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SANOHEP 11 Years Activity

SANOHEP 11 Years Activity

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Published by emilelsan

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Published by: emilelsan on Feb 19, 2012
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01/13/2014

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SANOHEP ROMANIA – 11 years of activity in the liver patients’ interest
“SANOHEP ROMANIA” was founded, in 2001, at a patients’ initiative, as a direct consequence to theneed of the increasing number of HBV and HCV patients, in order to get informed about their treatment and therapy procedures. At that time, in Romania there was no organization focused on theliver pathology, an organization to defend the patients’ rights, to raise awareness among the risk-groupsand to inform people about the risks, about the disease and about its’ treatment. Dedicated exclusivelyto the liver patients, the association doesn’t promote any medicaments or certain treatment procedures.During its’ 10 years of activity, SANOHEP had fought with bureaucracy and with the weaknesses of the healthcare system, managing to gain important advantages in the patients’ interest; the Ministry of Labour, Family and Social Protection awarded SANO-HEP ROMANIA as social and medical services provider in supporting liver patients with counseling, assistance and information activities regardingawareness, screening and education, also receiving the Public utility status and the nomination as socialservices provider.What is more, for a better transparency in the decisional act of receiving subventioned treatment,“SANOHEP” ROMANIA obtained the Observer position in the Local and National Commissions of the National House of Health Insurances. As a direct result of our efforts, the age of 65 was eliminatedas a discriminatory age-limit for getting subventioned treatment, liver fibrosis 3 was replaced with liver fibrosis 2 in treatment’s approval criteria and the waiting lists were reduced from 18 months to 8-10months. We have ensured free medical consultations, with the support of many specialists of famousHospitals and Institutes in Romania, our association has a Scientific Committee which consists of specialists with a very high contribution in Gastroenterology, Hepatology, and Virology.Several public campaigns of awareness upon viral hepatitis B and viral hepatitis C were organized bySANOHEP, at national level, in schools, hospitals, private clinics, medical laboratories, beauty saloons,dentists clinics, tattoo and piercing saloons.By far, one of the best good-practice examples regarding our collaboration with the local government isthe National Campaign awareness for viral Hepatitis A, B and C, launched in March 2011. It startedwith the support of the Brasov Scholar Inspectorate and the Public Health Department Brasov and itcontinued in pilot-cities in Romania. Our team gathered 6 volunteers, none of us was a medicalspecialist, and we had open discussions with children with ages in between 7 and 15 years old. Theywere very receptive to our information and questions. Informative brochures were edited in accordancewith their age, with suggestive pictures and tables. A very important aspect is related to the fact that the brochures were also addressed to the children’s parents, because we seek for a two-way education,children-parents-children. Even after few months after our visit, we still receive very good feed-backsfrom the schools’ principals, asking us to come back and continue our program. Unfortunately, our funds do not allow us to do that, now we are preparing the second part of the project, namely the prevention campaign in high-schools and colleges.It has become a tradition for SANOHEP to organize, each two years, an International Liver PatientsCongress Experience in collaboration with ELPA (European Liver Patients’ Association) It has proventhat it is the best opportunity for patients to address questions directly to the specialists and thehealthcare experts and local stakeholders. The language used in presentations and discussions iscolloquial, appropriate towards the patients and their needs. At local and national level, we are

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