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Oklahoma Chapter American Syringomyelia & Chiari Alliance Project Support Group Meeting Agenda

February 23, 2013
“Every situation is different, lots of ideas are shared, but you know your body best --so take what works for you, leave what doesn't" ~Michele McGraw, ASAP Washington Chapter Leader

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Welcome & Introduction of anyone new to the group. Our Discussion Topic: Medical Disability/SSI with guest speaker: Kayla Bower; from The Oklahoma Disability Law Center Followed by Financial Assistance, Reducing your Medical Bills, Traveling for treatment Assistance, and Fundraising General Conversation, if time allows.


Future Meeting Dates:
March 30th – 11am, Southwest Oklahoma City Public Library Discussion Topic: None, just general conversation April 27th – 11am, Southwest Oklahoma City Public Library Discussion Topic: TBA

*2013 Chiari & Syringomyelia Conference: July 24-27th, Los Angeles, CA. Co-Hosts: Dr. Ulrich Batzdorf, MD & Dr. Langston Holly, MD *LEARN Points Program: *End of May, there will be no meeting that month, instead we will be getting all the CM/SM kids together for a meet and greet and a bead activity. Date & Time: TBA soon. Everyone is welcomed to join.

Related/Helpful Links:
 National Disability Rights Network To find help in the state you live in, click on the map!

Parent Resources on Under the “Resource” Tab

ASAP Online Message Board Under the “Resource” Tab, then under “Online Support Group”