Professional Documents
Culture Documents
ORPHAN DISEASES
Maddi
Durrett,
Sarah Wells,
and Drew
Beathard
OUR MISSION
To raise money for rare disease research
To advocate for the issue of rare
diseases
To inspire others to donate to and get
involved with Beyond Batten Disease
Foundation
To plant the idea that rare diseases are
an issue needing the communitys
attention
POTENTIAL COURSES
OF ACTION
Attraction,
impact,
audiences,
pros, and
cons of each
idea
Cons
Boring
No incentive to attend
Cons
Diffi cult to
Large time
Diffi cult to
Potentially
Cons
FUNDRAISING DINNER
Attraction: food, friends, helping others
Impact: fi nancial donations to organization of choice,
advocacy
Audience: primarily adults (esp. those affi liated with
Austin High, Casis, O. Henry, and BBDF)
Pros
Reach a more sophisticated crowd with more willingness to give
Direct advocacy
Talk from our group, and possibly an address from Mrs. Kiser and/or
Dr. Kerkovich
Cons
Diffi cult to arrange
Challenge to compete with the many popular fundraising
dinners and galas among this specifi c group of adults
Cons
Dependent on Mr. Terrys willingness to donate
ORGANIZATIONS TO
BENEFIT
Their impact
and the pros
and cons of
our
partnership
Pros
Connections with Mary Beth Kiser
Connections with various members of the BBDF Board
Cons
Primarily focuses on one orphan disease
Needs money and a lot of it
Already have a lot of popular fundraisers that might be diffi cult to
compete with
Cons
No connections (detached)
FASTER CURES
Mission: to speed up the medical research process
Pros
Working to target the root of the issue (medical research)
Organizes conferences for scientists
In communication with BBDF (connections through Mrs.
Kiser)
Cons
Not rare disease specifi c
Do not have a large fundraising component, paid
membership instead
OUR PLAN
P. TERRYS PARTNERSHIP TO
BENEFIT BBDF
Percentage of all proceeds for a day at the P.
Terrys on Lamar will be donated to Beyond
Battens Disease Foundation
Dependent upon how much Mr. Terrey is willing to
donate
COMMUNICATION PLAN
Ad v e r t i s i n g t h e e v e n t
Facebook event page
Fliers around school, Casis village Starbucks (bulletin board), Casis Elementary, O.
Henry
Beyond Batten Disease Foundation newsletter and email chain
Mass email to AGS families
West Austin News (Mrs. Alam)
Pemberton Journal
KVUE night beat (Mike Barnes)
Word of mouth at school (COME TO P.TERRYS ON THIS DATE)
A ud i e n c e s
People of all ages dine at P. Terrys (parents, children, high schoolers)
Both buyers and sellers will be reached
SUPPLEMENTAL EVENT
As a group, we are going to spend an afternoon with
Christiane
Christiane will get to design her ideal days fun and
that is what we will take her to do
Impact: Let Christiane know that she is cared for, fun
Idea suggested by Mrs. Kiser