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Friday lunchtime lecture: Why anonymity fails - with Professor Ross Anderson

Friday lunchtime lecture: Why anonymity fails - with Professor Ross Anderson

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Published by Open Data Institute
The extension of the open data programme to personal data such as medical records was based on the hope that personal data could be anonymised. This is turning into a slow-motion political train wreck, with the care.data scandal and the revelation that the hospital episode statistics data sold to numerous companies contained patient postcodes and dates of birth, so the anonymity claims were simply false.

Ross Anderson, Professor of Security Engineering at Cambridge, asks: what’s going on?
The extension of the open data programme to personal data such as medical records was based on the hope that personal data could be anonymised. This is turning into a slow-motion political train wreck, with the care.data scandal and the revelation that the hospital episode statistics data sold to numerous companies contained patient postcodes and dates of birth, so the anonymity claims were simply false.

Ross Anderson, Professor of Security Engineering at Cambridge, asks: what’s going on?

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Categories:Types, Presentations
Published by: Open Data Institute on Apr 07, 2014
Copyright:Traditional Copyright: All rights reserved

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10/09/2014

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Why anonymity fails
Ross Anderson Cambridge University
Open Data Institute, 4/4/2014
 
Synopsis
Health data are moving to the cloud, causing serious tussles over safety and privacy
The extension of the open data idea to healthcare is now a slow-motion train wreck
Everyone from drug companies to insurers want access to masses of personal data
Yesterday: we learn that HSCIC gave hospital episode statistics data to over 1000 firms
Patients can often be easily identified
Open Data Institute, 4/4/2014
 
Do patients want access to records?
Google Health discontinued in 2011 after four years trying to build a health platform
Microsoft equivalent turned into a business platform for hospitals etc
Healthspace, a project to provide patient access to summary records, had only a handful of users
The penny drops: most people are healthy 95% of the time and not interested in looking at record
When sick they mostly have other priorities
Open Data Institute, 4/4/2014

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