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FORMULATE A PLAN:

ORPHAN DISEASES

Maddi
Durrett,
Sarah Wells,
and Drew
Beathard

OUR MISSION
To raise money for rare disease research
To advocate for the issue of rare
diseases
To inspire others to donate to and get
involved with Beyond Batten Disease
Foundation
To plant the idea that rare diseases are
an issue needing the communitys
attention

POTENTIAL COURSES
OF ACTION

Attraction,
impact,
audiences,
pros, and
cons of each
idea

PUBLIC INFORMATION SESSION

Attraction: new knowledge


Impact: awareness, encourage donations
Audience: high school students and adults
Pros
Speakers from other organizations
Concentrated, controlled audience
Successfully get across key information

Cons
Boring
No incentive to attend

FLAG FOOTBALL TOURNAMENT


Attraction: fun, socializing, food, prizes
Impact: fi nancial donations to organization of choice
Audience: high school/middle school/elementary school
students and their families
Pros

Fun involvement for participants


Raises money and spreads awareness at the same time
Large community interaction
Reaches all ages if advertised eff ectively
Sponsors (involve local businesses)

Cons

Diffi cult to
Large time
Diffi cult to
Potentially

eff ectively spread advocacy


and coordination commitment
organize/coordinate teams and their payment
small donation benefi ts

ON CAMPUS BAKE SALE


Attraction: food
Impact: fi nancial donations to organization of choice,
awareness
Audience: Austin High students and teachers
Pros
Straightforward
Reaches out to AHS community

Cons

Potentially small monetary benefi t


Doesnt reach community beyond AHS
Diffi cult to successfully advocate in the process
Not using all of our resources to make the largest impact
possible

FUNDRAISING DINNER
Attraction: food, friends, helping others
Impact: fi nancial donations to organization of choice,
advocacy
Audience: primarily adults (esp. those affi liated with
Austin High, Casis, O. Henry, and BBDF)
Pros
Reach a more sophisticated crowd with more willingness to give
Direct advocacy
Talk from our group, and possibly an address from Mrs. Kiser and/or
Dr. Kerkovich

Cons
Diffi cult to arrange
Challenge to compete with the many popular fundraising
dinners and galas among this specifi c group of adults

LOCAL BUSINESS PARTNERSHIP


Attraction: food, charity, socializing
Impact: fi nancial donations to organization of choice,
advocacy
Audience: all P. Terrys consumers (adults, children,
teenagers, UT students), P. Terrys employees
Pros
P.Terrys connection
Reaches very wide group, buyers and sellers included

Partnering with an already successful institution


Gives legitimacy to issue and capstone group
Possibility of designing stickers to be used during allotted time
Reliable audience (people will go eat at P. Terrys)

Cons
Dependent on Mr. Terrys willingness to donate

ORGANIZATIONS TO
BENEFIT

Their impact
and the pros
and cons of
our
partnership

BEYOND BATTENS DISEASE


FOUNDATION
Mission: fi nd a cure for Battens Disease through funding
research and encouraging collaboration among researchers
Also to aid in the prevention and diagnosis of rare diseases
through genetic diagnostic testing

Pros
Connections with Mary Beth Kiser
Connections with various members of the BBDF Board

Reaches signifi cant amount of West Austin community


Specifi c emotional appeal
Targets the root of research and collaboration

Cons
Primarily focuses on one orphan disease
Needs money and a lot of it
Already have a lot of popular fundraisers that might be diffi cult to
compete with

NATIONAL ORGANIZATION OF RARE


DISEASES
Mission: advocacy, research, and community for those
with rare diseases
Pros

Partners with many rare diseases


Some involvement with legislative advocacy
National scale
Community for rare diseases
Resources for families and individuals

Cons
No connections (detached)

FASTER CURES
Mission: to speed up the medical research process
Pros
Working to target the root of the issue (medical research)
Organizes conferences for scientists
In communication with BBDF (connections through Mrs.
Kiser)

Cons
Not rare disease specifi c
Do not have a large fundraising component, paid
membership instead

OUR PLAN

P. TERRYS PARTNERSHIP TO
BENEFIT BBDF
Percentage of all proceeds for a day at the P.
Terrys on Lamar will be donated to Beyond
Battens Disease Foundation
Dependent upon how much Mr. Terrey is willing to
donate

We will declare it local Battens Disease Day


Advocacy component set up throughout the day
at the P. Terrys location
Goal: get as many people to P. Terrys on this
day as possible in order to increase monetary
gain and increase size of audience able to be
reached

COMMUNICATION PLAN
Ad v e r t i s i n g t h e e v e n t
Facebook event page
Fliers around school, Casis village Starbucks (bulletin board), Casis Elementary, O.
Henry
Beyond Batten Disease Foundation newsletter and email chain
Mass email to AGS families
West Austin News (Mrs. Alam)
Pemberton Journal
KVUE night beat (Mike Barnes)
Word of mouth at school (COME TO P.TERRYS ON THIS DATE)

Communication at the event


Booth set up outside of P. Terrys location for those interested in learning more
Fliers to hand out
Succinct and informative poster to catch peoples eyes

Logo sticker with QR Code leading directly to our website


Small info card given out with all orders

A ud i e n c e s
People of all ages dine at P. Terrys (parents, children, high schoolers)
Both buyers and sellers will be reached

SUPPLEMENTAL EVENT
As a group, we are going to spend an afternoon with
Christiane
Christiane will get to design her ideal days fun and
that is what we will take her to do
Impact: Let Christiane know that she is cared for, fun
Idea suggested by Mrs. Kiser

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