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C3MomentumSummer08-Final

C3MomentumSummer08-Final

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Published by: c3colorectal on Jun 11, 2008
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LEGISLATIVE BEAT
Keeping Cool with CancerDuring the Summer Months
Summer has arrived!
Whether you are currently undergoingtreatment or colorectal cancer,or have just nished yourtreatment, managing the sideeect o the summer heat can bechallenging. Treatments such asErbitux
®
(cetuximab), Eloxatin
®
 (oxaliplatin), Camptosar
®
 (irinotecan), 5-FU and Xeloda
®
 (capecitabine) can all maniestcertain side eects that areimportant to pay attention toduring the summer months. Hightemperatures, busy schedules, and
1225 King Street, 2nd Floor, Alexandria, VA 22314
(703) 548-1225 • www.FightColorectalCancer.org
 vacation plans may increase theintensity o these side eects.
Sun caution.
Colorectal cancertherapies (including bothchemotherapy and monoclonalantibodies) can increase your skin’ssensitivity to sunlight, so protecting yoursel rom the sun duringtreatment is very important. Skinrash is a common side eect withEGFR inhibitors like Erbitux and Vectibix
(panitumumab) so sun protection is critical during thesetherapies because sun can makethe rash worse. Also, i you are undergoingradiation treatment, it is particularly important to avoidultraviolet (UV) rays. Melanin protects the skin by absorbing UVradiation rom the sun. However,ollowing radiation therapy, theskin’s ability to protect itsel romUV rays is decreased as a result o the destruction o skin cells called
 melanocytes
during radiation. Soavoid direct sunlight whenever possible during radiation treatment.
You don’t need to skip time on the beachduring treatment.C3 Board Chair Nancy Roach with Rep.Greg Walden (R-OR-2) at Call-on Congress2008. For more, see page 3.continued on page 7
VOLUME 3, ISSUE 4 SUMMER 2008
IN THIS ISSUE
FROMTHE PRESIDENT’S DESK
.................
2
ON THE HILL
C3 “Marches” on Capitol Hill ...............
3
SPOTLIGHT ON RESEARCH
 
 The Lisa Fund: Our First Research
Grant!
...........................................................
4
LEGISLATIVE BEAT
 
As Federal Funding for Cancer is Cut,Researchers Struggle .............................
5
DUSTY’SRECIPE FOR ACTION
.........................
6
 Moving towards better care and a cure
by Kim Ryan
 
C3:  MomentumC3:  Momentum
VOLUME 3, ISSUE 4 SUMMER 2008
Winning the fght against colorectal cancer 
 
www.FightColorectalCancer.org2
 As a nervous fyer, I always look tothe fight attendants when we hitmid-fight turbulence to determinehow concerned I should be. Theynever look nervous, no matter howbumpy the ride gets. I must admit,it calms me.Cancer research is in the midsto its own turbulence. Federalunding has been on the downslideor ve years. Cancer groups likeC3 started getting nervous yearsago, but when we looked to theresearchers or their reaction, they pretty much kept their cool.Well, no longer.I cancer research unding is abumpy airline ride, the researchersare the fight attendants telling usto put on our oxygen masks. About a year ago, I spoke with aresearcher who was so angry aboutthe science that was not being donedue to budget cuts that I thoughthe was going to burst into tears. Orthrow a chair. And he’s not the only researcherspeaking out. At C3’s Call-onCongress
(see page 3)
in March,
FROM THE PRESIDENT’S DESK
Board of Directors
Nancy Roach
,
 Board Chair 
 Alan Balch, PhD,
Vice Chair 
Greg Crafts,
Treasurer 
Robert Erwin,
 Board Secretary
Carlea Bauman,
 President
Steven Depp, Ph.D. Andrew Giusti, Ph.D.
Medical Review Network 
Mace Rothenberg, MD (Chair)
Vanderbilt University Medical Center 
Nancy Baxter, MD, FRCSC
University of Toronto
 Al B. Benson III, MD, FACP
 Northwestern University
Richard Goldberg, MD
University of North Carolina
 Axel Grothey, MD
 Mayo Clinic College of Medicine
Heinz-Joseph Lenz, MD, FACP
University of Southern California
John Marshall, MD
Georgetown University Medical Center 
Howard McLeod, PharmD
University of North Carolina
Neal Meropol, MD
 Fox Chase Cancer Center 
Edith Mitchell, MD
Thomas Jefferson University
Daniel Sargent, PhD
 Mayo Clinic College of Medicine
Joel Tepper, MD
University of North Carolina
 All Hands, Brace forImpact on Funding
Carlea Bauman
 President
we invited Dr. Richard Goldberg,a researcher rom North Carolina,to speak to our advocates abouthow ve years o cancer researchunding cuts are impacting hisday-to-day work. His remarks wereso compelling that we asked himto write about it or this issue o 
 Momentum
 
(page 5)
. As passengers all we can do is grabthe lie-preservers stored underour seats but, as advocates, we cantake action! C3 has taken actionby speaking out about the needor increased research unding –and by unding research ourselves
(page 4).
Our advocates are also hardat work. In addition to Call-onCongress, they spoke out insupport o colorectal cancerlegislation that is currently sittingin Congress. Thousands o you participated in the CongressionalButt-In on March 19th
(page 3)
,a one-day phone blitz to Capitol
MARK YOURCALENDAR
I cancer research undingis a bumpy airline ride, theresearchers are the ightattendants telling us to put onour oxygen masks.
continued on page 7
C3 is heading to the American Society of ClinicalOncology’s Annual Meetingin Chicago, ILMay 30-June 3.Kate Murphy, C3’s Directorof Research Communication, will be blogging about thelatest news in colorectalcancer research andtreatment.Don’t miss a word of it. Check out www.FightColorectalCancer.orgbeginning June 2.
 
C3 Momentum Summer 20083
LEGISLATIVE BEAT
 
ON THE HILL
C3 “Marches” on Capitol Hill
by Joe Arite
C3 and its advocates were all overCapitol Hill during ColorectalCancer Awareness Month (or, asit is also known: March). The 2nd Annual C3 Call-on Congress took place rom March 9–12.Colorectal cancer advocates romthe our corners o the countrycame together in Washington, DCto take their message to CapitolHill. Many came in as public policynovices but let as experts. Theywere proessionally trained inthe legislative process, and werebrieed on specic colorectalcancer legislation in Congress.The next day, they were o toCapitol Hill to sit down ace to acewith their Members o Congress.The advocates educated theirMembers on legislation that wouldincrease access to screenings andthe critical need or higher undinglevels at the National CancerInstitute (NCI).Call-on Congress participantsincluded colorectal cancersurvivors, amilies o patients, andthose who lost loved ones to thedisease. Many had never been toWashington, DC beore. They weredriven to action by their need tomake the world better or peopleghting colorectal cancer.“Call-on Congress was reallyspecial or me; it was a labor o love,” said Patti Hollenback, a C3advocate rom Pennsylvania. “Myconnection to colorectal canceris my late husband, Harry. I wentto Washington or him and all ourangels and riends we have metalong the way.”But the advocates didn’t stop there.One week later on, March 19th,nearly 2000 people participatedin C3’s Congressional Butt-In, aone-day phone blitz to Capitol Hill.
Ryan McKee, Legislative Director for Rep.Vito Fossella (R-NY-13), prepares advocatesfor their meetings.C3 thanks our Grassroots Steering Committee for helping us make Call-on Congress asuccess. From left: Marilia Sardinha, Erika Hanson Brown, Suzanne Lindley, Dusty Weaver.Pennsylvania advocates Verna Cox (left)and Patti Hollenback pose on Capitol Hillwith Joe Arite.
Over 325 Congressional oceswere contacted by C3 advocatesmaking one simple request: supportcolorectal cancer screeninglegislation and cover our butts!Want to join us at our 2009 Call-on Congress? Log onto www.FightColorectalCancer.org/ ConC2009.
C3 would like to thank Genentech BioOncology for supporting theCongressional Butt-In.

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