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Hemofilija

Hemofilija

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Published by: Dragana Šarović Pufahl on Apr 30, 2012
Copyright:Attribution Non-commercial

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07/07/2013

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GUIDELINES FOR THEMANAGEMENT OFHEMOPHILIA
WORLD FEDERATION OF HEMOPHILIA
 
Published by the World Federation of Hemophilia©World Federation of Hemophilia, 2005The WFH encourages redistribution of its publications for educational purposes by not-for-profit hemophiliaorganizations. For permission to reproduce or translate this document, please contact the CommunicationsDepartment at the address below.This publication is accessible from the World Federation of Hemophilia’s Web site at www.wfh.org. Additionalcopies are also available from the WFH at:
World Federation of Hemophilia
1425 René Lévesque Boulevard West, Suite 1010Montréal, Québec H3G 1T7CANADATel.: (514) 875-7944Fax: (514) 875-8916E-mail: wfh@wfh.orgInternet: www.wfh.orgThe World Federation of Hemophilia does not endorse particular treatment products or manufacturers; anyreference to a product name is not an endorsement by the WFH. The World Federation of Hemophilia does notengage in the practice of medicine and under no circumstances recommends particular treatment for specificindividuals. Dose schedules and other treatment regimes are continually revised and new side-effects recognized.These guidelines are intended to help develop basic standards of care for the management of hemophilia and donot replace the advice of a medical advisor and/or product insert information. Any treatment must be designedaccording to the needs of the individual and the resources available.
 
TABLE OF CONTENTS
Introduction 1General Management of Hemophilia3
What is Hemophilia?
3
Diagnosis of Hemophilia
3
Bleeding Manifestations in Hemophilia
4
Sites of Bleeding 
4
Incidence of Different Sites of Bleeding 
4
Incidence of Bleeding into Different Joints 
4
Chronic Complications of Hemophilia
5
Carriers
5
Comprehensive Care
5
Comprehensive Care Team
6
Functions of Comprehensive Care Program
7
The Family 
7
Management of Hemophilia
7
Principles of Care 
7
Management of Bleeding 
8
Adjunctive Management 
8
Home Therapy 
9
Prophylaxis 
9
Surgery 
10
Inhibitors 
10
Management of Bleeding 
11
Allergic Reactions in Hemophilia B Patients with Inhibitors
11
Immune Tolerance Induction
11
Patients Switching to New Concentrates
12
Genetic Counselling/Prenatal Diagnosis
12
Delivery of Infants with Known or Suspected Hemophilia
12
Vaccination
13
Psychosocial Issues
13
Daily Living 
13
For the Person with Hemophilia
14
For the Family
14
For the Community
14
Dental Care
15
Monitoring Outcome of Treatment
16
Sports and Hemophilia
16
Guidelines for the Management of Hemophilia

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