2007 Presentation

•CJD Support Organisations•Transmissible Spongiform Encephalopathy(TSE’s)•The Nature of TSE Disease TransmissionThe Nature of TSE Disease Transmission•Overall Prognosis inOverall Prognosis in PrP

termsterms

•1992 CJD Support Group Network Inc. - Australia•1993 CJD Foundation – United States•1994 Association of Victims of Growth Hormone - France•1994 CJD Support Network – United Kingdom•1995/6 Human BSE Foundation – United Kingdom•1997 CJD Voice – United States•1998 CJD Watch – United States•2001 CJD Aware – United States•2002 CJD Support Network – Japan•2003 FFI Families Association•2005 CJD Alliance•

2006 CJD International Support Alliance

CJD Support Groups - Timeline

•For a variety of reasons, across the World, several SupportGroups/Organisations and Individuals have emerged over the lastdecade or so•Many challenges exist in an area with a number of uncertainties inthis rare group of invariably fatal neurodegenerative diseases•Ignorance of these unusual properties led to inadvertent outbreaksof iatrogenic

(surgically-induced, accidentally transmitted)

CJDthrough fledgling experiments on humans from the 1950s withpituitary infertility drugs (hPH), human growth hormone (hGH)injections in children, grafts of Dura mater in brain and spinaloperations, Corneal transplantation and the re-use of surgicalinstruments after procedures on people with CJD.