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Newsletter- October Issue- Final Final Copy

Newsletter- October Issue- Final Final Copy

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Published by Kaylee Baker

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Published by: Kaylee Baker on May 11, 2012
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The mission of UNC Dance Marathon is to unite the University, community and state in fostering emotional
and nancial support that improves the quality of life for the patients, families and staff of N.C. Children's Hospital.
     V     O     L     U     M     E     3    ;     I     S     S     U     E     3
FESTIFALL
|
OCTOBER 2 — 12-6 PM
 
Look for UNC-DM at Festifall.
 
Downtown Chapel Hill, West Franklin St.
CrAIg WooLArd BAnd
|
OCTOBER 6 — 11 PM - 2 AM
 
Listen to music and have some fun
with UNC-DM and CWB.
 
Pantana Bobs.
We hosted our rst hospital social,featuring an outer space theme. Kidsparticipated in a moon rock hunt,
decorated their own glow-in-the-dark
stars and made spaceships and planets.Committee members helped serve
hot meals to families every Tuesdayduring Parents’ Night Out, which is
funded by our organization.As part of the Healthy Steps pro
-
gram, we read and played games with
kids in the General Pediatric Clinic
waiting room from 9 a.m.-5 p.m. everyMonday, Wednesday and Friday.We volunteered in the hospital’sPediatric Playroom, where we played
video games, climbed the jungle gym
and drew pictures with the kids.
@esli14
Liz Goslin
Whenever I’m stressing
 
about school, I read the
#FTK 
story on my bulletin board…
puts things into perspective
 
@UnCdM19 Septembe, 2011
Read our blog post to nd out hoexperiences ith our organization haveinuenced graduates in their currentjobs. Check out page II o the Nesletteror to-time Overall Committee memberKate Gilliam’s memory o UNC-DM.
 [GrantRant]
Learn the ins and outs o one o the ninene grants that e have made possibleor N.C. Children’s Hospital. This monthe eature the palliative care unit,hich provides counseling and treatment
 
or seriously ill children and their amilies.Meet a UNC student ho has been impactedby N.C. Children’s Hospital. This month,read about Emily Horton and her connectionto N.C. Children’s Hospital.Learn about many o the events e put
 
on throughout the year. In this issue,UNC-DM gets a little seet and a littlemessy as committees compete in the rstVermonster o the year.
 [Mission365]
a year-round effort
 [HospitalInspiration]
for UNC-DM Dedication
Tommy Lasorda, former Major League Baseball player since1954, the longest non-continuous tenure anyone has had with
the Brooklyn/Los Angeles Dodgers
“Never send an adult  to do a kid's job.” 
Tweet the movie this Quotation is from and we’ll take your suggestion for the next spy movie Quotation we use! 
"The difference between the impossibleand the possible lies in a man's determination."
 [ZeroedIn]
Where are they noW
Page VPage VPage IIPage III & IV
unC-dM’s IMPaCt
 
Your Mission Should You Choose to Accept it
Welcome UNC-DM family, to our first themednewsletter of the year.We’re glad you’re here. We hope you will consider
 
this five-paged, freshly created, spy-themed
 information source as your inside-man, or “secret-
agent,” if you will, for all things UNC-DM. For those
 of you who have yet to connect the dots, the theme
of the 2012 UNC Dance Marathon is Mission: Possible.Many people who could not attend the annual
theme reveal at Player’s Dance Club found outour theme via UNC-DM’s Twitter@UNCDM
.Double-Oh-Seven inspired, our theme implies
 
our readiness to tackle the challenge of improving
 
the lives of patients and families of N.C. Children’s
 
Hospital, as stated in our organization’s mission,which you can view on page one underneath our logo.
 
Some of the pieces you will see monthly thatmake up the puzzle of this newsletter include:1.
Hspital ispiati f UnC-dM eicati
,”where you will meet a UNC student who has either
been directly impacted by N.C. Children’s Hospitalor knows somebody who has been. (Page III)2.
” where you
will encounter a link to our rst-of-the-month blog post
 
in the newsletter. Read about the ways in whichexperiences with our organization have inuencedgraduates in their current jobs. (Page IV)3.
Isie Scp datba: Behi the sceesF the Kis
,” where you will enter the life
of someone who plays a crucial role in one of the
 
many aspects of our organization. There are a plethora
 
of options – which role will the dart land on thismonth? (Page II)4.
gat rat
,” where you will learn the insand outs of one of the nine new grants that we
have made possible for N.C. Children’s Hospital.(Page II)
Be sure to look for these stories, and many more,
each month.As part of Publicity committee, we are working
 hard to make sure this newsletter is engagingto you and all other members of the UNC-DM
family, that is, a community of people who are
brought together through their interactions,
dedication, love and heart for the patientsand families at N.C. Children’s Hospital. Helpus spread awareness of our mission by passing
the newsletter on to others who would enjoy
scrolling through its pages.We are open to all suggestions from readerslike you. If you have a story idea, a comment, acritique, a criticism or know someone who wantsto receive the newsletter, simply let us know.
 
We are here to inform you. Just mention
on Twitter, send an email to Kaylee Baker(Kaylee.baker89@gmail.com) or come visit us on UNC’scampus in suite 3508D in the Student Union.A million thanks for reading. We’re thrilled
 
to dive into this year with you and make it possiblefor the patients and families.For the Kids,
publicity
 
chair2012
 
unc
-
dm
 
2012 UNC-DM Theme Reveal
photo
 
by
 
carolyn
 
stotts
| Dancers at Player's Dance Club anxiously waitfor the Overall Committee to hold up the last sign, announcing the
theme of the 2012 UNC Dance Marathon:
Missi Pssible
.
 
GRANT RANT
When Leisa and Jim Greathouse discoveredtheir son Samuel had a rare blood disease known
 
as Langerhans Cell Histiocytosis (LCH), they were
 
determined to ght the disease as a family. Samuel
 
underwent “salvage” treatment and learned his LCH
 
was inactive. However, Samuel had a relapse
 
and needed a bone marrow transplant.Shortly before Samuel was to receive his transplant,
 
his bilirubin (a pigment formed in the liver) rose,disqualifying him from receiving the transplant.Leisa and Jim hoped Samuel’s bilirubin wouldlower, but also wanted to spend as much time at home
 
as possible. At the time, a Pediatric PalliativeCare Program was unavailable in the hospital, so they
 
decided to go home where two-year-old Samuelpassed away Sept. 17, 2007.“[We] can’t help but wonder how improvedour quality of time would have been with a Palliative
Care team walking the journey with us,” Leisa
and Jim said.With UNC Dance Marathon’s nancial help, N.C.Children’s Hospital’s Department of Pediatricscreated a Pediatric Palliative Care Program (PPC).A committee of people interested in palliative
care for children formed several years ago at the
hospital. This committee’s hope was to create
 
a service where people from many backgroundswould come together to enhance quality of lifefor patients.The program is made up of chaplains, therapists,nurses, physicians and psychologists who form
 
a clinical consultation service. Nurse practictioner
Diane Yorke said the committee would work together
to provide information on goal setting, difcult
 
conversations with patients and families, bereavementservices and pain management for dying children.Before UNC-DM was available to help, the hospitaldid not have the financial support it needed
 
to create the program.In addition to helping with creation and trainingthe committee, UNC-DM provides part of Yorke’ssalary, along with the partial salary of Physician
and Program Co-Director and Medical DirectorElisabeth Potts Dellon and Psychology Fellow
Mary Beth Grimley. The program has a long-termgoal to expand with children’s hospice programsacross North Carolina.
The clinical consultation service, which will
consult with patients and families in the hospital,will open in January 2012. “The key thing at thispoint is that the service wouldn’t be possible
 
without UNC-DM,” Dellon said. “Pediatric Palliative
Care services are becoming a standard of care
for patients that have life threatening conditions.It is extremely important to the well-being
 
of the children.”The program reects UNC-DM’s mission to “improvethe quality of life for the patients and families
 
of N.C. Children’s Hospital.”“The goals of PPC include promoting hope
 and healing, two things that UNC-DM also strives
to provide for these families,” said UNC-DMOverall Coordinator Gracie Beard.
UNC-DM’s efforts give families the resources
they need to ensure quality of life for their children.“The Pediatric Palliative Care [Program]…would have been a welcome resource in our situation.Whether it is two years or seventy-two years,
 
it is the quality of those years shared betweenparents and their child[ren] that truly matter,”Leisa and Jim said.
Pediatric Palliative care Program
Megan TurnerEvery year during UNC Dance Marathon’s
Dancer Recruitment Week (DRW), students signup to take part in 24 hours that often changetheir lives.Last year during DRW,
 the Morale committeecaught the attentionof Brian Min, a junior
psychology and women’s
 
studies double major.
Min said he did not knowa lot about UNC-DM,but did know it wasa great cause he wanted
to get involved with.
“UNC-DM made me realize
that I can actually do something for others,”he said.UNC-DM helps unite the UNC-CH campus
 and the event allows students to dance for
“one goal, one cause and one hope,” according
 
to Min. This connection was his favorite inspiration
 
during the marathon.When asked, “What does UNC-DM mean to you?”
 
Min said: “UNC-DM is what Carolina is all about.
 The students care about others and realize that
nothing matters if we don’t have a heart.”
Min said the marathon taught him that “we
have the power to change the world.” Thanks
to Min and many other dancers, the lives
of patients and families at N.C. Children’sHospital are being changed.
“UNC-DM is a collaboration of wonderfully
well-rounded UNC students, and it reectswho we are,” Min said.
 
Where dId the dart land
 unC-dM danCer
2010 dancer Brian Min
Megan Turner

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