photograph people living with MS, including such public figures as NASCAR driver Liane Mark, actor David Lander (Squiggy of Laverne and Shirley TV fame), and comedian Richanrd Pryor. Her images have been collected in a warm and enlightening new book, My Story, which has been receiving strong reviews."" -- American Photo ""This positive and inspiring portrait will be welcomed by anyone who lives with MS or shares the life of someone who has MS. Highly recommended for all general collections."" -- Library Journal""In creating her new book, 'My Story: A Photographic Essay of Life With Multiple Sclerosis', Davis learned a lot more about MS and the people who have it. Thirty-one of them -- and many of their caregivers -- join her to trash stereotypes, confront fears, offer hope, tell the truth and put 32 faces on a mysterious illness that is often misunderstood."" -- San Francisco Chronicle""...My Story is a browsable compilation of essays depicting the many humanfaces of MS. Although the complexity of language varies throughout, thephotographs are accessible, even to new readers. The images greatly enrichthe text, offering encouragement and inspiration for anyone coming to termswith what it means to be a person with multiple sclerosis."" -- Consumer Connections ""You will keep this book in easy reach to read repeatedly - keep it by your bed, near your desk, close to your recliner, but buy it and keep it nearby because when you need inspiration, you will find it in these pages."" -- MS World"

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Published by: Demos Health on Mar 14, 2013
Copyright:Traditional Copyright: All rights reservedISBN:9781932603019
List Price: $19.95

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04/06/2014

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momsnotall reviewed this
Rated 4/5
When researching My Story by Amelia Davis I found this quote:"...[offers] encouragement and inspiration for anyone coming to terms with what it means to be a person with [MS]." -- Consumer Connections, Winter 2004I think this is the perfect description of this book. My Story: A Photographic Essay on Life with Multiple Sclerosis uses photographs along with short essays giving us a glimpse into the lives of 32 people living with MS. Contributors share the story of their life and how Multiple Sclerosis has changed them as well as the things they discovered that stay the same no matter what life throws at you. Photographs by Amelia Davis accompany each essay showing us the faces behind MS.For every essay written by a person with Multiple Sclerosis in this book there is a companion essay written by their caregiver. Behind every person with a chronic illness be it MS or something else there is always someone and often a lot of someones caring for those people. If not physically then mentally and emotionally. not for a second can the plight of the individuals with the illness be downplayed, but those surrounding and supporting those people must not be forgotten, My Story does a wonderful job of including these people while at the same time not taking away from the individuals they are caring for.
masterdeski reviewed this
Beautiful pictures offset uplifting and encouraging text. I would definately recommend this to anyone who knows someone with MS, becuase it also illustrates how the disease affects those around the patient, and gives examples of what they can do for their loved ones.
kwoman reviewed this
Rated 5/5
This book was well written, giving the reader the insight as to what occurs not only with MS patients, but their caregivers as well. Given the fact that my daughter's teacher has a husband who has MS, it has given me a whole new respect for her as to her role as caregiver. A definite must read!!
madhousemirror reviewed this
Rated 5/5
This book is beautiful and poignant. I really enjoyed the diversity in stories. From families, singles, different faiths, spiritualities, sexes, races, and sexualities. This book did a phenomenal job of exploring the whole host of backgrounds that are effective by MS. I especially enjoyed the extra effort to tell the “families” story. In most of the stories, someone closely involved in support or care of the storyteller was also included. The pictures were marvelous. I enjoyed the artistic simplicity where she managed to fully capture the essence of everyone in the book. I am donating this book to my library for the multitudes of local people who can find inspiration in this warm and touching look at the human side of MS.
lg4154 reviewed this
Rated 5/5
I really did like this book. It is wonderfully done and I like how each chapter focuses on a different person & their loved ones. The pictures are fantastic and I really like the format of this book. I recommend it to young & old people alike.
nolly_1 reviewed this
Rated 4/5
I have not had timeyet to read this book cover to cover. I have, however, flipped through, reading bits and pieces of several of the profiles, and based on my sampling, I think this is the book I have been looking for since my own diagnosis in 2006. It's hard to explain to people -- including myself, and especially my family -- just what a diagnosis of MS means, because it means so many different things to different people. By profiling so many different people, with varying approaches to life, and varying ability levels, this book presents a broader picture than most of the ones I have previously seen.I anticipate expanding this review once I"ve read the book more thoroughly.
thejensays reviewed this
Rated 5/5
Great example of the uniqueness of people and the many different positive approaches that can be taken when living with a debilitating disease. This book is full of many powerful stories with many inspirational people from all walks of life.
jessica1646 reviewed this
Rated 3/5
This book is a touching recount of stories of those impacted by multiple sclerosis. The stories are touching and the photographs are engaging. This book appeals to those personally affected by multiple sclerosis. This is a quick and easy read. I believe this would be most interesting to those who have multiple sclerosis or whose family members are affected by this disease. It is really an inspirational book and the stories are about everyday people.

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