• book

From the Publisher

"In a series of dramatic essays and photographs by the renowned San Francisco-based photographer Amelia Davis, My Story is an evocative description of what it is like to live with multiple sclerosis (MS), a disease that affects about 350,000 Americans and whose cause is still not entirely known. The essays and accompanying photographs in this highly engaging, beautifully illustrated book poignantly portray the lives of thirty-two men and women from the ages of seventeen to seventy and of various ethnicities, and socio-economic backgrounds who share the challenge of living with MS. Some, like Amelia, use no mobility aids, while others use canes, wheelchairs, or electric scooters. All have had to face the challenges and limitations that MS has imposed upon their lives, and each has devised unique and often creative coping strategies.Accompanying each essay are commentaries by family members and friends that express their own personal feelings and experiences of living with this disease.Here are the inspirational stories of women, men, and children who live with this disease. Many have children; one or two are currently expecting them. Treatments and therapies for slowing the progression of the disease are revealed and shared, from the latest advances in prescription medication to alternative methods of coping, including yoga, exercise and competitive sports, creative activities such as writing and art, and even community activism. A wide range of accompanying stories by spouses, children, and other loved ones depict the ups and downs of living and caring for someone who has MS, from the moment of first diagnosis to dealing with its ongoing challenges. All are strong reminders of the selflessness of the human spirit, and its ability to nurture and remain strong under even adverse circumstances.Highly motivating and deeply inspirational, My Story will be welcomed by anyone who lives with or shares the life of someone who has MS. ";"One box of tissues wasn't nearly enough. -- about.com""Amelia Davis was diagnosed with multiple sclerosis five years ago, just before her 30th birthday. After that, she learned she could live a full life with the disease, and to share that fact with others she undertook a personal project to photograph people living with MS, including such public figures as NASCAR driver Liane Mark, actor David Lander (Squiggy of Laverne and Shirley TV fame), and comedian Richanrd Pryor. Her images have been collected in a warm and enlightening new book, My Story, which has been receiving strong reviews."" -- American Photo ""This positive and inspiring portrait will be welcomed by anyone who lives with MS or shares the life of someone who has MS. Highly recommended for all general collections."" -- Library Journal""In creating her new book, 'My Story: A Photographic Essay of Life With Multiple Sclerosis', Davis learned a lot more about MS and the people who have it. Thirty-one of them -- and many of their caregivers -- join her to trash stereotypes, confront fears, offer hope, tell the truth and put 32 faces on a mysterious illness that is often misunderstood."" -- San Francisco Chronicle""...My Story is a browsable compilation of essays depicting the many humanfaces of MS. Although the complexity of language varies throughout, thephotographs are accessible, even to new readers. The images greatly enrichthe text, offering encouragement and inspiration for anyone coming to termswith what it means to be a person with multiple sclerosis."" -- Consumer Connections ""You will keep this book in easy reach to read repeatedly - keep it by your bed, near your desk, close to your recliner, but buy it and keep it nearby because when you need inspiration, you will find it in these pages."" -- MS World"
Published: Demos Health on
ISBN: 9781932603019
List price: $19.95
Read on Scribd mobile: iPhone, iPad and Android.
Availability for My Story: A Photographic Essay on Life with Multiple Scle...
With a 30 day free trial you can read online for free
  1. This book can be read on up to 6 mobile devices.

Related Articles

4 min read

Being A Guinea Pig For Science Can Be A Long, Slow Slog

"Why am I doing this, again?" I've asked myself that question several mornings over the past few months as my stomach begins growling, usually after I smell popcorn in my coworker's office. He's on a strict 10 a.m. popcorn schedule that coincides with my strict 10 a.m. hunger pang schedule. I am following an intermittent fasting program as part of a clinical trial for people with multiple sclerosis. For the past five months, I have tried to eat only between noon and 8 p.m., and am allowed only water, tea or coffee during the remaining 16 hours. It's part of a study at Johns Hopkins Medicine in
2 min read

No.34 Rising From the Ashes

As told to Noah Davis ​Jake Shoff The Phoenix Recovery & Counseling Centers ​• Three-year growth 6,545% • 2015 revenue $6.7 MILLION ​AFTER I GRADUATED from Brigham Young University in 2004, I started a construction company in Orem, Utah, with a good friend of mine, Josh. The first few years, things were great. Then Josh had a really bad car accident. He fell into a depression, and started to struggle with prescription pain pills. ​I GOT CONCERNED after the birth of my first son, when Josh asked if he could have my wife’s pain medication. And I remember coming into the office and seeing pow
4 min read

A Child's Suffering Drives A Mother To Seek Untested Treatments

Your child is diagnosed with a serious autoimmune disease and conventional treatments aren't proving to be effective. Doctors prescribe powerful medications that don't seem to work. Not only is your child not responding as hoped, he's withering from the side effects. What do you do? Journalist Susannah Meadows found herself having to answer this question when her son, Shepherd, was diagnosed at age 3 with juvenile idiopathic arthritis, joint inflammation that can last a lifetime. When the drugs didn't work, Meadows was persuaded to look at his condition through a different prism and to conside