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Best Practices in Programmatic Management of Drug-Resistant Tuberculosis PMDT in India - Publication

Best Practices in Programmatic Management of Drug-Resistant Tuberculosis PMDT in India - Publication

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CNS, with support from Lilly MDR TB Partnership, had visited 14 key PMDT (Programmatic Management of Drug-resistant Tuberculosis) sites in India during first quarter of 2013 and reviewed as to what extent the PMDT guidelines of India are in place on four key themes: counselling, infection control, diagnostics and laboratory services, and treatment and care services. This report was handed over to Dr Syeda Hameed, Member Planning Commission and Chair of Health Cluster of Planning Commission on 29 July 2013, among other authorities such as Central TB Division, Government of India, among others.
CNS, with support from Lilly MDR TB Partnership, had visited 14 key PMDT (Programmatic Management of Drug-resistant Tuberculosis) sites in India during first quarter of 2013 and reviewed as to what extent the PMDT guidelines of India are in place on four key themes: counselling, infection control, diagnostics and laboratory services, and treatment and care services. This report was handed over to Dr Syeda Hameed, Member Planning Commission and Chair of Health Cluster of Planning Commission on 29 July 2013, among other authorities such as Central TB Division, Government of India, among others.

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Published by: bobbyramakant on Jun 19, 2013
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Best Practices in PMDT in India | July 2013
2
 
This publication is a five-part series on
“Best Practices in Programmatic
Management of Drug-
resistant Tuberculosis (PMDT) in India” that Citizen
News Service
CNS did with support from Lilly MDR TB Partnership inIndia during January-June 2013. The views expressed in these articles arethose of the commentators, and the persons interviewed by CNS.Editor: Shobha Shukla
CNSEmail: shobha@citizen-news.org
July 2013
DISCLAIMER 
:
 
This report has been generated in consonance with CNS and Lilly MDR-TBPartnership, a Corporate Responsibility initiative of Eli Lilly and Co. (India) Pvt. Ltd. after asurvey and a detailed research to generate recommendations on Management of DrugResistant Tuberculosis across India. This report so generated focuses on best practices inPMDT at selected sites in India. The recommendations and the information of theinfrastructure shall in no way be construed as promotion of specifically covered institutions.This report shall in no way be considered a substitute to any personalized advice of HealthCare Providers on the disease state of an individual.The interviews of Nurses, support staff or HCPs are only limited to suggestions and the bestpractices of various institutes and hence in no way intended to harm image of any institutionthat does not have practices that are alike. The expression of opinion or view point aregeneral in nature and any reference to any person, living or dead, is coincidental and with nointent to harm any personal interest.The report conceived after survey and research and public disclosure of the same has beendone based on the consent of respective stakeholders including but not limited to picture/images of Patients, Nurses and HCPs.This report has been generated in Public interest and for the wellbeing of the society.
 
Citizen News Service - CNS
C-2211, C-block crossing, Indira Nagar, Lucknow-226016. India
M: +91-98390-73355 | E: editor@citizen-news.org | W: www.citizen-news.org
 
Best Practices in PMDT in India | July 2013
3
 
Introduction 4Part I: InfectioncontrolWhat did we find at PMDT sites we visited? 10Recommendations 21Part II: CounsellingWhat did we find at PMDT sites we visited? 24Recommendations 47Part III: Diagnosticsand laboratoryservicesRNTCP approved diagnostic tests in India 50Flow of specimen from periphery to C-DST laboratory 53Costing of unit test at a laboratory 54What did we find at PMDT sites we visited? 55Recommendations 71Part IV: Treatmentand careWhat did we find at PMDT sites we visited? 75Recommendations 93
   P  a  r   t   V  :   P  e  r  s  o  n  a   l  s   t  o  r   i  e  s  o   f   M   D   R  -   T   B   /   X   D   R  -   T   B  p  a   t   i  e  n   t  s  a  n   d   M   D   R  -   T   B  s  u  r  v   i  v  o  r  s
When he vomited blood one day
96
A pain in chest
97
Persistent low grade-fever & cough
98
Listen to me as I do not want anyone to go through what I amexperiencing
99
Adhering to treatment, but lost hearing power irreparably
101
TB rebounds, with drug resistance
102
From private to PMDT: Journey of a priest from TB to MDR-TB
103
“I wish if there was a vaccine to control its spread…”
 
104
Deserted by family, divorced by wife, PMDT become his new family
105
With family’s support, he is determined to complete the treatment
 
107
Aspiring for size zero, acquires TB
109
Instead of heralding social change, she turned positive for TB
110
Surviving bravely despite TB, diabetes, other health concerns
112
He never thought he can ever get TB!
114
Misdiagnosed as typhoid but had TB
115
TB is not only a poor person’s disease!
 
117
Going to college with treatment alongside
118
After a whirlwind search for cure, found relief at PMDT site in Delhi
119
Blew up more than cost of MDR-TB treatment in private sector
120
Deserted
by husband’s family, she needs an oxygen cylinder to
breathe
121
MDR-TB survivor also bravely battles against a rare genetic disease
123
We can stop TB: With a little bit of love and a pinch of will power
126Annexure I
Patients’ Charter for
Tuberculosis Care 129Annexure II What PMDT Guidelines say on infection control? 133Annexure III What PMDT Guidelines say on counselling? 134Annexure IV What PMDT Guidelines say on diagnostics and laboratoryservices?135Annexure V What PMDT Guidelines say on treatment and care? 137Annexure VI What PMDT Guidelines say on treatment outcome definitions? 139

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