P. 1
Newborn Screening

Newborn Screening

|Views: 895|Likes:
Published by CSGovts
Four million infants are screened at birth each year and approximately 12,500 are diagnosed with a condition for which prompt initiation of treatment can prevent devel­opmental delays or permanent disability. The number of tests performed has increased in recent years and now tests for 31 core conditions are recommended, but not all states require the same tests. Hearing tests are relatively new – 34 states require them, 10 states do not, and six states have certain exemptions for hearing screening depending upon the size of the hospital or birthing center. The newest test – pulse oximetry to screen for certain heart defects – has been adopted in nine states so far.
Four million infants are screened at birth each year and approximately 12,500 are diagnosed with a condition for which prompt initiation of treatment can prevent devel­opmental delays or permanent disability. The number of tests performed has increased in recent years and now tests for 31 core conditions are recommended, but not all states require the same tests. Hearing tests are relatively new – 34 states require them, 10 states do not, and six states have certain exemptions for hearing screening depending upon the size of the hospital or birthing center. The newest test – pulse oximetry to screen for certain heart defects – has been adopted in nine states so far.

More info:

Categories:Types, Research
Published by: CSGovts on Aug 03, 2012
Copyright:Attribution Non-commercial

Availability:

Read on Scribd mobile: iPhone, iPad and Android.
download as PDF, TXT or read online from Scribd
See more
See less

02/03/2015

pdf

text

original

THE COUNCIL OF STATE GOVERNMENTS

JULY 2012

CAPITOL FACTS & FIGURES
HEALTH

Newborn Screening
The number of required newborn screenings to determine if a baby has a harmful or potentially fatal disease has increased in recent years, but not all states require the same tests.
• States test for almost all 31 core conditions adopted by the secretary of U.S. Health and Human Services in 2010, according to the National Newborn Screening and Genetics Resource Center.1 • According to the Centers for Disease Control and Prevention, 4 million infants are screened each year and approximately 12,500 are diagnosed with a condition for which prompt initiation of treatment can prevent developmental delays or permanent disability.2 • Pulse oximetry, a newer noninvasive test that screens for certain heart defects, was added to the universal newborn panel in 2011 by Health and Human Services Secretary Kathleen Sebelius. This does not automatically add the test to state requirements. Instead, it provides federal technical assistance for states to implement their own pulse oximetry testing programs.3

As many as 12,000 babies are born with hearing loss in the U.S. each year.4 According to the Centers for Disease Control and Prevention, the prevalence of hearing loss is 1.4 per 1,000 of screened newborns.5
• Thirty-four states and the District of Columbia have hearing screening programs that are universally required by law or rule and are fully implemented. • Ten states—Arizona, Colorado, Georgia, Idaho, Maine, Nebraska, New Hampshire, North Dakota, South Dakota and Washington—offer hearing screenings but do not require them. • Six states—California, Kentucky, Nevada, New York, Oregon and Texas—have certain exemptions for hearing screening depending upon the size of the hospital or birthing center.6

• Pennsylvania and Illinois added pulse oximetry screenings to the newborn panels without any legislation. • Four states—California, Alabama, Pennsylvania and New York—have legislation before the 2012 sessions to add pulse oximetry to newborn screenings.7
REFERENCES
National Newborn Screening and Genetics Resource Center. “National Newborn Screening Status Report.” May 8, 2012. Accessed at http://genes-r-us.uthscsa.edu/sites/genes-r-us/files/nbsdisorders.pdf. 2 Centers for Disease Control and Prevention. “Morbidity and Mortality Weekly Report.”June 1, 2012/ 61(21);390393. Accessed at http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6121a2.htm. 3 “Letter from Secretary Sebelius.” September 21, 2011. Accessed at http://www.hrsa.gov/advisorycommittees/ mchbadvisory/heritabledisorders/recommendations/correspondence/cyanoticheartsecre09212011.pdf. 4 Centers for Disease Control and Prevention.”What’s Your Baby’s Hearing Screening Result?” May 23, 2011. http://www.cdc.gov/Features/NewbornHearing. 5 Centers for Disease Control and Prevention. “Hearing Loss in Children: Data and Statistics.” June 19, 2011. http://www.cdc.gov/ncbddd/hearingloss/data.html. 6 National Newborn Screening and Genetics Resource Center. 7 Pulse Oximetry Advocacy. “Legislation: Laws, Bills and Recommedations.” http://pulseoxadvocacy.com/current-legislation.
1

Pulse oximetry is a painless test performed by placing sensors on a baby’s skin to screen for seven critical congenital heart defects. Not all heart defects can be identified with this testing.
• Seven states—Connecticut, Indiana, Maryland, New Hampshire, New Jersey, Tennessee and West Virginia— have passed legislation to add pulse oximetry to their newborn screenings.

Hannah Oglesby, CSG Research Assistant, Debra Miller, CSG Director of Health Policy | dmiller@csg.org

Mandated Newborn Screenings
Hearing Test Performed at Birth Universally Required Screening for 31 Core Conditions Pulse Oximetry Status in States

State Alabama Alaska Arizona Arkansas California Colorado Connecticut District of Columbia Delaware Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming

by Law or Rule and Fully Implemented

Yes Yes Universally offered but not yet required Yes Not required in small birthing centers, but service must be contracted out Universally offered but not yet required Yes Yes Yes Yes Universally offered but not yet required Yes Universally offered but not yet required Yes Yes Yes Yes Required in all birthing center with at least 40 births per year Yes Universally offered but not yet required Yes Yes Yes Yes Yes Yes Yes Universally offered but not yet required Required in all hospitals and licensed obstetric centers with at least 500 births per year Universally offered but not yet required Yes Yes Health Commissioner established a program to screen Yes Universally offered but not yet required Yes Yes Required in all hospitals and birthing centers with more than 200 live births Yes Yes Yes Universally offered but not yet required Yes Required in hospitals and birthing centers that offer obstetrical services in counties with more than 50,000 people Yes Yes Yes Universally offered but not yet required Yes Yes Yes

All All All All All All All All All All All All All All All All All All All All All Most* All All All All All All All All All All All Most& All All All All All All All All Most& All All All All Most# All All All

Law passed

Law passed

Law passed

Law passed Law passed

Law passed

Law passed

Table Sources
National Newborn Screening and Genetics Resource Center. “National Newborn Screening Status Report.” Rep. , 8 May 2012. Web. 12 June 2012. http://genes-r-us.uthscsa.edu/nbsdisorders.pdf. Pulse Oximetry Advocacy. “Legislation: Laws, Bills and Recommedations.” http://pulseoxadvocacy.com/current-legislation. CSG research on state legislation. * indicates that three disorders are not mandated but are likely to be detected as a by-product of MRM screening targeted by Law or Rule. # indicates that one disorder is not mandated but is likely to be detected as a by-product of MRM screening targeted by Law or Rule. & indicates no testing for Tyrosinemia Type 1.

You're Reading a Free Preview

Download
scribd
/*********** DO NOT ALTER ANYTHING BELOW THIS LINE ! ************/ var s_code=s.t();if(s_code)document.write(s_code)//-->