understandingoftheNGOstaff,DayaSinghpulledhimselfoutofhisdrugusage.Hishealthstartedtoimproveandhismindandsoulwererefreshed.Hewasastrongermanandhefeltadeepdesiretobepartofafamilyandtakeupanhonestjob.DayaSinghfoundemploymentwiththeveryNGOthatsavedandimprovedhislifeSankalp.HisfateledhimtomeetanotherclientatSankalp,Haseena.Shehadatroubledpast,andtwoteenagesonswhowerealsoinvolvedwithdrugs.Herhusbandhadahistoryofviolence,aresultofwhichshetoobecameaheavydruguser.Inseveredepression,HaseenafoundsolaceandasupportinDayaSingh.Findinggreatencouragementfromeachothers'lifestories,DayaSinghandHaseenadecidedtofusetheirlivestogether.WithblessingsfromtheCentreauthoritiestheymarried,andhevowedtohelpherbecomerehabilitatedaswell.Today,fouryearslater,DayaSinghandHaseenaarebothsober,leadingnormallives.DayaSinghservseasanoutreachworkerwithSankalpandHaseenaworksasahospitalmaid.Thecouplehaveensuredthattheirsonshavealsoovercometheiraddictions.BoththesonswerealsorehabilitatedattheGoodShepherdRecoveryHomeatPunewhichisbeingrunby5ankalpDirector.Theyhavebeenreintegratedintothemainstreamandhavedignifiedjobs.Thefamilyincomeismeagreandtheyliveinarentedplace,butDayaSinghhasfoundhispieceofheaveninthelittlepleasuresoflife.Heproudlycarriesthe'dabba'preparedbyHaseena,towork.Hehasafamilytocallhisownandatlonglasthehasfoundhappiness.
HepC,Acauseforconcern
HepatitisCalsoknownasHCVonlygotitsnamein1989.50itwasunheardofbefore1989,
it
wascalled'Non
A,
NonB'.
It
ismuchstrongerthanHIVandcan'stayalive'outsidethebodyforalongertimeandthatisthemainreasonwhyitspreadsfasterthanHIVaswell.Todaythereareanestimated14to
20
millionpeoplelikelytobeinfectedwithHCVinthecountryandthatismanytimesthefiguresforHIV,Yet.thereissilenceaboutthisvirus.ThetransmissionofthevirusisthroughthesameroutesasHIValthoughinthecaseofHCVtheinfectedneedlerouteismanytimesmorethanthesexualroute.AndthisisthemainreasonwhySankalphastobeconcerned.Theinjectingdrugusercommunityisthemaingroupaffectedandwiththepossibleco-infectionwithHIV,itisakillercombination.JustimaginethatthebattlewithHIVisonandthenoneistoldthataweakliverduetoHCVisnothelpingthetreatmentprocess!Inapanic,theindividualwantstotreattheHCVimmediatelyonlytofindthatitiscompletelyoutofreach.Eightlacseventytwothousandfora
48
weekcourse?Everyonedoesnothavelandtosellortheirwife'sjewellerytomortgagelikesomepatientsinNorthEastIndia.Thosewhomanagethetreatmentareoftenleftwithasenseofguiltthattheirpeersdonothavethesameaccesstotreatment.Andthishighpriceisattributedtothepatentsgrantedonthekeymedicinewithoutmuchthought.ThetreatmentwhichconsistsofPegInterferonandRibavariniscostlymainlyduetothepatentsgrantedtoRocheandScheringPloughonPegInterferon.PegylationisaprocessbywhichtheInterferoniscoatedwithPolyethyleneglycolsothatthereisaslowreleaseandthedrugactsforalongerduration.Thisreducesthesideeffects,helpingtheadherencetotreatment.InterferonisaknownsubstanceandPegylationisaprocessalreadydonewithotherdrugsaswell.Soisthepatentjustified?Yourguessisasgoodasmine.ArecenttestingofclientsatSankalpshows
43%
positivewithHCV.ThisiswellbelowthefiguresforInjectingdruguserswhichrangefrom
70%
to
90%.
EvenaMumbaicohorttestedin
2003
showedaprevalenceof
80%.
Althoughthesefiguresbythemselvesarenotindicativeofanyserioustrend,wewouldliketobelievethattheHIVpreventioneffortswithourclientsarepayingdividends.
It
iswiththisbeliefthatwewouldurgetheGovernmenttointensifyandstrengthenprogrammestobeginaddressingpreventionnotonlyforHIVbutalsoforHCV.WhenIfirstattemptedHarmReductioninManipurwaybackin1992,itwaswithbleachdistributiontopreventHIV.Evenwiththeknowledgethatitwasnotcontributingmuch,Itoiledonand
it
broughtaboutawarenessamongthosegroupswhowereimportanttothecause.Soletusgettogetherandringthealarmbellssothatotherswilljoinandwehaveamovementgoingforward.
EldredTellis.
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