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18th Executive UNITAID Board Meeting, June 6-7, 2013 (Geneva)

18th Executive UNITAID Board Meeting, June 6-7, 2013 (Geneva)

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The Talking Points of the Communities Delegation during the 18th Executive UNITAID Board Meeting
The Talking Points of the Communities Delegation during the 18th Executive UNITAID Board Meeting

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Categories:Types, Speeches
Published by: Gracia Violeta Ross Quiroga on Jun 07, 2013
Copyright:Attribution Non-commercial


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Executive UNITAID Board Meeting (Geneva-Switzerland)6-7 June, 2013Communities Delegation`s Talking pointsBoard Member: Nelson Otowoma (Absent with apologies)Alternate Board Member: Gracia Violeta Ross Quirogagraciavioleta@gmail.com 
Report of FAC (Finance and Accountability Committee) self assessment+++Ethics committee
Recalling the call of the chair in the 17
Executive Board minutes (pp18):
The CHAIR noted that there are ethical issues in relation to confidential information. He suggested that setting up a UNITAID ethics committee would be
The Communities Delegation expresses its strong interest on participating onthe conformation and work of such committee. With concern we noted thatUNITAID has a conflict of interest policy which has been approved 6 years agoand has not been updated since.We all have conflicts of interest and it is very important we address and disclosethose regularly and implemented for all board members.Having made an analysis of our involvement on this board, we note that ascommunities living with HIV, TB and malaria we have an interest, which is LIFE, ACCESS, EQUITY and HUMAN RIGHTS for all people in need.
+++Fundraising Strategy and Resource Mobilization Plan ready by the endof 2013
Secondly, we noted the UNITAID strategy will have a
Fundraising Strategy andResource Mobilization Plan ready by the end of 2013; the CommunityDelegations wants to be engaged considering our experience in fundraising andengagement of country level stakeholder, use the expertise of us who are livingwith the diseases every day.
Proposal Review Committee (PRC) Evolution
In regards to the potential new members in the PRC, we want to remind theboard of the experience that lies in COMMUNITY MEMBERS LIVING WITHTHE DISEASES, there are many global organizations such as UNFPA,UNAIDS, UN Women that are beginning to acknowledge the experience of 
community based individuals and organizations, because we are on the ground,we know what works and what does not, we accumulated years of experienceliving with the diseases to the point that we have, sometimes, better expertisethan the experts themselves, this is why consultants come to our countries andask us what to do for HIV, TB and Malaria. We want this knowledge to serveUNITAID. We take the medications that UNITAID pays for.We want to stress the importance of having and independent group of expertsthat are conscious of UNITAID conflict of interest policy, this is essential for our accountability as a leading global entity in HIV, TB and malaria.The Communities Delegation would like to be involved in the nomination of thePRC membersin whatever format it comes to be. 
KPI (Key Performance Indicators)
The Communities Delegation welcomes the document but need to see a focuson a framework more than words and terminology, the links with:
The Strategy and its implementation plan
A M&E plan
And the Resource and Mobilization Plan which is meant to be ready bythe end of 2013, this link is essential.In addition, the KPIs have to integrate aspects of:
results framework
impact assessment
even considering unintended consequences of UNITAID interventions,specially the one related to market interventions.
Management response to the 5 Year Evaluation+++Communities living with the diseases as strong UNITAID partners
Thanks for the inclusion of civil society among UNITAID partners at countrylevel, especially communities living with the 3 diseases.
This re affirms inpractice the important role that UNITAID places in communities in countryresponses.Some of you might know the Communities Delegation has a CommunitySupport Team whose ToR are being up dated in order to support better thework of UNITAID`s work at country level.We can help in all the areas UNITAID works, but especially in those related toresource mobilization and advocacy that favors all the issues contained inUNITAID`s mission.
+++Work of UNITAID with MICs (Middle Income Countries) for marketimpact interventions
In regards to the response to the 5 year evaluation, the CommunitiesDelegations welcomes the document, but we want to make a plea in relation toRecommendation No. 3, and the work of UNITAID across income countrygroups.The 5 Year Evaluation stated that our weakest area is market intervention, thisis the heart of UNITAID and we want to remind you that in order to achieve thisgoal, we have to work with Middle Income Countries (MICs) in a more proactiveway.We commend UNITAID for co-sponsoring a meeting with MICs together withBrazil and the Medicines Patent Pool (MPP) ad UNAIDS, next week in Brazil,we are confident, this meeting will give us insights, strategies on how to workbetter with these countries and not only the BRICS (Brazil, Russia, India, China,South Africa) countries but also the small MIC countries.
Improvement of HIV first line treatments
This proposal is critical for us living with HIV, so many years we have seen our friends and colleagues dying of lactic acidosis, peripheral neuropathy, sufferingand dying needlessly. This proposal will improve our quality of life and we want tthank you for this great idea. I wish the science and funds had been availablebeforeThe Communities Delegation thanks the reference to the Treatment 2.0 WHOstrategy in the document, and we would like to remind board members about 1of the 5 pillars of the Treatment 2.0 strategy without which, success might beslow, we are referring to the pillar on MOBILIZATION OF COMMUNITIES,because we are essential for:
Community based work for treatment adherence including literacy andpreparedness for the switch of ARV (antiretroviral) regimes
Advocacy for treatment policies at country level and mobilizing countryownership, mobilizing policy changes in our national HIV programs tospeed the process of the adoption of the most up to date ARV guidelines
Oppositions to potential intellectual property barriers which arementioned in the proposal, we are very concerned about ongoing freetrade agreements between India and the European Union and thepotential impact of that for the entire developing world.
We can also evaluate and monitor programs, prevent potential frauds,watch the supply chain, pricing or over pricing of these drugs, stock outs,quantifications, and specially creating a massive demand of communitiesfor having a better and less toxic regime.

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