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PhysioPod Review their Attendance at The Lipoedema Ladies Second AGM in Leeds, September 2013

PhysioPod Review their Attendance at The Lipoedema Ladies Second AGM in Leeds, September 2013

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Published by David Johnson
PhysioPod UK Ltd provide feedback on their presentation of DEEP OSCILLATION electrostatic massage therapy at The Lipoedema Ladies Second Annual General Meeting.
PhysioPod UK Ltd provide feedback on their presentation of DEEP OSCILLATION electrostatic massage therapy at The Lipoedema Ladies Second Annual General Meeting.

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Published by: David Johnson on Oct 09, 2013
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PhysioPod Review their Attendance at The Lipoedema Ladies Second AGM in Leeds,September 2013
 PhysioPod UK Ltd provide feedback on their presentation of DEEP OSCILLATION electrostaticmassage therapy at The Lipoedema Ladies Second Annual General Meeting.
Nottingham, Nottinghamshire, UK, October 09, 2013
-- The BIG MEET UP 2013 of LipoedemaLadies was held on 21st/22nd September at The Leeds Plaza Hotel. It was truly lovely to meet thepassionate, inspiring and glamourous "A" team of Lipoedema Ladies UK Support Group; aka IsobelMacEwan, Joanne Bird, Michelle Ellis (of Wingz) and Cara Jones. All four ladies have Lipoedemaand share in a very strong belief that they will, in their lifetime and with the help and support ofworldwide healthcare professionals, find a "cure" for Lipoedema, not only for themselves, but fortheir daughters and grand-daughters too.
What is Lipoedema?
Lipoedema (NOT Lymphoedema) is a chronic, hereditary and genetic disorder of the adipose tissue(or body fat) which is both disfiguring and painful. It predominantly effects women (although mencan also suffer) from the age of puberty and beyond and sufferers may have a normal slim bodyshape and then suddenly, without changes made to diet or exercise regime, become fatter and fatterbelow the waist. Hips and legs become hugely disproportioned to the upper body and in some cases,upper arms are effected too. As Lipoedema progresses, additional, expanding fat cells interfere withthe pathways of lymphatic vessels and sufferers can develop secondary Lymphoedema and it thenbecomes known as Lipo-Lymphoedema. The effects of Lipoedema on the patient can also causegreat mental trauma for the sufferer.
Who are Lipoedema Ladies?
Lipoedema Ladies support ladies all over the UK with Lipoedema via a popular online website andprivate forum. They raise awareness whenever and wherever they can. The website includes articleson lifestyle, fashion, exercise and beauty, with dietary advice, tips and receipes. Medical matters areaddressed though specific advice should be referred to a local lymphoedema service or GP.Lipoedema Ladies help in clinical trials and questionnaires for the NHS, private health companiesand therapists and undertake the testing of therapies and treatments aimed at Lipoedema sufferers,for private companies and individuals. Their aim is to bring awareness of Lipoedema to medics andthe women living with Lipoedema who are unaware.
Who are Lipoedema UK?
Lipoedema Ladies work closely with Lipoedema UK, whose board include Councillor SuzanneEvans as Chair, with Lead Research Co-ordinator Sharie Fetzer, both lipoedema sufferers. Theyhave medical support from St Georges Hospital, including the highly-respected, Professor PeterMortimer (Lipoedema UK Patron) and Consultant Nurse, Sandy Ellis. Lipoedema UK have a three-fold mission to: Raise awareness, Promote good treatment, Commission and fund research.Lipoedema UK have conducted the first patient survey ever on Lipoedema and the results will beannounced at The British Lymphology Annual Conference on 6th/7th/8th October in Birminghamto be held at the ICC. The results of this will be crucial to help lobby the medical profession and theGovernment to initiate better care pathways, raise awareness and identify new research possibilities.As part of the conference, there will be a whole session set aside for Lipoedema & Obesity.Catherine Seo Ph.D. will present at the Conference with other leading speakers on the subject.Although Lipoedema was first recognised in the US in the 1940s by The Mayo Clinic, very littleresearch has been done into the disease. It is not in medical text books or taught in medical schools
 
and so few health professionals even know it exists. As a result, Lipoedema is frequentlymisdiagnosed as obesity and sufferers do not get the appropriate treatment or advice; and secondaryhealth problems such as osteoarthritis, varicose veins, lymphoedema, eating disorders and disabilitydevelop all too frequently. The NHS recognised Lipoedema as a condition in October 2012.
The BIG MEET UP 2013!
The Two Day Lipoedema Ladies event began with a "Hello and Welcome" video message from DrKaren L. Herbst Ph.D M.D Patron of Lipoedema Ladies. Dr. Herbst was voted as one of SanDiego’s top doctors in San Diego Magazine 2009 and in the "Guide to America's Top Physicians"in 2013. Day One Speakers included: Guy Slater MBBS, FRCS, Consultant Surgeon, whospecialises in laparoscopic surgery and bariatric surgery who began the days events with a veryinteresting presentation on bariatric surgery and Lipoedema. Jane Harding Msc., SRP, MacmillanLymphoedema Specialist Physiotherapist spoke about the difference between Lipoedema andLymphoedema. Gudrun Collins (CTKI) talked about kinesio taping and its application to helpalleviate the pain of lipoedema. After lunch, Mary Fickling spoke about the benefits of DEEPOSCILLATION® for Lipoedema and Lipo-Lymphoedema and Julie Soroczyn worked her magicthrough the crowd with the HIVAMAT® 200 on the treatment trolley and her vibrating glovedhands. She provided, several treatments during the talk and during the weekend, to arthritic handsand aching knees, swollen limbs and ankles, tense shoulders and painful backs. Sometimesimmediate relief was given to areas of tenderness, acute pain and relief to the feeling of heavy“fluidy” limbs. Nina Blakemore, Catwalk and Television plus size model and Speaker at the eventon the second day, emailed after the event: “Thank you for the trial with the Oscillation machine -legs have been "swishing" since the treatment, it really felt like it got everything moving once againand as was like walking on air - the "heaviness" so often felt in both legs was completely gone -truly amazing and very exciting!"Mary Fickling spoke about the benefits and clinically proven, physiological effects of DEEPOSCILLATION® and was happy to answer questions including how ladies could get treatment andhow they could possibly come to acquire their own unit. DEEP OSCILLATION® is provided bysome NHS hospitals in the UK and Ireland, and by many Private Manual Lymphatic DrainageTherapists, See Therapist Listings on the PhysioPod website. PhysioPod advise all Lipoedemaladies to see a qualified MLD therapist using the therapy first for assessment and treatment toevalulate its effectiveness for them personally and to identify any possible contraindications. Onpurchase of a unit, the therapist will demonstrate the way to work with the unit, initially openingand clearing lymphatic pathways ready for the increased lymph coming its way and how to work inthe correct direction of lymphatic flow. Dr Alison Merrick was next up to talk about BowenTherapy and how it may help Lipoedema. Her clinic have started a study into the effects of BowenTechnique on Lipoedema and would like to recruit some Lipoedema Ladies for their case studies,enquiries should go to Dr Alison Merrick PhD, alison@dralisonmerrick.co.uk. Workshops wereheld afterwards for ladies to learn and experience DEEP OSCILLATION®, Kinesio taping, BowenTechnique and Manual Lymphatic Drainage. In the evening a lovely meal was had together inChino Latino at Leeds Park Plaza where the AGM was held and some ladies took to the town -much fun and frivolity was had by all - a fabulous end to a very positive first day.
Day Two
To start the day, a skype conversation was held with a prominent member of Lipoedema Ladieswho was unable to attend. Ladies were then treated to the Premier of a Documentary "You MeanIt's Not My Fault: Lipoedema, A Fat Disorder", by Catherine Seo. Catherine will be showing this atThe BLS conference in Birmingham on October 6th and it will then appear on Lipoedema Ladieswebsite for all to see, so be sure to take a look after the 6th. Lipoedema Ladies are proud to be
 
sponsoring Catherine to deliver the documentary at The BLS Conference and help raise awarenesswithin the medical Lymphoedema community. Sharie Fetzer, Board Member of Lipoedema UKthen gave a wonderful talk on the benefits of exercise for Lipoedema and how she recommendsswimming, walking and cycling for ladies suffering with Lipoedema and not high impact exerciselike jogging and step aerobics which might worsen the condition and cause joint pain. To read morefrom Sharie about exercise in water visit the Lipoedema Ladies website.After lunch the fabulous Nina Blakemore talked about her career as a plus size photographic,catwalk and television model and how she is passionate about promoting a healthy body image.Surviving on an apple a day and two hours exercise to become an "acceptable" size 8 model led herto seek help, she now has more work as a healthy size 18 than she ever did as a size 8. Nina thendrew out the lucky winners for the Prize Draw. Prizes included a two night romantic break for twoat 94 DR Edinburgh with Dinner at an Edinburgh Restaurant, a pair of leather boots by TheBootmakers, Vouchers for Amazon, John Lewis, a Red Letter Day voucher, an E Reader, a personalnutrional advice voucher, a Radleys handbag and other lovely jewellery and smaller prizes. AmyGodfrey, a fat-bias comedian ended everything on a high. Finally, the A team spoke about how farthey had come and what they had achieved since they set up in 2010 and asked the audience forideas about raising awareness. Mary Fickling suggested that Angela Mahandru, Editor of CHOICEHealth & Wellbeing Magazine which PhysioPod have featured in on several occasions, would be agreat place to have a feature, as it has a very wide readership. CHOICE were contacted on thefollowing Monday and a feature, written by Lipoedema Ladies, will appear in the Nov/Dec 13issue.
Key Announcements at the BIG MEET UP...
1. Sharie Fetzer announced that, 50,000 UK medical professionals will soon have access to an E-Learning module all about Lipoedema and Lipo-lymphoedema and so they will be able to diagnosethe condition and advise on treatment at an early stage. Education and research is key to finding acure for this condition. It will be wonderful for ladies and their children, to not be given the mis-educated advice of “eat less and exercise more” and have access to the help they desperately need.2. We also heard that Dr. Karen Herbst, The Lipoedema Ladies Patron and Catherine Seo,lipoedema advocate, are in conversations with Novartis, the largest biomedical company in theworld. The director of research based in Basel Switzerland, and the lead scientist in Fat Metabolismare interested in pursuing a research study into lipoedema. The Research Director from Basel andCatherine will be meeting with Dr. Foeldi in Germany, the world’s expert in lymphology inNovember to further research possibilities. Once the research study is established, lipoedema fattissue from liposuction procedures will be used in the research process. If you are planning to haveliposuction, and are willing to have the removed tissue used to further research into a cure, pleasecontact Catherine at catherine@lipoedema-simplified.org who is coordinating the efforts.PhysioPod looking forward to supporting Lipoedema Ladies and Lipoedema UK in anyway theycan and to help make The Big Meet Up of 2014 an even bigger success.Both Lipoedema Ladies and Lipoedema UK are 'not-for-profit' organisations and need donations tofund their valuable work.
About PhysioPod UK Limited:
PhysioPod UK Limited are the Exclusive Distributor for DEEP OSCILLATION therapy in the UKand Republic of Ireland and are an NHS approved Supplier.
Contact:
Mary Fickling

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