Professional Documents
Culture Documents
Services
December 1986
NTIS order #PB87-207486
Recommended Citation:
U.S. Congress, Office of Technology Assessment, Children’s Mental Health: Problems and
Services-A Background Paper, OTA-BP-H-33 (Washington, DC: U.S. Government Print-
ing Office, December 1986).
JOHN H. GIBBONS
Director
ill
OTA Project Staff—Children’s Mental Health: Problems and Services
Contractors
Leonard M. Saxe, Boston University, Principal Author, with
Theodore Cross, Boston University, and
Nancy Silverman, Boston University
Walter F. Batchelor, Boston University
iv
Contents
Page
Chapter l. Summary and Policy Implications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3
Organization of This Background Paper . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
Summary and Policy Implications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
Children’s Mental Health Problems . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
Children’s Mental Health Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8
Effectiveness of Mental Health Treatment and Preventive Services . . . . . . . 8
Current Federal Efforts. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10
Part I: Earlier Evaluations and the Current Situation
Chapter 2. Earlier Evaluations and the Current Situation . . . . . . . . . . . . . . . . . . . . . . . . . . . 17
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17
Earlier Evaluations of Children’s Mental Health Needs and Services . . . . . . . 17
Estimates of the Prevalence of Children’s Mental Health Problems . . . . . . . 17
Recommendations About Mental Health Services for Children . . . . . . . . . . 19
The Current Availability and Use of Children’s Mental Health Services . . . 24
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 27
PartII: Problems
Chapter3. DSM-III Mental Disorders in Children . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 33
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 33
The DSM-111 Diagnostic System. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 33
Intellectual Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 36
Developmental Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 38
Pervasive Developmental Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 38
Specific Developmental Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 38
Behavior Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 39
Attention Deficit Disorder . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 39
Conduct Disorder . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 40
Substance Abuse and Dependence . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41
Emotional Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 42
Anxiety Disorder . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 42
Childhood Depression. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 42
Reactive Attachment Disorder of Infancy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 43
Psychophysiological Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 44
Stereotyped Movement Disorders . . . . . . . . . . . . . . . . . . . . . . . . . . . ..., . . . . . 44
Eating Disorders. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 44
Enuresis and Encopresis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 45
Adjustment Disorder . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 45
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 46
Chapter 4. Environmental Risk Factors and Children’s Mental Health Problems . . . . . . . 49
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49
Interactions Among Environmental Risk Factors. . . . . . . . . . . . . . . . . . . . . . . . . .50
Poverty and Membership in a Minority Ethnic Group . . . . . . . . . . . . . . . . . . . 50
Parental Psychopathology . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51
Affectively Disordered Parent . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51
Schizophrenic Parent. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 52
Alcoholic Parent . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 53
Maltreatment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 53
Physical Abuse and Neglect . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .54
Sexual Abuse . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 55
Teenage Parenting . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 55
Premature Birth and Low Birthweight. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 57
Contents—continued
Page
Parental Divorce . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5$
Major Physical Illness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 59
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61
Part III: Services
Chapter 5. Therapies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67
Individual Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67
Psychodynamic Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67
Behavioral Therapy. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 68
Cognitive Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 71
Group and Family Therapy. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 71
Group Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 71
Family Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 72
Milieu Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 73
Crisis Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 74
Psychopharmacological (Drug) Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 74
Stimulants . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 74
Neuroleptics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 74
Antidepressants . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 75
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 75
Chapter 6. Treatment Settings . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 79
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 79
Psychiatric Hospitalization. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 79
State and County Mental Hospitals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 80
Private Psychiatric Hospitals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 81
Children’s Psychiatric Hospitals and Units . . . . . . . . . . . . . . . . . . . . . . . . . . . . 81
Chemical Dependency Units . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 82
General Hospitals With Inpatient Psychiatric Services . . . . . . . . . . . . . . . . . . 82
Residential Treatment Centers (RTCs) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 82
Day Treatment/Partial Hospitalization. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 83
Outpatient Settings . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 84
CMHC Outpatient Departments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 84
Private Outpatient Clinics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 85
Private Mental Health Practices . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 85
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 85
Chapter 7. Treatment in Non-Mental-Health Systems, Prevention, and the Integration
of Mental Health and Other Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 89
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 89
Children’s Mental Health Treatment in Non-Mental-Health Systems . . . . . . . 89
Treatment in the Educational System . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 89
Treatment in the General Health Care System . . . . . . . . . . . . . . . . . . . . . . .91
Treatment in the Child Welfare System . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 91
Treatment in the Juvenile Justice System . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93
Prevention of Children’s Mental Health Problems . . . . . . . . . . . . . . . . . . . . . . . 93
Primary Prevention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 93
Secondary Prevention . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 95
Integration of Mental Health and Other Services . . . . . . . . . . . . . . . . . . . . . . . . 96
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 97
Part IV: Effectiveness of Services
Chapter 8. Effectiveness of Therapies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ...........103
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..............103
Effectiveness of Child Psychotherapy in General and Methodological Issues 103
Contents—continued
Page
Reviews of Child Psychotherapy Outcome Research . . . . . . . . . . . . . . . . . . .104
Methodological Issues . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ... .105
Summary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ...................106
Effectiveness of Specific Therapies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..., ....106
Effectiveness of Individual Therapy. . . . . . . . . . . . . . . . . . . . . . . . . . . .......106
Effectiveness of Group Therapy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 109
Effectiveness of Family Therapy. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ....110
Effectiveness of Crisis Intervention . . . . . . . . . . . . . . . . . . . . . . . . . . .......111
Effectiveness of Psychopharmacological (Drug) Therapy. . ..............111
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ..........113
Chapter 9. Effectiveness of Treatment and Prevention in Mental Health and Other
Settings, and Evaluating the Integration of Mental Health and
Other Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ....................117
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. ....117
Effectiveness of Treatment in Selected Mental Health Treatment Settings ...117
Effectiveness of Psychiatric Hospitalization . . . . . . . . . . . . . . . . . . . . . ......118
Effectiveness of Residential Treatment Centers . . . . . . . . . . . . . . . . . . . . ....119
Effectiveness of Day Treatment . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ... ...120
Effectiveness of Treatment in Selected Non-Mental-Health Systems . .......121
Effectiveness of Treatment in the Educational System . . . . . . . . . . . . . . . ...121
Effectiveness of Treatment in the Juvenile Justice System ., .............121
Effectiveness of Selected Prevention Efforts . ............................122
Effectiveness of Selected Primary Prevention Efforts . ..................122
Effectiveness of Selected Secondary Prevention Efforts . ................125
Summary: Effectiveness of Prevention . . . . . . . . . . . . . . . . . . ............125
Evaluating the Integration of Mental Health and Other Services. . . . . . . . ...126
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .............126
Part V: Current Federal Efforts
Chapter 10.Current Federal Efforts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ............131
Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ...131
Federal Programs That Support Mental Health and Related Services for
Children . . . . . . . . . . . . . . . . . . . . . . . . ................................131
Financing of Mental Health Treatment. . . . . . . . . . . . . . . . . . . . . . . . . . . .. ...131
Coordination of Services. . . . . . . . . . . . . . . . . . . . . . . . . . ..................140
Research and Training . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. ....141
Prevention and Other Services. . . . . . . . . . . . . . . . . . . . . . .................142
Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ........................143
Appendix A: Workshop Participants and Other Acknowledgments . ..................147
Appendix B: List of Acronyms and Glossary of Terms . . . . . . . . . . . . . . . . . . . . . . . . . ... ..150
References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ........155
Tables
Table No. Page
1. Estimates of Children With Mental Health Needs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18
2. Mental Health Services for Children: Selected Findings and Recommendations of
Past National Study Panels . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20
3, Admissions of Children Under 18 Years of Age to Hospital Inpatient Psychiatric
Facilities and Residential Treatment Centers, 1970, 1975, and 1980 . . . . . . . . . . . . . . . . 25
4. Median Length of Stay in Hospital Inpatient Psychiatric Facilities Among Children
Under 18 Years of Age, 1970, 1975, and 1980 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26
5. DSM-III's Multiaxial Diagnostic Evaluation System. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 34
vii
Contents—continued
Table No. Page
6. Children’s Mental Disorders Listed in DSM-III . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 35
7. Distribution of Full-Time Equivalent Staff Positions in Psychiatric Hospitals and
Residential Treatment Centers, 1982 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 81
-
8. Federal Contributions to Programs Contributing to Mental Health Services for
Children, 1985 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . ......132
9. Fiscal Year 1985 Estimated Allocation of the lo-Percent Set-Aside of the Alcohol,
Drug Abuse, and Mental Health (ADM) Block Grant for Selected States . . . . . . . . . . .134
10. Planned Use unselected States of Fiscal Year 1985 Set-Aside Funds for Mental
Health Services for Children. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. .. .. ... ... ....135
11. Lengths of Stay Associated With Mental Disorder Diagnosis-Related Groups (DRGs)
Ranked by Interquartile Range. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 138
Figures
Figure No Page
1. Estimated Numbers of Children Who Need and Who Receive Mental Health
Services, 1980 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5
2. Organization of This Background Paper . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
3. Admission Rates for Children Under 18 Years to Psychiatric Hospitals and
Residential Treatment Centers, 1970, 1975, and 1980 . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26
4. Estimated Proportions of State v. Federal and Private Expenditures for Mental
Health Treatment Provided in the Mental Health System to All Age Groups, 1983..133
Vlll. . .
Chapter 1
INTRODUCTION
Mental health problems are a source of suffer- Interventions to prevent and treat children’s
ing for children, difficulties for their families, and mental health problems are as diverse as children’s
great loss for society. Though such problems are problems. This background paper considers sev-
sometimes tragic, an even greater tragedy may be eral issues related to the provision of mental health
that we currently know more about how to pre- services for children, emphasizing in particular,
vent and treat children’s mental health problems psychiatric hospitalization—the most restrictive
than is reflected in the care available. This back- and costly form of treatment.
ground paper was requested by the Senate Ap-
propriations Committee through Senators Mark Although serious policy questions remain con-
O. Hatfield and Daniel K. Inouye, who expressed cerning the provision of adequate, appropriate,
special interest in learning the extent to which the and cost-effective mental health services to chil-
mental health field has reached a consensus on dren, several conclusions can be drawn from this
the appropriate treatments and treatment settings background paper:
for responding to the mental health needs of our
• Many children do not receive the full range
Nation’s children. It examines the nature of chil-
dren’s mental health problems, the mental health of necessary and appropriate services to treat
services available to aid disturbed children, and their mental health problems effectively.
the Federal role in providing services. Howeverr the precise nature of the gap be-
tween what mental health services are being
The problems that affect children’s mental health provided to children and what should be pro-
range from transient conditions in a child’s envi- vided is not clear.
ronment to diagnosable mental illnesses. Mental ● A substantial theoretical and research base
health problems that meet the diagnostic criteria suggests that, in general, mental health in-
contained in the third edition of the American terventions for children are helpful, although
Psychiatric Association’s Diagnostic and Statis- it is often not clear what intervention is best
l
tical Manual, the “DSM-III,” are identified in this for particular children with particular prob-
background paper by the terms mental disorders, lems. Most important for the focus of this
diagnosable mental disorders, and DSM-III dis- paper, the effectiveness of psychiatric hos-
orders. Typically, the existence of a DSM-III dis- pitalization for treating childhood mental dis-
order is necessary for obtaining third-party reim- orders has not been studied systematically.
bursement for mental health services. Other terms ● Although there seem to be shortages in all
like mental health problems and disturbed chil- forms of children’s mental health care, there
dren refer in this background paper not only to is a particular shortage of community-based
DSM-III disorders, but also to children’s mental services, case management, and coordination
health problems more generally —i.e., to disturbed across child service systems—all of which are
self-esteem, developmental delays, and other sub- necessary to provide a comprehensive and
clinical problems that children may experience as coordinated system of mental health care
a result of environmental stress. Currently, serv- throughout the country. Models for provid-
ices for problems other than DSM-III disorders ing community-based continuums of mental
are seldom eligible for third-party payment. health care exist, and preliminary evidence
suggests that such continuums can be effec-
‘At the time this background paper was being prepared, DSM- tive; these deserve careful and large-scale
111 was being revised by the American Psychiatric Association. The
new version will be known as DSM-111-R. trials with systematic evaluation.
3
4
Figure l.— Estimated Numbers of Children Who Need and Who Receive Mental Health Services, 1980”
8.0
7.0
6.0
All other
mentally
5.0 disturbed
children
4.5b
4.0 Children
receiving
other
mental
health
3.0 services d
?
Children
admitted to
2.0 inpatient
or other
residential
facilities
for mental
health
1.0 treatment
0.1
\
0
Children in need of services Children who receive services
a
Excludes prevention
%he President’s Commission on Mental Health Indicated in 1978 that as many as 15 percent of the Nation’s children–which would translate to 9.5 million of the total
63.8 million children m 1980—were /n need of mental health services (excludlng prevention) (514). Gould, Wunsch-Hltzlg, and Dohrenwend have since estimated that
11.8 percent—or 7.5 mllllon —of the Nation’s children have mental health disturbances (248). A number of factors account for differences in estimates of ch!ldren In
need of mental health services (see text).
cExtrapolatlons from surveys of adults suggest that the number of children recelwng outpatient mental health Semlces could be as high as 4.02 mllllon. A ‘Irmer
destimate awaits the results of NIMH’s epidemiologic catchment area survey for chtldren (see text).
Partial hospltallzatlon, etc.
SOURCES: Seriously mentally disturbed children in need of services: President’s Commwslon on Mental Health, Report to the Pres/dent from the F’res/dent’s CornrrrIs.
sIon on Menfal Health, VOI 1 (Commlsslon R e p o r t ) ( W a s h i n g t o n , D C U . S . G o v e r n m e n t Print Ing O f f i c e , 1 9 7 8 ) , a n d J Knltzer, Unc/a/rned Ctr//dren
(Washington, DC” Children’s Defense Fund, 1982).
Total number of mentally disturbed children in need of services: President’s Commission on Mental Health, Report to the Pres/dent From the Pres/dent’s
Comm/ss/on on tderrtal 1
Health, vol. (Commission Report) (Washington, DC: U.S. Government Printing Off Ice, 1978). and M S Gould, R Wunsch.Hltzlg, and
B Dohrenwend, “Estlmattng the Prevalence of Childhood Psychopathology: A Cntlcal R e v i e w , ” Journa/ of the Amer/can Academy of Ch//d Psych/a fry
20’482, 1981
Children receiving inpatient or other residential mental health services: U.S. Department of Health and Human Sewices, Publlc Health Serwce, Alcohol,
Drug Abuse, and Mental Health Administration, National Institute of Mental Health, Mental Health, United States. 1985, C A Taube and S A Barrett (eds ),
D H H S P u b No, (ADM) 85-1378 (Rockville, MD: 1985).
Children receiving outpatient mental health services: Adapted from U.S Department of Health and Human Services, Publlc Health Service, National Center
for Health Statistics, Naf/ona/ Med/ca/ Care Ut///zaorrrr and Experrd/fure Survey, Data Report No 5, “Utltlzatlon and Expenditures for Ambulatory Mental
Health Care During 1980,” DHHS Pub No 84-20000 (Washington, DC: U S Government Prlntlng Off Ice June 1984)
6
4
Part 1:
Earlier Evaluations and
Ch. 2: Earlier Evaluations and the Current Situation
the Current Situation
4
Part 1: Ch. 3: DSM-III Mental Disorders Ch. 4: Environmental Risk Factors and
Problems in Children Children’s Mental Health Problems
Part Ill:
Services
Part IV:
Effectiveness
of Services
Part v:
Current Federal
Efforts I Ch. 10: Current Federal Efforts
I
1
SOURCE Off Ice of Technology Assessment, 1986
According to DSM-III, children maybe afflicted ● emotional disorders (anxiety disorders, other
by so-called childhood-onset mental disorders emotional disorders of childhood or adoles-
(meaning the disorder is usually manifest first in cence); and
childhood) or by other disorders whose onset is ● psychophysiological disorders (stereotyped
not restricted to childhood. DSM-III groups men- movement disorders, eating disorders, and
tal disorders that have their onset in childhood other disorders with physical manifestations).
by the area of functioning that is most impaired: Other mental disorders that affect children, but
● intellectual disorders (mental retardation); which more commonly begin in adulthood, in-
● developmental disorders (pervasive and spe- clude organic mental disorders; substance use dis-
cific developmental disorders); orders; schizophrenic disorders; affective dis-
● behavior disorders (attention deficit disorder orders such as major depression; adjustment
and conduct disorder); disorders; and a number of other disorders.
8
This background paper does not consider intel- Within the mental health system, a wide range
lectual or developmental childhood-onset disorders of settings has been developed to treat children’s
except as they interrelate with other problems re- mental health problems. These settings —from
quiring mental health services. This exclusion re- psychiatric hospitals to outpatient mental health
flects in part the specific wording of the request clinics—can be described as forming a continuum
from the Senate Appropriations Committee and of intensiveness. Mental health authorities agree
in part the fact that the causes, treatment, and that it is desirable to provide treatment in the
treatment goals in the case of intellectual/devel- “least restrictive setting” possible. Severely dis-
opmental disorders differ from those associated turbed children sometimes need intensive and
with other mental disorders. restrictive service settings such as hospitals or
RTCs. Typically, however, intensive settings such
For the most part, the causes of mental dis-
orders are unknown. However, some environ- as these are needed only for relatively brief periods,
with followup care in less restrictive environments
mental factors, particularly psychosocial ones,
pose significant risks for children’s mental health. such as community-based outpatient programs.
The choice of treatment and treatment setting
Environmental factors that pose risks to chil-
for each mentally disturbed child is based on sev-
dren’s mental health include poverty; parental
eral factors. Certainly, the symptoms and the
psychopathology (e.g., schizophrenia or alco-
severity of the child’s disorder are primary. Other
holism); maltreatment; a teenage parent; prema-
factors that play a part in treatment decisions in-
ture birth; parental divorce; and serious childhood
clude the child’s developmental status, the avail-
physical illness. These factors rarely occur in iso-
ability of family support, social and environ-
lation and frequently interact with other aspects
of a child’s family, educational, and social envi- mental conditions, the availability of financing
ronment. Although environmental factors do not for services, and the geographic availability of cer-
tain services.
necessarily result in mental disorders that meet
the diagnostic criteria of DSM-III, they can cause Opportunities for preventing and treating chil-
maladjustment and place a child at risk for later dren’s mental health problems arise not only in
and potentially more serious problems. the mental health system but within the educa-
tional, health care, child welfare, and juvenile jus-
The consequences of mental health problems
in children can be mild and transitory or severe tice systems. Models for providing mental health
and longstanding. Children with the most severe services in these settings have been developed.
Programs to integrate mental health and other
problems may be unable to function in either their
home or school environments and may be dan- services at Federal, State, and local levels have
also been developed. Such programs include in-
gerous to either themselves or others. Unresolved
dividual case manager programs, with profes-
problems can lead to other serious problems with
sionals to advocate for necessary and comprehen-
family, schools, and the criminal justice system.
Much of the interest in identifying children’s men- sive treatment and to represent the child before
all relevant programs so that services are co-
tal health problems has as its focus the under-
standing and prevention of disorders so as to re- ordinated.
duce the risk of future difficulties.
health problems is difficult. The research base is tives—both public and private—to promote the
limited and not methodologically rigorous. delivery of mental health care in the least restric-
tive setting possible for effective treatment, while
Overall, however, OTA’s analysis indicates
permitting reimbursement for the range of serv-
that treatment is better than no treatment and that
ices necessary. Thus, a more comprehensive and
there is substantial evidence for the effectiveness
appropriate mental health treatment delivery sys-
of many specific treatments. Behavioral treat- tem could be developed.
ment, for example, is clearly effective for phobias
and enuresis, and cognitive-behavioral therapy is The effectiveness of prevention programs,
effective for a range of disorders involving self- whether developed primarily as a mental health
-control (except aggressive behavior). Group ther- intervention or designed as part of other service
apy has been found to be effective with delinquent systems such as schools, is supported by several
adolescents, and family therapy appears to be ef- studies. Interventions to provide family support,
fective for children with conduct disorders and for example, appear to have substantial potential
psychophysiological disorders. Psychopharmaco- to prevent and remedy a range of mental health
logical treatment, while not curative, has been problems and lead to better school achievement
found to have limited effectiveness with children in children. Prevention programs in schools and
with attention deficit disorder and hyperactivity preschools and pregnancy prevention programs
(ADD-H), depression, or enuresis, and also in for teenagers have also been found to be effec-
managing the behavior of children who are se- tive. Not only have many prevention programs
verely disturbed. Further, more rigorous research led to positive changes in social, emotional, and
may demonstrate the usefulness of several other academic measures, but such programs appear ca-
treatments for which there is preliminary evidence pable of preventing later governmental expendi-
of effectiveness. tures through the justice and welfare systems.
Questions about the effectiveness of mental The important questions, rather than being
health treatment in psychiatric hospitals and RTCs about the overall effectiveness of children’s men-
are difficult to answer because of the lack of sys- tal health services, may be:
tematic research. The lack of methodologically ● what specific types of services are effective?
sound evidence for the effectiveness of mental ● under what conditions?
health treatment provided through psychiatric ● for which children?
hospitals and RTCs does not necessarily imply ● at what developmental level?
that these treatment settings are inappropriate— ● with which problems?
only that there is no solid evidence one way or ● under what environmental and family con-
the other. Whether or not some mentally disturbed ditions?
children would be better off in alternative treat- ● in what settings? and
ment settings is not known. ● with what followup or concomitant paren-
Available research on treatment settings does tal, family, school, and other system; inter-
offer some evidence to support the potential ef- ventions?
fectiveness of a system of services ranging from
outpatient community-based care to intensive
residential-based care. The long-term effectiveness Current Federal Efforts
of psychiatric hospitalization and other forms of
State governments play the major role in pro-
residential treatment, for example, appears to be
viding and financing children’s mental health serv-
related to the presence and quality of followup
ices, although Federal Government and private
care. The effectiveness of day or night hospitali-
sector roles are substantial. The Federal Govern-
zation appears to be related to the inclusion of
ment finances treatment for children’s mental dis-
the family in treatment plans.
orders primarily through the Alcohol, Drug Abuse,
Additional information about treatment effec- and Mental Health block grant, the Medicaid pro-
tiveness could be used to revise financial incen- gram, and the Civilian Health and Medical Pro-
10
gram of the Uniformed Services. These and other assessments of the funds necessary. Most mental
financing programs also influence financing pol- health care interventions are appropriate for eval-
icy in the private sector. uation studies—and most could benefit from the
information that research provides. In addition,
Federal involvement in health, welfare, nutri-
basic information about the characteristics and
tion, and social services for children is also con-
utilization of the contemporary mental health
siderable; and Federal programs in these areas
service system is not available. The financial sav-
probably have a major impact in preventing and
ings from a more comprehensive database are po-
alleviating mental health problems, although their
tentially enormous; the benefits to children and
actual impact is difficult to measure. However,
society of more effective programs are incalculable.
the lack of cohesive policies toward children, and
across service programs, may create difficulties
for those who would move public policy toward Conclusion
the continuum of care that many observers con-
clude is needed to address children’s mental health OTA’s analysis suggests several needs in rela-
needs. tion to children’s mental health problems and
services. Two needs are: a more informed esti-
Past national studies have observed that few
mate of the number of children who require men-
mental health policies and programs—public or
tal health services, and a description of the avail-
private-appear to take into account the complex-
ability and use of children’s mental health services.
ity of influences in children’s lives. Fragmentation
of treatment programs and support services has A more immediate need is for improved deliv-
resulted. Currently, programs at the Federal, ery of mental health services to children. Clearly,
State, and local levels are attempting to promote the mental health services currently available to
integration of services across professional, agency, children are inadequate, despite a substantial theo-
and geographic boundaries. The Federal Child and retical and research base suggesting that mental
Adolescent Service System Program, for exam- health interventions for children are effective.
ple, provides grants to States to improve coordi-
The need for improved children’s mental health
nation among service systems, thus improving ac-
services is not new; it has been highlighted by a
cess to appropriate mental health services. The
number of past national studies and commissions.
State Comprehensive Mental Health Services Plan
If the need is to be met, changes may be neces-
Act of 1986 will institute another grant program
sary in the way mental health services are con-
to assist States to develop comprehensive serv-
ceptualized, financed, and provided. In an ideal
ices for the chronically mentally ill of all ages.
system, an adequate range and number of preven-
The Federal Government is virtually the only tive, treatment, and aftercare services would be
source of training and research support in the available, particularly in the communities where
mental health area. Despite Federal programs of children reside, so that families and others can be
student assistance, the number of trained profes- involved. Access to treatment on an outpatient
sionals available to deliver children’s mental basis, and before a child develops a diagnosable
health services remains far below all estimates of disorder, seems especially important. Access to
the need. Currently, about 15 percent of NIMH’s treatment could be facilitated by reducing restric-
training funds appears to be directed to training tions on mental health benefits,
clinicians to treat children.
OTA found that new efforts to coordinate serv-
A major difficulty in development of this back- ices between the mental health system and other
ground paper and in designing more effective chil- systems that children may come in contact with—
dren’s mental health programs was the lack of the general health care, educational, social wel-
data on many treatment regimens and service sys- fare, and juvenile justice systems—are encourag-
tems. Although NIMH commits approximately 20 ing to many mental health professionals. These
percent of its current research budget to children’s new coordination programs may result in new ef-
issues, available dollars have not kept pace with forts to detect and treat mental health problems.
11
Finally, additional information about the causes ety of promising approaches could greatly aid the
of mental health problems, the services available development of a system that would match the
to prevent and treat them, the extent to which the mental health needs of children.
services are used, and the effectiveness of a vari-
Part 1: Earlier Evaluations
and the Current Situation
Chapter 2
INTRODUCTION
Services for children’ with mental health prob- their conclusions about the prevalence of mental
lems have long been a focus of national concern. health problems in children and their recommen-
This chapter summarizes the work of several ma- dations for services. The chapter also presents
jor policy-related studies and commissions, giving available information pertaining to trends in the
availability and use of children’s mental health
services. Although data to assess the current sit-
‘Throughout this background paper, the term “children” is used uation are limited, it is nevertheless clear that sev-
to refer generally to all infants, children, and adolescents under age
18. Where necessary, further distinctions are drawn among children eral key policy recommendations of past studies
of various ages and developmental stages. and commissions have yet to be implemented.
17
18
Table 1 .—Estimates of Children With the U.S. Department of Health and Human Serv-
Mental Health Needsa ices, to consider issues in the classification of “ex-
Children under 18 years of age
ceptional” children, including but not limited to
with mental health needs those with mental health problems. Supported by
Percent Numberb a consortium of DHEW agencies and directed by
All mentally disturbed children: Hobbs, the Project on the Classification of Excep-
Joint Commission on the Mental tional Children brought together a group of ex-
Health of Children (1969) 13.6% 8.8 million
President’s Commission on Mental
perts to develop a better understanding of the is-
Health (1978) 5% to 15% 3.0 to 9.6 million sues involved in classification and a rationale for
Gould, et al. (1981) . 11 .8%C 7,5 million policy and services for “exceptional” children.
Severely mentally disturbed children:
National Plan for the Chronically The final report of the project cited a DHEW
Mentally Ill (1980) 8% 9.1 million Bureau of Education (298,299) estimate that there
Knitzer/CDF (1982) ., ., 5.0% 3 million
aEStlrnateS differ because mcormstent defmttlons of children’s mental health needs have been
were about 7 million children aged O to 19 in vari-
used The U S Department of Health and Human Serwces IS currently evaluahng the vahdlty ous “exceptional” categories (physically handi-
of a dlagnosttc Interwew schedule for use with children In order to conduct an epldemlologlcal
study of the presence of mental disorders
capped, retarded, and emotionally disturbed), but
bThe number of Children m need of serwces IS calculated as c1 percent Of the 1980 POPulatlOn
of 638 mihon Individuals under 18 years of age
it did not estimate prevalence for specific disabil-
Csubsquenl analyses concur with this estimate See text ities. Another 1 million children (2.9 percent of
SOURCES Joint Commwvon on the Mental Health of Children, Crms m Cfrdd Menfa/ Hea/f/r
Cha//errge for the 1970’s (New York Harper & Row, 1969), President s Commission
children aged 10 to 17) had been in trouble with
on Mental Health Reporf to Me Pres/derrt From (he Preslderrf’s Corrvrvwon on kferrfa/ the law in 1972, and 10 million poor and 10 mil-
Hea/ffr, VOI 1 (Commlsston Report) and VOI 3 (Task Panel Reports) (Washington DC
U S Government Prmtmg Office, 1978), M S Gould, R Wunsch-Hltzlg, and 8 Dohren- lion nonwhite children were also of concern to
wend, ‘‘Estlmatmg Ihe Prevalence of Chddhood Psychopathology A Crltlcal Rewew,
Jourrra/of MeAmerlcan AcadernyofChddPsycfr/airy 20462, 1981, L Salver, “Chronic
the advisors to DHEW.
Mental Illness m Children and Adolescents Scope of the Problem, ” paper for the Na-
tional Conference on Chronic Mental Illness In Children and Adolescents, sponsored The report concluded that although there were
by the American Psychiatric Asscaatlon, Dallas TX, March 1985 J Krvtzer Uflclamed
Cfuldren (Washington, OC Chddren ”s Defense Fund 1982) significant problems associated with labeling chil-
dren, categorization was often necessary to estab-
lish policy and to ensure that services were de-
ment; (1) for reasonably accurate perception of livered. The report noted, however, that the
the world around him; (2) for impulse control; classification of emotional disorders was particu-
(3) for satisfying and satisfactory relations with larly difficult and therefore recommended the de-
others; (4) for learning; or (5) for any combina-
tion of these. velopment of multidimensional classification sys-
tems. A central feature of this recommendation
Using this definition to interpret available re- was that such systems classify disorders, rather
search, the Joint Commission on the Mental Health than children.
of Children estimated that up to 13.6 percent of
children were “emotionally disturbed. ” This in- President’s Commission on Mental Health and
cluded a small percentage (0.6 percent) of children Its Task Panel on Infants, Children, and
who were considered psychotic, 2 to 3 percent Adolescents (1978)
who were severely disturbed, and an additional
The President’s Commission on Mental Health
8 to 10 percent who suffered from emotional prob-
lems serious enough to require mental health was established in 1977 to undertake a broad-
based review of national mental health needs and
services.
to make recommendations to the President as to
how those needs might be met (514). One of the
U.S. Department of Health, Education, and
Welfare: Project on the Classification of principal “task panels” of the Commission ad-
dressed the mental health needs of children. Using
Exceptional Children (1975)
studies conducted since the time of the Joint Com-
The issues of classifying children’s mental health mission on the Mental Health of Children, this
problems were also of concern subsequent to the task panel estimated that from 5 to 15 percent of
Joint Commission’s report. In 1972, a project was children aged 3 to 15 had handicapping mental
initiated by the Secretary of the U.S. Department health problems. The panel’s lower estimate cor-
of Health, Education, and Welfare (DHEW), now responds to estimates of the number of psychotic
19
and severely disturbed children; its higher estimate of care children need—distinctions that are essen-
corresponds to the number of children with “neu- tial for the development of comprehensive pub-
roses” and behavior problems for whom mental lic policy.
health intervention may be useful.
Increasing interest is being directed to children
The Commission as a whole stated that the with severe mental health disturbances, both in
country’s mental health problems could not “be terms of identification and for developing appro-
defined only in terms of disabling mental illnesses priate treatment options (396). Estimates of the
and identified psychiatric disorders. ” Mental health number of severely disturbed children, however,
problems “must include the damage to mental differ substantially. In comparison to the findings
health associated with unrelenting poverty and of the President’s Commission on Mental Health
unemployment and the institutionalized discrimi- (514), for example, the 1980 National Plan for the
nation that occurs on the basis of race, sex, class, Chronically Mentally 111 (609) estimated that
age, and mental or physical handicaps, ” and “con- about 9.1 million (8 percent) children are severely
ditions that involve emotional or psychological disturbed and in need of services.
distress which do not fit conventional categories
of classification or services” (514).
Recommendations About Mental
Recent Estimates of the Prevalence of Health Services for Children
Children’s Mental Health Problems
Concern about the inadequacy of mental health
Epidemiologic research on mental health prob- services for children is not a recent phenomenon.
lems needed in order to estimate prevalence has As long ago as 1909, a White House Conference
continued to develop. Over two dozen studies of on Children recommended new programs to care
the prevalence of mental disorders in children and for mentally disturbed children (324). A White
adolescents have now been conducted (229,248, House Conference in 1930 echoed the earlier rec-
389,609). ommendation and maintained that mentally dis-
turbed children have the “right” to develop the
Some of the most important research on prev-
way other children do. A similar conclusion has
alence, conducted in the United Kingdom by Rut-
been reached by nearly every subsequent commis-
ter and colleagues (562,566), is believed to be rele-
sion or panel (324). These panels and study com-
vant to the situation in the United States. On the
basis of a convergence of identifications b y men- missions have made numerous detailed and spe-
cific recommendations conceiving policy relevant
tal health professionals, parents, and teachers,
to the mental health needs of children. Only the
Rutter estimated that 13.2 percent of children in
flavor of their recommendations can be provided
the United Kingdom were in need of mental health
here. Selected conclusions and recommendations
services.
of various commissions and panels are summar-
In a detailed 1981 review, Gould, et al., con- ized in table 2, and the work of the more recent
cluded that the percentage of children and adoles- groups is discussed in detail below.
cents in need of mental health services in the
United States was probably “no lower than 11.8 Joint Commission on the Mental Health of
percent” (248). Later reviews, by Gilmore, et al. Children (1969)
(229), and Silver (609), concur with the 11.8-
The Joint Commission on the Mental Health of
percent figure.
Children (324), in its 1969 report Crisis in Child
Gould and her colleagues’ estimate that about Mental Health, stated that large numbers of emo-
12 percent of the children in the United States— tionally, physically, and socially handicapped
7.5 million—are in need of mental health serv- children did not receive necessary or appropriate
ices seems to be one on which there is generaI con- services and that the mental health service sys-
currence. This estimate, however, reveals noth- tem for children and youth was wholly inade-
ing about the severity of disturbances and levels quate. Although the most disturbed and disrup-
Table 2.—Mental Health Services for Children: Selected Findings and Recommendations of
Past National Study Panels
tive children could receive treatment services, the haps even more concerned than the Joint Com-
Commission found that treatment provided to mission on the Mental Health of Children with
them very often was inappropriate and ineffec- the coordination of services across agencies and
tive. The Joint Commission was particularly con- categories of children. Thus, the Project’s final re-
cerned that severely disturbed children were be- port (298,299) recommended that the U.S. Con-
ing institutionalized in State mental hospitals and gress and the legislative bodies of each State and
that such facilities provided custodial rather than community establish an agency to serve a plan-
treatment services for children. The Joint Com- ning and coordinating function for all programs
mission was also concerned about the “corrosive” bearing on families and children. The Project re-
effects of poverty and the fact that mental health port also suggested that at every level, citizens’
problems were more acute and services less avail- councils advise the planning agencies on program
able among poor children. development and agency operations. The Project
also made recommendations concerning specific
A principal recommendation of the Joint Com-
programs which might be implemented under the
mission on the Mental Health of Children was that
purview of the legislative bodies, and noted sev-
a child advocacy system be established to coordi-
eral needs that should be given priority attention:
nate Federal, State, and local actions. The Com-
mission believed that advocacy was essential for ● support for parents,
development of a comprehensive network to meet ● improved residential programs for children,
children’s mental health, physical, and social needs. ● fairness to disadvantaged and minority group
children,
The Joint Commission also recommended the
● improved classification systems,
establishment of community services that focused
● better organization of services, and
on prevention and “remediation. ” Recommended ● new knowledge to inform policy.
prevention services included family planning, pre-
natal care, and mental health services associated One of the Project’s recommendations, that all
with schools. Remedial mental health services, children including the handicapped have access
which the Commission estimated would be re- to education, was implemented with the passage
quired for 10 percent of children, were to be based of Public Law 94-142, the Education for All Hand-
on children’s functional level, rather than on le- icapped Children Act. Public Law 94-142 also
gal or clinical classification systems. implicitly made the public schools the primary
The Joint Commission further recommended
that children (particularly the severely handi-
capped) be cared for in settings that most closely
resembled normal living situations. An additional
recommendation was for increased research on
diagnosis and treatment of children’s mental health
problems. The Joint Commission believed that
both basic and applied research was essential and
suggested a variety of research priorities, both for
the National Institute of Mental Health (NIMH)
and for the National Institutes of Health.
source of advocacy for children, another recom- continuing relationship between child and fam-
mendation of the Project on the Classification of ily.” To prevent disruption in the relationship be-
Exceptional Children. tween children and their families, the panel rec-
ommended that health insurance plans eliminate
President’s Commission on Mental Health and barriers to reimbursement for outpatient treat-
Its Task Panel on Infants, Children, and ment services. The panel also recommended that
Adolescents (1978) parents be involved in the development of spe-
cial education and other treatment plans, espe-
The President’s Commission on Mental Health
cially for intensive services provided for severely
(514) found that many of the Joint Commission’s
disturbed children.
1969 recommendations had not been implemented.
Children and adolescents, the President’s Com- Another recommendation of the subtask panel
mision found, continued to receive inadequate was that children’s mental health services be orga-
mental health care: nized along a continuum of intensiveness, so that
Services that reflect the unique needs of chil- children could move along the continuum as their
dren and adolescents are frequently unavailable. needs changed. Good residential facilities special-
Our existing mental health services system con- izing in the treatment of severely disturbed chil-
tains too few mental health professionals and dren and adolescents, the panel suggested, were
other personnel trained to meet the special needs urgently needed. The panel supported the Joint
of children and adolescents. Even when identi- Commission calling for development of a better
fied, children’s needs are too often isolated into research and evaluation base, characterizing the
distinct categories, each to be addressed separately tendency to reduce research funding in order to
by a different specialist. Shuttling children from
service to service, each with its own label, adds provide treatment services as “penny wise and
to their confusion, increases their despair, and pound foolish” (514). Noting that without more
sets the pattern for adult disability. research and evaluation, “the potential for waste
of resources is great, ” the panel recommended a
The Commission’s subtask panel on infants, lo-percent set-aside of total program funds for re-
children, and adolescents recommended preven- search, demonstrations, and evaluation.
tive services for all children, not only those iden-
tified as mentally disturbed. Services such as de- The subtask panel called the mental health sys-
velopmental assessments and access to diagnostic tem for adolescents “woefull y inadequate, ” noting
mental health services, it suggested, should be in- that adolescents were one of the most underserved
corporated within children’s general health care. groups in the Nation. This panel urged that serv-
The subtask panel also recommended a net- ices be provided to address such problems as ado-
work of “psychiatric, pediatric, counseling, spe- lescent suicide, teenage pregnancy, delinquency,
cial education and occupational training services” and substance abuse. The panel’s recommenda-
for children with severe psychiatric disorders. tions focused on development of an integrated
These services were necessary, according to the network of mental health services in schools, ju-
panel, because no matter how successful preven- venile courts, neighborhood centers, and occupa-
tion efforts were, some children would always re- tional training facilities.
quire special help. The services provided, the
One impact of the work of the President’s Com-
panel recommended, should be adapted to chil-
mission was the development and enactment of
dren’s specific needs and should include counsel-
the Mental Health Systems Act. The act author-
ing with parents and others significant in a child’s
ized programs to improve the delivery and coordi-
life. In addition, the panel believed, it was essen-
nation of services for severely emotionally dis-
tial that services “respect ethnic differences. ”
turbed children and adolescents. The act became
The subtask panel on infants, children, and law in 1981, but was repealed before it became
adolescents emphasized that children’s mental effective and was replaced by the Alcohol, Drug
health services should be provided within a sys- Abuse, and Mental Health (ADM) block grant
tem of care that “insofar as possible maintain a (Public Law 97-35; see ch. 10).
23
Select Panel for the Promotion The Select Panel also considered the role of
of Child Health (1981) community mental health centers and other men-
tal health service systems and recommended that
Established at about the same time as the Presi-
these systems expand mental health services for
dent’s Commission on Mental Health was the Se- children. Although children’s mental health serv-
lect Panel for the Promotion of Child Health es- ices had been mandated earlier (Part F of the 1970
tablished under Public Law 95-626. The Select Amendments to the Community Mental Health
Panel had a broad mandate; it attempted to de-
Centers Act), direct Federal support specifically
velop recommendations that:
for children’s programs had been withdrawn in
. . . reflected] hardheaded analysis of serious 1975. The Select Panel believed that developmen-
unmet needs in child and maternal health . . . tal assessment and other preventive services, as
and a sober and pragmatic assessment of the ca- well as high-quality residential treatment services
pacity of our institutions to provide parents, pro- and community support mechanisms, were nec-
fessionals and . . . others working to improve essary components of all comprehensive mental
child health with the scientific, financial and or- health programs.
ganizational support they need.
As had the President’s Commission on Mental
The Select Panel reported its findings in Decem-
Health in 1978, the Select Panel for the Promo-
ber 1980 (595). The general recommendations of tion of Child Health recommended that mental
the Panel, much like those of its predecessors, em- health services be coordinated with general health
phasized the interrelationships among services
care. The Select Panel also recommended coordi-
provided by health care agencies, schools, fam- nation of education and social welfare programs
ilies, and social service institutions. The Select
that serve children. Other recommendations of
Panel’s analysis suggested changes to a wide range the Select Panel were that community mental
of Federal programs affecting children. With re- health programs provide services in schools, Head
spect to mental health needs, the Panel focused Start programs, and juvenile justice institutions,
on implementation of the Education for All Hand-
and that families be involved in the delivery of
icapped Children Act (Public Law 94-142, enacted mental health services.
in 1975) and mental health service systems that
were to be affected by the Mental Health Systems
Act (enacted in 1980, but then repealed in 1981). Knitzer/Children’s Defense Fund (1982)
Public Law 94-142 mandates that handicapped Concern about the adequacy of services for
children be provided access to a free and appro- mentally disturbed children remained, despite the
priate public education. Public Law 94-142 au- convergence of recommendations by the Joint
thorizes a program for States to receive Federal Commission, the President’s Commission, and the
funds, but it also “guarantees” the right to edu- Select Panel. In 1982, the Children’s Defense Fund
cation for handicapped children without regard (CDF) published an elaborate and highly critical
to the provision of Federal funds to support such study of how children and adolescents in need of
services. Although the Select Panel found that sig- mental health services are treated (358). That re-
nificant improvements had resulted from Public port, Unclaimed Children, by Jane Knitzer, de-
Law 94-142, particularly in changing attitudes scribed a survey of mental health services for se-
about the handicapped, it was concerned that sub- verely disturbed children and adolescents in 50
stantial variations existed across States in the States and the District of Columbia. Unlike the
reports of earlier commissions and panels, the
availability of services. The Panel stressed the
need for better methods of identifying and evalu- Knitzer/CDF report is based on systematically
collected original data and is one of only a few
ating children with handicapping conditions and
more stringent requirements for delivering health efforts to comprehensively assess State, as well
and mental health services to these children. To as Federal, programs.
ensure compliance with the law, it recommended The Knitzer/CDF report concluded that there
Federal and State monitoring, technical assistance, were 3 million seriously disturbed children (based
and enforcement. on the estimate of the President’s Commission on
24
Mental Health in 1978), but that 2 million (two- programs saw less need to fund more hospital
thirds) of these children were not receiving needed placements . . .
treatment services. The report also suggested that Knitzer suggested that Federal funds had been
many children who received services received in- used disproportionately to provide medically ori-
appropriate care and that poor and minority ented inpatient care, while Federal resources avail-
group children were most likely to receive no care able for community services had declined.
or inappropriate care.
Responsibility for seriously disturbed children,
Using data from State and county hospitals, according to Knitzer, lies with public agencies.
Knitzer concluded that the most restrictive and The Knitzer/CDF report strongly recommended
costly level of care—inpatient hospital treatment increased efforts to identify children and adoles-
—was also the most accessible. Although the data cents who are either in need of services or are
Knitzer collected suggested that as many as 40 per- being inappropriately served. It also urged the
cent of such hospital placements were unsuitable, development of incentives to create a coordinated
alternatives to hospital services for severely dis- set of services appropriate to the child. As did
turbed children were found to be either nonexist- the reports of each of the government panels
ent or rudimentary in many States. One-third of described earlier, the Knitzer/CDF report rec-
the States responding to Knitzer’s survey indicated ommended increased coordination among agen-
a need for more long- or short-term beds. Accord- cies that deal with children, including educational,
ing to Knitzer (358): juvenile justice, and child welfare agencies. A
. . . those States with the fewest alternatives to specific recommendation of the report was that
inpatient care were generally the ones that wanted ADM block grant funds be targeted for children’s
more beds. Those with a number of alternative services.
tals (665). This trend has been accompanied, how- table 4, data from NIMH indicate that the me-
ever, by increases in children’s admissions to pri- dian length of stay of children in State and county
vate psychiatric hospitals and to facilities such as mental hospitals dropped from 74 days in 1970
psychiatric units of general hospitals, for a small to 54 days in 1980, while the 1ength of stay in pri-
net increase in children’s admissions to psychiatric vate psychiatric hospitals remained constant at
hospitals. 36 days (665). A survey of National Association
of Private Psychiatric Hospitals members, how-
In 1970, as shown in table 3, the rate of chil- ever, found that the median length of stay for chil-
dren’s admissions to private psychiatric hospitals dren in 1985 in the private hospitals surveyed was
(9.3 per 100,000 children under 18) was one-fourth twice NIMH’s number for 1980 (458). Data from
the rate of children’s admissions to State and NIMH indicate that the length of stay in non-
county mental hospitals (37.8 per 100,000 chil- Federal general hospitals with inpatient psychiatric
dren under 18). During the 1970s, children’s ad- services increased from 9 to 17 days between 1970
missions to State and county mental hospitals and 1975, then decreased to 14 days in 1980. The
declined 30 percent and admissions to private psy- evidence just cited clearly shows that general hos-
chiatric hospitals increased almost 200 percent, pitals are used for short-term care, and the length
so that in 1980, the latest period for which sys- of stay in State and county mental hospitals has
tematic data are available, the rates of children’s declined. It does not allow conclusions about the
admissions were about the same for both types length of treatment in private psychiatric hos-
of institutions. The rates of children’s admissions pitals.
to non-Federal general hospitals with inpatient
psychiatric services increased slightly from 63.3 As shown in table 3, NIMH data suggest that
per 100,000 population in 1970 to 68.5 per 100,000 there has been an increase in utilization of resi-
population in 1980, for a total net increase in the dential treatment centers for emotionally disturbed
rate of psychiatric hospitalization of children of children (RTCs). Such facilities can provide an
about 10 admissions per 100,000 population. alternative form of treatment for children who re-
There may be significant regional variations (589). quire residential treatment but who do not require
constant medical supervision (see ch. 6). There
Some evidence suggests that the length of treat- was a substantial increase in the number of ad-
ment episodes in State and county mental hospi- missions to RTCs between 1969 and 1981. Accord-
tals is declining, although the evidence on the ing to NIMH data, the rate more than doubled,
length of stay for children in private psychiatric from 11.4 admissions per 100,000 population un-
hospitals is unclear (458,665). As can be seen in der 18 in 1969 to 28.3 admissions per 100,000 pop-
Table 3.—Admissions of Children Under 18 Years of Age to Hospital Inpatient Psychiatric Facilities and
Residential Treatment Centers, 1970, 1975, and 1980a
59-964 0 - 87 - 2
26
Table 4.—Median Length of Stay in Hospital Inpatient Figure 3.—Admission Rates for Children Under 18
Psychiatric Facilities Among Children Under 18 Years to Psychiatric Hospitals and Residential
Years of Age, 1970, 1975, and 1980 Treatment Centers, 1970, 1975, and 1980a
to groups of patients/clients in various settings SOURCES 1970 to 1980 admission ratas to State and county mental hospitals
and private psychiatric hospitals. and 1969, 1975, and 1981 admis-
(665). sions for residential treatment centers National Institute of Mental
Health, Alcohol, Drug Abuse and Mental Health Administration, Publlc
Health Service, US, Department of Healfh and Human Services, M e n .
The use of outpatient treatment mental health tal /-/ea/th United States, 1985, C.A Taube and .5A Barrett (eds.),
services by children is difficult to determine. The DHHS Pub No. (ADM) 85-1378 (Rockville, MD 1985) 1969, 1975 and
1 9 8 0 p o p u l a t i o n undar 18 (used to calculate admlsslon rates for
1980 National Medical Care Utilization and Ex- residential treatment centers) U.S. Department of Commerce, Bureau
of the Census, Washington, DC, unpublished data for 1969, 1975, and
penditures Survey found that 3.2 percent of chil- 1980.
dren under 18—and 4.3 percent of all age groups
combined—had had a mental health visit in 1980, a mental health problem, not necessarily a diag-
(665). Some observers have suggested that these nosable disorder, in the 6-month period preced-
figures probably underestimate the number of in- ing the survey (599). Without specifying precise
dividuals who receive outpatient mental health percentage increases by age, a 1985 NIMH report
treatment and that the treatment rate for individ- (665) noted that the use of outpatient mental
uals of all ages may be as high as 6 percent (178). health services had greatly increased for all ages.
The 1980-82 NIMH epidemiologic catchment area Careful assessment of the use of mental health
survey of adults in urban areas found that 6 to services by children awaits conduct of the NIMH
7 percent of those surveyed had had a visit for epidemiologic survey of children.
27
CONCLUSION
There appears to be a significant gap between health problems and in need of preventive serv-
the number of children identified in epidemiologic ices (see ch. 4). The problems of a lack of treat-
assessments as requiring mental health services ment and inappropriate treatment for children’s
and the number receiving services. There is gen- mental health problems have long plagued those
eral agreement that at least 12 percent of the Na- responsible for providing services to children.
tion’s children—7.5 million—are in need of some Subsequent chapters of this background paper ex-
type of mental health treatment. Available evi- amine the current state of knowledge about diag-
dence suggests that only a small number (fewer nosable mental disorders and the environmental
than one-third) of the children who have mental risk factors that can cause or exacerbate children’s
health problems receive treatment. An unknown mental health problems.
number of other children maybe at risk for mental
Part II: Problems
Chapter 3
INTRODUCTION
The mental health problems of children exist make up an intellectual framework by which the
along a continuum. This chapter describes those mental health professions understand children’s
problems which are considered mental disorders mental health problems. It takes on added impor-
among children, as described in the most widely tance, because, in most cases, an individual must
used diagnostic manual in the United States—the have a DSM-III diagnosable disorder to be eligi-
third edition of the American Psychiatric Asso- ble for third-party reimbursement for treatment.
ciation’s Diagnostic and Statistical Manual, bet-
For most mental health problems, the etiology
ter known as “DSM-111’” (19). Generally, DSM-
is not known (19). However, many DSM-III dis-
111 defines a mental disorder as:
orders and other children’s mental health prob-
. . . a clinically significant behavioral or psycho- lems are often related to environmental stressors
logical syndrome or pattern that occurs in an in- such as poverty, parental divorce, and abuse and
dividual and that is typically associated with ei- neglect. Environmental stressors that pose risks
ther a painful symptom (distress) or impairment to children’s mental health are described in chapter
in one or more areas of functioning (disability). 4. Many observers believe that children exposed
A description of the major DSM-III diagnosable to such environmental stressors, in addition to
disorders in children is important to an analysis children with diagnosable disorders, are in need
of mental health services, because these disorders of preventive or other mental health services dis-
cussed in this background paper. Both social and
organic causes of mental disorders are continu-
ously under investigation (668), but a comprehen-
‘At the time this background paper was being prepared, the Amer-
ican Psychiatric Association was revisingDSM-111. The new ver- sive analysis of causation is beyond the scope of
sion will be known as DSM-111-R, this background paper.
33
34
things, it is the first widely used system to em- Table 5.—DSM-llI’s Multiaxial Diagnostic
ploy a multiaxial approach to the diagnostic eval- Evaluation System
uation of patients. The purpose of the multiaxial Official DSM-III Diagnostic Evaluation (Axes I,II, and Ill)
system of DSM-III is to “ensure that certain in- Mental Disorders a b
I
formation that may be of value in planning treat- Axis 1: All Mental Disorders Not Assigned to Axis Ii
ment and predicting outcome for each individual ● Mental disorders not assigned to Axis II (e. g., depres-
which refers to a specific class of information rele- a focus of attention or treatment (e.g., academic problem,
vant to a patient’s mental health problems (see parent-child problem, isolated acts of child or adoles-
cent antisocial behavior)
table 5). ● Additional codes (e. g., unspecified mental disorder, no
can influence the course and treatment of a men- dividual’s highest level of adaptive functioning (for at
least a few months) during the past year. Adaptive func-
tal health problem. A comprehensive DSM-III tioning is a composite of social relations, occupational/
diagnosis includes information on these factors academic functioning, and use of leisure time.
on Axes IV and V. Axis IV is a rating of the sever- aMental disorders are disorders for which the manifestations are PrimarilY be-
havioral or psychological; physical disorders are disorders for which the mani-
ity of any psychosocial stressors connected with festations are not primarily behavioral or psychological,
bA person may have multiple diagnoses on Axes I and 11—0.9., one diagnosis
the onset of a mental disorder. Examples of such on Axis I and one diagnosis on AxIs 11, or multiple diagnoses within Axis I or
stressors are shown in table 5. A x i s Il.
cThe diagnosis of a personality disorder is generally reserved for adults, althou9h
the manifestations of personality disorders may appear in childhood or
Finally, Axis Visa rating of the patient’s high- adolescence.
est level of adaptive functioning, a composite of SOURCE: Adapted from American Psychiatric Association, D i a g n o s t i c arrd
Statistic/ Manua/ of &ferrta/ Disorders, 3d ed. (Washington, DC: 1980),
a patient’s ability to manage social relations, oc-
cupation, and leisure time. Such information is
come evident in infants, children, or adolescents
often important in predicting the course of a dis-
from several other major classes of disorders that
order and in planning treatment (19).
are not generally restricted to children (see table
In classifying mental disorders, DSM-III sepa- 6). For heuristic purposes, DSM-III groups men-
rates the class of disorders that usually first be- tal disorders that usually manifest themselves in
35
MENTAL DISORDERS THAT ARE USUALLY FIRST EVIDENT IN INFANCY, CHILDHOOD, OR ADOLESCENCE
Intellectual Disorders
Mental retardation
Mild mental retardation, moderate retardation, severe mental retardation, unspecified mental retardation
Developmental Disorders
Pervasive developmental disorders (PDDs)
Infantile autism (onset before 30 months of age), childhood-onset pervasive developmental disorder (onset after 30 months of age and before
12 years of age)
Specific developmental disorders (SDDs) (Axis II of DSM-III)
Developmental reading disorder (dyslexia), developmental arithmetic disorder, developmental language disorder (expressive type or receptive
type), developmental articulation disorder, mixed specific developmental disorder, atypical specific developmental disorder
Behavior Disorders
Attention deficit disorder (ADD)
ADD with hyperactivity, ADD without hyperactivity
Conduct disorder
Undersocialized, aggressive; undersocialized, nonaggressive; socialized, aggressive; socialized, nonaggressive; atypical
Emotional Disorders
Anxiety disorders of childhood or adolescence
Separation anxiety disorder; avoidant disorder of childhood or adolescence; overanxious disorder
Other disorders of infancy, childhood, or adolescence
Reactive attachment disorder of infancy; schizoid disorder of childhood or adolescence; elective mutism; oppositional disorder; identity disorder
Physical (Psychophysiological) Disorders
Stereotyped movement disorders
Transient tic disorder, chronic motor tic disorder, Tourette’s disorder, atypical tic disorder, atypical stereotyped movement disorder
Eating disorders
Anorexia nervosa, bulimia, pica
Other disorders with physical manifestations
Stuttering, enuresis (repeated involuntary voiding of urine), encopresis (repeated voluntary or involuntary defecation in Inappropriateplaces),
sleepwalking disorder, sleep terror disorder
OTHER MENTAL DISORDERS THAT MAY AFFECT CHILDREN b
Organic disorders (e.g., delirium, dementia, alcohol intoxication, barbiturate intoxication)
Substance use disorders—sometimes occur in teens
Abuse of or dependence on any of five classes of substances; alcohol, barbiturates, opioids, amphetamines, and cannabis
Abuse of any of three classes of substances: cocaine, phencyclidine (PCP), and hallucinogens
Dependence on tobacco
Other, mixed, or unspecified substance abuse (e.g., glue sniffing)
D e p e n d e n c e o n a c o m b i n a t i o n o f s u b s t a n c e s ( e . g . , h e r o i n and barbiturates, amphetamines and barbiturates)
Schizophrenic disorders (e.g., disorganized, catatonic, paranoid, or undifferentiated type)—onset is usually in late adolescence or early adulthood
Schizophreniform disorder
Affective disorders
Major depression (single episode, recurrent)—can occur at any age, including infancy
Anxiety disorders
Phobic disorders:
Social phobia—often begins in late childhood or early adolescence
Simple phobia (e.g., of animals, heights, school, water)–age at onset varies, but fear of animals almost always begins in childhood
Anxiety states:
Panic disorder—often begins in late adolescence
Generalized anxiety disorder
Obsessive compulsive disorder—usually beings in adolescence or early adulthood, but may begin in childhood
Post-traumatic stress disorder—can occur at any age
Somatoform disorders (e.g., somatization disorder, conversion disorder, psychogenic pain disorder, hypocondriasis)
Psychosexual disorders
Gender identity disorders:
Transsexualism
Gender identity disorder of childhood
Paraphilias (e.g., exhibitionism, sexual masochism)
Other psychosexual disorders (e.g., ego-dystonic homosexuality)
Factitious disorders
Disorders of impulse control not elsewhere classified (e.g., kleptomania, pyromania)
Adjustment disorder—may begin at any age
Personality disorders (Axis II of DSM-III)
Although the symptoms of personality disorders may manifest themselves in adolescence or earlier, the diagnosis of a personality disorder
(e.g., paranoid personality disorder, schizoid personality disorder, histrionic personality disorder, antisocial personality disorder) is generally
reserved for adults. Some personality disorders in adults have a relationship to corresponding diagnostic categories for children or adolescents:
Disorders of childhood Personality disorders
Schizoid disorder of childhood Schizoid personality disorder
Avoidant disorder of childhood Avoidant personality disorder
Conduct disorder (undersocialized, aggressive) Antisocial personality disorder
Oppositional disorder Passive-aggressive personality disorder
Identity disorder Borderline personalitv disorder
aAlth~ugh this list does include th e more ~omm~n children’s mental disorders, it is not e~haljstive, F u r t h e r m o r e , only s e l e c t e d d i s o r d e r s a r e d i s c u s s e d i n t h e text
36
infancy, childhood, or adolescence into five gen- effects on other areas of functioning. Thus, for
eral categories based on the aspect of functioning example, a child with a specific developmental dis-
that is most disturbed: intellectual, developmen- order will often have problems with behavior and
tal, behavioral, emotional, and physical (psycho- emotions as a result.
physiological). Examples of disorders in several
Patterns of disturbance vary widely across diag-
of these categories are severe mental retardation,
nostic categories. Disturbances present different
developmental reading disorder, undersocialized
clinical patterns, pose different consequences for
aggressive conduct disorder, reactive attachment
children and their families, impinge on different
disorder of infancy, chronic motor tic disorder,
settings in varying ways, and require different
anorexia nervosa, encopresis, and enuresis.
treatments. Furthermore, mental disorders may
In addition to the class of disorders that usu- vary in severity. In some cases, for example, child-
ally first become evident in children, several broad hood phobias are mild and transient; children
classes of mental disorders discussed in DSM-III often overcome such phobias in the course of de-
may affect children. These classes and examples velopment. In other cases, however, childhood
of disorders that may affect children are shown phobias involve severe impairment and interfere
in table 6. Such disorders include substance use in significant ways with a child’s development
disorders, affective disorders such as major de- (553). Beyond a certain level, the severity of a dis-
pression, various anxiety disorders, and adjust- order must usually be assessed separately from
ment disorder. Following DSM-III's heuristic for the DSM- diagnosis.
disorders that usually manifest themselves early
Several children’s mental disorders within broad
in a person’s life, substance use disorder is dis-
general categories are discussed below. The dis-
cussed in this background paper under behavior
cussion is not exhaustive. The purpose is to give
disorders, and depression and anxiety disorder
the reader a basic understanding of the range of
under emotional disorders. Because it stems
childhood disorders, along with some informa-
directly from an environmental stressor and can
tion on their prevalence and their consequences
take various forms, adjustment disorder is dis-
for children. Most of the childhood disorders are
cussed separately. reviewed, but a few are omitted in the interest of
Any given child may have more than one DSM- space because they are rare, their consequences
111 disorder, and disorders may involve problems are relatively less severe than those of other dis-
across general categories. Furthermore, distur- orders, or because the disorders that are discussed
bances in one area are likely to have secondary sufficiently illustrate the broad category.
INTELLECTUAL DISORDERS
The only DSM-III mental disorder that primar- ciation of mental retardation with mental disorders
ily involves intellectual impairment is mental (422). When mental retardation is discussed in this
retardation, although secondary intellectual def- background paper, it is because of its inclusion
icits are often involved in other disorders. Inclu- in DSM-111 or because many mentally retarded
sion of mental retardation as a DSM-III mental children have mental health treatment needs.
disorder on Axis I has provoked concern.
One critical article (563) notes that mental re- Mental retardation is defined as significantly
tardation is primarily defined by a lowered level subnormal intellectual ability that leads to defi-
of intellectual functioning and thus differs from cits in functioning. In DSM-III, the criterion denot-
other disorders, which are characterized by ab- ing intellectual ability in the mentally retarded
normal types of functioning. Advocates for men- range is a score on a standardized intelligence (IQ)
tally retarded children seek to avoid any prejudice test of 70 or below (although some flexibility on
against this population stemming from the asso- the IQ is allowed). IQ tests are standardized tests
37
with a mean of 100 and a standard deviation of ble to other mental disorders than children in the
15. A score of 70 is two standard deviations be- general population (19), especially to other dis-
low the mean and places mentally retarded chil- orders that may have a neurological basis like
dren in the bottom 2 percent of children intellec- stereotyped movement disorder and attention def-
tually. icit disorder with hyperactivity (ADD-H) (19).
They are at increased risk for problems with speech,
There are an estimated 6 million mentally re-
language, and academic and social adjustment.
tarded persons in the United States; the range of
Mental retardation can lead to stress, depression,
intellectual impairment in these individuals is wide.
and other emotional disturbances through several
The American Association on Mental Deficiency
means. The parents of some mentally retarded
has identified four broad levels of mental retarda-
children may reject or overprotect them (538), or
tion based on IQ: mild, moderate, severe, and
mentally retarded children may gain awareness
profound (257). These levels are intended to cor-
of their deficiencies, leading to low self-esteem and
respond to the individual’s capability for adapt-
depression (538).
ive functioning and the degree to which training
will result in independent functioning. In general, Further, mental retardation limits the number
the more retarded an individual is, the less inde- and quality of supportive relationships that chil-
pendence he or she can be expected to gain from dren can form and limits their flexibility in solv-
training and the more supervision he or she will ing problems; as a consequence, there is an in-
need for self-care, work, and social relationships. creased likelihood that retarded children will be
At the extreme, profoundly retarded individuals frustrated and adopt poor strategies for manag-
require a highly structured setting with continu- ing their lives. Institutionalized retarded children
ous care. With adequate training, however, many frequently manifest atypically heightened levels
mentally retarded individuals can function inde- of dependency that are not attributable to cogni-
pendently. tive level alone (730). The social environment of
retarded children is apparently critical; whether
Most mentally retarded children—about 80 per-
they are institutionalized, placed in a community
cent—are mildly retarded. Approximately 12 per-
setting, or raised at home can affect their mentaI
cent of retarded children are moderately retarded,
health. Similarly, their mental health can be en-
7 percent severely retarded, and 1 percent pro-
hanced by receiving education and training adapted
foundly retarded (19).
to their abilities.
Organic causation is not believed to be a fac-
tor in most mental retardation. Only about 25 Care and training of the mentally retarded is
generally handled by a special service system sep-
percent of the incidence of mental retardation is
attributable to organic causes (36); moderate, se- arate from the system that treats the emotionally
vere, and profound retardation are nearly always or behaviorally disturbed. Moreover, it is not gen-
erally conceptualized by practitioners as mental
associated with organic brain damage. For 75 per-
health treatment. For these reasons, interventions
cent of mental retardation, almost all mildly re-
specific to mental retardation are excluded from
tarded, however, there is no evidence of organic
Parts 111 and IV of this background paper. The
causation. How this type of mental retardation
is caused is not well understood, but it is thought discussion of disorders, environmental risk fac-
to stem from environmental causes, genetic causes, tors, and services applies to mentally retarded
children only insofar as such children have con-
or a combination of the two.
comitant mental health problems. Because con-
Neurologically based impairments in coordina- comitant mental health problems are common in
tion, vision, or hearing are often associated with mentally retarded children, however, mental
mental retardation (19). Mentally retarded chil- health treatment is an important part of the service
dren are also three to four times more suscepti- needs of this population.
38
DEVELOPMENTAL DISORDERS
Developmental disorders are characterized by skills, such as the ability to memorize train sched-
deviations from the normal path of child devel- ules or play musical instruments, although they
opment. Such disorders can be either pervasive, may not be toilet trained or able to use language
affecting multiple areas of development, or spe- to communicate. The vast majority of children
cific, affecting only one aspect of development. with a PDD require special educational programs,
Like mental retardation, developmental disorders and many parents need professional consultation
pose multiple problems for a child. Pervasive de- or training to deal with these difficult children
velopmental disorders (PDDs) severely limit chil- (712).
dren’s ability to function independently, while spe-
In most cases, parents are able to care for PDD
cific developmental disorders (SDDSs can greatly
children at home, although home care can become
impede children’s education and development of
increasingly difficult as the children become older
social relations.
(712). PDD is usually chronic, and the majority
of affected individuals are permanently unable to
Pervasive Developmental function independently. Autistic adults are found
Disorders (PDDs) in the same placements as adults who are men-
tally retarded or schizophrenic: hospitals, long-
Children with a PDD experience severe devia-
term residential treatment centers, boarding houses,
tions from normal development in a number of
and often their families’ homes.
spheres. Primarily, these deviations are manifested
in cognitive and intellectual functioning, language At one time, it was thought that the parents
development, and social relationships. PDDs of PDD children rejected them or withdrew from
identified in DSM-III are infantile autism and them in such a way as to lead to disturbance in
childhood-onset PDD. DSM-III terms such as in- their development (58). Such ideas have gener-
fantile autism or childhood-onset PDD have gen- ally been discredited. Studies indicate that there
erally superseded older labels such as childhood are no personality or other differences between
schizophrenia or childhood psychosis. parents of PDD children and other parents (97,
424). It is now suspected that PDD is related to
Children with a PDD manifest a gross lack of
impairment in neurochemistry or neuroanatomy.
interest in others and have problems relating, even
to family members. They may appear oblivious
to family members or caretakers walking in the Specific Developmental
room, as if they were inanimate. They often use Disorders (SDDs)
language in bizarre ways —i.e., echoing what they
Children with SDDs have difficulty with spe-
are told, using phrases with their own private
cific skills underlying learning, but their overall
meaning or using the pronoun “you” to refer to
development is within normal ranges. DSM-III
themselves. Also, they often insist on the preser-
identifies several types of SDDs according to the
vation of sameness in their environments and dis-
particular skill which is impaired—e.g., develop-
play odd finger movements or postures. PDD chil-
mental language disorders, developmental read-
dren vary in terms of specific symptoms (712),
ing disorder (i. e., dyslexia), and developmental
but they all share marked impairment. PDDs are
arithmetic disorder (19). In children with an SDD,
relatively rare, but they affect somewhere between
the development of one of these specific skills is
50,000 and 100,000 children in the United States,
well below the average for the particular child’s
approximately 1 per every 1,000 children (712).
grade level. All SDDS combined are estimated to
The intellectual functioning of children with affect 3 to 5 percent of the school age population
PDDs varies. Many of the children with a PDD (41), although as much as 10 percent of the adult
are mentally retarded, and the majority are be- population is thought to have significant difficul-
low average in intelligence. In extremely rare ties with reading, possibly related to an under-
cases, children with a PDD have brilliant isolated lying disorder.
39
There are two forms of developmental language poor relationships with peers (41,576). The per-
disorders: receptive type and expressive type. In ceptual skills that are essential for learning to read,
the receptive type, children have trouble under- spell, write, and do arithmetic may also be im-
standing spoken language; in the expressive type, portant in social interactions and in establishing
children understand what they hear and know and maintaining social relationships (82,426).
what they want to say, but have difficulty recall- In some cases, SDD children may have to en-
ing and arranging the words necessary to speak.
dure the frustration and anger of parents and
Developmental articulation disorder refers to pro- teachers who do not recognize their learning dis-
nunciation difficulties with English sounds such
ability or understand how to help them. In such
as “s” and “th,” leading children to appear as if
situations, parents or teachers may ascribe the
they are using “baby talk” (19). Developmental child’s failure to laziness or stubbornness. In cer-
reading disorder and developmental arithmetic tain cases, behavioral problems may partially
disorder are diagnosed when reading or arithmetic
cause the learning difficulty (576), but in other
skills are impaired relative to expectations for a
cases, emotional or behavioral problems stem
child’s age, and neither deficits in intelligence nor
from the breakdown in a child’s education that
schooling are deemed responsible. is the consequence of having a learning disorder.
SDD children are prone to school failure. Dif- Such secondary effects create additional obstacles
ficulties in learning are often compounded by sec- to learning and reinforce a child’s classroom fail-
ondary mental health problems, including school ure (132). Many SDD children drop out of school
behavior problems, aggression or delinquency in their teens (79).
outside of school, anxiety and depression, and
BEHAVIOR DISORDERS
Behavior disorders are a set of problems in to 80-percent overlap between ADD-H and some
which a child’s distress or disability is a function SDDs (462).
of his or her overt behavior. Since the central
Schoolchildren with ADD may have great dif-
characteristics of these disorders are behaviors
that disturb or harm others, the child’s social envi- ficulty concentrating or inhibiting impulses to
leave their seat and move around during class
ronment plays a large part in whether that child
time. They may continually call out in class or
will be identified as having behavior disorders and
push ahead of others in lines because they can-
influences the course of these disorders. Some re-
not tolerate waiting. Since the ability to maintain
searchers and clinicians maintain that the nature
attention is essential to learning, children with
of behavior disorders and the life history of af -
ADD often have serious academic problems. Fur-
fected children are especially dependent on the
ther problems may arise from the stress the child
children’s experience with social systems, such as
and school experience in dealing with the primary
the family, neighborhood, and school.
problem. Like SDD children, ADD children suf-
Attention Deficit Disorder (ADD) fer from the frustration and poor self-image
caused by not learning, the stigma of lagging be-
Children with ADD are unable to maintain fo- hind their class, and the anger and frustration of
cused activity for more than a brief period and parents and teachers. ADD children are prone to
continually initiate new activities. Most children anxiety, depression, and social withdrawal (426),
with ADD also suffer from hyperactivity, con- and typicalIy have problems developing and main-
tinual movement that is especially disruptive in taining friendships. The severity of ADD varies
structured group situations like a classroom. greatly across children (556). Some children are
These children are diagnosed as having ADD with able to compensate for their difficulty with little
hyperactivity (ADD-H). In addition, there is a 50- interference in their lives, while others are so se-
40
veloped the capacity to relate to others. Conduct Many theories for explaining the development
disorders that begin prior to age 13 are particu- of conduct disorder implicate child-rearing prac-
larly pernicious. Early onset often leads to seri- tices. The parents of undersocialized, aggressive
ous consequences for both children with conduct children are believed not to have formed a lov-
disorders and people around them. ing parental attachment to the infant. Many par-
Although disorders of conduct are defined by ents of children with conduct disorders are alco-
a pattern of inappropriate behaviors, such dis- holic or have a history of antisocial behavior
orders are often accompanied by considerable per- (544,545). Often, children who develop conduct
sonal suffering, and children with conduct dis- disorders are unwanted or unplanned. As the child
orders usually have low self-esteem, despite matures, parents alternate between being unin-
outward bravado (19). These children often ex- terested in the child and being overly protective
(432). Other theories suggest biological and
perience mental health problems such as depres-
sion, anxiety, or substance abuse, and/or have genetic components to undersocialized conduct
disorder (544).
academic problems (19,565). Even when they are
able to form significant relationships, the relation-
ships may be fraught with conflict (432). It should Substance Abuse and Dependence
also be noted that the occurrence of hyperactivity Drug and alcohol abuse are sometimes viewed
and conduct disorder overlaps considerably (624). as diseases separate from mental health problems.
Estimates of the prevalence of conduct disorder In terms of etiology and implications, however,
vary greatly because of the use of different defi- substance abuse may be similar to other mental
nitions of the disorder and different sources of health difficulties. The implications of substance
data. In addition, the prevalence of conduct dis- abuse for children and adolescents are particularly
order varies depending on sociological variables severe. Substance abuse broadly disrupts a young
such as low income and poor housing (703). Gen- person’s functioning, can cause distress and long-
eral population surveys estimate the prevalence term disability, and can lead to or exacerbate con-
at 5 to 15 percent, but such surveys often use less flict in family and peer relationships. Chronic drug
stringent criteria than DSM-III (432). A further and alcohol use can also harm academic and job
problem is that such surveys fail to distinguish performance. Legal problems arise both from ac-
between socialized and undersocialized children tions carried out under the influence of drugs or
(432). alcohol and from buying, possessing, and selling
drugs or alcohol. Several substances, such as al-
The course of conduct disorder depends greatly cohol, barbiturates and sedatives, opiates, and
on social as well as individual factors (19). Gang- amphetamines, can, with frequent use, lead to
related delinquency, for example, depends on such chemical dependence.
factors as youth employment rates. Most children
with conduct disorders, particularly those able to Substance abuse is correlated with problems
form relationships, are able to stop their misbe- such as psychological distress (483), life stress
havior as they mature (546). Others may continue (156), low school achievement (321), running
illegal behavior for financial gain, but function away from home (160), parental drug use (547),
adequately otherwise. Many children with con- and perceived lack of involvement by parents
duct disorders, however, continue their inappro- (483). Substance-abusing children are often trou-
priate behavior into adulthood and maintain a life bled by anxiety and depressed moods (19). Sev-
centered around criminal behavior. They continue eral studies suggest that many adolescents who
to have problems with social relationships, and use alcohol and drugs heavily were psychologi-
many suffer in adulthood from alcoholism, drug cally disturbed as younger children (331,486,615;
dependence, or depression (544). These tend to for conflicting evidence, 338). School learning
be the children whose delinquency starts early and problems and aggressive or antisocial behavior
who have committed a greater number and vari- as a child are good predictors of later drug use,
ety of antisocial acts (544). especially if they are associated with difficulties
42
in relationships (338). Available evidence suggests however, is frequently associated with other men-
that interventions aimed at treating substance tal disorders discussed in this chapter, including
abuse and dependence must also deal with the conduct disorder, ADD, and SDD. Substance use
multitude of other mental health problems with and abuse by children also illustrates the complex-
which abusers are also afflicted (63). ity of identifying discrete mental health problems
and separating disorders from normal development.
Identifying substance abuse as a type of men-
tal disorder is useful because it draws attention Considerable evidence suggests that substance use,
to the mental health implications of abusing chem- and occasional abuse, is currently “a ‘normal’ de-
ical substances. Substance abuse in adolescents, velopmental reality” among adolescents (369).
EMOTIONAL DISORDERS
Several children’s mental disorders have their Avoidant disorder of childhood or adolescence
most noticeable effect on a child’s emotional state. is similar in many ways to separation anxiety dis-
The severity of children’s emotional problems order, except that the focus of the problem is con-
varies widely. To represent a diagnosable men- tact with strangers rather than separation from
tal disorder, however, an emotional problem must loved ones. These disorders rarely last beyond
be accompanied by considerable impairment of adolescence.
a child’s ability to function.
Phobias are irrational anxiety reactions to spe-
cific situations or objects leading children to avoid
Anxiety Disorders these situations or objects. Common childhood
In children with anxiety disorders, excessive phobias include dog, school, and water phobias
fearfulness and symptoms associated with fear in- (553). Mild phobias are normal and occur among
terfere with a child’s functioning. Anxiety-disor- almost half of all children; they are usually out-
dered children may experience muscular tension, grown. Phobias in an estimated 0.5 to 1 percent
have somatic complaints without physical basis, of children, however, can be intense and inter-
and experience repeated nightmares. Children fere with the child’s development. Children avoid
with anxiety disorders may be preoccupied with the feared object to the point of not participating
unrealistic dangers and may avoid fear-producing in an important activity or avoiding learning im-
situations to the point of stubbornness or tantrums. portant new behaviors. School phobia is perhaps
the most common childhood phobia (553) and can
Anxiety disorders that are especially associated lead to serious educational problems (343).
with childhood or adolescence include separation
anxiety disorder, avoidant disorder of childhood,
overanxious disorder, and certain phobic disor- Childhood Depression
ders (19). Children with separation anxiety are
“Depression” can refer to a mood, to a set of
afraid to be away from their parents, from home,
related symptoms that occur together, or to a
or from familiar surroundings. They avoid a va-
complete psychiatric disorder with characteristic
riety of normal activities and, in some cases, re-
symptoms, course, and prognosis (357). The psy-
fuse to go to school. They may cling to parents
chiatric disorder includes both depressed mood
and develop physical complaints when separation
and symptoms of impaired functioning such as
is about to occur; if separated, they become fear-
insomnia, loss of appetite, slowed activity and
ful, sometimes to the point of panic. Separation
speech, fatigue, self-reproach, diminished concen-
anxiety may lead children to have morbid fears
tration, and suicidal or morbid thoughts (19),
about their parents’ death, or difficulty sleeping
if family members do not stay with them. This Depression influences concentration, energy
disorder often waxes and wanes during childhood level, and confidence; can affect physical health;
years, usually increasing in response to stress. and is usually associated with a perhaps unrealis-
tically pessimistic view of the world (367). Like
other emotional disorders, it has the potential to
seriously impair a child’s abilities to function in
school, with peers, and with family. Depressed
children commonly withdraw from social rela-
tionships. The low self-regard, hopelessness, and
helplessness of depressed adolescents may lead to
suicide (93). The amount of mental suffering de-
pressed children undergo can be considerable, al-
though the degree of impairment and length of
the depression vary considerably (19).
Many depressed children exhibit behavioral
problems that are more longstanding and more
alarming to adults than their depression (95). A
conduct or learning problem may be labeled as
Photo credit OTA
the chief disturbance that needs treatment, while
their depression is overlooked. Some theorists and It is sometimes difficult to distinguish between common
adolescent emotional turmoil and more serious forms
researchers have called this “masked” depression, of childhood depression and anxiety.
because these behavioral difficulties, in their
ability to stir up and distract the child and others,
protect the child from experiencing painful, de- used in explaining how childhood depression de-
pressed feelings (133). Recent research, however, velops are borrowed from analyses of adult de-
suggests that with careful questioning, many such pression. Studies assessing the applicability of
adult models to childhood depression have been
children with behavioral problems will reveal per-
conducted only recently. For example, much evi-
vasive problems with mood as well as behavior
(102). dence substantiates the relationship between de-
pression in adults and low concentrations of cer-
Depressive symptoms specific to children may tain neurotransmitters (biochemical that provide
occur, including anxiety over separation from par- for transmission of impulses across nerve cells).
ents, clinging, and refusal to go to school. De- Several studies have found lower levels of the by-
pressed adolescents may react with sulky, angry, products of these neurotransmitters in the urine
or aggressive behavior; problems in school; or of children with chronic depressive disorder (428).
substance abuse (19). Estimates of the prevalence
Even when children are not clinically depressed,
of childhood depression are variable as a result
persistent poor mood or symptoms such as insom-
of differing criteria used by researchers, differ-
nia or poor appetite often accompany other child-
ences in the age of children studied, and other
differences among the populations examined (333). hood disorders or stressful situations or events.
Clinicians treating children must often attend to
Estimates range from 0.14 percent (564) to 1.9 per-
the depressed mood which accompanies demorali-
cent (332). Among children brought to psychiatric
zation felt in the face of a number of the other
or education-related treatment centers, estimates
disorders, or environmental or medical stressors.
range as high as 59 percent ( SOS). Available re-
search does not permit an overall conclusion
about the incidence and prevalence of childhood Reactive Attachment Disorder
depression or about the relationship of childhood of Infancy
depression to other disorders.
Reactive attachment disorder of infancy, in
The large number and range of theories sug- some severe cases called “failure to thrive, ”
gesting the cause of depression are notable, What denotes a syndrome in which infants who are re-
seems most likely is that psychological, biologi- ceiving inadequate care are poorly developed both
cal, and social causal factors arise together to ini- emotionally and physically. If the disorder is not
tiate and perpetuate depression (13). Most models treated, it often results in severe physical compli-
44
PSYCHOPHYSIOLOGICAL DISORDERS
Children’s mental disorders that involve a dis- (19,598). In general, they are thought to have an
turbance in some aspect of bodily functioning organic basis, yet stress or anticipation can in-
usually involve a combination of mental and crease their frequency (314,598). Tics may be a
physical factors; hence, these disorders have been transient or chronic problem (19). Although 12
called psychophysiological disorders. Psycho- to 24 percent of schoolchildren in surveys have
physiological disorders include stereotyped move- reported having had tics at some time, overall
ment disorders, enuresis and encopresis, and eat- prevalence is unknown because there is no infor-
ing disorders. As described below, the physical mation on how many children have this difficulty
manifestations of psychophysiological disorders at any one time. Children with these disorders suf-
are diverse. These disorders may place children fer considerable embarrassment and are often un-
at great risk, since they pose threats to both phys- able to bring their tics under continual voluntary
ical and mental health. control. These disorders sometimes disappear in
adulthood, but can be lifelong.
Stereotyped Movement Disorders
Stereotyped movement disorders are thought Eating Disorders
to have a primary physical or neurological ba-
Disorders involving eating behavior include a
sis. Nevertheless, such disorders are influenced by
the psychological state of the child and are some- varied group of dysfunctions. The most common
times amenable to behavioral or psychological in- eating disorders are anorexia nervosa and bulimia,
which occur primarily in adolescents. Anorexia
tervention.
is characterized by a refusal to eat, leading to a
Children with stereotyped movement disorders loss of body weight (literally, “nervous weight
suffer from tics—sudden, repetitive movements loss”). The DSM-III diagnosis of anorexia nervosa
of a particular body part. In a rare form of stereo- applies to those who have lost at least 25 percent
typed movement disorder, Tourette’s syndrome, of body weight. Individuals with this disorder,
vocal tics (short grunts, yelps, or other vocal typically adolescent girls and young women,
sounds) accompany the body movements (19). starve themselves because of an exaggerated fear
Tics are generally involuntary, although they can that they will be overweight and therefore un-
be suppressed temporarily through concentration attractive.
45
In extreme cases, children with anorexia ner- Perhaps the most serious eating disorder is the
vosa may refuse to eat altogether, even if they coincidence of the two above disorders, which has
are already very thin. Because of the possibility been called “bulimarexia” (64). Affecting primarily
of malnutrition, serious medical illness, or death, adolescents, bulimarexia combines obsessive self-
anorexia can have serious consequences. Psycho- denial of food with intermittent binge eating.
logical complications such as depression and with- Casper and her colleagues (105) found that almost
drawal can also result from the starvation involved half of a sample of patients with anorexia also
with anorexia nervosa. These complications often suffered from bulimia, and that these patients
overshadow the original psychiatric problems that were significantly more obsessional about food,
led to the eating disorder (620). more guilty, more depressed, and more likely to
be involved in compulsive stealing.
Bulimia is, in some respects, the converse of
anorexia nervosa. Bulimics, usually adolescents,
consume large quantities of food in one sitting Enuresis and Encopresis
(“binge eating”). They often stop only when pain Enuresis is the diagnostic term for bedwetting
or nausea is too great to continue. Often, bulimics and other inappropriate urination, while encopre-
self-induce vomiting or use laxatives, enemas, or sis is the term for lack of control over defecation.
diuretics to purge themselves of what they have Each of these disorders has relationships to other
eaten. Because of the physical insult of this pat- disorders as well as complicated connections to
tern of behavior, bulimia can be associated with physiology, environmental factors, and family
physiological disturbance. Although the preva- genetic history. In many cases, physical problems
lence of bulimia in adolescents is unknown (19), either cause these disorders or predispose children
recent surveys (271,626) indicate an incidence rate to them (19,596), and there is some evidence that
of 13 to 67 percent for self-reported binge eating enuresis tends to run in families (19,33). But enu-
in college populations. Such data suggest that the resis and encopresis tend to occur more frequently
problem of bulimia is substantial, although it may in disadvantaged families (440), under stressful
most frequently appear only as a transient prob- conditions (19,523), and together with other dis-
lem. Various adjustment problems often accom- orders (565). Enuresis affects 5 to 15 percent of
pany a bulimic disorder, including depression and 7-year-olds (565) and encopresis 1 percent of 5-
difficulty with social relationships (322,335,708). year-olds (19).
ADJUSTMENT DISORDER
For most DSM-III disorders, a cause is not to the stress. In vulnerable children and families,
specified, because in most cases, causes of dis- however, an adjustment disorder can usher in
orders are as yet unknown (19). Adjustment dis- more serious difficulties.
order, however, refers to a pattern of emotional
or behavioral difficulties that occurs in response The main features of adjustment disorder are
to a stressful event. Stressful events can over- depressed or anxious moods, antisocial behavior
whelm the capacity of children to cope, leading (especially in adolescents), difficulties that infants
them to develop disabling emotional reactions to have in their interaction with their primary care-
the stress or to develop unfortunate ways of try- givers, or inability to work or maintain relation-
ing to cope that create more problems. Stressful ships (19). Thus, adjustment disorder resembles
events leading to adjustment disorder could in- psychiatric disorders such as anxiety disorder or
clude any of a variety of crises such as divorce conduct disorder. Adjustment disorder is differen-
or acute illness of a parent. Adjustment disorder tiated from disorders with parallel symptoms on
often remits without treatment, either because the the basis of how long the problem has lasted and
stressful life event has ended or because the child whether or not it followed from a stressful event.
and family have developed new resources equal The diagnosis of adjustment disorder is sometimes
46
made by child clinicians because they would often or major depression which imply more pervasive
rather use the more benign label of adjustment impairment.
disorder than diagnoses such as conduct disorder
CONCLUSION
The five general categories of children’s men- tion, when maladjustment of a child occurs, it
tal disorders discussed in this chapter—intellec- does not necessarily take the form of mental dis-
tual, developmental, behavioral, emotional, and ability as defined by psychiatric nomenclature.
psychophysiological—represent patterns of dys-
The diversity and complexity of children’s men-
functional adaptation in children. Although nor-
tal health problems suggests a need for treatment
mal, as well as mentally disordered, children may
approaches differentiated according to each spe-
exhibit symptoms of these disorders, in each case,
cific child’s needs. In addition, the relationship of
it is the pattern of pervasive difficulty that leads
many of these problems to normal functioning
to the diagnosis. No mental disorder, however
suggests a need for integrating mental health serv-
well-described by current psychiatric nomencla-
ices with family and school settings in which chil-
ture, manifests itself in parallel ways across chil-
dren function. Subsequent chapters of this back-
dren. Environmental risk factors, to be discussed
ground paper consider these topics more explicitly.
in chapter 4, can influence both the manifestation
and course of children’s mental disorders. In addi-
——
Chapter 4
INTRODUCTION
As described in chapter 3, diagnostic manuals, problems (15), it is widely agreed that it may be
such as the American Psychiatric Association’s possible to address certain environmental stres-
Diagnostic and Statistical Manual (DSM-III), de- sors preventively.
fine mental disorders and set out criteria that must
This chapter describes a number of environ-
be met for a mental health problem to be consid-
mental stressors that children may be exposed to,
ered a disorder. In DSM-III (19), a mental health
along with the mental health problems that may
problem is considered a disorder only if the prob-
be caused or exacerbated by such stressors. The
lem is: chapter does not review every environmental fac-
. . . a clinically significant behavioral or psycho- tor that poses a risk to children’s mental health,
logical syndrome or pattern . . . that is typically but it does attempt to cover the specific environ-
associated with a painful symptom (distress) or mental, primarily psychosocial, factors that pose
impairment in one or more areas of functioning. the greatest risk and to illustrate generally the
effect that environment can have on the devel-
Although defining and establishing criteria for
opment of children’s mental health problems.
mental disorders is useful, it can mean that chil-
And, as acknowledged by DSM-III's multiaxial
dren with subclinical mental health problems, or
diagnostic system, these environmental factors
those in danger of developing a disorder, may not
can also affect the course of mental health prob-
be considered to be in need of mental health serv-
lems, and plans to treat such problems, Discussed
ices. In reality, children, particularly those ex-
are poverty; premature birth; parental psy-
posed to environmental stressors, may exhibit dis-
chopathology such as alcoholism, maltreatment,
crete mental health problems. For example, a child
teenage parenting (a problem for both parent and
whose parents divorce may experience anger and child); and parental divorce. The purposes are to
depression. Children with a major physical illness
focus attention on the range of children’s mental
may experience loneliness when they cannot see
health problems that may be amenable to inter-
their family and friends, Children born into or
vention, whether the intervention is designed to
thrust into poverty may experience constant anxi-
alleviate pain or prevent development of more se-
ety as a result of financial insecurity. Further,
vere problems; and to raise the issue that it seems
some children are exposed to multiple stressors
essential to develop policies and programs so that
and so may be vulnerable to a number of mental
they work for the particular children who need
health problems.
to be helped. As discussed in chapter 2, several
The multiaxial system of DSM-III incorporates national commissions have stressed the impor-
environmental stressors on Axis IV (psychosocial tance of attending to environmental factors in de-
stressors, including stress arising from physical veloping mental health programs for children.
illness) (19; also see ch. 3). Because DSM-III is These commissions have also made specific sug-
primarily a manual for clinicians, however, it nec- gestions for developing such policies and pro-
essarily treats psychosocial stressors as additional, grams. However, it is beyond the scope of this
rather than primary, information to be used in background paper to draw out fully all the im-
developing a mental health treatment plan for a plications of designing a mental health services
patient. Although there is disagreement about the system so that it is responsive to all the children
value of primary prevention of mental health in need.
49
—
50
exposed to other risk factors even more vulner- notes that child poverty rates have increased
able to developing mental health problems. sharply among black and Hispanic children. Cur-
rently, almost half of black children in the United
The relationship of socioeconomic class and
States live in poverty, while less than 15 percent
ethnicity to mental health takes on particularly
of nonblack children are poor (117). Being poor
great importance with evidence that poverty
may also mean that children will not have access
among children—especially among black and His-
to health insurance. An estimated 15.9 million
panic children—has increased in recent years. A
children and young adults (1- to 19-year-olds)
report prepared by the Congressional Research
were uninsured in 1977, the last year for which
Service and the Congressional Budget Office in-
national data are available (661a).
dicates that in 1983 there were 13.8 million poor
children in the United States (646). The report
PARENTAL PSYCHOPATHOLOGY
In most children’s development, the family plays Considering the effects of affectively disordered
a crucial role. It is perhaps not surprising, there- parents on their children is important, because af-
fore, that the presence in the family of a parent fective disorders—particularly depression—are
with psychopathology increases a child’s risk of the major form of psychopathology to which chil-
experiencing emotional and behavioral difficul- dren are exposed. The incidence of diagnosable
ties. Some of the difficulties that the children of depression in adult women has been estimated at
mentally ill parents may develop meet the criteria 1 to 8 percent (70), and an even higher propor-
for standard DSM-III psychiatric diagnoses; other tion (20 to 25 percent) are estimated to manifest
difficulties, however, are general impairments in marked, untreated depressive symptoms (69). Fur-
children’s social, emotional, or cognitive function- ther, the presence of infants and young children
ing that do not meet the standard criteria for di- in the home increases the risk for depression in
agnosable mental disorders. The relative contri- adult women (45,695).
bution of genetic and environmental factors in
In children of affectively ill parents, DSM-III
causing the emotional and behavioral difficulties
disorders as diverse as depression, separation
of children with mentally ill parents is not clear.
anxiety, attention deficit disorder, personality dis-
Nonetheless, the occurrence of mental illness in
turbances, and conduct disorder have been iden-
a parent constitutes a significant risk factor to a
tified (371,560,697). The overall prevalence of di-
child’s psychological well-being.
agnosable mental disorders in these children has
been found to be in the vicinity of 40 percent
Affectively Disordered Parent (428,467,477). Although the rates found in vari-
ous studies are not directly comparable (because
The development of children who have a par-
of the use of different diagnostic criteria), the sim-
ent with an affective disorder, such as depression ilar direction of results confirms that the children
or manic-depressive illness, has been a focus of of affectively ill parents have a higher incidence
much research. Evidence about the incidence of of depression and other problems than the chil-
affective disorders within families indicates that dren of normal parents.
10 to 40 percent of the immediate relatives of af-
fectively disordered individuals also develop such Parental depression and mania seem to have a
disorders (225,315,501,613,713). There is grow- particularly marked effect on cognitive and emo-
ing awareness that children can manifest the tional development during infancy and early child-
symptoms of affective illness; although manic- hood (115,218,571,696,725). Studies comparing
depression is found infrequently in children and the effects of maternal depression with those of
young adolescents, depression does exist during schizophrenia (572), and the effects of maternal
childhood (95). “psychological unavailability,” often a result of
52
depression, with those of physical abuse and ne- Prior to birth, the children of a schizophrenic
glect (162) for example, indicate that a mother’s mother may already have experienced more ad-
affective illness has a particularly pathogenic ef- verse circumstances than the children of nonschiz-
fect on a child’s early development. In one study, ophrenic mothers. The pregnancies and deliver-
children of psychologically unavailable mothers ies of schizophrenic mothers are more frequently
evidenced striking declines in functioning in every accompanied by complications than those of non-
important area of development from birth to 2 schizophrenic mothers (430,431,571,720), and
years (162). As a group, these children appeared such complications are frequently related to chil-
even more impaired than children exposed to dren’s developmental problems. Some research-
physical abuse and neglect. ers have found the increased pregnancy and birth
complications of schizophrenic mothers to be
In middle childhood, children of affectively dis-
associated with the low socioeconomic status that
ordered parents often experience difficulty in im-
often accompanies schizophrenia (571), while
portant developmental tasks. Such children have
others have found them to be independent (720).
been found to exhibit problems in meeting norms
of school and classroom behavior (192,688); poor In infancy and early childhood, children of a
academic performance (550,551); and difficulty schizophrenic parent often exhibit a number of
with peers, especially in terms of aggressive be- mental health difficulties. Such children often
havior (689). score lower than other children on measures of
cognitive, linguistic, and psychomotor function-
As adolescents, the children of affectively dis-
ing, and they evidence deficiencies in adaptive be-
ordered parents often experience difficulties that
havior and emotional attachment (571). These
are more severe than those of other children.
problems can be exacerbated by the severity and
Garmezy and Devine (221) found, for example,
chronicity of the illness and the low socioeco-
that children of depressed mothers drop out of
nomic status typically associated with schizophre-
junior high school at more than twice the rate of nia (571,572).
controls (22 v. 10 percent).
During the preschool and early elementary school
Studies of children of parents with affective im-
years, children of a schizophrenic parent gener-
pairments have looked almost exclusively at moth-
ally do not exhibit severe behavior problems. Dur-
ers; therefore it is difficult to draw conclusions
ing middle childhood, however, evidence of seri-
about children of fathers with affective impairments.
ous social and academic difficulties emerge when
Schizophrenic Parent these children are compared to the children of
nonschizophrenic parents. Children of schizophren-
A parent with schizophrenia, a debilitating and ics are rated by teachers and by peers as less com-
often chronic mental disorder, places a child at petent than other children (550). These lower rat-
serious risk for developing mental health prob- ings of competence seem to stem from a perception
lems. Persons who are schizophrenic are plagued of these children as more aggressive, impulsive,
by hallucinations, delusions, or other thought dis- and disruptive (431,687). Furthermore, children
turbances. Children of schizophrenic parents have of schizophrenics seem to have serious difficul-
been shown to have a risk of developing schizo- ties in terms of intellectual functioning. In com-
phrenia 10 times greater than that of the offspring parison to the children of nonschizophrenic par-
of nonschizophrenic parents (246). In general, ents, they tend to have lower grades (551), lower
these children also have more difficulties during IQ scores (431,460,717), and less scholastic moti-
childhood than do children of nonschizophrenic vation (316). In addition, these children have been
parents (682). This observation holds true even found to exhibit more attentional dysfunction
in the case of children who have not spent the (460), more emotional instability (316,683), and
majority of their childhoods living with the schizo- a greater amount of psychological disturbance in
phrenic parent. general (718).
53
In most studies on the development of children it is associated with a number of other family
of schizophrenics, subjects have not yet reached problems that place children at risk of mental ill-
the age at which schizophrenia becomes manifest ness. Such problems include family disorganiza-
(i.e., the early twenties). Nonetheless, they al- tion and divorce, violence, and life changes such
ready appear vulnerable. Although epidemiologic as job loss and frequent moves.
research suggests that only 10 percent of the chil-
dren of schizophrenics themselves develop schizo- One of the earliest consequences of parental al-
coholism is the exposure of the fetus to alcohol
phrenia in adulthood, one study found that 75
(l). Evidence suggests that alcoholic mothers have
percent of these high-risk children develop some
increased risk of complications in pregnancy and
form of psychiatric disturbance (295).
of having children who develop health problems
The relative contributions of genetic and envi- such as physical anomalies (e. g., heart defects)
ronmental factors in schizophrenia are not known. and disturbances to physical growth (165). De-
It is also unclear whether the negative psychologi- velopment of fetal alcohol syndrome, with a com-
cal impact of having a schizophrenic parent is due bination of birth defects, deficiency in growth,
to the features of the disorder, to factors related and deficits in development, is rare (165), but the
to mental illness generally (e.g., severity and chro- development of fetal alcohol effects maybe more
nicity), or to the lower socioeconomic status that common.
usually accompanies this major form of psycho-
The disinhibiting effect of alcohol suggests that
pathology.
alcoholism may be associated with child abuse,
although literature examining this relationship is
Alcoholic Parent equivocal (165,166). Some researchers find in-
creased prevalence of alcoholism among child
Alcoholism is one of our Nation’s most serious abusers, others find no relationship, while still
health problems (648,581), and the prevalence of others find that psychosocial disorders in general,
alcoholism and alcohol abuse among adult men including alcoholism, are associated with child
and women (up to 15 percent) suggests that paren- abuse.
tal alcoholism is one of the most common haz-
Only a few studies have examined the effect of
ards to children’s mental health. Abuse of illegal
parental alcoholism on children’s development,
drugs by parents has also been implicated in the
despite frequent clinical suggestions about the
etiology of drug abuse by children (668a), but has
not been subject to as much analysis as has paren-
damaging effects of family alcoholism on a child’s
tal alcohol abuse. personality and family relationships (685). Some
studies have identified children of alcoholics as
Approximately 6.6 million children under the more susceptible than other children to a range
age of 18 in the United States are estimated to have of psychological, educational, and social prob-
an alcoholic parent (559). That alcoholism may lems including “emotional disturbance, ” hyper-
have serious negative effects on child-rearing and activity, legal problems and drug abuse as adoles-
family relations is suggested by the well-docu- cents, and a variety of behavioral problems and
mented harmful consequences of alcoholism to psychiatric disorders (165,166). However, it is dif-
health, productivity, and other aspects of adult ficult to rule out the possibility that related fac-
functioning (see 648). Alcoholism can disable par- tors such as socioeconomic status or family dis-
ents from caring for their children effectively, and organization are producing these effects.
MALTREATMENT
Recent estimates suggest that each year over 1 jury, sexual abuse, neglect and failure to provide,
million children experience some type of maltreat- and emotional mistreatment. An estimated 100,000
ment (662). “Maltreatment” includes physical in- to 200,000 children each year experience physi-
54
cal abuse, 60,000 to 100,000 experience sexual of these studies are correlational, and it is possi-
abuse, and over 700,000 children are neglected ble that at least some children maybe targets of
(57). Although there are no estimates of the prev- abuse because of cognitive deficits.
alence of emotional maltreatment, it is logical to
In early and middle childhood, maltreated chil-
assume that emotional maltreatment accompanies
dren exhibit several signs of social and emotional
other forms of maltreatment and that there is
maladjustment. As preschoolers, maltreated chil-
another unknown number of children who experi-
dren exhibit more adjustment problems and be-
ence emotional maltreatment alone. Maltreated
havioral symptoms indicative of pathology (163,
children are often exposed to more than one type
502). They are also described as more aggressive,
of maltreatment (162,231,284). Furthermore, mal-
especially in response to frustration (283). As
treatment often consists of more than a single epi-
school-aged children, they frequently have im-
sode; studies suggest that approximately half of
paired self-concepts and display heightened levels
maltreated children have experienced previous
of aggression, both with peers and in the classroom
abuse (159,282,377,610,737).
(66,302,534,535). There is also limited evidence
Maltreatment has long been thought to consti- of self-destructive behaviors in these children, in-
tute a significant risk factor for children’s devel- cluding suicide attempts, threats and gestures, and
opment. Recent clinical and empirical investiga- self-mutilative behavior (255). Finally, in their in-
tions of maltreated children substantiate this teraction with adult strangers, maltreated children
assumption. The quality of available research are found to be more dependent and imitative
varies (see 3); however, the research suggests that than other children, and to exhibit less motiva-
maltreated children are at high risk for physical, tion to shape their own lives and make their own
cognitive, behavioral, and emotional difficulties. decisions (2). It has been hypothesized that these
Recent research and theorizing about maltreat- tendencies negatively affect maltreated children’s
ment, although inadequate (see 729), documents ability to cope with the important developmen-
the cognitive and social-emotional problems of tal tasks of entry into school and effective func-
maltreated children. tioning in the classroom.
That physical abuse and neglect causes at least
Physical Abuse and Neglect some such deficits in development is supported
by studies that compared maltreated children to
Physical abuse and neglect are believed to cause control groups that are similar on important dem-
intellectual and cognitive deficits, specifically low- ographic and socioeconomic variables. The use
ered IQ scores that are frequently in the mentally of a matched, nonmaltreated control group is par-
retarded range. Clinical investigations of physi- ticularly important, since abuse and neglect often
cally maltreated infants and children report that occur in the context of other risk factors such as
large numbers of these children are functioning high-stress environments and reduced socioeco-
at diminished cognitive and intellectual levels. Re- nomic status (222,228,499). Studies using control
search suggests that 33 to 57 percent of physically groups suggest that maltreatment causes cogni-
abused and neglected infants and children have tive deficits, in terms of both performance on IQ
IQ scores below 85 (168,413,416,448). tests and academic functioning in school.
Physically abused and neglected infants have Studies using comparison groups also substan-
been shown to have diminished performance on tiate clinical observations that a significant degree
IQ tests and other developmental measures com- of social and emotional maladaptation results
pared to a retrospective control group (23,146, from a history of physical maltreatment. As in-
194,256,366). Comparison group studies of the fants and toddlers, physically maltreated children
cognitive and academic functioning of preschoolers are often insecurely attached to their caregivers
and older children have frequently found that (162,584), a factor that has been related to social
abused and neglected children perform at signifi- and emotional difficulties throughout early child-
cantly lower levels than similar, nonmaltreated hood (385,421,623). In interactions with care-
children (39,194,212,302,344,502). However, most givers, physically maltreated infants and toddlers
frequently exhibit withdrawal; inconsistency and psychological and psychiatric literature strongly
unpredictability in affective communication; a suggest that the experience of sexual victimization
lack of pleasure; indiscriminate attachment (214); in childhood has serious deleterious psychologi-
and high levels of frustration, noncompliance, and cal effects, both short and long term.
aggression (162).
One study of the short-term effects of sexual
Although the relationship between cognitive abuse in children (12) found that all of the affected
performance and emotional difficulties in physi- children and adolescents were symptomatic and
cally abused children is not clear, emotional and in need of mental health attention. The degree of
behavioral problems exhibited by maltreated chil- pathology ranged from mild to severe (e.g., anxi-
dren have been well documented. Clinical reports ety and sleep disturbances, suicidal ideation, ad-
of physically maltreated infants and children de- justment reactions, psychoses). In general, emo-
scribe a heterogeneous group of behavioral and tional disturbance was greater when the child was
emotional difficulties. These include severe anxi- female, was unsupported by a close adult, had
ety, withdrawal, apathy in social interactions, and been molested by a father and/or by more than
hypervigilance and “frozen watchfulness” in re- one relative, and had been genitally molested.
gard to the social environment (217,414,415,479, Severity of disturbance was associated both with
634). In addition, these children are described as longstanding abuse that began in early childhood
aggressive, oppositional, impulsive, provocative, and with sexual abuse in adolescence, even if
and limit-testing (254,414,415). They exhibit a va- limited to only one incident.
riety of other behavioral symptoms (e.g., hyper-
One review of the literature indicates that sex-
activity, sleep disturbances, and socially inap-
ually abused children and adolescents suffer from
propriate behavior), as well as significant sadness, problems with sexual adjustment, interpersonal
low self-esteem, and self-depreciating behaviors relationships, and educational functioning (452).
(254,414,415).
The review suggests that when no disclosure or
effective intervention occurs, difficulties can per-
sist into adulthood. The most prominent effects
Sexual Abuse of child sexual abuse found in adult populations
are disturbed self-esteem and an inability to de-
It has been estimated that 60,000 to 100,000
velop trust in intimate relationships (191).
children are sexually abused in the United States
every year (659), although some observers believe Unfortunately, available research does not al-
that available estimates probably represent only low us to determine the degree to which these
a small percentage of actual cases (18). This be- emotional and other psychological difficulties are
lief is supported by surveys of adults in which 15 due to sexual abuse or to other factors in the envi-
to 34 percent report having been sexually vic- ronment. Features of sexual abuse that seem most
timized as children (191). In general, girls are sex- strongly related to negative psychological impact
ually abused more frequently than boys, and the include the nature of the offense, the degree to
offender is often a family member, particularly which the offender is known, the use of force, and
a father or stepfather (122,191,453). Much less is the age of the offender (190,227,373). Increased
known about the effects of sexual abuse on a public recognition of problems engendered by sex-
child’s mental health than is known about the ef- ual abuse is leading to better identification of the
fects of physical abuse and neglect. Nonetheless, psychological effects and implications for treatment.
TEENAGE PARENTING
Adolescent parenthood has received increasing grown. Of the over 3 million live births that oc-
attention in recent years as the perception of the cur annually in the United States, approximately
frequency and magnitude of this phenomenon has 600,000 are to adolescent girls between 15 and 19
56
Substantial evidence suggests that many of the adolescent parenting and child abuse (401,608,
negative effects of teenage parenting are only min- 617). In general, better outcomes on a range of
imally related to the mother’s age at birth, and indicators (e.g., cognitive skills) are found for
are instead a function of the parent’s reduced adolescent mothers and their children who are re-
educational achievement and low socioeconomic ceiving more support either from the children’s
status (35). Adolescent mothers have been found father or from the mother’s family compared with
to have relatively limited knowledge and unrealis- those in which the mother is the sole, full-time
tic expectations about child development (142). caretaker (213).
Some research indicates an association between
to experience some difficulties in several domains Premature birth and low birthweight have potentially
of functioning, including social, environmental, broad effects on mental health functioning.
linguistic, physical, and cognitive areas. One of
the earliest difficulties to appear is disturbed in- usual degree of activity and stimulating behaviors
teractions between mothers and preterm infants. (80,130,145,179,180,181,182). This imbalance fre-
These disturbances constitute a pattern of the in- quently results in a vicious cycle, as increased
fant showing less responsiveness, less positive af- activity on the part of the mother leads to less in-
fect, and more aversion behaviors than full-term fant responsiveness, and this, in turn, results in
infants and the mother showing more than the more active maternal behavior. In general, pre-
59-964 0 - 87 - 3
58
term infant-mother dyads have fewer positive in- (e.g., hyperactivity, distractibility, short attention
teractions than their full-term counterparts, and span, irritability, impulsiveness, specific fears, and
this difference may increase over the first year of unclear speech); less social maturity; and inferior
life (130). In normal populations, the quality of language production (184,185,186,642).
early social interactions has frequently been asso-
ciated with both early and late social, emotional, For many children born prematurely, develop-
and cognitive competence. Similarly, it has been mental delays shown in infancy and early child-
found that the less optimal social interactions ex- hood are mild and decrease with age. Some ef-
perienced by preterm infants are related to poorer fects of prematurity, however, do not fully emerge
social, emotional, and cognitive functioning in until the school-age years. These effects frequently
early childhood (46,181,186,642). take the form of specific cognitive deficits in terms
of visuomotor and other perceptual-motor skills
The incidence of the most severe problems asso- (100,307,607). Patterns of specific impairment in
ciated with premature birth—e.g., cerebral palsy, perceptual-motor functioning (in the context of
severe mental retardation, brain damage, epi- normal language performance) are suggestive of
lepsy, and vision and hearing defects (99)–has learning disabilities (607). In general, children
declined over the last few decades because of im- born prematurely have been observed to show
proved prenatal monitoring and medical technol- poorer school performance than other children
ogy (see 635). Nevertheless, infants and children (124,140,204,273), although recent research sug-
born prematurely are found to display poorer out- gests that these differences in long-term outcome
comes than full-term infants and children on a va- may be more related to socioeconomic status than
riety of developmental indices. Preterm infants to prematurity (138,148).
have been found to perform more poorly than
full-term infants on measures of cognitive, lan- In samples of abused and neglected infants and
guage, and motor development in infancy, includ- children, preterms are frequently overrepresented
ing an early assessment of IQ known as the Bay- (34,168,199,355,583). To the extent that preterms
ley Scales of Infant Development (80,84,130,185, are in greater danger of being abused, they are
195). These problems are especially common in at risk for experiencing cognitive, social, and emo-
preterm infants of very low birthweight (i.e., less tional difficulties associated with maltreatment
than 1,500 grams). Similarly, toddlers and pre- detailed above, The cause of the relationship be-
schoolers born prematurely tend to perform at tween prematurity and maltreatment is unclear.
lower levels than full-term toddlers and children Factors in the infant, the parent, and the environ-
on tests of cognitive competence (184,185,195, ment, as well as the effects of early separation of
307,607,642). Again, these differences are much preterm infants from their parents, have all been
more marked for those born at very low birth- suggested as leading to abuse. It seems likely,
weights. In addition to exhibiting lowered cogni- however, that none of these factors alone explains
tive competence, preschoolers born prematurely the link between prematurity and child maltreat-
have been found to display more behavioral symp- ment and, instead, that each contributes to pro-
toms suggestive of minimal brain dysfunction duce a cumulative effect (417).
PARENTAL DIVORCE
Parental divorce can have serious consequences parental separation or divorce. From 1970 to
for children’s mental health and has increasingly 1981, the percentage of single-parent families in
been recognized as an important mental health the United States increased from 12 to 20 percent
risk factor. The increasing recognition of its ef- of households (652). Furthermore, recent estimates
fects is not surprising, given recent increases in suggest that nearly half of the children born in
the numbers of children under 18 who are living the 1970s and 1980s will spend a portion of their
in single-parent households, usually as a result of childhood living in a single-parent home (236).
59
The initial period following separation or di- ter divorce tend to abate without treatment in the
vorce is one of severe stress and disorganization 2 years following divorce, especially among girls
for the entire family. During this time, children (294). However, this outcome varies and seems
often exhibit a variety of behavior problems, in- to be related to several mediating variables such
cluding oppositional, aggressive behavior (291, as the amount of parental conflict after the di-
292,293); and depressive reactions and develop- vorce. One recent study, using a large, randomly
mental delays (676,677,678,679,680). These prob- selected sample of children, found that the effects
lems often occur in children who have had no of divorce did not evaporate after 1 to 2 years
prior history of psychological difficulty or treat- (266). When compared with intact-family chil-
ment. Moreover, the problems extend into many dren, children from divorced households (particu-
parts of children’s lives—family relationships, larly boys) were found to experience a variety of
school functioning and academic performance, academic, social, mental health, and physical
and relationships with friends. Children from health problems even 5 to 6 years after divorce.
divorced families are more likely than intact-
Factors that can either accentuate or ameliorate
family children to have been referred for psycho-
the negative effects of divorce include the child’s
logical treatment (28,265). In addition, children
relationship with the noncustodial parent, parent
from divorced families have been found to score
adjustment, parents’ postdivorce relationship, the
significantly lower on IQ tests (292), evidence
child’s predivorce adjustment and temperament,
poorer work styles (288), and demonstrate gen-
the sex and age of the child, and extrafamilial sup-
erally lower academic and classroom competence
port systems (28). Research varies in the degree
(265).
to which it has successfully separated the impact
Many studies report that the various behavior of divorce from the impact of other mediating
problems exhibited by children immediately af- variables (28,169,265,294,370).
severe physical limitations is extremely stressful. in many cases, appearing different from other chil-
Furthermore, a medical condition can limit chil- dren. The siblings of a sick child may also suffer
dren’s functioning in areas that are especially crit- psychologically because of the illness; they often
ical to their stage of development (423,705). Pro- experience guilt over being well while their brother
longed confinement to bed, for example, interferes or sister is ill and jealousy over all the resources
with young children’s developmental need for and attention devoted to the sick one (152,154,
movement to explore the world and test their 364). Medical conditions and treatments also in-
abilities. terfere directly with children’s development, so
that they may fall behind in intellectual, emo-
An additional source of stress faced by chron-
ically ill children is the difficulty of undergoing tional, and social development.
diagnosis and treatment. Many techniques used
The requirements of managing a chronic illness
to diagnose and treat illness are uncomfortable,
painful, immobilizing, or defacing. Needles to often conflict with the developmental or psycho-
logical needs of children. For example, chronic ill-
draw blood, biopsies, radioisotopic preparations,
ness forces adolescents to be more dependent on
and other diagnostic procedures are often more
frightening and painful to children than the slow their parents at a time when they need to develop
course of a disease. Many treatments of severe independence. It may lead children to feel both
responsible for what happens in the family and
diseases (e.g., chemotherapy or radiation therapy)
have painful and debilitating side effects. Treat- guilty over the family’s distress. Often the fam-
ily exacerbates these problems by being overpro-
ments such as dialysis, which must be continued
indefinitely, place enormous psychological de- tective. In general, normal development is made
more difficult, because illness necessarily places
mands on children. Furthermore, treatment often
forces children to spend long periods of time in children in a more dependent, child-like position.
Children’s prospects for the future can be dimin-
a hospital, separated from their parents and friends.
ished, partly because their illness impairs their
For some children, the greatest stress arises af- abilities, but also because of prejudice against
ter they return from the hospital. Anxiety remains them in school or at jobs. There is also often prej-
about the risk that their illness will recur, their udice against recovered patients who try to ob-
body integrity, and their ongoing chances for sur- tain life and health insurance. Several studies have
vival. For children with some conditions, stress found consequences for adaptation, especially in
is increased because not much is known about social relationships, for adults who have had a
their prognosis other than that they are at in- chronic childhood medical condition (71,237,474).
creased risk for having another episode of the dis- An additional complication is that mental and
ease (364). Children with major and chronic ill- physical health are closely intertwined; emotional
nesses may have physical impairment remaining or behavioral problems often exacerbate physi-
from their illness or from invasive treatment of cal problems. This is true for almost any disease,
the illness—either concrete disabilities such as the but especially so for conditions such as asthma
loss of a limb or more unpredictable problems in which emotional arousal can stimulate physi-
such as suppression of the immune system. On- cal symptoms.
going treatment regimens, which often involve
frequent medication or other treatment, disrupt Success in coping with a chronic medical con-
normal school, peer, and family activities of chil- dition seems to be related to such factors as the
dren. Treatment often continues to be painful or specific course of the medical illness (when it oc-
lead to physical changes. Children must rejoin curs in life, how long it lasts, number of relapses,
their classroom and peer groups while still cop- etc. ) and the ability of the family, physician, and
ing with the feeling that they are different and, others to be supportive (364).
61
CONCLUSION
A number of biological and psychosocial fac- tal health problems and services. As is acknowl-
tors can pose risks to children’s mental health. edged in diagnostic manuals such as DSM-III,
This chapter has examined a number of the more knowledge of a child’s physical health status and
severe environmental risk factors for children— psychosocial environment is important to devel-
poverty, minority ethnic status, parental psycho- oping an effective mental health treatment plan.
pathology, physical or other maltreatment, a For policy purposes, it can be important to know
teenage parent, premature birth and low birth- that children’s mental health problems are not
weight, parental divorce, and serious childhood limited to mental disorders, and that it may be
illness. The evidence on many of these factors and possible to prevent development of some mental
their direct relation to children’s mental health health problems by reducing certain risk factors
problems is sometimes unclear, primarily because (e.g., poverty) and ameliorating the effects of
children exposed to one risk factor may be ex- others.
posed to others as well.
Consideration of environmental risk factors is
important to an examination of children’s men-
Part Ill: Services
Chapter 5
Therapies
Chapter 5
Therapies
INTRODUCTION
The specific techniques used to treat children . individual therapy,
with mental health problems vary depending on ● group and family therapy,
INDIVIDUAL THERAPY
The paradigm for mental health treatment has Psychodynamic Therapy
traditionally been individual therapy—the one-
on-one encounter of a therapist and a patient. All forms of therapy for children involve bring-
Over the past 50 years, there have developed a ing about changes in their cognition, emotions,
large number of individually based therapies based and behavior (260). What distinguishes psycho-
on theories as disparate as psychoanalysis and dynamic approaches is their emphasis on cogni-
operant conditioning. Each theory has spawned tion and emotions and the concomitant idea that
various approaches to individual therapy that changes in these two realms will be followed by
have been adapted for use with children. changes in behavior. When psychodynamic ap-
Three broad categories of treatment approaches proaches are used with children, they often in-
used with individual children are described below: volve elements that are usually not emphasized
with adults and that blur distinctions between
1. psychodynamic therapy, which focuses on psychodynamic and other therapeutic approaches
the development of insight; with children. These include clarification of con-
2. behavioral therapy, which is based on be- scious feelings and thoughts and aid in the de-
havioral learning theories and relies on posi- velopment of alternative problem-solving and
tive and negative reinforcements to create coping strategies. The accentuation of these tech-
changes in behavior; and niques in work with children reflects children’s
3. cognitive therapy, which is based on cogni- early stage of cognitive and psychosocial devel-
tive learning theories and trains individuals opment.
to use new patterns of thinking.
Each of these approaches, though developed to Psychodynamic therapy with children is usu-
deal with individual patients, can also be used as ally accompanied by other interventions. Most
part of group and family therapy. Furthermore, often it is accompanied by therapy with the child’s
although psychodynamic, behavioral, and cog- parents. The involvement of individuals in the
nitive therapy are based on distinct theories, in child’s environment reflects the fact that children
practice, many clinicians use an eclectic therapeu- are more dependent than adults and less able to
tic approach. change their environmental conditions.
67
68
perience with the social environment. Therapists observing another child approach a dog could be
using behavioral techniques systematically ana- used to help a child patient overcome a dog
lyze the child’s problem and environment and phobia.
identify the specific behaviors to be modified. As
part of the assessment, frequency counts of Applications of Behavioral Therapies
maladaptive behaviors may be carefully collected,
Behavioral therapies are applied in the treat-
along with data on the situation within which the
ment of children with specific intellectual and
maladaptive behavior occurs. Then specific be-
developmental disorders, behavior disorders,
havioral techniques are applied in an effort to
emotional disorders, and psychophysiological dis-
change specific problem behaviors.
orders.
Models of Learning on Which Behavioral Intellectual and Developmental Disorders.—
Therapies Are Based In the case of mental retardation or pervasive de-
velopment disorders (PDDs), behavioral therapy
Several models of learning underlie behavioral
is not intended as a “cure. ” It has been used, how-
therapy methods. The most commonly applied
ever, as a major tool for training severely dis-
model is operant conditioning. This model as-
turbed children to communicate with others and
sumes that learning results from the consequences
to develop self-care skills (252). Children are
of behavior (611). Behavior that leads to reward-
trained to use language (305), to develop house-
ing consequences is said to be positively reinforced
hold skills like telling time and counting change,
and, as a consequence, is presumed to increase,
and to develop social and educational skills. Be-
while behavior that leads to unrewarding or pun-
havioral methods are sometimes prescribed as spe-
ishing consequences is presumed to decrease. In
cific, intensive, time-limited procedures, but more
behavioral therapy based on operant condition-
often they are integrated into a treatment setting’s
ing, adaptive behavior is explicitly rewarded,
program. For example, meals can be used as part
while maladaptive behavior is either explicitly not
of a behavioral treatment program to teach chil-
rewarded, leads to a delay in reward, or is pun-
dren to make requests (252). Operant condition-
ished. Thus, for example, children who have
ing relying on positive reinforcement has been the
problems with aggression and who learn to in-
mainstay of this training.
teract appropriately with classmates may receive
special rewards. Some residential treatment set- Behavioral therapy has often been used in seek-
tings use “token economies” in which children ing to limit tantrums, self-mutilation, and other
“earn” tokens that are redeemable for privileges. self-destructive behaviors in children with PDDs
(410). Punishment is used occasionally (e.g., the
A second model for behavioral therapy is re-
use of electric shock to stop head-banging), al-
ciprocal inhibition (716). This model holds that
though considerable public and scientific con-
children “learn” an inappropriate, anxious re-
troversy exists about the side effects and ethics
action (e. g., a phobia) to an aspect of the envi-
of using punishment with children (641).
ronment. Behavioral therapy based on the recip-
rocal inhibition model usually involves training Behavior Disorders.—A number of behavioral
patients in systematic desensitization—i .e., sub- techniques have been developed for treating chil-
stituting relaxation or other appropriate behaviors dren with attention deficit disorder with hyper-
to break the patient’s association between a feared activity (ADD-H) (129). The contingency manage-
object and an inappropriate reaction (37). ment approach requires that parents and teachers
use a structured system of rewards contingent on
A third paradigm, sociaol modeling or observa-
appropriate, attentive behavior by the children.
is an elaboration of operant
tional learning (37),
conditioning (252). According to this paradigm, Behavioral therapy is frequently used with con-
an individual learns new behavior by observing duct-disordered children in residential juvenile jus-
another person successfully carrying out the new tice facilities. The focus is on improving delin-
behavior and being rewarded for it. For example, quent children’s social or educational skills, while
70
decreasing delinquent behavior within the residen- psychiatric hospitals and residential treatment
tial setting (252). Operant conditioning is the pri- centers (RTCs). For the implementation of many be-
mary technique, and token economies are used havioral techniques, fairly little training is needed.
frequently, but techniques such as behavioral con-
Many parents of severely disturbed children
tracting are also employed (591). have received training in operant conditioning and
Emotional Disorders. —Behavioral techniques other behavioral management techniques used in
have a long history of use in treating children’s residential treatment settings (398,585). Parents
phobias—a subset of anxiety disorders. Whether of children with some of the less severe psy-
desensitization, modeling, or other techniques are chophysiological problems have also received
employed, most seek to reduce children’s anxiety training in behavioral techniques, including for
so that they will approach (physically or symbol- example, the bell-and-pad treatment for enuresis.
ically) and eventually confront the feared object. The most common application of parent training
Behavioral techniques have not been extensively is, by far, to childhood behavior problems. These
developed for treatment of emotional disorders problems can range from tantrums in a toddler,
other than anxiety. to disruptive classroom behavior (27), to adoles-
cent delinquency. Parents are also reported to
Psychophysiological Disorders. -Most psycho-
have conducted successful behavioral treatments
physiological symptoms are believed to be amena-
for school phobia (285) and night-time fears (251,
ble to behavioral treatment. Therapists have
343).
adapted behavioral techniques such as relaxation
training, self-control training, and operant con- A frequent combination of behavioral proce-
ditioning to teach children with stereotyped move- dures taught to parents includes:
1 ment disorders to have greater control over their
1. providing positive reinforcement for appro-
bodies.
I priate behaviors (usually in the form of at-
I The use of operant conditioning techniques is tention or praise);
especially common with enuretic and encopretic 2. avoiding inadvertent reinforcement (e.g.,
children. One such technique, the bell-and-pad negative attention) for disruptive behavior
technique, for example, places a special device on that is not severe (“extinction”); and
an enuretic child’s bed that sounds a wake-up 3. segregating children by themselves for more
alarm on contact with a child’s urine, teaching the severe disruptive behavior (554).
child to associate sleeping with continence (450). The use of behavioral contracts is encouraged in
Operant conditioning techniques have also been some families with conduct-disordered children
used to treat patients with eating disorders such
(252).
as anorexia nervosa.
Although the techniques of behavioral therapy
Parent Training in Behavioral Therapy .—Train-
are relatively simple, especially compared to those
ing parents to use behavioral techniques with their
of other individual psychotherapies, the analysis
children is increasingly favored and has great po- of a child’s behavior is usually complex, especially
tential for expansion (251). The application of be- when there are multiple dysfunctions. In addition,
havioral techniques by parents has an inherent designing reinforcement schedules and redesign-
logic in that parents are responsible for their chil- ing a child’s environment can be more complex
dren and can be directly involved as soon as a than mere description would suggest.
problem is identified. It is also an important ap-
proach to consider in light of resource constraints Parents can learn appropriate behavioral tech-
and the desirable policy of providing treatment niques from self-help manuals (487), as well as
for disturbed children in the least restrictive envi- directly from professionals (429). Self-help
ronment. For some children, a home environment manuals vary in their quality and their ground-
in which the parents apply behavioral techniques ing in empirical evidence (235). Since self-help
can replace the behaviorally programmed envi- techniques are largely out of the hands of profes-
ronments of residential treatment settings such as sionals once the books are written and distributed,
71
little is known about the extent, manner, and ef- For emotionally disordered children with pho-
fectiveness of their use. bias, therapists have used behavioral models com-
bined with cognitive training to demonstrate that
a feared object or situation can be confronted
Cognitive Therapy (351). In addition, various cognitively based train-
ing programs have been used to teach emotion-
Clinical and research findings indicate that
ally disordered children to solve interpersonal
thinking processes of disturbed children are differ-
problems more effectively. Other cognitive train-
ent from those of other children (399,674). Such
ing programs aim to improve young people’s abil-
findings have led to cognitive treatment modali-
ity to understand and think through social situa-
ties that attempt to alter the way disturbed chil-
tions (their “social cognition”) (643). Such
dren think about their behavior and their envi-
cognitive training may include procedures that
ronments. Although the way in which cognitive
teach children the consequences of their behavior
interventions attempt to change thinking varies
for others (621), or train them to take the perspec-
greatly, two broad classes of cognitive interven-
tive of others—and to know thereby what behav-
tions can be identified. One class of cognitive in-
ior would be best in the relationship (643). There
terventions tries to alter the thinking that takes
may be a significant educational component to
place during a child’s troublesome behavior—e.g.,
these cognitive interventions. For example, some
by having impulsive, distractible children verbally
learning groups offer children concrete informa-
describe their actions to themselves as they do
tion about how to improve their social skills (376).
them (433). The other class of cognitive interven-
Some cognitively based training has focused on
tions tries to influence how children think about
training delinquent adolescents the skills neces-
themselves and others.
sary to manage group living or a job interview
Cognitive interventions are used to help chil- (574).
dren with many types of problems: behavior,
Cognitive methods are also used with families
learning, emotional, and social problems. One
of disturbed children. For example, some ther-
cognitive method derived from theories about
apists have taught social problem-solving skills
neuropsychological functions (399) trains children
to families, especially families of behavior-dis-
to use speech as a tool to slow down and focus
ordered children (16,347).
their learning and behavior (433). Other cogni-
tive interventions train children in such aspects In summary, cognitive therapeutic interven-
of learning as the amount of time used to respond tions have wide applicability. Cognitive ap-
to a question (436), the visual scanning of educa- proaches are incorporated in many therapies, and
tional material, question-asking strategies (143), although cognitive approaches require trained
and analytic abilities (164). Peers and adults who mental health professionals, they can be adapted
use effective strategies are often used as models. in many settings.
processes within the therapeutic group (722). psychiatric diagnosis), but are manifestations of
Therapeutic groups are believed to develop an in- disturbed interactions within a family. A child’s
digenous “culture” (507) and to allow individuals symptom is viewed as an indicator of larger family
to develop new ways of relating. The strengths problems and as a response that serves a func-
of one child become a model for other children, tion for the entire family. Thus, for example, a
while the entire group can help an individual child child’s symptom can deflect attention away from
address a weakness (230). more fundamental difficulties such as strife in the
parents’ relationship (402,442). Because of its
The therapist’s task in group therapy is to help
functional and protective role, the symptom is re-
the group develop helping capacities and to per-
inforcing to the family, and families are psycho-
form organizing and caretaking functions within logically invested in maintaining it. Although
the group (582). Children in group psychother-
family therapy does not necessarily involve the
apy are a heterogeneous population, and psycho-
presence of every family member at each session
therap y groups are not usually targeted to a par-
(67), family therapists believe that a child cannot
ticular disorder; most groups aim to address
change if the family does not change as well
problems in relationships and identity that cut
across disorders. Group therapy is thought to be (203,442).
particularly useful for children experiencing dif- Several models have evolved within family
ficulties in peer relationships. therapy, and each offers different techniques for
intervening to produce change. Zimmerman and
Group psychotherapy for children is adapted
Sims (736) describe three models: dynamic, sys-
to the developmental level of the group. Therapy
tems, and behavioral.
groups for young children are usually organized
around group play and activity-oriented social be- Dynamic models for family therapy are char-
havior, while adolescent therapy groups rely more acterized by their reliance on insight as the main
heavily on discussion. Particularly for adoles- method of producing change. Frequently, the fo-
cents, the structure of group therapy depends on cus of insight is on pathological patterns of func-
the level of social relationships among group tioning that are carried from the parents’ own past
members. into the present family situation. These patterns
may involve conflicts over autonomy and depen-
Group therapy is not always conducted by
dency (704), developmental failures that have
group therapy specialists. It is sometimes provided occurred over generations and are being “pro-
by therapists of various orientations (e.g., be-
jected” onto a child in the current family (612),
havioral and cognitive), Therapists who do not
or situations in which a child’s symptom repre-
specialize in group therapy typically consider the
sents an “invisible loyalty” to transgenerational
dynamics of the group less central than other
themes (65). Insight into the way in which pat-
processes. For example, a behavioral therapist
terns from the past affect the present is believed
may intend group therapy primarily to provide
to produce growth in all family members, allow-
mutual reinforcement for improved behavior or
ing the child to give up the symptomatic behavior.
peer modeling (342), Group psychotherapy is
often provided as an adjunct to other modalities, Systems models for family therapy encompass
particularly individual psychotherapy or family a diverse group of theorists and techniques. One
therapy. such model is structural family therapy, an ap-
proach most closely associated with Minuchin
Family Therapy (443,445). Structural family therapy is aimed at
changing the family’s psychosocial organization
Although most child therapists point to the im- with the expectation that this will produce a change
portance of the family in understanding and treat- in the experiences of individual members. Fam-
ing children, family therapists are distinguished ily structure, according to Minuchin, is the “in-
by their unique way of reconceptualizing a set of visible set of functional demands that organizes
symptoms. For family therapists, problems do not the way in which family members interact” (442).
lie within the child (as suggested by traditional Aspects of family structure that maintain or are
73
the result of dysfunction include family bound- veal the changeability of the symptom and to
aries, alignments, and the balance of power. For make the previously covert functions and control
example, Minuchin (442) notes that families with of the symptom more overt and obvious to all
an anorectic child are frequently characterized by family members. Strategic family therapy does
enmeshed relationships, restrictions on individ- not rely on insight to produce change, and the
ual autonomy, and lack of conflict resolution. course of treatment is frequently brief (736).
Therapy involves firming up the boundaries be-
A third model of family therapy is behavioral
tween the parental and child subsystems, break-
family treatment developed by Patterson (487,
ing the facade of mutual agreement between the
490,497). Designed for use with families of con-
spouses, and helping them to negotiate conflict.
duct-disordered children, Patterson’s approach is
This approach does not preclude separate medi-
based on the observation that parents of these
cal attention for the anorectic child. It does, how-
children tend to reinforce the occurrence of ag-
ever, propose that the family, rather than the
gressive behavior and discourage the occurrence
child, is the matrix within which change must
of prosocial behaviors (491,492). Parents are
occur.
trained in the techniques of social-learning-based
A related systems model is strategic family ther- child management. Through exposure to pro-
apy (171, 172,269,270,684). Strategic family ther- grammed texts and participation in a parent train-
apists accept the idea that an individual’s symptom ing group, parents are taught to define, track, and
serves the function of stabilizing and maintain- record both deviant and prosocial behaviors in
ing a balance in the family system. Their approach their children and to devise behavioral contracts
in therapy, however, is to focus largely on the which specify the consequences of specific be-
symptom itself. Specific techniques are used to re- haviors at home.
MILIEU THERAPY
Milieu therapy involves utilizing daily living in reaction to the staff and their relationship to their
a therapeutic setting to teach patients social and family (639). In many therapeutic milieus, the in-
educational skills, to explore patients’ emotional tensive therapeutic relationships that develop with
life and patterns in relating to others, and to pro- several different staff are thought to give children
vide patients with ongoing support. a chance to re-create and then work out a number
of interpersonal difficulties. Behavioral programs
The setting in which milieu therapy is provided
are often used as the basis of milieu therapy.
is either a hospital, an RTC, or a day treatment
center. Every aspect of daily life in this setting is Milieu treatment also includes the group pro-
shaped to contribute to a child’s recovery. Such grams used to meet some of the children’s needs
disparate areas of life as a child’s evening routine for education, recreation, and a sense of commu-
or how he or she reacts to conflict with another nity. For example, community meetings are held
child become opportunities for professional and to review events within the hospital and explore
other staff to intervene and help a child learn more their relationship to patients’ difficulties, Groups
adaptive behavior. led by professional staff in art therapy, music ther-
apy, and recreation may allow patients to express
Interventions in milieu therapy can be as pro-
feelings about their predicament and, at the same
saic as teaching children to replace rough physi-
time, learn better ways to adapt.
cal contact with a special handshake or as pro-
found as pointing out a parallel between children’s
74
CRISIS INTERVENTION
Crisis intervention is an outpatient treatment vention services are typically offered intensively
based on clinical and other evidence that a ma- on an as-needed, off-hours basis. Often, a crisis
jor upheaval in a child’s life, such as the loss of intervention specialist arranges for additional
a family member, can pose an acute threat to the emergency services, such as emergency caretak-
child’s mental health (388). Unlike several other ing for children to relieve some of the stress on
approaches, crisis intervention programs often in- an acutely disturbed parent.
tervene within children’s homes. Crisis interven-
Crisis intervention with children necessarily in-
tion is sometimes used as an alternative to hospi- volves the family; a tenet of the approach is that
talization for acute mental health problems. The
parents must be helped to develop coping skills
major goal is to help children and families return
necessary to manage in a crisis. The Homebuilders
to their previous level of functioning. Crisis in-
program exemplifies a crisis intervention model
tervention is usually completed within 6 weeks that works within children’s homes (350). Home-
and often within days (388), but it is often fol-
builders staff begin by uncovering the nature of
lowed by other outpatient treatment. the family crisis from all viewpoints, defusing ten-
Crisis intervention techniques emphasize prac- sion by letting family members vent their frus-
tical steps to defuse threatening situations and to trations and concern, and helping the family de-
provide family members with coping resources. velop alternative behavioral, cognitive, and
Specific contracts and emergency plans, for ex- emotional means to deal with the critical prob-
ample, are made with family members to lower lem. After the initial intervention(s), contact is
the level of tension. Suicide prevention is a focus maintained until clients are referred to and then
of intervention when necessary, and crisis inter- receive continuing services.
neuroleptics —also known as antipsychotic medi- for learning, and for carrying on daily life–all
cation—will be used. functions that clinicians aim to increase in severely
disabled children. Major tranquilizers can also re-
Neuroleptics may significantly reduce hyper-
duce a child’s motivation. Furthermore, the side
activity, aggressiveness, and agitation in severely
effects of tranquilizers can be very uncomforta-
impaired children (89). It should be noted, how-
ever, that neuroleptic medication is used not as ble and sometimes are a source of impairment.
Possible side effects include a continuously dry
a treatment to reverse severe disorders, but rather
as a means of reducing troublesome symptoms mouth, tremors, and cardiovascular changes.
With prolonged use, antipsychotic medications
associated with a disorder. Trifluoperazine
can lead to tardive dyskinesia —an often irrevers-
(Stelazine”) and haloperidol (Haldol®) appear to
ible movement disorder characterized by uncon-
be the two neuroleptics of choice (89) for such ap-
trollable repetitive movements of the tongue, lips,
plications, partly because they have fewer seda-
head, or neck.
tive effects than other neuroleptics. Recent re-
search (89) has demonstrated that haloperidol
reduces stereotyped movements, hyperactivity,
deficits in attention, and difficult behaviors in au- Antidepressants
tistic children, and can also be associated with an
increase in intellectual functioning. Neuroleptics Antidepressant treatment of childhood depres-
sion began in the 1960s (333), but it has not re-
have little or no direct effect on symptoms such
ceived widespread clinical application. With re-
as difficulties in relating to others, although they
cent increased interest in childhood depression,
may have an indirect effect on social functioning
by reducing symptoms like agitation. Typically, research is being conducted on the use of anti-
depressant medication, especially the tricyclic
neuroleptics are used as adjuncts to intensive psy-
chotherapy and other treatments (89). antidepressants widely used with adults. Drugs
have also been used to treat some specific child-
One concern about most neuroleptics is their hood anxiety disorders, although most of these
sedative effect. Neuroleptics sometimes affect cog- disorders are considered best treated psychologi-
nitive functions necessary for relating to others, cally rather than with drugs (121).
CONCLUSION
The mental health treatments outlined in this iation in treatment practice based on differing
chapter are based on diverse theories of children’s theoretical orientation. Analyzing treatments in
actions, reactions, and mental disturbances. Some terms of their psychodynamic, behavioral, and
mental health treatments used for children have cognitive assumptions is useful in understanding
been developed in response to particular child- how treatment decisions are made, although in
hood problems, but the majority are adaptations practice, a number of approaches may be used.
of treatments used for adults and based on gen- The effectiveness of mental health treatments used
eral theories of behavior. There is substantial var- with children is considered in chapter 8.
Chapter 6
Treatment Settings
Chapter 6
Treatment Settings
INTRODUCTION
The settings in which mental health treatment intensive settings may be chosen, for example,
for children is provided greatly influence the in- when children’s support systems are insufficient,
tensity of the treatment, the resources required, their home environment is deleterious, or other
and the treatment experience of children and their treatment resources are lacking (457). More in-
families. This chapter describes treatment settings tensive settings are also chosen when children may
in the mental health service system: hospitals, resi- be dangerous to themselves or others.
dential treatment centers (RTCs), day treatment
Intensive menial health treatment settings tend
programs, and outpatient settings such as com-
to be restrictive, and this fact necessitates special
munity mental health centers (CMHCs). Mental
considerations. Federal legislation such as the Edu-
health services in non-mental-health settings, pre-
cation for All Handicapped Children Act (Public
ventive services, and the integration of mental
Law 94-142) and judicial decisions such as Willie
health and other services are described in chap-
M. v. Hunt (see 50) have codified the principle
ter 7.
that children should receive appropriate services
Following Wilson and Lyman (709), mental in the “least restrictive setting” possible. No pre-
health settings can be conceptualized as forming cise legal meaning of least restrictive setting is
a continuum from most to least intensive. At one available (353), however, and available research
end of the continuum is inpatient hospital treat- does not allow a systematic evaluation of whether
ment, which involves 24-hour-a-day care, often the principle is applied appropriately. Conse-
for extended periods of time. At the other end of quently, which mental health treatment setting
the continuum is outpatient treatment which may offers appropriate care while still being least re-
involve only 1 or 2 hours a week, or less, some- strictive is a matter of clinical judgment influenced
times for only a few weeks. by the availability of resources. When optimal or
even adequate treatment settings are not available
More intensive mental health treatment settings
or accessible, the quality of care or the principle
are designed to treat children with more severe of providing care in the least restrictive setting,
problems. Such problems can be either acute, such
or both, have to be compromised. Details on
as suicidal behavior, or chronic, such as infan-
trends in the availability and utilization of men-
tile autism. In many cases, factors other than the
tal health treatment facilities are provided in chap-
severity of a child’s mental problem may indicate
ter 2.
the selection of a relatively intensive setting. More
PSYCHIATRIC HOSPITALIZATION
The most intensive and restrictive type of chil- ages (both State and county mental hospitals and
dren’s mental health treatment is psychiatric hos- private psychiatric hospitals), separate children’s
pitalization. Children’s psychiatric hospitalization hospitals or units, chemical dependency units,
takes place in various types of facilities—in free- and, most frequently, in psychiatric units of gen-
standing psychiatric hospitals for people of all eral hospitals.
79
80
Long-term children’s psychiatric hospital units, pitals have established separate psychiatric units
treating children 2 years or longer, are the least with treatment programs resembling those of free-
common. Children in long-term facilities are con- standing psychiatric hospitals (60). Psychiatric
sidered chronically disturbed with limited capacity units in general hospitals tend more often than
for independence and for maintaining relation- psychiatric hospitals to focus on short-term, acute
ships. Many of these children cannot be placed care, lasting from a few days to a few weeks or
in the community. months. In comparison with psychiatric hospitals,
psychiatric units of general hospitals also tend to
Chemical Dependency Units have a somewhat greater proportion of psychia-
tric patients who have a concomitant medical
Chemical dependency units can be either pub- problem or a psychophysiological disorder, since
lic or private, and can be either freestanding or the general hospital can provide both psychiatric
part of a general hospital. Such units specialize and medical care (60).
in treating substance abuse and dependence, rang-
ing from alcoholism and alcohol abuse to depen- Under some conditions, general hospitals admit
dence on use of illicit drugs such as heroin and psychiatric patients to medical wards. In such
cocaine. Substance abuse is a DSM-III disorder cases, one or two psychiatric patients may be
(see ch. 3), and many private insurers offer re- placed in rooms with medical patients. It is diffi-
imbursement for its treatment in psychiatric in- cult to determine the frequency of such treatment.
patient units. Treatment in some units is especially Critics argue that this form of hospitalization al-
adapted to the problems of adolescents and/or the lows assessment of psychiatric problems at best
types of substances abused by adolescents (709). (161) and is probably appropriate only in crisis
situations when other resources are not available.
General Hospitals With Inpatient
Psychiatric Services
General hospitals offer a substantial amount of
children’s mental health care. Many general hos-
cope with a regular classroom. Day treatment pro- tensive daily environment in which milieu ther-
grams provide extended treatment, available for apy can be done. Model day treatment programs
a number of hours daily, and can provide a range also include mental health components involving
of therapies that are not available at clinics. Some individual therapy, group therapies, family ther-
programs provide treatment to children before or apy, vocational counseling, and other vocational
after regular school hours, while other programs programs. They also provide other educational
provide education to children whose troubles pre- and recreational activities designed to further the
vent them from attending school. development of adolescents in a less treatment-
oriented fashion.
Some day treatment programs are designed ac-
cording to an educational model. These programs, Partial hospitalization is the use of a psychiatric
sometimes called psychoeducational day treat- hospital setting for less than 24-hour-a-day care
ment programs, operate more like schools than for given patients. For example, some children
other day treatment centers but incorporate a might need the treatment offered in the hospital
therapeutic component within the educational setting during the day but be able to return home
program. Their curriculums in many cases are in the evening. The treatment program for those
adapted from regular school curriculums, but in- children would be identical to the daytime treat-
clude special approaches to address the almost ment program of the inpatient children. In effect,
universal learning problems of mentally disor- this is day treatment applied in a psychiatric hos-
dered children. Like psychiatric hospitals and pital setting.
RTCs, day treatment centers offer the kind of ex-
OUTPATIENT SETTINGS
Outpatient treatment settings are by far the CMHCs use virtually all treatment modalities, in-
most prevalent settings used for children’s men- cluding psychodynamic psychotherapy, behavior
tal health treatment. CMHC outpatient depart- therapy, cognitive therapy, psychosocial interven-
ments, private outpatient clinics, and private men- tions, parent guidance, family therapy, and psy-
tal health practices are described below. Most of chopharmacological (drug) therapy. For the ma-
the treatment modalities discussed in chapter 5, jority of children, more than one modality of
from individual psychotherapy to group and fam- treatment is provided simultaneously (363), usu-
ily therapy, can be provided in these settings. ally including one or more interventions directly
with the child plus work with important adults
CMHC Outpatient Departments in the child’s life.
Initially established by the Federal Government Despite the intentions of the 1963 law, a net-
through the Community Mental Health Centers work of CMHCs never developed as a nationwide
Act of 1963, CMHCs were intended to provide mental health care system. Furthermore, accord-
comprehensive mental health services to all the ing to some observers (619), the network that did
residents of a catchment area regardless of their develop slighted the needs of children for several
ability to pay. The mental health services pro- years. Few CMHCs included children’s services
vided by CMHCs include treatment, prevention, when they were established, and in those that did
and consultation and education services, but out- establish child services, the resources available for
patient treatment is by far the most common. such services were often too low. The number of
staff devoted to children was small, and the level
CMHC care is provided to adults (619), but of training of the staff in child mental health was
most centers also provide some children’s serv- poor (9,11, 55,514). The situation improved some-
ices. Some CMHCs have incorporated previously what in the 1970s; according to a 1981 survey
established child guidance clinics, while others from the National Institute of Mental Health
have established new child treatment services. (NIMH), approximately 17 percent of the resources
85
of CMHCs were devoted to children’s mental Some clinics were established as child guidance
health care (665). clinics prior to the development of CMHCs and
have not been absorbed into CMHCs.
In 1981, direct Federal support for CMHCs was
withdrawn. Federal funds began to be provided
to CMHCs indirectly via the States through the Private Mental Health Practices
block grant mechanism (see ch. 10). Many mental health professionals provide out-
patient child mental health care in private prac-
Private Outpatient Clinics tice. The number of children seen by private prac-
titioners is not known, but it is believed to be
In addition to CMHCs, many private clinics
lower than the need. Private mental health care
provide outpatient treatment to mentally disturbed
practitioners include psychiatrists, psychologists,
children. The services that private clinics provide
clinical social workers, psychiatric nurses, and
resemble CMHC outpatient services in many
mental health counselors who have met State
ways, although private clinics vary more in size,
licensing standards. In form and method, private
scope, and treatment philosophy. Unlike most
practice resembles outpatient treatment in orga-
CMHCs, private clinics do not have the respon- nizational settings. However, private practitioners
sibility to provide for all the mental health treat-
generally charge fees affordable only by families
ment needs of a given community. Many closely
with middle incomes and above, and then often
adhere to the philosophy of the individuals ad-
only with help from insurance. With widespread
ministering the clinic. Some private clinics are
availability of health insurance, some private care
nonprofit and have sliding scales for payment
is accessible to most families, but insurance pol-
(e.g., Family Service Association centers), while
icies vary greatly in their coverage of outpatient
others provide services only at standard fees.
mental health care (374).
CONCLUSION
Mental health treatment settings that provide One factor contributing to the need for a diver-
services to children are diverse, ranging from hos- sity of mental health treatment settings is the
pital and RTC settings to day treatment centers desirability of providing appropriately intensive
to outpatient settings. They can be arranged along mental health treatment in the least restrictive set-
a rough continuum according to their intensive- ting possible. It is easier to strike a balance be-
ness. Even within a type of setting, settings vary tween intensiveness and restrictiveness when treat-
in their form of administration (public versus pri- ment settings are available that cover the range
vate), cost, type of children served, duration of of these dimensions. For children who need more
treatment, and philosophy of treatment. intensive treatment than can be provided in weekly
office visits but who can still live at home, the
The need for availability of a diversity of set-
most appropriate setting—if it is available—may
tings to treat the range of children’s mental health
be a day treatment program.
problems has been repeatedly emphasized. For ex-
ample, the President’s Commission on Mental Another factor that underlies the need for mul-
Health (514) recommended both an increase in the tiple mental health treatment settings is the fact
number of hospital and RTC facilities for seriously that many children, especially those who are se-
disturbed children and an expansion in the avail- verely disturbed, require either concurrent or con-
ability of community-based mental health care of secutive treatment from more than one setting.
all types (e.g., hospital, RTC, outpatient) for all For example, some children who go to an out-
children. patient clinic once a week for psychotherapy to
—
86
address specific emotional issues might also ben- is much more limited. The overall number of men-
efit from participation in day treatment to learn tal health treatment facilities is fairly small. Fur-
daily living skills. Or children discharged from thermore, access to some settings is limited by
a psychiatric hospital may live, initially, in a less cost. Many families cannot afford the costs of
intensive RTC and later receive psychotherapy as treatment in private psychiatric hospitals or RTCs
an outpatient in the community. or through private practices. The number of treat-
ment openings for children in public psychiatric
The variety of mental health treatment settings
hospitals, RTCs, and day treatment centers is
described in this chapter does not imply that all
severely limited, and the development of child
children have access to the full range of possible
outpatient treatment in CMHCs has not been
settings. Although many different models have
comprehensive.
been developed, the number of settings available
Chapter 7
Treatment in Non-Mental-Health
Systems, Prevention, and the
Integration of Mental Health
and Other Services
Chapter 7
INTRODUCTION
Mental health treatment, it is widely agreed, tice systems, is essential for developing public pol-
should take place in the context of a child’s life. icy. The interrelationship between mental health
Children are uniquely dependent on their families, and other service systems provides opportunities
schools, and communities, and are continually af- to identify children in difficulty, to provide in-
fected by these influences. Disturbed children are terventions at the site where mental health prob-
more likely than other children to fail in school, lems are identified, and to offer programs to pre-
to manifest a variety of medical problems, and vent mental health problems. Currently, however,
to be involved with the criminal justice system. there is relatively little integration among men-
As a result, children’s mental health problems are tal health and other systems. This chapter con-
often first identified in settings such as schools, siders needs for and provision of mental health
physicians’ offices, and juvenile courts. These set- services across various non-mental-health systems.
tings, along with others, provide important men- It describes a number of programs and projects
tal health treatment sources. in the educational system, the health care system,
the child welfare system, and the juvenile justice
Understanding how treatment services are of-
system, along with the development of integrated
fered in non-mental-health contexts, such as the
service systems.
educational, health care, welfare, and juvenile jus-
89
59-964 0 - 87 - 4
90
Treatment in the General Prevention efforts have been used to help physi-
Health Care System cally ill pediatric patients manage their illnesses
without undue mental health consequences (323).
Increasing evidence suggests that many chil- Systematic mental health interventions in physi-
dren’s mental health problems are seen by physi- cal health care settings remain exceptional, how-
cians in the course of delivering primary health ever. Only in settings such as health maintenance
care; but surveys differ on the extent to which organizations might mental health referrals and
office-based primary care physicians see and rec- interventions be commonplace.
ognize mental health problems in children. In two
Evidence for the susceptibility of chronically ill
recent surveys by Goldberg, et al., pediatricians
and physically disabled children to mental health
reported that approximatelys percent of the chil-
problems was noted in chapter 4. The prevalence
dren they saw had a mental health problem (239,
of mental health problems seen by medical spe-
240). Schurman and colleagues, using data from
cialists in medical inpatient units is probably high.
the National Ambulatory Medical Care Survey,
found that about 11 percent of office visits to pedi-
atricians and about 12 percent to family practi- Treatment in the Child
tioners were by children with psychiatric disorders Welfare System
(588).
The child welfare system is involved with a sub-
In Goldberg, et al.’s investigation, the majority
stantial number of children who have serious prob-
of troubled children visited their physician’s of-
fice because of a physical complaint, and their lems. Child welfare systems intervene in cases of
parental abuse and neglect and in other situations
mental health problems were uncovered during
in which parental care is lacking (e. g., during a
the course of visits for other problems. Pediatri-
parent’s illness).
cians often treated the mental health problems
themselves, providing supportive counseling, prac-
Treatment Needs for Children in Foster Care
tical advice or, less frequently, medication (239).
Approximately 50 percent of the pediatricians in A major form of intervention by child welfare
Goldberg, et al.’s samples (239,240) referred trou- authorities is foster placement. The child welfare
bled children to a mental health professional, system places an estimated 120,000 children per
year in some form of foster care, usually within
Some observers are concerned about the level
a home or institutional setting (48). There has been
of mental health knowledge of many primary care
little research to ascertain what portion of this
physicians (239,240). Furthermore, although pri-
mary care physicians and mental health profes- population enters foster placement with mental
health needs.
sionals may see child patients concurrently, their
efforts are not always coordinated. Children generally enter the foster care system
from family situations with problems including
Two options open to many primary health care
child maltreatment, parental psychopathology,
providers are obtaining mental health training
and parental substance abuse—all of which are
(e.g., 85) and consulting with mental health spe-
risk factors for mental health problems (see ch.
cialists (543). The logic behind increasing the men-
4). Only a small percentage of children have been
tal health skills of primary care providers is that
placed in foster care because of their own behavior
they are likely to be the first professionals con-
or disability (108). When placed in foster care,
sulted regarding developmental and psychologi-
children suffer the trauma of separation from their
cal problems of young children (504).
original families (205). Many children who would
In addition to mental health consultation and be diagnosed as having psychological problems
mental health training for primary care providers, by mental health professionals are not recognized
early intervention programs have been developed as having such problems by foster care placement
in primary medical care settings for children suf- agencies and staff (205). For the most part, these
fering from a number of childhood problems (536). children are not placed in environments capable
92
of providing appropriate care for psychological vary in their experience with mental health treat-
problems (205). ment, undergo training prior to therapeutic fos-
ter care placement. Professionals involved with
Frank’s study of treatment needs for children
foster care programs supervise and support the
in foster care found that children involved in long-
foster parents, arrange for other care needs of the
term foster care typically had severe psychoso-
disturbed children in foster care, and provide
cial problems (205), both at the point of entry into
emergency professional care for foster children
foster care and 5 years later. Children who were
when needed.
rated at a level of medium to low functioning at
entry into foster care slipped significantly to the The range of the intensiveness of treatment
lower level after the 5-year period. Frank found within therapeutic foster care programs is substan-
that 85 percent (composite percentage) of the sam- tial, and the more intensive levels require more
ple of children in long-term foster care received treatment-specific training, greater involvement
inadequate treatment (apart from the quality of of foster parents, and greater availability of ad-
child care). junct services. In many States, different levels of
therapeutic foster care are available to cover a
Several State studies suggest that the prevalence
range of impairment in children.
and severity of emotional disturbance is associ-
ated with the number of placements a child has Children in therapeutic foster care usually re-
experienced (108). Long-term and repetitive fos- ceive mental health treatment beyond therapeu-
ter care placement, therefore, are likely to repre- tic foster care. The nature of this other treatment
sent both sources and symptoms of problems for depends on the particular child’s needs and the
children with mental health needs. Yet child wel- availability of local resources. Thus, for exam-
fare agencies often have neither the money nor ple, one child in therapeutic foster care may re-
the experienced staff to provide mental health ceive outpatient psychotherapy, while another
services, and coordination between welfare and may attend a day treatment program.
mental health agencies is rare (358).
Alternatives to the usual pattern of foster place- Respite Care
ments are discussed below. These alternatives are Respite care, a service related to foster care, in-
therapeutic foster care, respite care, and care in volves placing children in homes with caring adults
group homes. Efforts to prevent the need for fos- as an emergency intervention. Respite care pro-
ter placement by enhancing parents’ abilities to vides children in need with a temporary protected
care for their children are discussed later in this environment. Such care may be necessary because
chapter. of a crisis such as the emotional breakdown of
parents or escalating conflict between children and
Therapeutic Foster Care other family members. Shelter from a crisis may
Mentally disturbed children who might other- be provided for several days or up to several
wise be referred to psychiatric hospitals or resi- weeks, until the child can return home or be placed
dential treatment centers (RTCs) are sometimes in another appropriate setting.
placed in alternative family settings (83). Al-
though separating a child from his or her parents Group Home Care
is a significant intervention, therapeutic foster care
is considered less intensive than treatment in a Group home care is similar to therapeutic fos-
ter care, except that a number of children (usu-
psychiatric hospital or RTC.
ally 10 to 12) are placed in a home at one time
Well-run therapeutic foster care programs care- (709). Group homes are typically administered by
fully select foster parents to take disturbed chil- social service agencies, which employ staff to live
dren into their homes for a finite period of time. in the home or work there in shifts. Group homes
These foster parents are generally expected to pro- usually have a somewhat more structured treat-
vide some therapeutic work and are typically paid ment program than therapeutic foster homes.
more than other foster parents. Such parents, who Placement in group homes can last anywhere from
93
1 month to several years, and commonly includes involved are rare (395). Mental health agencies
concurrent treatment in a mental health setting. are often reluctant or unable to take responsibil-
ity for intervention with juvenile offenders be-
Treatment in the Juvenile cause of the danger and disruptiveness these chil-
Justice System dren and adolescents present, and the juvenile
justice system is often unable to treat the mental
The juvenile justice system is a potentially ma- health problems of these youths. Many mentally
jor site for provision of mental health care to dis- disordered children have contact with both the
turbed children and adolescents. By DSM-III cri- mental health and juvenile justice systems, often
teria (see ch. 3), juvenile offenders with a history moving back and forth between the systems. Fre-
of behaviors such as fighting, stealing, lying, and quently, children who are sent from one system
running away from home would be diagnosed as to the other are those for whom original inter-
having a conduct disorder. Often, however, the ventions have failed or been exhausted (395,723).
mental disorders of juvenile offenders are not for- The frequent and rapid transferring of these “turn-
mally diagnosed, and the number of juveniles who stile” children (276) sometimes causes problems
have mental disorders in addition to criminal or itself.
status offenses (offenses that are criminal only be-
cause the offender is a juvenile, e.g., truancy, run- There are several models of coordinated men-
tal health and juvenile justice interventions (601).
ning away from home) is not actually known.
A number of special mental health programs have
The proportion of children and adolescents in organizational connections to State and county
the juvenile justice system who are regarded as governments and provide comprehensive services
mentally disordered or as having mental health to disturbed juvenile offenders (49,304,395,723).
problems obviously depends on what criteria are In some instances, States contract with private
used to define mental disorders and mental health mental health agencies to provide services to chil-
problems (601,723). Whether a child’s problems dren who come in contact with the juvenile jus-
are dealt with in the mental health system or in tice system in specific geographic areas (395).
the juvenile justice system often appears to de- Other programs provide mental health consulta-
pend less on characteristics of the child than on tion directly to juvenile justice facilities (395,601).
how a particular behavior is defined (i.e., as a Case management (discussed below) has been used
symptom or as a violation of the law) and on the to resolve some of the problems of trying to serve
system within a State or region for assigning serv- disturbed children who are wards of the juvenile
ice responsibility. justice system, but the use of case management
in the juvenile justice system is infrequent (49).
Coordinated interventions in which both the
mental health and the juvenile justice system are
‘ -
programs train parents in different techniques for
stimulating and giving attention to the infant.
Other similar primary prevention interventions
have been developed for particular groups (e.g.,
poor women) and teenage mothers (187,525).
Primary prevention methods have also been de-
vised for the parents whose children are not
known to be at high risk. Such methods include
training manuals to help instruct parents in child-
management techniques (e.g., 40,429,497), educa-
tional videotapes for inexperienced mothers (78),
and parent education groups such as Parent Ef-
fectiveness Training (242,243). Although popu-
lar, some of these methods have been criticized
for not meeting the needs of low-income families
(110).
In school settings, primary prevention efforts
include alcohol education programs in elementary
schools (380) and mental health consultation serv-
ices provided to teachers (see 408). Such efforts
also include programs aimed at decreasing spe-
cific behaviors that are thought to predispose chil-
dren to later problems in school adjustment. For
Photo credit: March of Dimes
example, one program employed intensive train-
ing in interpersonal, cognitive problem-solving for Physically disabled children may be susceptible to
mental health problems.
kindergarten children in the hopes of decreasing
inhibited and impulsive behavior and enhancing
social problem-solving skills (621). principal source of mental health and adaptation
(693).
Head Start and similar preschool child devel-
opment programs are examples of an ongoing ef- The idea of supporting families is not new, but
fort at primary prevention. Head Start was estab- the growth of a family support movement as a
lished as a national program in 1965 to provide distinct and important aspect of children’s men-
enriched early childhood education for low-in- tal health services is a fairly recent phenomenon
come children. Head Start also provides a range (326,693). The family support movement can be
of other services, including health, nutrition, and said to be integrative in that it focuses on the needs
social services. The program emphasizes parent and linkages between children, families, commu-
and community involvement in the development nities, and broader social systems. According to
and operation of the program, a feature that has Weiss (693) and others (594), the family support
proved effective (see ch. 9). However, Head Start movement evolved in part from early interven-
has been criticized for devoting few resources and tion and prevention programs such as Head Start,
little attention to mental health services (308). The finding that the most effective of these pro-
grams were those that actively involved parents
Somewhat different from other primary preven-
—and the related idea that children at risk need
tion programs are family support programs. In
an intervention approach that encompasses more
recent years, the importance of families for chil-
than educational enrichment—pointed to the fam-
dren’s mental health has been widely acknowl-
ily as a necessary focus of intervention.
edged (290). Although families are often viewed
as the primary contributors to mental illness in More recently, the family support movement
children, they are increasingly recognized as a has gained impetus from research underscoring
95
the importance of quality parent-child interactions Two examples of family support programs are
in promoting children’s social, emotional, and the Yale Child Welfare Research Program (594)
cognitive competence (e. g., 623). The develop- and the Family Support Center Program (see 202).
ment of family support programs has also been The Yale Child Welfare Research Program is dif-
supported by recent trends in the delivery of so- ferent from other programs in that it is univer-
cial services. Such trends include increasing em- sity based and includes outcome research as one
phasis on the promotion of health and the pre- of its major components. The Yale program is
vention of illness, the use of self-help and mutual typical of family support interventions, however,
aid groups, and access and coordination of serv- in that it employs a multidisciplinary teamwork
ices through information and referral systems approach focused on the social and emotional ad-
(334,693). justment of all family members. The goal of the
Yale program’s interventions is to enhance par-
Finally, the family support movement is a re-
ent’s ability to perform their caregiving roles and
sponse to the stresses faced by contemporary
to solve their own life problems. Interventions are
American families. Such stresses include demo-
aimed at impoverished families considered at risk
graphic trends (e.g., increases in the numbers of
by virtue of the chronic stresses and limited re-
single-parent and dual-career households) as well
sources associated with reduced socioeconomic
as broad social forces such as unemployment, eco-
status. Families receive home visits, pediatric care,
nomic uncertainty, and increased mobility and
daycare, developmental examinations, and psy-
isolation of families.
chological services as needed, and services are pro-
The family support movement represents a di- vided over a 2*/z-year period for each family. In
verse array of services and programs that share a recent 10-year followup of the original program
underlying assumptions and conceptual emphases participants and an equivalent group of control
more than a particular format or structure. Fam- families, the Yale program’s interventions were
ily support services range from a center-based pro- found to have both positive and long-lasting ef-
gram resembling traditional mental health serv- fects (see ch. 9).
ice to practices such as corporate flexitime and
The Family Support Center Program is designed
daycare. to reduce the incidence of child maltreatment in
Family support programs are characterized by at-risk families by providing parents with support
their focus on family strengths rather than defi- and guidance in a series of steps that emphasize
cits; their recognition that parents need and want progressively greater peer support and progres-
information and support in carrying out their sively less staff involvement. As parents advance
roles; an attempt to empower families and foster in the program, they move from receiving direct
self-reliance; and their emphasis on the relation- staff support and consultation, to attending a
ship not only between children and parents, but “family school” with their children, to participat-
also between families and the sources of support ing in a neighborhood support group. An evalu-
in their communities. ation of a Family Support Center Program (25,
202) is discussed in chapter 9.
According to Weiss (693), the dimensions on
which family support programs vary include the
type of family served (e.g., new families, single- Secondary Prevention
parent families, families with special needs); serv-
ice delivery mechanisms (e.g., newsletters, home Secondary prevention efforts for children who
visits, parent groups); program goals (e.g., child have begun to show signs of behavioral difficul-
abuse prevention, home and school linkages, par- ties have been implemented in both home and
ent and child education); program settings (e.g., school settings. Some secondary prevention ef-
mental health centers, schools, churches, drop- forts are aimed at training parents to deal directly
in centers); staff composition (e.g., mental health with their children’s problems. In one program
and health professionals, educators, volunteers); (317,318), parents were taught to use behavioral
and funding sources (private and public). methods to modify a range of behaviors in their
96
preschool children at home (e.g., reducing aggres- more serious mental health problems later in life
sion and tantrums, and increasing eye contact, im- (126,128). PMHP involves the delivery of individ-
itation, and vocalization). This program also in- ually based, remedial efforts to grade-school chil-
volved parents in health-center-based activities in dren who have been identified as having behavioral
which they observed and were instructed in teach- and academic difficulties (e.g., acting-out, with-
ing activities aimed at enhancing their children’s drawal, and learning problems). Teacher aides
prosocial behavior and language skills. meet with children on a regular basis during the
One of the most extensively implemented and school year, and individual goals are modified
well-researched school-based secondary preven- according to the child’s changing needs. Addition-
ally, mental health professionals serve as consul-
tion programs is the Primary Mental Health Proj-
tants to teachers and other school personnel. The
ect (PMHP) of Cowen, et al. (128). This program
PMHP model has been widely disseminated, and
was developed to remediate children’s problems
in the primary grades, a goal based on observa- programs have operated in over 200 schools
tions that early school problems frequently per- throughout the country (125).
sist or increase over time and that they lead to
push for treatment within systems that are some- At present, the integration of mental health and
times overwhelmed, disinclined to treat difficult other children’s services is probably more of an
children, and entangled in bureaucratic difficul- ideal than a reality. In a review of State adminis-
ties (359). trative structures for provision of coordinated
services, Isaacs (313) concluded that despite a
One of the most sophisticated models of case number of models, implementation of coordina-
management has been developed by North Caro- tion plans often depends on the efforts of indi-
lina. In this model, case managers are responsi- vidual staff members, rather than on established
ble for seeing that all facets of a child’s evaluation systems and structures. In addition, Isaacs (313)
and treatment are carried out. They continually found that even in States attempting coordination
review the treatment plan and monitor its imple- between the mental health system and other agen-
mentation; one of their responsibilities is seeing cies, State education and health departments,
to it that the disturbed child receives treatment which have the most frequent contact with chil-
in the least restrictive setting possible (5o). In some dren, were almost always excluded from coordi-
instances, case managers locate and arrange for nation programs. The Federal Child and Adoles-
services outside the mental health system, such cent Service System Program, described in chapter
as homemaking systems for beleaguered mothers, 10 of this background paper, was established in
that are nonetheless crucial to the stability of a 1984 to help State mental health agencies coordi-
disturbed child’s family. In addition, they arrange nate care for one segment of the population of
for the adult service systems to continue care for children with mental health problems—those who
children in need who are about to turn 18 (50). are severely emotionally disturbed.
CONCLUSION
The educational system, the general health care dalities, providers, settings, and systems although
system, the child welfare system, and the juve- in many cases there may be few services to inte-
nile justice system present important opportuni- grate. The variety of mental health programs also
ties to identify and help troubled children. Yet evi- suggests that evaluation of any one intervention
dence suggests that the mental health problems program is likely to yield an incomplete picture
of children involved with these systems are often of the nature and effectiveness of children’s men-
poorly treated or not treated at all (358,595,645). tal health care. Variables such as coordination of
programs should be taken into account in the
The variety of mental health programs poten-
assessment of that care.
tially available to children would appear to re-
quire that such services be integrated across mo-
Part IV: Effectiveness of Services
Chapter 8
Effectiveness of Therapies
Chapter 8
Effectiveness of Therapies
INTRODUCTION
Although the scientific evaluation literature on others not; some including studies of group ther-
child treatment is inadequate to answer many pol- apy and others limited to studies of individual
icy questions, an increasing amount of research therapy. By including studies of a variety of mo-
on the effectiveness of children’s mental health dalities, these reviews analyze the question of
treatment is available. The fundamental conclu- whether therapy in general can be effective with
sion that professional mental health treatment troubled children. This question is important be-
leads to significantly better outcomes than no cause, currently, it is therapy in general that is
treatment across age groups is supported by a sub- reimbursed, not particular therapies.
stantial research base on the effectiveness of men-
tal health treatment in general (38,484,616,647). The second part of this chapter examines re-
Children’s mental health treatments cannot be search on the effectiveness of specific therapies de-
directly equated with treatments for adults (8), scribed in chapter 5: behavioral therapy, cogni-
but general research tests some of the fundamen- tive therapy, group therapy, family therapy, crisis
tal assumptions of treatment. Furthermore, there intervention, and psychopharmacological (drug)
is an extensive theoretical rationale concerning therapy.
treatment for children’s mental disorders (see ch.
5). In many cases, such theory and data are sup- It should probably be noted that for the most
portive of child treatment interventions, even in part the scientific literature contains evaluations
the absence of applied research. of the effectiveness of therapies for mental dis-
orders (see ch. 3) rather than subclinical mental
To assess current scientific understanding of health problems (see ch. 4); consequently, it is the
what is known about the effectiveness of mental effectiveness of therapies for diagnosable disorders
health intervention for children, this chapter first which is reviewed in this chapter. Some services
discusses reviews of the research that consider the for subclinical mental health problems come under
effectiveness of psychotherapies for children in the rubric of prevention and mental health inter-
general. Available reviews of psychotherapy out- ventions in non-mental-health settings such as
come research differ in the range of therapies they schools, homes, and the juvenile justice system;
include within their purview-some including the effectiveness of such services is reviewed in
studies of family therapies, for example, and chapter 9.
103
104
The Smith, et al., 1980 meta-analysis found sig- ety than on problems involving self-esteem, so-
nificantly better outcomes for patients who were cial adjustment, or global adjustment. The re-
treated with psychotherapy than for controls. The search was insufficient to allow any conclusions
investigators concluded that the average person matching specific treatment modalities to specific
who receives therapy is better off at the end of problems or diagnoses.
it than 80 percent of the persons who do not. In general, Casey and Berman concluded that
Smith, et al., did not analyze the effectiveness . . . clinicians and researchers need not be hesi-
of child psychotherapy separately from adult psy- tant about defending the merits of psychotherapy
chotherapy. In a correlational analysis, however, for children” (104). The conclusions of Casey and
they found that patients’ age had little effect on Berman must be reviewed somewhat cautiously
treatment outcome. This finding must be viewed however, since only 24 percent of the 75 studies
cautiously. The treatment effects of the approxi- they reviewed clearly used children who were
mately so child and adolescent studies were not seeking treatment as subjects; most of the rest used
analyzed separately from the original 500 studies, “school children not seeking treatment” or “com-
and these so studies represent a subsample much munity volunteers for special projects” who were
smaller than the larger group. in mental distress but who had not sought treat-
ment. Thus, it is not clear how representative of
Casey and Berman (1985) actual treatment situations their results are.
Casey and Berman (104) reviewed 75 studies
of child psychotherapy outcome dating from 1952 Methodological Issues
to 1983. They restricted their sample to studies
that used a control group of untreated children Clinicians and researchers have expressed two
from the same general population as the treated major concerns about analyses that aggregate re-
children. The sample excluded studies examining sults across different types of treatment as the re-
treatment of adolescents. Behavioral therapy was views discussed above have done. One concern
used in 56 percent of the studies Casey and Ber- is that the research base has too many deficien-
man examined, cognitive-behavioral therapy in cies to allow generalizations about the effective-
21 percent, and nonbehavioral therapy (psycho- ness of child psychotherapy. Several discussions
dynamic, client-centered, mixed, and unclassifi- of the effectiveness of child psychotherapy from
able) in 48 percent. (Some of the studies exam- Levitt (382) to Kazdin (336) detail the lack of
ined more than one form of treatment, so these methodologically sound research on the efficacy
figures add to more than 100 percent. ) of child psychotherapy. Among the deficiencies
mentioned are the absence or inadequacy of con-
Using meta-analytic techniques similar to those
trol groups; inadequate or misguided measure-
used by Smith, et al. (616), Casey and Berman
ment of therapeutic, intervening, and outcome
(104) found that, overall, the average child receiv-
variables; lack of specific description of subjects,
ing psychotherapy was better off after treatment
treatment, and outcome; heterogeneity of sub-
than two-thirds of control children. This treat-
jects; and failure to assess the effect of psychother-
ment effect is comparable to the treatment effect
apy independently of other interventions (8,43,
found by Smith, et al. (616), and others review-
275,280,336,637).
ing adult psychotherapy. Casey and Berman found
little evidence either that one modality of treat- The other major concern is that an overall esti-
ment differed from any other in overall effective- mate of the effectiveness of child psychotherap y
ness, or that individual treatment differed from may have little relevance for clinical practice and
group treatment. Surprisingly, outcomes for chil- mental health policy, because so much seems to
dren whose parents were treated concurrently did depend on a number of mediating factors that in-
not differ from those of children whose parents fluence both children’s problems and treatments
were not treated. In general, treatment had a (see, e.g., 43,280,561,637). Thus, Levitt’s (382) re-
larger effect on problems related to fear and anxi- view found that the percentage of child patients
106
who improved at close of treatment ranged from place, and, for children’s therapy, the develop-
43 to 86 percent across studies, while Tramon- mental stage of the child.
tana’s (637) review found that the percentage im-
proved ranged from 35 to 100 percent. In Casey
and Berman’s (104) review, the standard devia- Summary
tion exceeded mean effect size, an indication of
In summary, research reviews which aggregate
great variability.
a variety of treatments and problems yield mixed
The paucity of good research reflects in part evidence for the effectiveness of child psychother-
the difficulties of introducing methodological rigor apy. Levitt (382,383) found little difference be-
to the study of child psychotherapy (8). Many de- tween treated and nontreated children, but there
sign features of treatment studies that would be are serious reservations about the analytic method
desirable on methodological grounds (e.g., ran- he used and the studies he reviewed. Smith, et al.
dom assignment to treatment or control groups) (616), found a positive effect of psychotherapy
are rejected as infeasible logistically or question- over all ages, with no significant correlation of
able ethically (647,719), although there is disagree- age with treatment effect; however, they did not
ment about the true extent of logistical and ethi- analyze studies of child and adolescent treatment
cal problems. Another obstacle to mental health separately from studies of adult treatment. Casey
research in general is the difficulty of specifying and Berman (104) found that treated children had
what the treatment is, since psychotherapy is often outcomes better than two-thirds of untreated chil-
tailored to the specific theoretical orientation of dren, but their conclusions must be tempered by
the therapist, the personalities of the therapist and the fact that the majority of studies they reviewed
patient, the conditions under which therapy takes did not use actual patients.
the activities of therapy itself (e.g., the number other evidence raises concerns about whether be-
of positive behaviors) were omitted. Behavioral havioral therapy’s effectiveness for ADD-H gener-
therapy was also one of the modalities represented alizes to settings beyond the treatment setting,
in the Smith, et al. (616), review. about the duration of the treatment effect (556),
and about the possible distracting effect of the re-
The effectiveness of specific behavioral treat-
wards used in behavior modification (81). Further-
ments for specific problems identified in chapter more, Abikoff and Gittleman (4) found that be-
3 is briefly reviewed below.
havioral treatment of children with ADD-H only
Developmental Disorders.—For children with reduced aggressiveness; it did not reduce atten-
pervasive developmental disorder (PDD), be- tion deficits, hyperactivity, or impulsivity (555).
havioral treatments have been developed both to Abikoff and Gittleman’s study suggests that fur-
increase appropriate behaviors and to decrease ther evaluation is needed to understand the clini-
maladaptive behaviors (554). Reviews of the re- cal usefulness of behavioral treatment of hyper-
search have supported the effectiveness of oper- activity .
ant conditioning for teaching PDD children The overall effectiveness of behavior modifi-
appropriate behaviors such as language and self-
cation for children with conduct disorders is dif-
care and academic skills although progress is typi- ficult to assess because of the great variation in
cally slow (252). One difficulty with behavioral conduct-disordered behaviors (e.g., from truancy
treatments is that they often do not generalize be- to assault), the great effect that a child’s devel-
yond the site of treatment. A child learning a skill
opmental level has on the types of conduct-dis-
in a day treatment program may not maintain the
ordered behaviors exhibited, and the great vari-
learning at home. Although methods of address-
ation in the severity of conduct disorders. Studies
ing this problem are being developed, further of treatment for younger, less severely disordered
work is needed.
children tends to focus on classroom interventions
Behavior Disorders.— Some studies of behavioral and parent training programs. A number of studies
approaches to the treatment of attention deficit have shown that reinforcement techniques based
disorder with hyperactivity (ADD-H) suggest that in the classroom and/or at home have reduced
behavioral approaches have had real success in disruptive behavior at school (27).
reducing off-task behavior, overactivity, and Parent training programs to reduce conduct-
other problem behaviors and in increasing atten- disordered behavior have helped reduce a child’s
tion and academic performance (14,29,473). Yet disruptive, difficult behaviors in many families
(468). In one effective parent training program
(497), parents learned behavioral strategies in a
parent training group and made behavioral assess-
ments and changes in their parenting behavior at
home, An average of 60-percent reduction in the
target disruptive behaviors was achieved.
EmotionaI Disorders.—Research on behavioral
treatment of emotional disorders has been largely
restricted to laboratory treatment of specific pho-
bias, a subset of anxiety disorders. One recent re-
view of the outcome research (252) found ample
evidence for the effectiveness of modeling proce-
dures but not for reciprocal inhibition or oper-
ant conditioning, for treating phobias. The effec-
Photo credit Charter Colonlal Institute Newport News, VA tiveness of modeling procedures with children
A variety of treatment modalities, including individual
diagnosed with other anxiety disorders has not
therapy, are used to treat children’s mental been demonstrated; nor has it been shown that
health problems. treatment has a lasting effect in a child’s normal
108
environment. Behavioral treatment of anxiety dis- to other treatments. Cognitive therapy and related
orders is promising, but further research is needed methods are important approaches in child treat-
before conclusions about its effectiveness can be ment, because they are closely tied to theory and
made with certainty. research in developmental psychology; therefore,
they deserve careful assessment (336,399,510,674).
Psychophysiological Disorders.—Evidence for
the effectiveness of behavioral treatments for psy- Kendall and Braswell’s (341) volume on cogni-
chophysiological disorders tends to be greater tive-behavioral therapy comprehensively reviews
when there is a behavioral component to the dis- much of the research on this method. The review
order. Evidence for the effectiveness of behavioral treats separately two different forms of cognitive-
treatment of Tourette’s syndrome (598) and other behavioral therapy: self-instructional training and
stereotyped movement disorders is limited. problem-solving. After reviewing nearly 30 studies,
Kendall and Braswell concluded that self-instruc-
Evidence for the effectiveness of various be-
tional training has been shown to be successful
havioral treatments for enuresis (lack of control
with several types of mental health problems.
over urination) is more encouraging. A number
Studies have shown a positive effect of treatment
of studies have been conducted with several of
on children’s fears, hyperactivity, disruptive be-
the behavioral treatments (147). Mowrer’s (450)
havior, and general self-control. Outcomes were
bell-and-pad treatment achieved complete success
most successful when self-instructional training
in 75 percent of studied cases, although 41 per-
was combined with operant conditioning, a form
cent relapsed when examined at followup (147).
of behavioral therapy.
Of individuals who relapsed and were retreated,
68 percent achieved lasting success. Strengthen- Kendall and Braswell found that much less re-
ing the reinforcement, self-control, or practice search has been conducted on problem-solving
components of the bell-and-pad treatment have cognitive approaches, yet much of the research
been found to increase the success rate (147). Most that has been conducted finds successful outcomes
studies examining operant conditioning methods such as decreases in disruptive behavior and in-
for treating enuresis have found evidence for the creases in prosocial behavior.
success of this method as well (252).
Cognitive-behavioral therapies were also in-
With encopresis (lack of control over defeca- cluded in Casey and Berman’s (104) review of
tion), operant conditioning has been successful in child psychotherapy outcome studies. Fourteen
several studies, although the total number of chil- studies of cognitive-behavioral therapies showed
dren studied has been small (147). on average that treated children fared better than
81 percent of untreated children, although this fig-
Some evidence exists for the effectiveness of
ure may be invalid because of the inclusion of out-
operant conditioning to promote weight gain in
come measures resembling the therapy (e.g., cog-
patients with anorexia nervosa, but research on
nitive functioning rather than behavior).
behavioral treatment mostly fails to consider the
help these patients need with psychological and The conclusion that cognitive and related ther-
social aspects of the disorder (54). Behavioral apies have been shown to be effective must be
treatment of bulimia has been studied too little qualified in several ways. First, there are some
for an overall assessment to be made. questions about the clinical relevance of some
studies, since many of the children have been
selected rather than randomly assigned, and many
Cognitive Therapy
of the outcomes have been measured by scores
During the past 15 years, the amount of re- on tests of cognitive functioning rather than by
search evaluating cognitive therapies for children changes in actual problem behavior (301,336,341).
often combined with behavioral approaches has Several studies, however, do show positive effects
increased dramatically (301,341). Cognitive with clinical populations (336,341). Second, suc-
models of treatment have been developed for cessful outcomes do not always generalize beyond
problems including hyperactivity and conduct dis- the training situation to the classroom or home,
order, which have often been considered resistant although studies that have included operant con-
109
ditioning methods or that have broadened the which lasts longer. Many clinicians argue that a
scope of the treatment have often achieved bet- number of initial sessions are needed for a group
ter generalization effects (81,341). Third, aggres- to “jell” and develop sufficient intimacy for ef-
sive behavior has been especially resistant to cog- fective therapeutic work to be done (722).
nitive methods (341).
Casey and Berman’s (104) review of child psy-
Recent research has investigated such variables chotherapy included a separate treatment effect
as age, developmental level, and cognitive styles size for 33 studies of group treatment. Casey and
of children to help explain differences in outcome Berman found that the average child treated in
and to help tailor cognitive therapies to the re- group therapy had a better outcome than 50 per-
quirements of different children (81,341). In a sim- cent of untreated children. However, their review
ilar vein, Kazdin (336) has noted that studies of does not provide information on the nature of the
more intensive courses of cognitive therapy, with group treatment; thus, it is difficult to determine
greater focus on specific clinical problems, are if the 33 studies reviewed by Casey and Berman
needed to test their clinical potential completely. are any more representative than those reviewed
by Abramowitz. A fair conclusion is that the full
Effectiveness of Group Therapy range of child group therapy has not yet been ade-
quately assessed.
As noted in chapter 5, group therapy for adoles-
cents differs from group treatment for younger
children. Child group therapy tends to rely on Group Therapy With Adolescents
group play and activities, while adolescent group
As noted earlier in this chapter, most of the
therapy is more of a “talking” therapy. The liter-
treatment outcome studies in Tramontana’s (637)
ature on each has been discussed in separate re-
review of adolescent therapy utilized group ther-
views. Group therapy has also been included in
apy. A1though most of the studies in the Tramon-
reviews by Smith, et al. (616), and Casey and Ber-
tana review were methodologically flawed, two
man (104).
of the studies that evaluated the effectiveness of
adolescent group therapy were relatively rigor-
Group Therapy With Prepubescent Children
ous. In a study by Persons (503), institutionalized
Abramowitz (5) has reviewed the outcome re- delinquents of both sexes receiving a combination
search on group therapy with prepubescent chil- of individual and group psychotherapy were com-
dren. The literature reviewed included studies pared with adolescents receiving the standard in-
using verbal approaches (39 percent), play and stitutional regimen. The group therapy combined
activity approaches (37 percent), and behavior directive and nondirective elements. Persons found
modification (24 percent). The studies focused on positive effects of treatment on anxiety, other psy-
treatment of immature or problem behavior, so- chopathology, academic performance, and anti-
cial isolation or withdrawal, poor self-concept, social behavior within the institution and at fol-
or academic underachievement. Outcome meas- lowup in the community. Treated youths also
ures focused chiefly on improvement in person- showed better outcomes on measures of employ-
ality variables, appropriateness of behavior, in- ment and recidivism. In a study of a similar pop-
terpersonal relations, and academic performance, ulation, Redfering (529,530) contrasted institu-
Abramowitz found that about one-third of the tionalized delinquent adolescents (girls only)
studies demonstrated positive effects of group receiving short-term group counseling to a non-
therapy, one-third had a mixture of positive, neg- treated group. At the end of 11 weeks of treat-
ative, and null results, and one-third found no ef- ment, the girls in therapy had greater positive
fects of treatment. The generalizability of this evi- changes in self-concept and feelings about parents
dence must be questioned, however, since most and peers. Over time, significant differences in
of the outcome studies in Abramowitz’s review parental and self ratings were maintained. Also,
investigated group therapy that lasted only 10 to treated girls were released more frequently from
15 sessions and so may not apply to therapy the institution and recommitted less frequently.
110
troubled families have been found to benefit much adult populations and have not isolated the ef-
less than other families from parent management fectiveness of crisis intervention for child patients.
training (336). Similarly, one criticism of parsons Furthermore, methodological shortcomings limit
and Alexander’s work is that many of the fam- the conclusions that can be drawn from these
ilies treated were of the Mormon faith, which studies. Homebuilders, the program discussed in
stresses family and community cohesiveness and chapters as exemplifying crisis intervention, was
may have provided an unusual impetus for cop- evaluated only in terms of its cost-effectiveness
ing with problem behavior (268). and success in avoiding outside placement of pa-
tients (350), not in terms of patient functioning.
Effectiveness of Family Therapy With Outside placement was avoided for 90 percent of
Children With Psychophysiological Disorders patients with an estimated cost savings of over
Minuchin and colleagues (442,443,444) have $3,200 per patient.
studied the effectiveness of family therapy for chil-
dren with psychophysiological disorders such as Effectiveness of Psychopharmacological
anorexia nervosa and chronic illnesses such as (Drug) Therapy
diabetes and asthma. They found improvement
both in measures of psychosocial functioning and The effectiveness of psychopharmacological
in measures specific to the patients’ physical prob- agents in treating childhood disorders can only
lems (e.g., weight in patients with anorexia ner- meaningfully be assessed separately for each phar-
vosa, respiratory functioning in asthmatics). In macological treatment. The various classes of drug
one study, Schwartz, et al. (268), found improved treatment have such contrasting purposes and
psychosocial functioning and control of eating in therapeutic effects that it is impossible to discuss
bulimic children treated with family therapy. The them as a whole. In assessing these medications,
lack of control groups in studies of family ther- the evidence for each intended therapeutic effect
apy for children’s psychophysiological disorders must be considered and weighed against the medi-
necessitates caution in interpreting the results, but cations’ side effects.
the achievement of therapeutic results on several
fronts with patients often considered unlikely to Stimulants
improve without treatment suggests the potential The use of stimulant drugs to treat ADD and
effectiveness of family therapy. ADD-H is by far the most common application
of psychopharmacological therapy in children,
Summary: Effectiveness of Family Therapy and its effectiveness with children has been re-
In general, family therapy outcome studies pro- searched more than any other drug treatment. Re-
vide preliminary evidence for the effectiveness of searchers have differentiated the effects of stimu-
family therapy with many children and families, lants on specific cognitive functions, academic
despite a number of methodological limitations. achievement, social behavior, personality varia-
Studies with some specific populations, such as bles, and mood (96). Most research has been fo-
conduct-disordered children and adolescents, cused on short-term effects, but medium and long-
show particular promise. Further research would term effects of stimulants have also received at-
be necessary to determine when family therapy tention.
is most appropriate and to allow knowledgeable Cantwell and Carlson (96) found 15 laboratory
matching between type of child, type of disorder, experiments demonstrating that several different
and specific family therapy models and tech- stimulants successfully aided children with ADD-
niques. H in tests of attention, impulsivity, distractibil-
ity, motor restlessness, short-term memory, and
Effectiveness of Crisis Intervention new learning. These results, however, are not nec-
essarily relevant outside the laboratory.
Few studies have evaluated the outcome of crisis
intervention. Those studies that have been iden- The effects of stimulants on academic achieve-
tified as evaluations have generally focused on ment by hyperactive children has been assessed
112
by a number of studies. Barkley and Cunningham concluded, after reviewing six studies, that stim-
(42) reviewed 120 studies of the effect of stimu- ulant drugs seem neither to enhance nor retard
lant drugs on academic achievement, although learning significantly in children with ADD-H.
only 17 of the studies used objective academic The connection to drug dependence and later drug
measures. Few positive effects of stimulants on abuse and the euphoriant effects of stimulants on
academic achievement were found, and those that children have been determined not to be problems
were found may have reflected the influence of (121,658), although some believe that these issues
the drugs on school examinations and not on daily have not been settled conclusively (121).
learning. Followup studies supported these find-
ings. Thus, there is some evidence for the effec-
Neuroleptics
tiveness of stimulants on attention deficits, but
little evidence that the use of stimulants to treat As noted in chapter S, neuroleptic medication—
ADD-H is associated with academic improvement. sometimes called antipsychotic medication—is
used not as a treatment to reverse a disorder, but
Teachers and parents have noted improvements
rather as a means of reducing troublesome symp-
in social behavior in children treated with stimu-
toms associated with a disorder. Neuroleptic
lants for hyperactive and disruptive behavior,
medication is prescribed most frequently to con-
(121). Recent research has found parallel effects
trol aggressive, assaultive, hyperactive, socially
on some symptoms of ADD-H in adolescents
inappropriate, and difficult to manage behavior
(673), yet methodological difficulties and the de-
in severely impaired children, including children
velopmental differences between adolescents and
with PDD and especially children with mental
children prevent any firm conclusions about the
retardation (39o).
effectiveness of stimulants at this time with adoles-
cents with ADD-H. The effects of neuroleptic medications with se-
verely disturbed children have been evaluated in
Although stimulant drugs achieve good short-
a number of studies (714). Most studies have
term results in children with ADD-H, the limited
found positive effects of neuroleptics on many
research findings regarding long-term results are
outcome measures of behavior, but as Winsberg
much less impressive (526). Available studies have
and Yepes (714) state, these outcomes suggest that
compared children who have been treated con-
neuroleptics “. . . appear useful only in the man-
tinuously for a number of months with children
agement of psychotic children, making them less
who have had less or no drug treatment, and they
show few long-term positive effects of stimulants withdrawn, less overactive, less anxious, less agi-
tated and more tractable . . . .“ Two studies by
(526). Some studies suggest that adolescents who
have received stimulant treatment sometime dur- Campbell and associates (90,91) also found posi-
ing childhood have fewer symptoms of ADD-H tive effects of neuroleptics for severely disturbed
than those who have not received stimulant treat- children in a behavioral (operant) learning para-
digm, probably because of their effect of reduc-
ment, but that they are still prone to antisocial
ing inappropriate responses (92).
behavior, poor peer relationships, low self-esteem,
and academic problems (279). One neuroleptic, haloperidol (Haldol”), has
been shown to be effective in reducing the tics and
Concerns about the side effects of stimulant
other symptoms of Tourettefs syndrome, although
treatment focus on: 1) possible retardation of
there are few controlled studies (598). Neurolep-
physical growth (568), 2) negative effects on learn-
tics have also been used in low doses to treat
ing (628), 3) drug dependence or later drug abuse,
ADD-H; however, in comparative studies, stimu-
and 4) euphoriant effects. A panel appointed by
lants have usually outperformed neuroleptics for
the Food and Drug Administration evaluated the
treatment of hyperactivity and are generally pre-
available evidence and concluded that stimulants
ferred clinically (714).
may have a minor suppressive effect on growth
when prescribed in the average-to-high range of A number of side effects of neuroleptics have
dosage. Rapoport (526) addressed the concern been documented and are of concern. The seda-
about the effects of stimulants on learning and tive effect of neuroleptics appears to impair cog-
113
nitive functioning in children who are already cog- depressed children have responded to antidepres-
nitively impaired (17,75). Evidence for this effect, sants. Such issues as appropriate dosage, effect
however, has been limited to nonclinical popu- of a child’s developmental level, and clinical im-
lations. Other short-term side effects can include provements due apparently to placebo effects
drowsiness; blurred vision; and moderate motor complicate conclusions about the effectiveness of
dysfunction like tremors, occasional mood changes, antidepressants in treating childhood depression.
and changes in urinary behavior. The long-term
In addition to being used to treat depression,
side effects of most concern are medication-in-
antidepressants have been used to treat enuresis,
duced movement disorders, especially those that
ADD-H, separation anxiety, and school phobia.
emerge when the medication is stopped (22o), and,
The antienuretic effect of antidepressants maybe
in a few cases, tardive dyskinesia (498).
entirely separate from their antidepressant action,
The proportion of children treated with neu- but numerous studies have found antidepressants
roleptics who develop side effects is unknown; in to be effective in reducing, though not curing,
the few studies available, estimates of the preva- enuresis (527). Antidepressants are somewhat ef-
lence of the different side effects of neuroleptics fective in treating ADD-H, but generally less ef-
vary widely. Conners and Werry (121) note that fective than stimulants (528). Antidepressants
most side effects are not serious, and those that have been used successfully in combination with
are (e. g., tardive dyskinesia) are infrequent and psychosocial (behavioral, cognitive, and psycho-
occur only with high doses or prolonged use. It dynamic) treatments to treat school phobia (233),
appears, however, that the decision to use neu- and separation anxiety caused, according to the
roleptics with severely disordered children must investigator’s theory, by biochemical disturbances
be made judiciously and the dosage must be care- not associated with depression (232).
fully controlled. Some side effects—especially the
Although the side effects of antidepressants can
general “quasi-sedative” effect (714)—have pro-
be dangerous in some children (121), the imme-
voked concern among many professionals and
diate side effects (e.g., dry mouth, drowsiness,
parents about the frequent use of drugs (622).
sweating) of moderate to low doses of antidepres-
sants mainly cause discomfort (527). In higher
Antidepressants dosages, antidepressant medication can have car-
Well-conducted research on the effectiveness of diovascular side effects, but these can be mini-
antidepressant treatment of childhood depression mized by adhering to strict limits on dosage level
has increased in the past several years, but defin- (518). Use of antidepressants with suicidally de-
itive information awaits the completion of more pressed children is risky, because overdoses of
studies. In a recent review, Puig-Antich and col- these drugs are extremely toxic (527). Conners and
leagues (518) note that none of the more rigor- Werry (121) state:
ous studies so far have shown antidepressants to . , . of all the psychotropic drugs commonly used
be better than placebos across samples of de- in children, the tricyclics call for the greatest
pressed children, although certain subgroups of caution.
CONCLUSION
Although methodological problems plague re- than two-thirds of control children, and the authors
search on the effectiveness of children’s mental recommend that professionals not hesitate in
health treatments, considerable evidence has accu- defending child psychotherapy’s merits. Even this
mulated to suggest the effectiveness of a wide review is limited, however, by the fact that most
range of modalities of treatment. The most recent studies reviewed did not use actual patients in
review of the effectiveness of child psychother- treatment. Many treatments, used widely for a
apy in general (104) found that the average child variety of mental health problems, have not yet
receiving therapy was better off after treatment been evaluated systematically.
4
114
With respect to specific treatments, even though to be effective for children with conduct disorders
an overall assessment of their effectiveness can- and psychophysiological disorders. Psychophar-
not yet be made, several psychosocial therapies macological treatment, while not curative, has
have shown promise in a number of studies, espe- been found to have limited effectiveness with chil-
cially in some specific problem areas. Thus, for dren with ADD-H, depression, or enuresis, and
example, behavioral treatment is clearly effective also in managing the behavior of children who
for phobias and enuresis, and cognitive-behavioral are severely disturbed. Further, more rigorous re-
therapy is effective for a range of disorders in- search may demonstrate the usefulness of several
volving self-control (except aggressive behavior). other treatments for which there is preliminary
Group therapy has been found to be effective with evidence of effectiveness.
delinquent adolescents, and family therapy appears
Chapter 9
INTRODUCTION
The effectiveness of various settings for chil- Chapter 7 described broad-based interventions
dren’s mental health treatment is of interest to to identify and treat children’s mental health prob-
policy makers and was one of the reasons this lems within the educational, general health care,
background paper was requested. Mental health child welfare, and juvenile justice systems; it also
treatment settings vary considerably in intensive- described efforts to prevent children’s mental
ness, restrictiveness, and cost. Therefore, it is health problems and to integrate mental health
valuable to have systematic information about the and other services. Because of a lack of research,
effectiveness of alternative settings to justify place- the effectiveness of treatment in most of the non-
ment, reimbursement, and public policy decisions. mental-health systems cannot be evaluated. Infor-
Similarly, evidence about the effectiveness of pre- mation on outcomes in the child welfare system
vention efforts and the integration of services across (e.g., therapeutic foster homes or group homes),
mental health and other systems is valuable. for example, is insufficient to be reviewed. There
is some research on the effectiveness of interven-
Chapter 6 described the mental health settings tions in the educational and juvenile justice sys-
in which disturbed children receive treatment.
tems, however, and that research is considered
Such settings range from inpatient hospital set- in this chapter. Also reviewed is some of the most
tings to private mental health practices. For those rigorous research on prevention programs. There
settings that provide a therapeutic milieu or en-
have been very few efforts to evaluate the integra-
gage mentally disturbed children in treatment for tion of mental health and other services generally
substantial periods of time each week—e.g., hos-
and no such efforts to date for children’s mental
pitals, residential treatment centers (RTCs), and
health services. A planned evaluation of a new
day treatment programs—the setting itself may Federal effort to integrate services is described in
have an important effect on treatment outcome. this chapter.
Available outcome research on the use of these
settings for mental health treatment is reviewed
in this chapter.
117
118
not used control groups to compare the effective- of reality) or neurologically impaired, had some-
ness of alternate settings. Disturbed children with what fewer positive outcomes. Outcomes also ap-
similar diagnoses and life circumstances have not peared to be related to variables such as charac-
been randomly assigned to either a hospital, an teristics of the patient other than diagnosis (e.g.,
RTC, a community mental health center (CMHC), intelligence), family factors (parental psychopathol-
or other outpatient setting giving similar treat- ogy), and, to a lesser extent, treatment variables
ments and the children’s treatment outcomes sub- (e.g., length of stay, aftercare). However, treat-
sequently compared. ment courses were so variable, and periods be-
tween discharge and followup so long in most
The effects of some treatment elements such as studies reviewed, that inferences about effective
intensive individual therapy may be easier to dis- elements of inpatient and other residential treat-
entangle from the settings in which treatment is ment cannot be made. In many cases, it was im-
given, but systematic research that attempts to do possible to determine whether the treatment set-
this has not been conducted. Consequently, it is ting more resembled a hospital or an RTC.
difficult to assess the degree to which alternative
treatments or alternative settings would have According to Blotcky, et al., because controlled
achieved similar or different therapeutic outcomes research has not been done and inpatient followup
(580). studies have not compared results of inpatient
mental health treatment to either natural course
Effectiveness of Psychiatric or outpatient treatment, it is difficult to know the
relationship between inpatient psychiatric treat-
Hospitalization
ment and outcomes.
The most intensive, as well as costly, form of
Gossett, et al. (245), reviewed 22 followup
mental health treatment involves inpatient care
studies of mentally disturbed adolescents who had
in a hospital. Although psychiatric hospitals are
received inpatient psychiatric treatment, and their
a type of residential treatment, the services they
conclusions about the effectiveness of such treat-
provide may differ from services provided in
ment were similar to those of Blotcky, et al. (61).
nonmedically focused settings such as RTCs. Con-
The studies Gossett and colleagues reviewed in-
sequently, a somewhat separate research litera-
dicated that the majority of nonpsychotic adoles-
ture on the effectiveness of psychiatric hospitali-
cents who had received inpatient treatment were
zation for children has developed (61,245).
functioning at an adaptive level several years af-
Blotcky, et al. (61), reviewed two dozen fol- ter discharge. Of psychotic adolescents who had
lowup studies of mentally disturbed children un- received inpatient treatment, only one-third were
der the age of 12 who had been treated in hospi- adjusted adequately at followup. In general, the
tal inpatient and other residential psychiatric less severe and chronic the adolescent patients’ ini-
facilities. One-fifth of the studies were prospec- tial problems— including level of family psycho-
tive. One-third included adolescents as well as pathology—the more positive their eventual out-
children. comes, although Gossett, et al. ’s review found that
aftercare was associated with positive outcomes.
All of the followup studies that Blotcky and col-
leagues reviewed reported some positive treatment A primary goal of developing this background
outcomes. The studies concluded, however, that paper was to respond to questions about the ef-
treatment outcomes were primarily associated fectiveness and appropriateness of psychiatric hos-
with the severity of disturbance. That is, they pitalization for children and adolescents. The
found that over half of the children described as methodological limitations of available studies of
neurotic or exhibiting personality disorders dem- inpatient psychiatric care make firm conclusions
onstrated long-term positive outcomes following difficult. Available studies do not clearly show
inpatient treatment. More severely impaired chil- which components of hospital treatment contrib-
dren, diagnosed as psychotic (i.e., having dis- ute to successful outcomes. Neither do they al-
orders involving severely disturbed perceptions low conclusions about whether children treated
119
as hospital inpatients would have better, worse, studies found that the majority of children made
or similar outcomes with nonhospital treatment. satisfactory adjustment while still in RTC treat-
Because of the methodological limitations of avail- ment. Unlike the results for psychiatric hospitals,
able studies, it is unclear to what extent outcomes the evidence for a relationship between severity
for mentally disturbed children treated in hospi- of a child’s problems at admission (or other diag-
tals are a function of the children’s level of dis- nostic variables) and posttreatment outcome was
turbance. In many cases, hospital treatment is a inconclusive. Following treatment, however, their
“last resort” for children who have been unsuc- level of adjustment depended on the quality of
cessfully treated in other settings. Prospective re- the posttreatment environment, the amount of
search controlling for patient characteristics and stress or social support (especially family support),
family variables has not been conducted. quality of parent-child relationships, and family
stability. Greater involvement of the family with
Effectiveness of Residential RTC treatment and with postdischarge planning
Treatment Centers was also associated with favorable outcomes.
Lewis, et al. (386), performed a followup study
There are many similarities between RTCs and
of 51 children who had received RTC treatment.
children’s psychiatric hospitals, and the findings
Most of these children had been considered im-
about effectiveness of RTCs are similar to those
proved at the time of discharge, but were rated
for psychiatric hospitals. Several studies have in-
poorly adjusted at later followup by independ-
vestigated the effects of RTC treatment, chiefly
ent evaluators. The majority of poorly adjusted
on outcomes measured during or soon after treat-
children had had more than two institutional
ment. Unfortunately, however, interpretation of
placements following RTC treatment. Children
these studies, like studies of inpatient treatment,
who had been older at the time of admission to
is limited by the fact that most of the studies
RTC treatment and who had exhibited both psy-
lacked control groups.
chotic and organic symptoms also tended to have
Whittaker and Pecora (706) reviewed eight poorer outcomes as did children with disturbed
studies of RTC treatment. Without exception, the parents, although Lewis, et al., point out that it
is impossible to separate possible genetic contri-
butions from environmental contributions to out-
come. Lewis and his colleagues note that many
of the children in the study completed RTC treat-
ment just prior to adolescence and suggest that
poor outcomes for these children might have re-
sulted from the turmoil of adolescence combined
with the difficulty of being released into a stress-
ful environment.
Re-ED programs area type of RTC that appears
particularly promising (see ch. 6). In a study by
Weinstein (686), data on one Re-ED program,
Cumberland House, were gathered from parents,
Re-ED teacher-counselors, teachers in the chil-
dren’s regular class, classroom peers, referring
agency staff, and from the children themselves.
Weinstein’s study, considered one of the best of
the Re-ED evaluations, found that children who
Photo credit OTA
had completed the program had more positive
self-concepts, a greater sense of self-control, and
This group home serves as an intermediate step for
adolescent boys who still need supervised care and better academic performance than a disturbed but
treatment before returning to their families. untreated control group. The children who had
120
and Quick, the group of children who dropped of day treatment lack methodological rigor. De-
out of day treatment included many chronic run- finitive conclusions about the effectiveness of day
aways and truants “whose behavior was very treatment, therefore, must await further investi-
appropriate while attending, but for whom the gations. Nevertheless, the consistency with which
program failed to secure consistently good at- positive outcomes following day treatment have
tendance. ” been reported is encouraging.
Like most treatment outcome research in the
field of children’s mental health, available studies
59-964 0 - 87 - 5
122
gram” for adolescent delinquent boys. In line with tionally. Massimo and Shore’s work is often cited
the researchers’ understanding of the specific needs as a promising multi-intervention program that
of delinquents, this program offered a compre- has shown some success with a difficult-to-treat
hensive set of interventions that differed greatly population.
from the traditional clinical approach. Job coun-
Studies of behavioral treatment for more severe
seling and placement was the first component in- conduct disorders often take place in juvenile jus-
troduced, and psychotherapeutic contact was ad- tice settings. Reviews suggest that operant be-
ded later; the program also included help such as
havioral programs have led to improvement in
remedial education and aid in managing money. a number of social, academic, and personal be-
Outcomes were measured during the 10-month haviors within the treatment setting (136,170).
treatment period, and at 2 to 3, 5, and 10 years However, there is little evidence that these be-
later. Treated adolescents showed improved ad- havioral improvements carry over to behavior in
justment emotionally, academically, and voca- natural, community environments (252).
to display self-initiated involvement in their chil- Since the program’s inception, outcome re-
dren’s schooling. The participating children, al- search has been a central component of PMHP.
though they did not have significantly higher IQ Several studies attest to PMHP’s effectiveness in
scores than the control group children, had bet- reducing problem behaviors and enhancing com-
ter school attendance, required fewer costly spe- petence in high-risk groups (128,694). Attention
cial services, and showed better social and school has also been paid to the long-term effects of par-
adjustment. In addition, the program was found ticipation in PMHP; children have been found to
to save money; in 1 year, the 15 control group maintain significant gains in adjustment for I to
families were found to require approximately 5 years following PMHP intervention (107,394).
$40,000 worth of school services and extrafamilial In a recent 2-to 5-year followup (107), PMHP
support services that were not needed by the in-
children were compared with a “never seen” group
tervention families.
(children judged to be well-adjusted at the time
An evaluation of the Family Support Center of initial screening) and a “least well-adjusted”
Program (FSCP) (see ch. 7) compared FSCP fam- group (non-PMHP children who were judged by
ilies with a sample of normal families (25). It their teachers to be functioning poorly). This
found that FSCP families had significantly fewer study found that the PMHP children maintained,
incidents of child abuse, were experiencing less and in some cases solidified further, the gains in
stress, and had developed better parent-child in- adjustment and problem reduction they had made
teraction and child care conditions by the end of 2 to 5 years earlier. In addition, although PMHP
the program. Greater involvement in the program children were often found to be functioning less
was correlated with better outcomes. The valid- well than the “never seen” children, they consist-
ity of the findings is limited by the lack of a con- ently appeared to be better adjusted than the “least
trol group and the fact that half of the FSCP fam- well-adjusted” children. This observation suggests
ilies did not complete all three phases of the that although PMHP did not completely eradi-
program. Also, many of the families participat- cate early detected difficulties, it did significantly
ing in FSCP received additional services from prevent the development of serious problems in
other agencies during the course of the inter- a high-risk group. Finally, PMHP children were
vention. found to perform in the normal range on academic
achievement measures at followup, suggesting a
Effectiveness of Selected Secondary sustained and long-term benefit of the inter-
Prevention Efforts vention.
CONCLUSION
Methodologically rigorous research comparing Existing models of prevention suggest that ef-
the effectiveness of treatment in psychiatric hos- fective interventions can be offered through any
pitals and other residential settings with similar of several existing systems—including the family,
treatment in outpatient settings is sorely lacking. the schools, and health care programs. Not only
Despite the limitations of available research, how- have many prevention programs led to positive
ever, certain trends in the data are suggestive— changes in social, emotional, and academic meas-
and support particular policy choices. The long- ures, but such programs appear capable of pre-
term effectiveness of psychiatric hospitalization venting later governmental expenditures through
and other forms of RTC treatment, for example, the justice and welfare systems.
appears to be related to the availability of social
What is clear, is that much greater emphasis
support mechanisms and mental health services
needs to be placed on evaluations of mental health
in the posttreatment environment programs. The
services offered in a variety of settings, includ-
effectiveness of mental health treatment in non-
ing non-mental-health settings. Assessment of in-
mental-health settings may depend on pairing
tegrated treatment systems could help policy-
treatment with other interventions like vocational
makers decide how to target resources.
counseling or family support.
Part V: Current Federal Efforts
Chapter 10
Current Federal Efforts
Chapter 10
INTRODUCTION
The complexity of children’s mental health possible, it considers that role in the context of
problems, the diversity of mental health treat- the entire mental health system—State, local, and
ments, and the effectiveness, in general, of treat- private. The chapter describes specific Federal pro-
ment have been documented in previous chapters. grams with the greatest relevance to children’s
Despite an incomplete knowledge of the causes mental health services. Such programs relate to
of mental health problems in children, it is clear financing of children’s mental health treatment;
that much can be done to reduce the effects of such coordination of mental health and other services;
problems. Yet substantial data suggest that many research and training; and prevention and other
children with mental disorders, and at risk of de- services. The chapter concludes that although the
veloping such problems, do not have access to roles of State and local governments and the pri-
adequate treatment services (216,358). vate sector in serving the mental health needs of
children could be usefully enhanced, greater Fed-
This chapter examines the Federal role in pro-
eral involvement may also be desirable.
viding mental health services to children. Where
731
132
Table 8.—Federal Contributions to Programs Contributing to Mental Health Services for Children, 1985
(dollars in millions)
S O U R C E S : ADM block gront: R.L. Fogel, “Early Observations on States’ Plans To Provide Children’s Mental Health Services Under the ADAMH Block Grant
(GAO/HRD-85-84),” letter to Senator Inouye from Human Resources Division, General Accounting Office, US. Congress, Washington, DC, July 10, 1985.
NIMH: U.S. Department of Health and Human Services, Public Health Service, National Institute of Mental Heaith, Alcohol, Drug Abuse, and Mental Health
Administration, Twe/fth Annua/ Report on the Child and Youth Activities of the National Institute of Mental Health, Federal Fiscal Year 1985, presented
to the National Advisory Mental Health Council by M.E. Fishman (Rockville, MD: March 10, 1986). Medicare: M. Gornick, J.N. Greenberg, P.. Eggers, and
A. Dobson, “Twenty Years of Medicare and Medicaid: Covered Populations, Use of Benefits, and Program Expenditures,” Health Care Firrancing Review
(1985 Annual Supplement) (Baltimore, MD: U.S. Department of Health and Human Services, Public Health Service, Health Care Financing Administration,
December 1985) and Health Care Financing Administration, unpublished data. Medicaid: U.S. DepaRment of Health and Human Services, Health Care Financing
Administration, Bureau of Program Operations, Grants Branch, Division of State Agency Financial Management, unpublished data pertaining to fiscal year
1985 Medicaid program expenditure information, BPO-F31, Baltimore, MD, September 1986. CHAMPUS: K. Zimmerman, Statistics Branch, Information Systems
Division, Office of CHAMPUS, personal communication, Sept. 5, 1986
comparing the treatment costs that each of these being that mental health treatment for children
sources pays is difficult. In the case of Medicaid, is typically more complex and thus more expen-
for example, the only mental health expenditure sive than treatment for adults (see, e.g., 457).
known is that of mental hospitals. Private third-
In 1980, an estimated $21 billion was spent by
party payers prefer not to disclose what they pay
all sources on mental health treatment for all age
for mental health services, and the amount actu-
groups (277a). About half—$10 billion—of this
ally spent by clients themselves is not known.
amount was spent for services rendered in the
The proportion of costs specifically for chil- mental health system (277a). (Most of the other
dren’s mental health treatment is even more dif- expenditures were for treatment rendered in the
ficult to determine. It cannot be derived from the general health care system. ) In 1983, the year
proportion of services rendered to children for a closest to 1980 for which data are available, SMHAs
number of reasons, perhaps the most important reported to the National Association of State
133
Mental Health Program Directors (NASMHPD) Figure 4.-Estimated Proportions of State v. Federal
that they spent a total of $6.8 billion on mental and Private Expenditures for Mental Health Treatment
Provided in the Mental Health System
health treatment for all age groups (459). This fig- to All Age Groups,a 1983
ure allows a rough estimate that more than two-
thirds of expenditures for treatment in the men-
tal health system are expenditures made by SMHAS
(see figure 4). In turn, most of the revenues to
support SMHAs are provided by the States: 76
percent of SMHA revenues in 1983 came from the
States, 16 percent from the Federal Government,
3 percent from local governments, and 5 percent
from other sources (459).
The NASMHPD study also indicated that SMHAs
which were able to determine how much they
spent on mental health programs exclusively for
children spent an average of 7 percent or about
$9 per capita on such programs (459). For adult
programs, SMHAs spent an average of 45 per-
cent of their funds, or $22 per capita. These per-
centages must be viewed with caution, however,
because many of the States surveyed could not
determine the allocation of mental health funds
by age. Further, in all of the States, a substantial
portion of mental health funds was spent on pro-
grams for all ages combined (e.g., on State men- Estimated total: $10 billion
tal hospitals). aExcludes treatment provided in other service systems (e.g., 9eneral health care
system),
bsources of revenue for SMHAS:
Alcohol, Drug Abuse, and Mental Health States . . . . . . . . . . . . . . . . . . . . . . 760/.
Federal Government (e.g., Medicaid [$600 million],
Block Grant Alcohol, Drug Abuse, and Mental Health (ADM)
block grant [$200 million]) . . . . . . . . . . . . . . 160/0
The ADM block grant was initiated in 1981 Local governments . . . . . ., . . . . . . . . . 30/.
Other sources . . . . . . . . . . . . . 50/.
(Public Law 97-35) as the successor to a variety cFederal Government share excludes SMHAS (See note b)
of categorical programs—most significantly pro- SOURCES: Estimated total: H. Harwood, D Napolltano, P Kristiansen, et al , Eco.
grams under the Community Mental Health Cen- nornic Costs to Society of A/cotro/ and Drug Abuse arrd Menta/ ///-
ness: 1980 (Research Triangle Park, NC: Research Triangle Institute,
ters Act of 1963 (Public Law 88-164). It is cur- June 1984); SMHAS: National Association of State Mental Health Pro-
gram Directors, Funding Sources and Expenditures for State Mental
rently the only major Federal program that provides Health Agencies: Fiscal Year 1983 (Washington, DC 1985).
funds to States to support CMHCs and related
community mental health services. ADM block the block grant allocation. Rather the block grant
grant funds cannot be used for inpatient care. formula tends to “reward” States that relied on
Federal funds prior to 1981 and “punish” States
As shown in table 8, Congress appropriated a
that relied to a greater extent on State funds.
total of $490 million for the fiscal year 1985 ADM
block grant (considerably less than the $625 mil- For several reasons, it is difficult to determine
lion available for categorical programs in fiscal what portion of ADM block grant funds serves
year 1980 (643b)). States receive a share of the children. First, the ADM block grant is segmented,
ADM total block grant appropriation through a with separate funding for alcohol, drug abuse, and
formula based on population and the level of Fed- mental health programs, and the percentage of
eral funds received prior to 1981. Because the for- block grant funds allowed to be used specifically
mula combines population and prior Federal fund- for mental health services differs among States.
ing levels, there is no direct relationship between Second, it is not known to what extent any of the
the size of the State’s population to be served and three categories of ADM block grant programs
134
has services designed specifically for children. were spending 1985 set-aside funds. Of particu-
Third, CMHCs, which receive the bulk of the lar concern was whether set-aside funds were be-
mental health funds, must provide specialized out- ing directed to programs for children and whether
patient services for children, but there is no re- these programs were actually “new” programs.
quirement that they provide a certain level of serv-
ice or report how much is spent on children’s To learn how States were spending 1985 set-
treatment. This situation is different from that aside funds, GAO conducted a telephone survey
under Part F of the Community Mental Health (during April/May 1985) of 13 States represent-
Centers Act of 1963, when specific funds were tar- ing each of the Federal regions and approximately
geted for children. 50 percent of the Nation’s population (see table
9). Three of the 13 States, Iowa, Mississippi, and
In order to better address children’s needs, Con-
Texas, planned to spend all of the 10-percent set-
gress amended the fiscal year 1985 ADM block
aside moneys on new programs for children. Four
grant to require that 10 percent of the mental
of the States, Kentucky, Massachusetts, Michi-
health portion of block grant funds be set aside
gan, and Washington, had decided not to spend
for “new programs for children and other under-
any of the set-aside money on new programs for
served areas and populations. ” This set-aside rep- children. New York had decided that less than
resents a partial return to the Part F targeting pol-
one-quarter of its total planned set-aside funds
icy and reflects a recognition by Congress that
($203,000 of $1,153,000) would be directed toward
children are an underserved population. There
new programs for children. Pennsylvania had
was some question, however, as to how effective
made a similar decision and allocated approxi-
this l0-percent set-aside would be in increasing mately 20 percent of its set-aside ($230,000 of
the availability of mental health treatment serv-
$1,325,000) for children’s programs. The programs
ices for children. for children to be supported were diverse and in-
To assess the impact of the set-aside, the Gen- cluded enhancing nonhospital residential care,
eral Accounting Office (GAO) was requested (by case management, adolescent problem and sui-
Senator Daniel K. Inouye) to study how States cide prevention, and family support (see table 10).
Table 9.—Fiscal Year 1985 Estimated Allocation of the IO-Percent Set-Aside of the Alcohol, Drug Abuse, and
Mental Health (ADM) Block Grant for Selected States (in thousands)’ b
SOURCE: R.L. Fogel, “Early Observations on States’ Plans To Provide Children’s Mental Health Services Under the ADAMH Block Grant (GAO/H RD-85-84),” letter to
Senator Inouye from Human Resources Division, General Accounting Office, US. Congress, Washington, DC, July 10, 1985.
135
Table IO.— Planned a Use in Selected States of States noted that the requirement that the pro-
Fiscal Year 1985 Set-Aside Funds for grams for children or other underserved popula-
Mental Health Services for Childrenb
tions be “new” did not allow for additional funds
State c Services for children to be allocated to already existing programs that
California Not decidedd appeared to be effective. In response to these
Colorado Residential care problems, Congress amended the 10 percent set-
Florida Psychiatric services, summer school ses-
sion for the handicapped, outpatient,
aside in fiscal year 1986 to read that 10-percent
emergency, diagnostic assessment, con- of mental health block grant funds could be used
sultation, case management, crisis inter- for “new or expanded” programs for underserved
vention, adolescent problem prevention populations, with a “special emphasis” on chil-
lowa Group home services, adolescent problem
prevention, family support dren or adolescents (Public Law 99-117).
Kentucky None (funds will be used for other under-
served areas or populations) Perhaps the most important impact of the set-
Massachusetts None (funds will be used for other under- aside is symbolic. As States are required to re-
served areas or populations)
Michigan None (funds will be used for other under-
port the amounts of ADM block grant money
served areas or populations) spent on new programs for children, more atten-
Mississippi Undetermined e tion may be brought to children’s mental health
New York Family support, adolescent suicide preven-
tion, referral
problems. Also, because funds from the ADM
Pennsylvania Residential care block grant cannot be spent on inpatient services,
Texas Services for students with drug or alcohol the program provides an incentive for States to
problems, weapons violations, etc., serv- develop locally based outpatient treatment pro-
ices for minority inhalant abusers
Vermont Not decidedd grams. To the extent that resources for outpatient
Washington None (funds will be used for other under- programs are available, early diagnosis and treat-
served areas or populations)
a
ment for children with mental health problems
As of May 1985.
bBlock grant set-aside funds were also permitted to be used fOr underserved may be more likely.
populations other than children In addition, some undersexed populations that
the States reported were to be served (e g., the homeless chronically mentally
Ill) were not targeted by age Some of these programs may address the mental
health needs of children.
CA sample of 13 States, representing the receipt of about half the Alcohol, Drug
Federal Third-Party Payment Programs
Abuse, and Mental Health block grant funds, were surveyed by the General Ac-
counting Office The Federal Government plays a major and
d, Not decided,, indicates that the State had not decided whether set-aside funds
were to be used for children or for other underserved areas or populations. trend-setting role in financing health care services.
e,, undetermined” indicates that the State had decided to uSe set-aside funds
for children and adolescents, but had not decided which services the funds were
It is the largest single insurer of health care serv-
to be used for ices (Medicare and partial funding of Medicaid)
SOURCE R L Fogel, “Early Observations on States’ Plans To Provide Children’s
Mental Health Services Under the ADAMH Block Grant (GAO/H RD.
and has also played a leadership role in the de-
85-84 ),” letter to Senator Inouye from Human Resources Division, velopment of health care payment systems. The
General Accounting Off Ice, U S Congress, Washington, DC, July 10,
1985 extent to which certain services and providers re-
ceive reimbursement while others do not has a di-
rect effect on the delivery of care (206). Tradi-
tionally, coverage for mental health services has
It is important to emphasize that the entire
been less extensive than coverage for other med-
ADM block grant is small in comparison to State
ical services (e.g., see 20,175a). Mental health cov-
funds and that the 10-percent set-aside for chil-
erage is also limited by requirements for the pres-
dren and other underserved populations is taken
ence of a diagnosable disorder (see ch. 3) as a
only from the mental health portion of the ADM
condition for reimbursement.
block grant. The entire 10-percent set-aside may
be less than $20 million nationwide—and only a Three key parts of the Federal health care fi-
portion of this would be directed to new programs nancing system are Medicaid, Medicare, and
for children. Because there were no new funds, CHAMPUS. In 1985, Medicaid served 11 million
the set-aside requirements might mean that funds (296,297) dependent children under the age of 21,
for new programs for children will have to be but the amount of mental health benefits provided
taken from other existing programs, unless States to these children is believed to be minimal. Medi-
make up the funds for other programs. Some care provides no significant funding for children’s
136
mental health care, but Medicaid and other third- ment and treatment for Medicaid-eligible children,
party payers that do fund such care are often influ- were not successful (595).An expansion of Med-
enced by Medicare’s payment policies. CHAMPUS icaid eligibility passed in 1984 (Public Law 98-369)
is the largest single health insurance program in is potentially important for preventing, detecting,
the country, providing coverage for health serv- and treating mental health problems because it
ices to military dependents and retirees who are makes additional women and children eligible for
unable to receive services through uniformed serv- medical services. Although this expansion of eligi-
ice medical treatment facilities. CHAMPUS spends bility is sometimes referred to as a “modified
60 percent of its mental health expenditures on CHAP, ” it did not specifically require mental
treatment for children. health assessment and treatment for children.
Medicaid .—Medicaid represents 55 percent of In addition to the expansion of eligibility, another
all public health funds spent on children (645) and potentially important change in the Medicaid pro-
has the potential to meet the needs of children who gram was incorporated in the Consolidated Omni-
are possibly at the greatest risk for developing bus Budget Reconciliation Act (COBRA) of 1985
mental disorders, those who are in poverty and (Public Law 99-272), which was signed into law
those who are uninsured. on April 7, 1986. Under the provisions of COBRA,
In general, Medicaid provides health insurance States will be allowed to cover case management
to low-income families who meet certain categor- services, which were defined as those services that
ical and financial criteria. These criteria, and assist individuals eligible under Medicaid to gain
many of the services provided, are generally set access to needed medical, social, educational, and
by the States, which provide a very significant other services.
portion of the Medicaid funding. Medicaid serves It appears that Medicaid may ensure that at
approximately 11 million children. Most impor- least some poor people obtain mental health care
tant for purposes of this background paper is who would not otherwise do so. An analysis by
that while beneficiaries may not be discriminated Taube and Rupp (632a) found that poor and near-
against on the basis of diagnosis, States are free poor Medicaid recipients were more likely than
to set limitations on Medicaid coverage for mental nonrecipients to get mental health treatment. As
health services (636). The percentage of Medicaid noted above, States have different Medicaid eligi-
funds devoted to mental health care is not known. bility requirements, so Taube and Rupp were able
GAO is conducting a national survey of the men- to compare persons who were of similar socio-
tal health services available under Medicaid. economic status. Taube and Rupp attribute the
Medicaid’s Early and Periodic Screening, Diag- greater use of mental health benefits by Medic-
nosis, and Treatment (EPSDT) program provides aid recipients to the fact that Medicaid does not
funds to screen, diagnose, and treat children un- allow cost-sharing (i.e., recipients are not required
der 21 who are members of families designated to pay any of the costs of health services). Taube
as “categorically needy, ” and so is a potentially and Rupp’s finding, as well as their interpretation,
important Federal initiative (434). The develop- is consistent with other studies which show that
mental assessment that is required as part of the use of mental health care is responsive to the
EPSDT screening can reveal emotional difficul- cost of such care, although cost is not the only
ties and problems in behavior development. How- factor which deter-mines whether people seek men-
ever, because of changes in eligibility, children tal health care (206).
may not be followed long enough for a develop-
Medicare .—The Medicare program covers the
mental assessment to be adequate; in addition,
cost of hospitalization, medical care, and related
few States deliver any substantial amount of men-
services for most persons over age 65, persons re-
tal health care through this program (358,595).
ceiving social security disability insurance pay-
Efforts in the late 1970s to upgrade EPSDT into ments for 2 years, and persons with end-stage re-
a Child Health Assurance Program (CHAP), and nal disease. Although only a small proportion of
thus to specifically require mental health assess- Medicare program funds are directly devoted to
137
children (children who are disabled and depen- is based on an adjusted average (the geometric
dents of deceased, retired, or disabled social secu- mean 2 of lengths of stay (LOS) in the hospital
rity beneficiaries), Medicare influences health care among patients with this diagnosis. In the case
reimbursement nationwide. Not only have a num- of DRG 431, this equals 15.4 days. As indicated
ber of States adopted Medicare rules for payment in table 11, however, DRG 431 is the mental dis-
of Medicaid and other insurance benefits, but non- order DRG category with the most variation in
Federal health insurance providers closely watch LOS (632), with few patients being treated close
Medicare. to the 15.4-day mean LOS. Approximately 25 per-
cent of patients in DRG 431 have an LOS less than
The Social Security Amendments of 1983 (Pub-
10 days, while 25 percent have an LOS greater
lic Law 98-21) mandated that Medicare adopt a
than 75 days. Since DRG-based payment by
prospective payment system’ for hospitals (648,
Medicare does not take LOS into account, a hos-
649). Children’s hospitals and psychiatric hospi-
pital treating an individual with a childhood-onset
tals, along with rehabilitation and long-term care
mental disorder for 75 days receives the same
hospitals, have been temporarily exempted from
Medicare payment as a hospital treating the in-
the new payment system; however, the system
dividual for 1 day or for 15.4 days.
does apply to psychiatric services provided in
nonspecialized units in general hospitals. Variation in LOS for DRG 431 aside, there are
a number of potentially serious problems con-
Medicare’s prospective payment system is based
nected with application of a DRG-based payment
on fixed per-case payment rates for patients in 467
system to children’s mental health care (581). One
diagnosis-related groups (DRGs), DRGs area pa-
basic problem is that there is no theoretical or em-
tient classification system developed at Yale for
pirical evidence to indicate that the use of treat-
purposes of research on health care delivery.
ment resources is related to a mentally disturbed
There are nine DRGs for “mental diseases” and
child’s diagnosis. Systems of classifying mental
six for substance abuse (see table 11).
disorders (such as the American Psychiatric Asso-
DRG 431, “childhood mental disorders,” includes ciation’s Diagnostic and Statistical Manual or the
diagnoses of childhood-onset mental disorders (see World Health Organization’s International Clas-
ch. 3). Because many childhood diagnoses can sification of Diseases) indicate only the related set
also be applied to adults (e. g., a problem such as of conditions that have been found for a particu-
attention deficit disorder, which has its onset in lar syndrome. These systems were not designed
childhood), DRG 431 does not apply only to chil- to be used for reimbursement purposes (19) and
dren. Furthermore, DRG 431 is not the only DRG do not necessarily indicate the severity of a men-
applied to children with mental disorders. Chil- tal disturbance. Especially for children, mental
dren with mental disorders that can also receive health treatment decisions may be based on the
an adult diagnosis (e. g., adolescents with drug or family’s ability to manage the child as well as on
alcohol abuse problems) are sometimes placed in the multiplicity of problems faced by the child.
other categories. Nonetheless, DRG 431 is prob-
In the absence of a direct relationship between
ably the most frequently used DRG for children,
diagnosis and length/intensity/cost of mental
and so deserves careful attention in the event a
health treatment, DRG-based payment will not
prospective payment system is considered for the
be likely to match a child’s need for services. In
children’s mental health care system. the short term, a mismatch between DRG-based
Like most DRGs, DRG 431 does not differen- payment and the cost of needed services may re-
tiate patient episodes by problem severity, treat- sult in some (probably the most troubled) chil-
ment modality and setting, or the patient’s his- dren’s being denied services. It may also result in
tory, The Medicare payment rate for DRG 43 I
‘Like the arithmetic mean, or average, the geometic mean is a
‘Prospective payment, payment to health care providers based central value in a distribution of scores that serves as a summary
on rates established in advance, is an alternative to retrospective measure of the scores. By relying on logarithms, the geometric mean
cost-based reimbursement, under which payment to providers is has the advantage of being less influenced by the uneven distribu-
based on the amount and type of services they provide (648,707). tion of scores.
138
Table 11 .–Lengths of Stay Associated With Mental Disorder Diagnosis-Related Groups (DRGs)
Ranked by Interquartile Range
unnecessary and inappropriate treatment as hos- The fundamental problem with application of
pitals are provided an incentive to treat “simple” a DRG-based payment system to children’s men-
cases. The long-term impact on the range and tal health services is that basing payment on a
quality of available services is unknown (649). broad category of diagnosis such as “childhood
mental disorders” ignores the body of literature
i A second critical problem with the application on the variety of treatment needs of mentally dis-
of a DRG-based payment system to children’s turbed children. This problem exists for other
mental health care is that the data used to calcu- DRGs and other vulnerable populations as well
late average LOS, on which DRG payment is (649). A DRG-based prospective payment system
based, were derived from past experience in a may control costs and maintain quality of care
sample of adult acute care hospitals. Data reflect- for patients who require specific medical or sur-
ing the types of treatments given to children in gical procedures (i.e., non-mental-health care),
specialized psychiatric units or in psychiatric hos- but it seems inappropriate and potentially harm-
pitals were not included. ful to apply such a DRG-based payment system
to children’s mental health care.
Even if LOS data were available from hospital
facilities that treat mentally disturbed children, Civilian Health and Medical Program of the
however, there would be a serious problem in Uniformed Services. —CHAMPUS is a health in-
using such data. Most health benefit programs surance program administered by the U.S. Depart-
have limitations on the type and amount of both ment of Defense (DOD). CHAMPUS provides
inpatient and outpatient treatment provided. In health benefits to 6.5 million military dependents
addition, most benefit programs provide more and retirees who are unable to receive services
generous coverage for inpatient care than for out- through uniformed service medical treatment fa-
patient, residential treatment center (RTC), or day cilities, and is known as one of the most gener-
treatment (600). ous third-party payers for mental health care.
139
Primarily because few uniformed service med- A 1985 DOD analysis of the first year’s experi-
ical treatment facilities offer mental health serv- ence with the 60-day cap concluded that the 60-
ices, CHAMPUS devotes a higher percentage of day limit on inpatient psychiatric hospitalization
its benefit payments (16 to 19 percent [643a,655]; had resulted in a $34.2 million “cost avoidance, ”
also see table 8) to mental health services than do representing 22 percent of the total CHAMPUS
most private insurance plans. Another reason that spent for inpatient and RTC mental health care
CHAMPUS devotes a high percentage of its ben- in calendar year 1983 (655). Perhaps as expected,
efit payments to mental health services is that mil- there was a 66-percent increase in RTC admissions
itary families often live in areas not adequately in 1983, although the costs of RTC stays were not
served by outpatient mental health professionals; included in DOD’s analysis (655). The cost of in-
for families in areas not served by outpatient fa- patient care cannot be separated from the costs
cilities, the only mental health treatment option of RTC care in CHAMPUS’s data system. DOD’s
may be psychiatric hospitalization, or, for chil- analysis was adjusted, however, for an estimated
dren, care in an RTC. Inpatient and RTC treat- 80,000 outpatient visits attributed to the 60-day
ment are typically more expensive than outpatient cap.
treatment; and CHAMPUS spends up to 75 per-
On the basis of its 1985 analysis and subsequent
cent of its mental health benefits on inpatient and
monitoring, CHAMPUS more recently estimated
RTC treatment (548), despite the presence of an
that there would be a 100-percent increase in ad-
unusually rigorous peer review system which must
missions to RTCs between 1983 and 1986 (from
certify all care (inpatient, outpatient, residential)
425 in 1983 to about 850 in 1986 [643a]). In addi-
as medically or psychologically necessary (548,
tion, CHAMPUS reported that since the imposi-
549).
tion of the 60-day cap, there had been an increase
In their efforts to control the costs of mental in the number of RTCs attached to psychiatric
health care under CHAMPUS, both Congress and hospitals that had applied and been approved un-
CHAMPUS have implemented provisions for der CHAMPUS (from 13 in December 1982 to 30
maximum benefits for mental health care in psy- in December 1985 [643a]). In order to provide ad-
chiatric hospitals and, more recently, in RTCs. ditional long-term control over cost escalation,
The effect of one such provision—a 60-day “cap” CHAMPUS has since developed a new policy to
on inpatient psychiatric hospitalization—illustrates limit its payments for RTC care.
how changes in reimbursement policy can change As do all health care cost-containment efforts,
the type of services available. This example is not CHAMPUS’s attempts to limit costs raise concerns
definitive, however, because the change in about maintaining good quality care. CHAMPUS
CHAMPUS reimbursement policy was not intro- monitors quality through its unusually rigorous
duced experimentally (i.e., with use of a control peer review system and its approval processes
group experiencing no changes in coverage). (548, 549). In addition, GAO is studying meth-
Thus, alternative explanations for subsequent var- ods for assessing the quality of care provided
iations in treatment services, such as changes in under CHAMPUS.
treatment philosophy, cannot be ruled out.
The Education for All Handicapped Children
Under the 60-day cap, exceptional justification
Act (Public Law 94-142)
of medical necessity has to be provided for psy-
chiatric hospitalization longer than 60 days for The Education for All Handicapped Children
both adults and children or CHAMPUS will not Act (Public Law 94-142) mandates that all physi-
pay for the care. Extension of the 60-day limit is cally and mentally handicapped children be pro-
granted only if a patient is a danger to himself/ vided a free, appropriate education and the “re-
herself or others; or if the patient has a medical lated services” necessary to obtain an education
complication and only an inpatient hospital fa- (see ch. 7). The Federal Government provides a
cility can provide appropriate treatment. The cap small amount of grant money to States to help
does not affect RTCs. them implement this law.
140
There is continuing debate about whether men- It is too early to tell, of course, how States will
tal health care is properly included under “related respond to the new grant program or to what ex-
services.” Even those who consider mental health tent the program will affect children. An earlier
interventions necessary for education disagree program to encourage the integration of mental
about where the responsibility for payment lies— health and other services for children, CASSP,
with the school system, the welfare system, the was, as is described below, enthusiastically re-
health care system, or the mental health care sys- sponded to by States. Neither the new program
tem. There is additional concern about the costs nor CASSP, however, address the needs of chil-
and personnel required when residential treatment dren with mental health problems that are not yet
is indicated, and about whether the school sys- severe or chronic. The analysis in this background
tems should be required to pay for the entire costs paper, like analyses of past national commissions,
of residential placements or only for the educa- suggests that the needs of such children are urgent.
tion-related costs (109). Evidence suggests that the
services available to mentally disturbed children Child and Adolescent Service System Program
through Public Law 94-142 vary considerably by
CASSP, administered by NIMH, is a direct re-
State (657). When this background paper was be-
sponse to the lack of coordination among the set-
ing written, a study was being conducted to de- tings and systems providing services to children
termine what related services, including mental with mental health problems. Modeled after the
health services, were being provided under Pub-
Community Support Program for the chronically
lic Law 94-142 (666). mentally ill, CASSP was created by Congress in
1984 after repeated findings that because of a lack
Coordination of Services of coordination among systems of care, the indi-
The State Comprehensive Mental Health vidual programs designed to assist mentally dis-
Services Plan Act of 1986 (Public Law 99-660) turbed children were frequently not used. The
goal of CASSP is to ensure the availability of a
In response to the perceived inadequacy and
comprehensive, coordinated system of care spe-
fragmentation of services for individuals who are
cifically for severely mentally disturbed children
perhaps most in need of coordinated mental health
and adolescents.
and other system services—the chronically men-
tally ill, Congress has passed legislation to en- Several themes developed earlier in this back-
courage a continuum of services and coordina- ground paper point to the need for coordinating
tion among agencies. The most recent legislation mental health and other children’s services. Dis-
in this vein is Public Law 99-660, the State Com- turbed children often have more than one men-
prehensive Mental Health Services Plan Act of tal health problem (e.g., an attention deficit and
1986, passed in November 1986. This law author- reading disorder that become apparent in school
izes a total of $20 million in grants to States for combined with aggressive behavior in the neigh-
fiscal years 1987 and 1988 for the development borhood). Many troubled children also have edu-
of State comprehensive mental health services cational, physical, legal, economic, or family
plans and provides direction on the content of problems in addition to their mental disturbance.
such plans. Perhaps most significant, State plans Given the interactions among disturbed children’s
are required to provide for the establishment and problems, effective intervention often requires the
implementation of organized community-based provision of a variety of multiple mental health
systems of care for chronically mentally ill indi- and other services. CASSP was based on the be-
viduals; and to require the provision of case man- lief that coordination among mental health treat-
agement to each chronically mentally ill individ- ment and other service systems is necessary to en-
ual. The law also expands the focus of the already sure that severely disturbed children receive all
existing Federal Community Support Program (in the services they need, organized into a compre-
NIMH) to include the homeless chronically men- hensive treatment plan, and timed to achieve op-
tally ill. timal beneficial effects.
141
CASSP is designed to improve States’ capaci- search, clinical research, the neuroscience, phar-
ties to offer aid to severely mentally disturbed chil- macological and somatic treatments, and psycho-
dren. CASSP assists States in developing systems social treatments. As shown in table 8, NIMH
of care through planning grants, as well as tech- estimates that roughly $27.2 million was made
nical assistance and training. States that receive available in fiscal year 1985 for intramural and
CASSP grants are required, initially, to develop extramural research relating to children’s mental
a child mental health authority and to organize health (665). This amount represents 17 percent
a “coalition” of State agencies whose work affects of NIMH’s research budget (see table 8).
children. Once a comprehensive State-level sys-
The main direct source of funds for training
tem is developed, the goal is to replicate the co-
mental health professionals to treat children is the
ordination effort at local levels.
clinical training program of NIMH. Since 1983,
It is too early to assess the effectiveness of the congressional appropriations committees have re-
CASSP grant program, but the program incor- quested that NIMH allocate a portion of its clini-
porates a number of elements of an ideal system cal training funds specifically to mental health
that have long been discussed. By focusing on the professionals who treat underserved populations,
organization of services, it advances the goals of including children. Because NIMH has limited
placing children in appropriate settings and hav- funds overall and commitments to continue ex-
ing providers make treatment decisions based on isting training grants, however, the impact on chil-
clinical needs rather than on maintaining fiscal sol- dren’s mental health services has only begun to
vency. CASSP is designed to help States develop be seen.
mechanisms which may differ across localities and
In fiscal year 1985, NIMH allocated approxi-
available resources, and it appears to be an im-
mately 15 percent of its clinical training funds,
portant mechanism to facilitate development of
or $4.8 million, to training programs dealing at
such locally controlled systems of care. As de-
least in part with children’s mental health issues
scribed in chapter 9 of this background paper,
(see table 8).
State authorities and NIMH are jointly develop-
ing an evaluation of CASSP’s effects. A major reason for targeting NIMH clinical
training funds to professionals who treat children
is that there appear to be insufficient numbers of
Research and Training well-trained professionals to meet children’s needs.
According to 1976 data (109), only 10 percent of
For research related to children’s mental health psychiatrists are specifically trained to treat chil-
and for training clinical and research professionals dren, and less than 1 percent of psychologists pri-
in this area, the Federal Government is virtually marily serve children. According to NIMH data,
the only source of funds. With few exceptions, there are approximately 3,000 child psychiatrists,
such as the MacArthur Foundation, neither philan- 5,000 clinical child psychologists, 7,000 child and
thropic foundations nor individual donors sup- family-oriented social workers, and 1,000 child/
port research or training in the mental health field family-oriented mental health nurses (358). Esti-
(309). SMHAs spend very little on research and mates of the numbers of professionals needed have
training. Some critics charge that the funds avail- consistently been much higher.
able to support mental health research are inade-
Funds for training mental health researchers (as
quate to take advantage of “exciting” research op-
opposed to clinicians) are available through NIMH
portunities or even to foster rational development
of the field (309). Research on childhood mental under authority of the National Research Serv-
disorders is frequently used as a prime example ices Awards Act (Public Law 93-348). Although
of the opportunities that are missed. the Institute of Medicine (309) has called for in-
creased funding of research training in children’s
Funds for research pertaining to children’s men- mental health, calling this a “relatively unstudied
tal health are available primarily through NIMH. area, ” only $1.1 million for training researchers
NIMH research grants are available for a range was available through NIMH in fiscal year 1984
of disciplines, including behavioral science re- (664).
— .——————
142
Information about the mental health training a variety of preventive health programs, includ-
funds available from agencies other than NIMH ing home health services, rape prevention and
is less clear. The Education for All Handicapped treatment services, and demonstration projects
Children Act (Public Law 94-142) includes Fed- specifically designed to deter consumption of al-
eral funding for training special education person- cohol among children and adolescents. Many of
nel, but this training is directed at all handicapping these programs serve an important prevention
conditions covered under the law. Although it is function for mental disorders.
certain that funds could be well used for profes-
Three other major Federal support programs
sional development in child welfare, juvenile jus-
have important effects on children’s mental health.
tice, and education agencies to promote the in-
The Title XX Social Services block grant provides
tegration of mental health services with these
funds to States for a wide variety of social serv-
related services, there are currently no major Fed-
ices to children and families, including day care,
eral programs to support this kind of integrative
protective services for children, family planning,
training.
adoption, and foster care. These services have
played a major role in the promotion of child wel-
Prevention and Other Services fare. The Adoption Assistance and Child Welfare
Act (Public Law 96-272) funds child welfare serv-
A number of Federal programs provide funds
ices, foster care, adoption assistance for hard-to-
that may be used to support delivery of mental
place children (including those who are emotion-
health treatment or that have a clearly positive
ally or intellectually handicapped), and has, in
or preventive role in children’s mental health.
general, been helpful in financing support serv-
These include the programs that primarily pro-
ices to aid children and families in crisis. Project
vide health services, as well as those providing
Head Start provides educational, social, health,
social services, nutrition assistance, and direct or
and nutrition services to low-income preschool
indirect financial payments.
children. The long-term effectiveness of Head
The Maternal and Child Health block grant is Start programs in preventing problems is now well
a Federal program that provides funds to the recognized (728; also see ch. 9).
States for services to mothers and children, par-
Among the other Federal programs that relate
ticularly in low-income families. Since adequate
to children’s mental health, directly or indirectly,
health care is vital for promoting normal and
are funding programs designed to enable individ-
healthy development in children, these block grant
uals to meet basic health, nutrition, and cost-of-
funds can play a significant role in the preven-
tion of mental illness in children. Medical care living needs. Such programs include the Child
Abuse Prevention and Treatment Act programs;
providers who treat children who have no link
Victims of Crime Act programs; Developmental
with mental health care providers through the
Disabilities Assistance and Bill of Rights Act pro-
schools or other agencies are often the first to iden-
grams; Family Planning programs; the Foster
tify emotional or psychological problems that
Grandparents Program; the Adolescent Family
may require treatment (see ch. 7).
Life Program; the Food Stamp Program; the Sup-
A Federal program related to the Maternal and plemental Food Program for Women, Infants, and
Child Health block grant, the Primary Care block Children; School Lunch programs; Aid to Fam-
grant, gives Federal funds directly to community ilies with Dependent Children; Supplemental
health centers for general health care services to Security Income; Child Support Enforcement pro-
medically underserved populations. These general grams; and income tax deductions for adopting
health care services provide a measure of preven- special-needs children. As part of the overall Fed-
tion and screening for mental health problems eral effort relevant to children’s mental health,
affecting children and their families, and provide these programs provide a considerable amount of
a point of contact with health care providers. Sim- assistance. It is not clear, however, that the assis-
ilarly, the Preventive Health and Health Services tance provided by these programs is coordinated
block grant provides Federal funds to States for so that individual children are protected. Previ-
143
ous analyses (e. g., 358,595), anecdotal evidence, of CASSP and experience under the State Com-
and observations of the experts consulted during prehensive Mental Health Services Plan Act will
the preparation of this background paper suggest suggest additional ways in which such coordina-
that a coordinated system for providing children’s tion can be implemented.
services would be helpful. Perhaps the evaluation
CONCLUSION
It is quite well estab ished that a great many
children are in need of mental health services—
both to treat diagnosable e disorders and to reduce
environmental risk factors (see ch. 2). It is also
agreed that children’s mental health services need
to be based on extensive and sound research;
guided by appropriately trained personnel; and
supported by sufficient funds and incentives to
encourage coordination among providers, includ-
ing those in non-mental-health systems.
Federal, State, local, and private contributions
to provision of mental health services are substan-
tial. The gap between the need for children’s serv-
ices and the availability of such services, however,
implies that even these considerable efforts fall
short of bridging the gap (e.g., 358,359). The men-
tal health services available for children appear
to be inadequate. In addition, research on chil-
dren’s mental health and illness appears to be in-
adequately funded.
Although local control of service delivery is be-
lieved to be optimal for the necessary case man-
agement of children with problems and potential
problems, and although the private sector could
arrange to provide more and better mental health
services, it may be that a larger role for the Fed-
eral Government is desirable. Such a role could
include a statement of principle for mental health Photo credit: OTA
analogous to that articulated for education in Pub-
lic Law 94-142, which mandates that all children
be guaranteed a free, appropriate education. It their impact on children, to continue to promote
could also include increased Federal efforts to coordination of services, and to fund research and
eradicate environmental risk factors or reduce training in the children’s mental health field.
Appendixes
Appendix A
147
148
Acknowledgments
OTA would like to thank the following people for their assistance in the development of this background
paper.
Richard Brunstetter Michelle Fine
National Institute of Mental Health University of Pennsylvania
Rockville, MD Philadelphia, PA
Lana Buck Judith Gardner
National Association of Private Psychiatric Boston, MA
Hospitals Ellen Greenberg Garrison
Washington, DC American Psychological Association
Barbara Burns Washington, DC
National Institute of Mental Health Howard Goldman
Rockville, MD National Institute of Mental Health
Anne Copeland Rockville, MD
Boston University Dennis C. Harper
Boston, MA University of Iowa
Mary Crosby Iowa City, IA
American Academy of Child and Adolescent Victor Indrisano
Psychiatry Office of U.S. Rep. Edward R. Roybal
Washington, DC Washington, DC
Phyllis Old Dog Cross Joseph Jacobs
Indian Health Service Bureau of Health Care Delivery and Assistance
Rapid City, SD U.S. Public Health Service
Felton Earls Rockville, MD
Washington University School of Medicine Judith Jacobs
St. Louis, MO National Institute of Mental Health
Glen Elliott Rockville, MD
Stanford University
Stanford, CA
149
List of Acronyms ceases or, if the stressor continues, when a new level
of adaptive functioning is achieved.
ADAMHA –Alcohol, Drug Abuse, and Mental Health Aftercare: Mental health services provided after the
Administration (DHHS) individual’s initial encounter with the mental health
ADM –Alcohol, Drug Abuse, and Mental Health care system (e. g., RTC treatment after psychiatric
(block grant) hospitalization).
CASSP —Child and Adolescent Service System Anorexia nervosa: A mental disorder characterized by
Program (NIMH) intense fear of becoming obese, disturbance of body
CDF —Children’s Defense Fund image, significant weight loss (accounted for by no
CHAMPUS —Civilian Health and Medical Program known physical disorder), refusal to maintain a
of the Uniformed Services minimal normal body weight, and the absence of
CMHC —community mental health center menstruation in females.
COBRA —Consolidated Omnibus Budget Recon- Anxiety disorders: A category of mental health dis-
ciliation Act orders characterized by a child’s intense feelings of
DHEW —U.S. Department of Health, Education, apprehension, tension, or uneasiness. These feelings
and Welfare (now DHHS) may result from the anticipation of danger, either
DHHS —U.S. Department of Health and Human internal or external. Anxiety is manifested by phys-
Services iological changes such as sweating, tremor, and
DISC —Diagnostic Interview Schedule for rapid pulse. Such disorders include phobic disor-
Children ders, obsessive compulsive disorders, and post-
DOD —U.S. Department of Defense traumatic stress disorders, as well as “generalized
DRG —diagnosis-related group anxiety disorders. ”
DSM-III —Diagnostic and Statistical Manual, 3rd Behavior disorders: A set of childhood-onset mental
ed. disorders characterized by behavior that disturbs
EPSDT —Early and Periodic Screening, Diagno- or harms the patient or others and which causes
sis, and Treatment program (Medicaid) distress or disability. Such disorders include atten-
FSCP —Family Support Center Program tion deficit disorder and conduct disorder.
GAO –General Accounting Office (U.S. Behavioral therapy: Psychotherapy based on the
Congress) assumption that a child learns persistent pathologi-
LOS —length of stay cal behavior from his or her experience with the
NASMHPD—Na;ional Association of State Mental social environment. Therapists using behavioral
Health Program Directors techniques systematically analyze the child’s prob-
NIMH –National Institute of Mental Health lem and environment and seek to change specific
(ADAMHA) problem behavior by altering the child’s envi-
OTA –Office of Technology Assessment (U.S. ronment.
Congress) Bulimia: A mental disorder characterized by binge
PDD —pervasive developmental disorder eating accompanied by an awareness that the eating
RTC —residential treatment center for emo- pattern is abnormal, fear of not being able to stop
tionally disturbed children eating voluntarily, and depressed mood and self-
SDD —specific developmental disorder deprecating thoughts following the eating binges.
SMHA —State Mental Health Agency Binges are usually terminated temporarily by abdomi-
nal pain, sleep, social interruption, or induced
vomiting.
Glossary of Terms Cognitive therapy: Psychotherapy based on a view
Adjustment disorder: A type of mental disorder that mental health problems should be treated
defined by DSM-III as “a maladaptive reaction to through altering the way children think about their
an identifiable psychosocial stressor that occurs behavior and their environments. Therapists at-
within three months of the onset of the stressor. ” tempt to change the thinking that takes place during
Adjustment disorders are manifest in impaired func- a child’s troublesome behavior and/or try to in-
tioning or in excessive reactions to the stressor, fluence how children think about themselves and
symptoms which typically remit after the stressor others.
150
151
Community mental health centers (CMHCs): Pro- family) because it is believed that a child cannot
grams initially established by the Federal Govern- change if the family as a whole does not change.
ment through the Community Mental Health Cen- Group therapy: A type of psychotherapy in which the
ters Act of 1963, to provide comprehensive mental focus is on helping individuals develop healthier
health services to all residents of a specified geo- ways of relating to other people, although therapy
graphic area regardless of their ability to pay. With groups serve other purposes.
the passage of the Alcohol, Drug Abuse, and Mental Inpatient treatment: Provision of mental health serv-
Health block grant, federally funded CMHCs ceased ices to persons staying in a hospital overnight.
to exist as legal entities, but Federal funds continue Integration of services: The establishment of inter-
to be provided indirectly via State Mental Health relationships among mental health and other service
Agencies. systems (e. g., the educational, health care, welfare,
Continuum of care: A coordinated system to provide and juvenile justice systems) so that programs to
comprehensive children’s mental health care at all prevent mental health problems can be offered,
levels needed. children in need of mental health services can be
Day treatment/partial hospitalization: Mental health identified, and mental health treatment can be pro-
treatment programs that provide extended care to vided at the site where problems are identified.
children who do not need 24-hour treatment but do Length of stay (LOS): The number of days between
require more intensive treatment than 1 or 2 hours the date of admission to a health care facility and
a week of therapy. One form of day treatment, the discharge date.
partial hospitalization, arranges care for children Mental disorder: In this background paper, any of the
who need the treatment offered in a psychiatric hos- diagnoses classified as mental disorders by the
pital during the day but are able to return home in American Psychiatric Association in the Diagnos-
the evening, tic and Statistical Manual of Mental Disorders
Developmental disorders: A set of mental disorders (DSM-III). Generally, DSM-III defines a mental dis-
characterized by deviations from the normal path order as a clinically significant behavioral or psy-
of child development. Such disorders may be per- chological syndrome or pattern that occurs in an
vasive, thereby affecting multiple areas of develop- individual and that is typically associated with ei-
ment (e. g., autism), or specific, affecting only one ther a painful symptom (distress) or impairment in
aspect of development (e. g., arithmetic disorder). one or more areas of functioning (disability).
Diagnostic Interview Schedule for Children (DISC): Mental health problem: In this background paper, ei-
A child-oriented version of the Diagnostic Interview ther a mental disorder or more general subclinical
Schedule, a questionnaire developed for use by the problem affecting mental health but not meeting the
National Institute of Mental Health for its epidemio- criteria for a diagnosable mental disorder.
logic catchment area survey of mental disability in Mental health services: Any of the wide range of
adults. services designed to meet mental health needs but
Eating disorders: Psychophysiological disorders char- primarily including therapies and prevention
acterized by disturbances in eating. Such disorders techniques.
include anorexia nervosa and bulimia. Neuroleptics: Any drug (e.g., certain tranquilizers)
Emotional disorders: Mental disorders characterized used to reduce psychotic behavior.
by the presence of an emotional problem and con- Neurosis: Currently, there is no consensus in the
siderable impairment of a child’s ability to function. mental health field as to the definition of neurosis,
Such disorders include anxiety and childhood de- and the category neuroses was not included in
pression. DSM-III although it had been included in previous
Encopresis: A psychophysiological disorder character- Diagnostic and Statistical Manuals. The term
ized by defecation at inappropriate times. neurosis is usually used to refer to emotional
Enuresis: A psychophysiological disorder character- disorders caused by unconscious conflict and char-
ized by involuntary bedwetting or other lack of acterized chiefly by anxiety.
control over urination. Outpatient treatment: Provision of mental health
Family therapy: A type of psychotherapy based on the services on an ambulatory basis to persons who do
idea that a child’s problems are manifestations of not require 24-hour or partial hospitalization.
disturbed interactions within a family rather than Settings for outpatient treatment include commu-
problems that lie within the child alone. Treatment nity mental health centers and private mental health
heavily involves other family members as well as practices.
the child (e.g., in sessions attended by the entire Primary prevention: Efforts to avert mental health
152
problems altogether. For children, these efforts Secondary prevention: Efforts to detect mental health
include interventions directed at parents and edu- problems in their early stages of development and
cators. to apply techniques to reduce the severity and
Private psychiatric hospital: A hospital operated pri- duration of incipient problems.
vately by individuals, partnerships, corporations, State and county mental hospital: A psychiatric hos-
or nonprofit organizations, primarily for the care pital that is under the auspices of a State or county
of persons with serious mental disorders. government, or operated jointly by both a State and
Psychodynamic therapy: Psychotherapy based on the county government.
theory that changes in cognition and emotions will State Mental Health Agencies (SMHAs): Agencies
be followed by changes in behavior. under the auspices of State governments, staffed
Psychopharmacological therapy: Therapy involving through the State, and offering mental health
the use of psychoactive medications such as stimu- services to State residents in need of mental health
lants, antidepressants, or neuroleptics. care. State mental health agencies may supervise
Psychophysiological disorders: Mental health disor- State mental hospitals, CMHCs, RTCs, and/or day
ders that involve a disturbance in some aspect of treatment facilities.
bodily functioning usually involving a combination Stereotyped movement disorders: Psychophysiological
of mental and physical factors. Such disorders disorders characterized by involuntary movements
include stereotyped movement disorders; eating of bodily parts (i. e., tics).
disorders such as anorexia and bulimia; and enuresis Substance use/abuse disorders: A set of mental
and encopresis. disorders characterized by maladaptive behavioral
Residential treatment center (RTC): A residential fa- changes resulting from regular use of substances
cility, not licensed as a psychiatric hospital, whose that affect the central nervous system. Substance
primary purpose is the provision of individually use and abuse disorders are not classified as child-
planned programs of mental health treatment hood-onset mental disorders by DSM-III, but
services in conjunction with residential care for children can be afflicted by them.
children and youths primarily under the age of 18. Tertiary prevention: Attempts to arrest further dete-
The term used by NIMH is “residential treatment rioration in individuals ‘who already suffer from
centers for emotionally disturbed children, ” but severe mental health problems (disorders).
children with other mental disorders are also treated Treatment can be considered tertiary prevention.
in these facilities. The term is not used in this background paper.
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