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Chapter 4 of 10 - Kelsey Hill

Chapter 4 of 10 - Kelsey Hill

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Published by spiritualbeing
Transcript - Chapter 4 of 10 - Kelsey Hill

22:10 - 28:48 - Interactive sourced transcript
ON-SCREEN TITLE CARD: Adrenocortical Carcinoma with metastasis to the lungs and liver: adrenal, lung, and liver cancer, clinical trial KELSEY, SARAH (mother), and STEVE HILL (father) - on camera interview. SARAH HILL: They came back, they said she has this large baseball-sized tumor in her abdomen, and not only that, but it’s in her kidney—it was everywhere, it was in her kidney and her liver and her lungs
Transcript - Chapter 4 of 10 - Kelsey Hill

22:10 - 28:48 - Interactive sourced transcript
ON-SCREEN TITLE CARD: Adrenocortical Carcinoma with metastasis to the lungs and liver: adrenal, lung, and liver cancer, clinical trial KELSEY, SARAH (mother), and STEVE HILL (father) - on camera interview. SARAH HILL: They came back, they said she has this large baseball-sized tumor in her abdomen, and not only that, but it’s in her kidney—it was everywhere, it was in her kidney and her liver and her lungs

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Published by: spiritualbeing on Jun 16, 2011
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Transcript - Chapter 4 of 10 - Kelsey Hill
22:10 - 28:48 -
Interactive sourced transcript
 
ON-SCREEN TITLE CARD:
 Adrenocortical Carcinoma with metastasis to the lungs and liver: adrenal, lung, and livercancer, clinical trial
KELSEY, SARAH (mother), and STEVE HILL (father) - on camera interview.SARAH HILL:
 They came back, they said she has this large baseball-sized tumor in her abdomen, and not
only that, but it’s in her kidney— 
it was everywhere, it was in her kidney and her liver and herlungs. So here we are thinking, basically, this child has literally a few months to live, is
 basically what they told us. At that point they said, “well, we think we can get the originaltumor out.” So they ha
d this surgeon, he was able to go in, he got the whole tumor
 — 
she didlose her left kidney and her left adrenal gland. And it was four drugs, and it was like eightpages of side-effects and very little hope that they would even work. The drugs were:Mitotane...
ON-SCREEN TITLE CARD:
MITOTANE CHEMOTHERAPY: Appropriate studies have not been performed to find out
Mitotane’s safety or effectiveness in children.[
] 
SARAH HILL VO:
 ... Doxorubicin ...
ON-SCREEN TITLE CARD:
DOXORUBICIN CHEMOTHERAPY: Side effects: Leukemia, Heart Failure, Infertility,
Vomiting, Mouth Sores. Nickname “Red Death”[
] [
] 
SARAH HILL VO:
 ... Etoposide ...
ON-SCREEN TITLE CARD:
 ETOPOSIDE CHEMOTHERAPY: Side effects: Leukemia, Nerve Damage, Inability to FightInfections, Vomiting.[
] 
SARAH HILL VO:
 ... and Cisplatin.
 
 
2
 
ON-SCREEN TITLE CARD:
 CISPLATIN CHEMOTHERAPY: Side effects: Kidney Damage, Hearing Damage, NerveDamage, Infertility, Vomiting.[
] 
SARAH HILL, on-camera interview (continued):
 
... and they told us admittedly “this is the most toxic regimen that we have.”
We have a six-month old with one kidney, and the side effects were kidney failure, hearing failure,leukemia
 —other kinds of cancers coming from this... and I was just like “even if she’s goingto pass away, I can’t do this to her, I can’t, why would I want her last few months of life to bemiserable?”
 
STEVE HILL, on-camera interview:
 
I didn’t know what to do. I just knew that I didn’t want to put her through all that intense
high-dose chemo and miss out on what might be the last bit of time that we have with her,because I had talked to my uncle
 —he’s in his 60’s now,
but in 1969
 — 
my cousin, hisdaughter, was three years old and she got cancer of some kind. He told me about what thatwas like at that time. They just kept giving her more chemo, and more chemo, and morechemo, and then finally we had this long several-hour conversation one day and he told me, Iasked him
 — 
 
 because I was trying to prepare myself, I said, “what was it like when a doctor tells you, that’s it. We can’t do any more.”
 
My uncle Ray told me that for the last few weeks of my cousin’s life, they celeb
ratedChristmas once a week. They had a Christmas and a birthday once a week until that was it. I
was putting myself in his shoes, and I was just thinking, I couldn’t watch my daughter whither 
away, and at least I wanted whatever time I had to be happy. As happy as could be anyway
 — and not just watch her whither away from chemo that’s not doing any good any more.
 
SARAH HILL, on-camera interview:
 We had actually asked the endocrinologist at M.D. Anderson about Dr. Burzynski, and he told
us “he was a quack, and that there was no evidence that it worked” but at that point I was like“well, yours doesn’t really work either.”
 
ON-SCREEN TITLE CARD:
 MITOTANE CHEMOTHERAPY: Approved: July 8, 1970. Derived from DDT (insecticide).[
] [
] 
STEVE HILL VO:
 
The other thing that I did, on the FDA’s website y
ou can look up the day in which any drugwas granted FDA approval and I realized that the oldest drug they wanted to give Kelsey had
come out in the early 1970’s...
 
ON-SCREEN TITLE CARD:
 DOXORUBICIN CHEMOTHERAPY: Approved: December 23, 1987[
] 
STEVE HILL VO:
 ... the newest drug they wanted to give Kelsey came out around 1988...
ON-SCREEN TITLE CARD:
 ETOPOSIDE CHEMOTHERAPY: Approved: November 10, 1983[
] 

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