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Rare Disease Impact Report: Insights from patients and the medical community

Rare Disease Impact Report: Insights from patients and the medical community

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Published by Giovanny Leon
Shire Launches Report that Quantifies the Health, Psycho-social and Economic Impact of Rare Diseases.
New findings reveal the substantial burden of rare diseases due to lack of resources, financial challenges and emotional unrest
Shire Launches Report that Quantifies the Health, Psycho-social and Economic Impact of Rare Diseases.
New findings reveal the substantial burden of rare diseases due to lack of resources, financial challenges and emotional unrest

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Categories:Types, Research
Published by: Giovanny Leon on Apr 12, 2013
Copyright:Attribution Non-commercial

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06/27/2013

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Rare Disease Impact Report:
Insights from patients and the medical community 
 April 2013
This report was commissioned by Shire Human Genetic Therapies and developed in collaboration with an external advisory board.
 
Table of Contents
Foreword ............................................................................................1 Acknowledgments ..............................................................................2Introduction ........................................................................................3Methodology ......................................................................................4Combined Summary of Key Findings ................................................6Patient/Caregiver Findings .................................................................9Physician Findings ...........................................................................17Payor Findings..................................................................................21 Appendix .........................................................................................24

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