Opinion: Organ network needs to keep the voice of children’s advocates

Major changes may be coming to a pediatric organ transplant committee, with the risk of decreasing children's access to these lifesaving operations.
Source: Ebrahim Noroozi/AP

We enter the intensive care unit to examine our 8-month-old patient. Tubes and wiring surround her body like a spider’s web; her mother hovers to place a pink bow in her meticulously combed hair. Mira (not her real name) has biliary atresia, a condition that prevents her liver from properly ridding the body of toxins and protecting her from bleeding.

She waits for a liver transplant, and every day we worry: that she

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