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Table Of Contents

Introduction
Why this guide?
Dementia: A Brief Overview
Consider the Case of Mary
Dr. Gordon Discusses
Dementia: Denial and Disbelief
Dementia: A Terminal Disease?
Defining Palliative Care
Decision-Making and Ethical Decisions
Advanced Care Planning
An Ethical Approach
Communication
Informed Consent
Information Disclosure
Capacity
Substitute Decision-making
Discussing Patient History
Decision-Making
Confidentiality, Privacy, and Respectfulness
Nutrition and Hydration
Pain and Other Symptoms
Withholding or Stopping Life-Sustaining Treatments
Dealing with Conflict
Comfort Care in Context
End of Life through Different Cultural Lenses
Cultural Influence
Caring for the Caregiver
Emotional Distress
Te Process of Caregiving
Despite Best Efforts
Appendix A: Symptom Management: Maintaining Comfort
Managing Symptoms
Assessing Symptoms
Symptom
Depression
Anxiety
Weight Loss/Anorexia/Cachexia
Constipation
Nausea/Vomiting
Delirium
Dyspnea/Breathlessness/Respiratory Problems
Dysphagia/Oral Complications
Skin Breakdown/Chronic Wounds
Dehydration
Pain
Glossary of Commonly Used Ethical Terms
References and Further Reading
Resources
Index
P. 1
Late-Stage Dementia

Late-Stage Dementia

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“I want to provide the best care possible. The suffering has gone on for a long time, and I want to be sure the end stage is as comfortable as possible.”This common sentiment is ex-pressed by both health care professionals responsible for caring for frail elders experiencing the later stages of dementia and family members trying to ensure the most compassionate care for their loved ones. Health care providers and family members often struggle with painful decisions when confronting the inevitable while providing love, compassion, and care. Modern medicine may offer seemingly promising treatments, but eventually, the impact of Alzheimer’s disease and other causes of dementia can cause profound deterioration in the patient’s quality of life. The focus must eventually shift to compassionate end-of-life care. This guidebook reflects Dr. Gordon’s extensive experience with health care professionals and families struggling with these poignant and difficult decisions.“… families will learn much about helping patients with dementia, but so too will physicians and other caregivers. Michael Gordon’s humanity shines through every page, and, when combined with his medical expertise, the result is a guide which is both truly thoughtful and practically useful.”—Professor Arthur Schafer, Director, Centre for Professional and Applied Ethics, University of Manitoba“Dr. Gordon is truly a healer whose experience as a geriatrician provides a road map for all of us who want to provide care, respect, and love for people diagnosed with dementia.”—Steven R. Sabat, PhD, Professor, Department of Psychology, Georgetown University
“I want to provide the best care possible. The suffering has gone on for a long time, and I want to be sure the end stage is as comfortable as possible.”This common sentiment is ex-pressed by both health care professionals responsible for caring for frail elders experiencing the later stages of dementia and family members trying to ensure the most compassionate care for their loved ones. Health care providers and family members often struggle with painful decisions when confronting the inevitable while providing love, compassion, and care. Modern medicine may offer seemingly promising treatments, but eventually, the impact of Alzheimer’s disease and other causes of dementia can cause profound deterioration in the patient’s quality of life. The focus must eventually shift to compassionate end-of-life care. This guidebook reflects Dr. Gordon’s extensive experience with health care professionals and families struggling with these poignant and difficult decisions.“… families will learn much about helping patients with dementia, but so too will physicians and other caregivers. Michael Gordon’s humanity shines through every page, and, when combined with his medical expertise, the result is a guide which is both truly thoughtful and practically useful.”—Professor Arthur Schafer, Director, Centre for Professional and Applied Ethics, University of Manitoba“Dr. Gordon is truly a healer whose experience as a geriatrician provides a road map for all of us who want to provide care, respect, and love for people diagnosed with dementia.”—Steven R. Sabat, PhD, Professor, Department of Psychology, Georgetown University

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Publish date: Aug 16, 2011
Added to Scribd: Aug 15, 2011
Copyright:Traditional Copyright: All rights reservedISBN:9781462027668
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