In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families.
Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations.;Foreword; Acknowledgements, Preface; Section 1: Introduction 1. What is Amyotrophic Lateral Sclerosis?; 2. The Diagnosis of ALS; 3. Clinical Trials and Finding New Drugs for ALS; Section 2: Managing the Symptoms of ALS; 4. A Multidisciplinary Approach to Care ; 5. Quality of Life and Psychosocial Issues; 6. Treating the Symptoms of ALS; 7. Nutrition and Swallowing; 8. Speech, Communication, and Computer Access; 9. Staying Mobile; 10. Breathing and Sleeping; 11. Thinking and Behavioral Changes; 12. Palliative Care; Section 3: Resources ; 13. Finding a Cure and Improving Living with ALS: How the ALS Association Helps Patients and Families; 14. The Muscular Dystrophy Association (MDA), ALS Division; 15. Negotiating the Insurance Maze; Section 4: Appendix Resources, Index.;"Want to know the anatomy and physiology underlying ALS? How the disease is diagnosed? What tests need to be done and what they mean? What clinical trials are all about? How to treat symptoms and live better? How to negotiate the insurance maze? You'll find answers to all these questions and more in this highly readable book" -- MDA/ALS Newsmagazine
"*****!! All of [the authors] have extensive experience helping individuals affected by ALS and their families. Thus, the information they offer in the book is practical, realistic, and specific... All in all, Amyotrophic Lateral Sclerosis provides up-to-date, comprehensive information on living with ALS, which make it very useful for individuals affected by ALS and their families." -- About.com
"Informative, accurate and even reassuring, and will be valuable to readers internationally. In particular, the description of the major features and symptoms caused by ALS is excellent, and the methods of managing these problems are simply and lucidly explained... This book is an excellent and well thought-out example of an important resource that should be made available to all those suffering with ALS." - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
"The authors are all experts in the management of ALS, and this book will be much appreciated by patients and professionals alike."-- From the foreword by Lewis P. Rowland, MD, Neurological Institute, Columbia University Medical Center