Order Form/List of Literature and Information

Available from The Neurofibromatosis Association
All information is provided free of charge. A small donation towards postage and packaging would be appreciated. Please return the order form to: The Neurofibromatosis Association Quayside House 38 High Street Kingston on Thames Surrey KT1 1HL Fax: 020 8439 1200 E-mail: info@nfauk.org

Tel: 020 8439 1234

Name: _______________________________________ Profession: _________________________ Address: _________________________________________________________________________ ________________________________________________________________________________ Post Code: __________________ Telephone No: ________________________________________

Neurofibromatosis Type 1
Clinical guidelines for the management of individuals with Neurofibromatosis 1 (for professionals only) Neurofibromatosis Type 1 (Nf1) – A guide for families who have a diagnosis of Nf1 (new) The newly diagnosed child with Neurofibromatosis Type 1 (Nf1) – a guide for parents (new) The child with Neurofibromatosis – a guide for health care professionals Talking to children about Neurofibromatosis Nf1 – Information for teachers ‘Achieving in spite of …’ (a booklet on specific learning difficulties) Examples of the problems experienced by some children with Nf1 and learning difficulties Challenging behaviour Developmental co-ordination disorder Disorders of bonegrowth and soft tissue changes Congenital pseudarthrosis Nf1 and scoliosis ‘Polly’s best friend’ by Gina Malyon (for girls under 10) ‘The winning goal’ by Gina Malyon (for boys under 10)

Neurofibromatosis Type 2
Neurofibromatosis Type 2 Information for patients and professionals (booklet) Neurofibromatosis Type 2 Information for patients (booklet) Communication and Nf2 Coping with fatigue in Nf2 Help with speech difficulties in Nf2 Stereotactic radiosurgery and radiotherapy for Nf2 vestibular Schwannomas The auditory brainstem implant (ABI) Information on the LINK Centre for deafened people The hearing therapist Tinnitus Understanding balance in Nf2

Factsheets covering both Nf1 and Nf2
Membership information The role of the Nf Specialist Advisor How to get the best out of your health professional Pain management The CT scan The MRI scan The PET scan

Newsletters
Winter 05 - 06 Spring 06 Summer 06

Annual Report
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