• Embed Doc
  • Readcast
  • Collections
  • CommentGo Back
Download
 
DOI: 10.1542/peds.2007-1680published online May 26, 2008;
Pediatrics
Steven A. Rosenberg, Duan Zhang and Cordelia C. Robinson
Services for Young ChildrenPrevalence of Developmental Delays and Participation in Early Intervention
 http://www.pediatrics.org/cgi/content/full/peds.2007-1680v1located on the World Wide Web at:The online version of this article, along with updated information and services, is
rights reserved. Print ISSN: 0031-4005. Online ISSN: 1098-4275.Grove Village, Illinois, 60007. Copyright © 2008 by the American Academy of Pediatrics. Alland trademarked by the American Academy of Pediatrics, 141 Northwest Point Boulevard, Elkpublication, it has been published continuously since 1948. PEDIATRICS is owned, published,PEDIATRICS is the official journal of the American Academy of Pediatrics. A monthly
by on November 18, 2008www.pediatrics.orgDownloaded from
 
ARTICLE
Prevalence of Developmental Delays andParticipation in Early Intervention Services forYoung Children
StevenA.Rosenberg,PhD
a
,DuanZhang,PhD
b
,CordeliaC.Robinson,PhD,RN
c
a
Department of Psychiatry and
c
JFK Partners, University of Colorado Denver, Denver, Colorado;
b
College of Education, University of Denver, Denver, Colorado
 The authors have indicated they have no financial relationships relevant to this article to disclose.
What’sKnownonThisSubject
PartCearlyinterventionserves
2%ofUSchildrenwhoare
3yearsold;however,wehave limited information regarding the number of children eligible for Part C services.National estimates of the number of young children with developmental delays varyand are not based on direct assessments of children.
WhatThisStudyAdds
 This study offers a national estimate of the percentage of children who are eligible forPartCservicesonthebasisofdirectassessmentofthechildrenandprovidesanestimateof the proportion of young children who are receiving early intervention for develop-mental problems.
ABSTRACT
OBJECTIVES.
The objective of this study was to use a nationally representative longitu-dinal sample of children born in the United States in 2001 to estimate rates ofeligibility for Part C early intervention, to estimate rates of access to services fordevelopmental delays, and to examine factors that are associated with access toservices.
METHODS.
Datafor this studywerecollected as partoftheEarlyChildhood LongitudinalStudy, Birth Cohort, which obtained data from participants when children were 9and 24 months of age. Descriptive analyses were used to generate national estimatesof the prevalence of developmental delays that would make children eligible for PartC services and rates of participation in early intervention services. Logistic regressionanalyses were conducted to examine whether child developmental delay, race,insurance availability, and poverty status were associated with the probability ofreceiving services.
RESULTS.
Results indicated that
13% of children in the sample had developmentaldelays that would make them eligible for Part C early intervention. At 24 months,only 10% of children with delays received services. Children with developmentaldelays were more likely to receive services than those who do not have delays; blackchildren were less likely to receive services than children from other ethnic and racialgroups.
CONCLUSIONS.
The prevalence of developmental delays that make children eligible forPart C services is much higher than previously thought. Moreover, the majority ofchildren who are eligible for Part C services are not receiving services for their developmental problems. Strategiesneed to be developed to monitor patterns of enrollment in early intervention services and reach out to more minoritychildren, particularly black children.
Pediatrics
2008;121:e1503–e1509
P
ART C EARLY
intervention is specified in the Individuals With Disabilities Education Improvement Act (IDEA) as aninteragencyprogramforcoordinatingeffortswithinandacrosscommunityandgovernmentalagenciestoaddresstheneedsofchildrenwhoareyoungerthan3yearsandhavedevelopmentaldelaysandtheneedsoftheirfamilies.UnderthePart C program, each participating state is required to establish a definition of eligibility for services that specifies levels ofdevelopmental delay and diagnoses associated with developmental conditions that confer eligibility.In 2002, Part C early intervention served 265 145 infants and toddlers.
1
This number is 2.2% of the nation’schildren who are younger than 3 years and reflects the US Department of Education’s goal of providing Part Cservices to at least 2% of children who are younger than 3
2
; however it seems that many states have adopted criteriathat make far more children eligible than the national goal of 2%.
3
Given the variability in state criteria, it is difficultto know how many children are actually eligible for Part C services or how many Part C–eligible children fail toreceive services for their developmental needs.Most national estimates of the prevalence of developmental problems among infants and young children have been based on survey questions answered by parents, rather than direct assessments of child development. There is
www.pediatrics.org/cgi/doi/10.1542/peds.2007-1680doi:10.1542/peds.2007-1680
KeyWords
developmental delay, early intervention,part C eligibility, epidemiology
Abbreviations
IDEA—Individuals With DisabilitiesEducation Improvement ActECLS-B—Early Childhood LongitudinalSurvey Birth CohortBSF-R—Bayley Short Form-ResearchEditionBSID-II—Bayley Scales of InfantDevelopment, Second Edition
Accepted for publication Dec 20, 2007Address correspondence to Steven A.Rosenberg, PhD, University of ColoradoDenver, Campus Box C268-63, Denver, CO80262. E-mail: steven.rosenberg@uchsc.eduPEDIATRICS(ISSNNumbers:Print,0031-4005;Online,1098-4275).Copyright©2008bytheAmericanAcademyofPediatrics
PEDIATRICS Volume 121, Number 6, June 2008
e1503
by on November 18, 2008www.pediatrics.orgDownloaded from
 
reason to doubt the accuracy of these estimates thatrange from 17.1% for children up to 17 years of age
4
to5.6% for children 4 to 59 months
5
; however, in recentyears, the Early Childhood Longitudinal Study BirthCohort (ECLS-B) has directly assessed development in anational sample of children at 9 and 24 months of age,making it possible to estimate accurately rates of devel-opmental delays for the nation’s youngest children.Estimates of service use by young children with de-velopmental delays and disabilities are quite limited. Theavailable information indicates that these children havelow rates of participation in early intervention services.Nationally, only 17% of children who are younger than5yearsandwhosedevelopmentwasclassifiedasdelayedactually received services for those delays.
5
Studies ofchildren who are younger than 3 show that large num- bers of presumably eligible children are not enrolled inPart C. Despite high rates of developmental delaysamong children who receive Early Head Start,
5% ofthese children were also enrolled in Part C early inter-vention.
6
Maltreated children also have very low rates ofenrollment in Part C.
7
Factors that have been shown to be associated withchildren’s enrollment in services include race, gender,poverty, and the availability of health insurance. Boyshave higher rates of developmental delays than girls
5
and higher rates of Part C enrollment.
8
Poverty is alsorelated to the occurrence of developmental problems.
9,10
Although the availability of health insurance is a pow-erful factor in determining use of health services,
11
littleis known about the relationship of health insurance toPart C services. For example, 1 of the only studies on thistopic found that in Hawaii, uninsured children seem touse Part C less than those who have health insurance.
12
Only a few studies have tried to identify racial andethnic discrepancies in access to Part C services. Thesestudies have predominantly looked at the relative pro-portions of different groups of children enrolled in PartC. A study of Part C in Minnesota, for instance, foundthat counties with higher percentages of black childrenhave lower overall rates of Part C enrollment.
13
In Mas-sachusetts referrals to Part C were lower for birthweightinfants of black non-Hispanic mothers than for otherracial and ethnic groups.
14
However, work with a na-tional sample found black children to be overrepre-sented in Part C, whereas white children, in comparisonwith their representation in the national population, areunderrepresented.
8
This lack of information about the proportion of PartC–eligible children who do not receive services makesclear the need for studies that estimate both the numbersof children who are younger than 3 and have develop-mental problems and the numbers of children who havedelays and do not receive early intervention.
15
In addi-tion, research is needed to address the factors that mayaffect children’s access to early intervention services.This study uses a nationally representative sample toestimate (1) rates of developmental delays that makechildren eligible for Part C, (2) rates of enrollment inearly intervention services by these children, and (3) therelationship of developmental status, race, poverty, andinsurance status to receipt of services for developmentalproblems.
METHODS
Sample
Data for this study came from the ECLS-B, which wasdesigned to look at children’s early development, accessto services, and education from birth to kindergarten atthe national level. The ECLS-B recruited a probabilitysample that consisted of children who were representa-tive of all of the children who were born in 2001 in theUnited States. The ECLS-B data set contains direct as-sessments of children, caregiver interviews and ques-tionnaires, and information from birth certificates.
16
Data used in this report are from the 9- and 24-monthrounds of data collection, conducted from 2001 to 2002and 2003 to 2004, respectively. The parents of 10 700children who were born in 2001 participated in the firstround of the study when the children were
9 monthsof age. Child assessments were conducted on a total of10 200 of these children. The parents of 9800 childrenparticipated in round 2, and child assessments were con-ducted on 8950 of these children. The characteristics ofthis sample are summarized in Table 1.
Measures
Developmental Status
Children’s cognitive and motor skills were assessed withthe Bayley Short Form-Research Edition (BSF-R), anabbreviated form of the Bayley Scales of Infant Devel-
TABLE 1
DemographicCharacteristicsofStudyPopulation
Characteristic Children9 mo 24 mo% SE, % % SE, %
Male gender 51.1 0.6 51.1 0.7RaceWhite 53.2 1.8 53.6 1.9Black 13.7 0.9 13.7 0.9Hispanic 25.5 1.4 25.2 1.4Asian 2.8 0.2 2.7 0.2Other 4.8 0.3 4.9 0.3Family income$10000 or less 10.6 0.6 9.4 0.5$10001 to $25000 24.7 0.8 22.9 0.9$25001 to $40000 20.3 0.6 20.1 0.7$40001 to $100000 34.2 0.9 36.6 1.1$100001 or more 10.2 0.7 10.9 0.6Mother’s education
8th grade 6.0 0.4 5.3 0.49th12th grades 21.3 0.9 21.8 0.9High school diploma or equivalent 21.8 0.8 21.6 0.8Some college 26.5 0.7 26.6 0.7Bachelors degree 15.1 0.8 15.3 0.8Above bachelors degree 9.2 0.5 9.4 0.6PovertyBelow poverty level 22.9 0.8 21.6 0.9
 Theunweightedsamplesizeat9monthswas10200andat24monthswas8950.Thepercent-ages reported are population estimates.
e1504
ROSENBERG et al
by on November 18, 2008www.pediatrics.orgDownloaded from
of 00

Leave a Comment

You must be to leave a comment.
Submit
Characters: ...
You must be to leave a comment.
Submit
Characters: ...