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Children of Vietnam Veterans
rê.n gel eg
www. f¡ cg b-p oß. çom/a g e¡ to ra.n E e I e g aç.y
contact us at
agen toran gelegacy@g mai l.com
Founded in 20t7 by Sharon L, Perry & Danielle K. Perry Reyes
Ê'çËnt ürärtü* L*üäcy
ChilcJren of Vìetriani Veterãns
Hello my name is Danielle Perry Reyes, lam the daughter of a Vetnam Veteran. llly father died June 3, 2005 at the young age of Fifty Six (56); after a long battle with illnesses caused by Agent Orange. I am a Founder of Agent Orange Legacy, my Co-founder Sharon L. Perry is also my mother. I have been sick all of my life. At the age of thirty one (31) I have twenty eight different illnesses. Everyday is a struggle.
Agent Orange Legacy is committed to fighting for the support, services and rights of the Arnerican Children of Vietnam Veterans. Since 20AT we have been gathering health information from our members who are children of Vietnam veterans exposed to Agent Orange. 92% of our members report they have birth defects and/or suffer from autoimrnune or rare disease, mental
Our research leads us to believe that the children suffer from birth defects, chronic and severe autoimmune and rare diseases. The children of Vietnam veterans exposed to agent orange are at risk for developing diabetes, heart disease and many different forms of cancer as are other Americans. We believe that the Children of Metnam veterans experience a much higher rate of risk than the average American for developing these diseases and are at a greater risk for developing them at a younger age than is normally expected. Although we don't have the proof we suspect as much since we see a high incidence of diabetes, heart disease, and cancers in the health information provided by our members who are children of Vietnam veterans. We currently have a list of four hundred and ninty-seven (497) illnesses reported by our members. We need a Center of Excellence for the Çhildren of Metnam Veterans and future generations! Ïhe center can serve as a facility where the children of Metnam veterans can get the medical help that we so desperately need, and at the same time conduct the scientific studies that need to be done. Vietnam Veterans of America is currently working on legislation to build a Center of Excellence for the children of Vietnam veterans. We support their work wholeheartedly!! When lwas 10 years old lwas admitted to the hospital. The doctor told my parents that lwas "failing to thrive". lhad severe and debilitating muscle spasms allover my body and was wheelchair bound. I had to learn to walk again at 10 years old. There were no
answers, no help and nobody listened. tMy mother told me that our nightmare started long before the day I was admitted to the hospital. lwas sick from my father's exposure to Agent Orange before he started to show any s¡mptoms.
"This is the struggle of a lifetime. I for one, will fight until nry very last breath has left ny bodyand my heart no longer beats". Danielle K. Re¡æs, Founder of Agent
The children of our Vietnam veterans, who answered the call of duty, live with health problems and birth defects without answers to their questions. We struggle without appropriate medical intervention, without the services and support we, as the sick and disabled children of Vietnam Veterans, deserve.
Many of the adult children of Vietnam veterans have suffered needlessly. Many more
have multiple mental and physical health problems. Something must be done. We do not want our children to suffer as we have.
Why do something now?
1. There has been more research conducted shedding new light on old questions.
2. Technology has provided us with information that was just not available prior to this
time. 3. The children of Vietnam veterans have grown up and we now have children of our own. 4. The health of the adult children of Metnam veterans continues to decline.
5. The next generation have inherited birth defects as well. A lot has happened over the years.
There have been advances in
1. Accessibility in technology as well as medical information.
2. Ease of communication.
3. The deaths of Vietnam veterans exposed to Agent Orange.
4. lnter-generational veteran - child/grandchild issues. 5. Extensive documentation.
6. There has been advancement and awareness of other Agent Orange victims worldwide. For us, the children of Vietnam veterans, this is our legacy.
We have learned that some of our members have also been exposed to other toxic substances. This makes the matter of improving the lives of the adult children and grandchildren and great grandchildren of Vietnam veterans a daunting task. Some of the adult children have been born or lived on military bases such as Camp Lejune where military families have been exposed to toxic chemicals; for instance contaminated drinking water at Camp Lejeune.
There are many children and grandchildren of Vietnam veterans who have served in the Gulf, lraq and Æghanistan theaters of war and have multiple exposures to toxic chemicals that are considered mutagenic and teratogenic. War is expensive; the cost of waging war and its aftermath are just now being realized by so many. Agent Orange/Dioxin is known as an endocrine disruptor. lt can be naturally occurring in the environment as well as a man made synthetic chemical. The endocrine system deals with most of our bodily functions. lt is a very vital system. Without it our bodies would function very poorly. Children of Metnam veterans sufferfrom autoimmune diseases. The kinds of symptoms we suffer from make our lives extremely complicated. We have no answers or help from our doctors because autoimmune disease can not be detected by routine blood tests. The American Autoimmune Related Diseases Association (AARDA) reports that there is "untold suffering" of persons with autoimmune diseases due to misdiagnosis or delayed diagnosis which may result in damage to vital organs.
We have found that there are children of Vietnam veterans who have been diagnosed with rare diseases. One of the problems that we face is many doctors do not recognise rare disease or their symptoms because so few people have rare diseases.
Many of the children of Metnam veterans and their families want to have genetic DNA testing done but we cannot afford it. We understand that these tests can screen for mutated genes and mutated genes can be linked to chemical exposure. This would help us to find out what is
happening to our bodies so we could, for example, slow the progression of disease. lMaybe if knew what disease I've had most of my life I wouldn't have just been diagnosed with gastroparesis. lf lknew what lwas dealing with lcould have made changes that could have improved the quality of my life.
There are very few studies about the effects of Agent Orangeldioxin on the children of Metnam veterans. To date there have been more studies done on the effects of the Vietnam War on the families of Vietnam veterans and their children than the effects of Agent Orangeldioxin.
Again I say there needs to be a "Center of Excellence" a place for the children of Vietnam support veteran as well as the following generations to go receive the proper medical intervention our and services that we deserue, the help we so desperately need. We have or are watching of parents die due to the efiects of exposure to Agent Orange/dioxin. We are sick and some us are dying or already dead. We need help, we have been left out in the cold alone, to suffer without any help. without the proper medical intervention support and services that we deserve as the children of Vetnam veterans. Please help us now, before it is too late. Thank you for giving me this opportunity to speak on behalf of Agent Orange Legacy and the children of Vetnam veterans. We are the second generation Agent Orange victims and Dioxin survivors.
List of illnesses reported by our members Abnormal PAPs Acid Reflux Acne lssues (Undefined, Cystic) Addiction Addison's Disease Adrenal Gland Tumors Alcoholism Allergies (Antibiotic/Others) Alopecia Amblyopia Amenorrhoea Amputation Ancephaly Anemia Anger lssues Angiodema Ankylogossia Ankylosing Spondylitis Anorexia Antiphospholipid Syndrom e Anxiety Aolpecia Areata Aphasia Appendicitis (Cancerous/Undefined) Arachnoid Cyst Arnold Chiari Malforrnation * See Chiari below Arthritis Arthritis (Juvenile) Arterial Vienous lt¿lalform ation (AW) Aspergers Asthma Ataxia Atrial Fibullation Attention Deficit Disorder (ADD) Attention Deficit Hyperactivity Disorder (AD HD) Autism (ASD) Autoimmune Disorders Autonomic Nervous System Ðysfunction Back & Disc Problems Bacterial lnfections Balance Problem
Bell's Palsy Berger's Disease (Kidney Disease) Bicornate Uterus Bicuspid Aorta Heart Valve Bilateral Baker's Cysts Bipartide Patellas Bipolar Disorder Bladder lss ues lnfections/Overactive Bleeding lssues Blindness Blood lssues (Undefined) Blood in Urine (Undefìned) Blood Vessel lssues Boils Bone Cancer Bone Spurs/Problems (Undefined) Bones Missing at Birth Bowel Deformity/lssues Brain lssues (Water on the Brain, etc.) Brain Stem (Small) Brain Les ions Aneuris m/Tumors/Surgery Breathing Problems (Undefined) Breast Cancer Broncitis/Bronchial Spasm s Bursitis Calcium Def,ciency Camptodactyly Cancer (Undefined) Cardiac Ahhrythmia Cardiac Deformity Cardo Sarcoma CarpalTunnel Caudal Regression Cava Perthes Celiac Disease Cellulitis lnfections Central Nervous System Disorder Cerebal Palsy Cerebellum lssues (Undefi ned) Cerebra Anuersysrn CervicalCancer Cervical Dys plas ia/lncom petency Chairi lValformation (Assoc.w/ Spina Bifida)
Chrom osom e Abnorm alities
Chronic Fatique and lmmune Deficiency Syndrome (CFIDS) Chronic lnflammatory Demyelinating Polyneuropathy (CIDP) Chem ical Sens itivities Chloracne Chronic Obstructive Pulmonary Disease (COPD) Cleft Palate, Lips Club Foot (Talipes Equinovarus) Cognitive lssues Cold/Flu (Chronic) Cold Hands/Feet Collapsed Vertebre Colon lssues Compromised lmmune System Congenital Heart Blockage Congenital Adrenal Hypoplasia Congenial Scoliosis Connective Tissue Disorder Conversion Disorder Constipation/Cram ping Costrocondritis Cranial Synthesis Crohn's Disease Crossed Eyes (Newborn) Cryoglobulinemia Cushing's Syndrome Cystic Fibrosis Cysts Debilitating muscle spasms Deep Venous Thrombosis (DVT) Deformed Sinuses D eform ed Arm s/Legs/Fi n gers/Toes lFeet Deformity of ChesUBreast DeformiÇ of the Face/Head/Neck Deform ity of Shoulders/Àrfu scles Degenerative Disc/Bone Disease Degenerative Ligament Tiss ue Degenerative Joint Disease Dehydration DentalProblems Depression Dermetitis
Developmental Delay Deviated Septum Dextrocardia Diabetes Type I Diabetes Type ll Diagonal Earlobe Crease Diarrhea Digestive lssues Disc Desiccation Ðissociative Disorder Diverticulitis Dizzy Spells Double Hernia @ Birth Double Ureater Double Uterus/Cervix Ðouble Uvula Drug Abuse Duane Syndrome Dwarfism Dysautonomia Dysphaxia Dyslexia Dysthymia (AKA Chronic Depression) Ear lnfectionslProblem s/Surgeriesff ubes Ectopic Pregnancy Eczema Elevated Heart Rate Emotional Problems Endocrine Disorders Endomertil Cancer Endom etrial Hyçerplasia Endometriosis Epilepsy Excessive Sweating Exotropia Eye Problems (Undefined) Facet Joint Syndrome FacialAplasia FamilialTremor Fatigue (Chronic, Syndrom e) Felty's Syndrome Fever (Undefìned) Fibrocystic Breast Disease
Fibromyalgia Follicular Lymphoma/Large B Cell Lymphoma Food Allergies Foot Deform ity/lssues/Burning Fragile X Syndrome Focal Segmental Glomerulosclerosis (FSGS) Fused Digits Fused Veterbrae/Disc Gall Bladder DiseaseiStones/Removal Ganglian Cysts Gastritis (Acid Reflux) Gastrointestinal Problem s Gastroesophageal Reflux Disease (GERD) Gastroparesis Gene Mutations (4G4G) Gerd Glaucoma Glioblastoma Gluten lntolerance Goiter Goldenhar Syndrome Gout Grave's Disease Growth Hormone Deficiency (GHD) Growths/Lumps on Skull Hair Loss Hashimoto's Head Sores Headaches Hearing Loss/Deafness Heart Attack Heart Disease Heart Failure Heart DefecUMurm ur/Newborn Heart Problem s/Surgery (Undefi ned) Heat lntolerance Hemangioma Hereditary Hemorrhagic Telangiectasia (HHT) Hernia Herniated Discs High Blood Pressure High Cholesterol High Pulse Rate
Hip Deform itylPain/S urgery/Undefined Hip Dysplasia (Congential) Hip Pain (Undefined) Hip Replacement Hives
Histiocytosis Hodgekin's Lymphoma Horm one lss ues/Replacem ent Hydradenitis S upprativa Hydrocephalus Hylan Membrane Hymen lssues (Partially lntact) Hypercoag uaguli bility Hyperhomocysteinomia Hyperinsulimia Hyperlipidemia Hyperm obility lss ues/Su rgeries Hypertension Hyperthyroidism Hypoplastic Heart Hypoplaisa - Entire Right Slde Hypoglycemia Hypospadias Hypothyroid/Hypothyroid is m Hysterectomy ldiopathic lntercranial Hypertension (llH) ldiopathic Thrombocytopenic Purpura (lTP) Platelet Disorder lmperforate Anus lmmune System lssues (Undefined & MG lnfusions) lnfertility lnsulin Resistance lnterstitial Cystitis (lC) lnsomnia lntracranial Cyst lron Deficiency lrritable Bowel Syndrome (lBS) lschemic Heart Disease "Jaw Deformity/Surgery " Joint & Muscle ProblemsiPain Joint Hypermobility Syndrom e Keratosis Pilaris Kid ney lss ues/lnfections/Cysts Kidney Disease/Surgery
Kidney Stones Kienbock's Disease Knee Problems/Dysplas ialPain/Surgery Knee Replacement LateralMycrotia Learning Disaþilities Lethargy Leukemia Liver Disease (Fatty/Undefined) Liver lnfl amation/Other Liver Lesions Long QT Syndrome (LOTS) Loss of Skin Pigment Loss of Strength in Limbs Low Blood Count (Red) Low Blood Pressure Low Estrogen Low Potassium Lum barization (Extra Veftebrae) Lung Deformity (3rd Lung) Lung Disease/Nodules/Tum ors/Clots Lupus Lupus of the Skin Lyhocytic Thyroiditis Lym phatic ïum ors/Lym phangiom a Lym phoblastic Leukem ia Lymphoma Macrodactyly Marfan Syndrome h/elanorna Memory Loss Memory Retention Problems Menopause lssues (Early) Menare's Disease MenstrualCycle lssues Mental Health lssues [t/enorrhagia Metabolic Syndromes Methicillin Staphylococcus Resistant Aureus (MSRA) Methylenetetrahyd rofolate Reductas e ( MTHF R) Microtia Migraine Headaches Miscarriages
Missing Digits Missing Limbs/Body Parts Mittelschmerz MitralValve Prolapse Mixed Connective Tissue Disease (MCTD) Motor Developm ent (Slow@childhood) Mullerian Aplasia Multiple Sclerosis Muscle Spasms/Pain/Numbness (Undefined) Musco-Skeletal Problems Muscular Dystrophy (MS) llyasthenia Gravis fvlyelodys plastic Syndrom e Mycrobaterium Gordonia Nasal Cancer Nasal Polyps Nausea/Vomiting Neck Pain/Problems Neuralgia Neurocardiogenic Neurological Problem (Undefined) Neuropathy Neutropenia Nevus Sebacious Night Blindness Night Terrors Non-Hodgekin's Lym phom a Nosebleeds Numbness in Hands & Feet Numbness in Body/Limbs Nystagmus Obesity Obsess ive Compuls ive Disorder (OCD) O ppos itional Defiant Disorder Orthostatic Hypotension Osteoarthritis Osteochrondritis Osteogenesis lm perfecta Osteopenia Osteoporosis Otosclerosis Ovarian Cancer Ovarian Cysts/Other
Pain (Undefined) Palate Problems Pancreatitis Pancytopenia Panic D isorder/Attacks Paralysis Parasthesias Paricarditis Pars Plaintis Pectus Excavatum Pelvic Reconstruction/lss ues Peptic Ulchers Peripheral Nervous System Disorder Peripheral Nueropathy Periventricular Leukom alacia (PVL) Personality Disorder Pityriasis Pituitary lssuesffumors Pierre Robin Sequence Planar Spaciatis Pneumonia Childhood / Recurring Poland Syndrome Poliosis Polycystic Ovary Syndrome (PCOS/PCOD) Polycythemia Vera Polymyositis Porphyria Post Tramatic Stress Disorder (PTSD) Postural Orthostatic Tachycardia Syndrome (POTS) Potassium lssues Preclamsia Prim itive Neuro-Ectoderm al Tumor (PNET) Pregnancy Com plications (Undefined) Pregnancy, Partial lVblar Premature Births Premature l/enopause Premature Ovarian Failure (POF) Premenstrual Dysphoric Disorder (PMDD) Prim itive Neuro-Ectodermal Tumor Prolactinemia Prolapsed Cervix Prostate Problems/Enlarged Psoriasis
Psoriatic arthritis Psoriatic Rheumatoid Arthritis Psuedotumor Cerbri Psuedo-Obstruction (lntestinal, Neurological) Ptosis Pulmonary Edema Pulm onary Fibrosis/Other (Undefined) Pulmonary Embolism Pulmonary Restriction Pyloric Stenosis Rashes (Undefined) Rashes (Newborn) Raynaud's Disease Reflex Sympathetic Dystrophy Syndrome Renal Failure Reproductive Problems (Fem ale) Res piratory lnfections/D istress Restless Leg Syndrome Retroverted Uterus Rheumatoid Arthritis Rheumatic Fever Refl ex Sym pathetic Dystrophy RS D/C RPS Rosacea SacralAgenesis Sacral Luburalization Salpingitis lsthmica Nodosa (SlN) Sarcoidosis Schizophrenia Scladerma Scoliosis Seizures Seizures, Petit tVal Sensitivity to Medications Severe Chronic Neutropenia Schizophrenia Short Term Memory Problems Sinus lnfections/Problems Sjogrens Skin Cancer Skin Lesions Skin Problem s/Deform ity Sleep Apnea, Disorders Social Problems
Spastic Colon Speech Problems Spina Bifida Spina Bifida Occulta Spinal Cord Diseaseffumors Spinal Deformities Spinal Deterioration Spi nal S u rgeries/Pain/Undefined Splenetic Cysts Spondyloarthropy Spondylolithesis Spondylolytis Strabismus Steatohepatitis Stom ach PainsiProblems Strange Growths Strep Throat Stress Stroke Subglottal Stenosis Suicidal Tencencies Supraventricular Tachycardia (SVT) Swelling (Undefined) Swollen Glands Syndactyly Syringomyelia Tachycardia Temporal Arteritis Temporomandibular Joint Disorder (TMJ) Tendinitis Testicle Deformity Thoracic Outlet Syndrome (TOS) Throat ïumors Thyroid Cancer (Hoshimotos) Thyroid lssues & Cysts (Hyperthyroidism) Thrombophilia Torticollis Tonsillitisffonsillectomy Tourtettes Tracheo-Esophageal Fistula Tremorsfficks Triple X Syndrome Truncus Arteriosis
Tuburculosis (TB) Tumors Twitches Ulcers, Stomach, l\ilouth, Nose Ulcerative Colitus Urinary Tract lnfections/lssues Uterine Cancer Uterine Fibroids/Cysts/Other [Jterine Leiomyosarcoma Uticaria VACTERL Association Vasculitis Vascular Headaches VaginalBleeding Vaginosis Vertebrae, ExtralMissing Vertigo Vitiligo \Ísion Problerns Vomiting Weight Loss Wolff-Parkinson-W h ite Syndrom e Deaths - Children Deaths - Grandchildren
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