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About Me
I am the Portland, Oregon Chapter Lead for Autistic Self-Advocacy Network. I was diagnosed with Asperger syndrome five years ago, at age 44. I am originally from Brooklyn, New York, and have a Bachelor in Fine Arts in Dramatic Writing from New York University. I have a domestic partner, two cats, and no human children.
Summary of Contents
The conflict between wanting to make personal connections with others and feeling unable to do so Making connections with other autistic people Making connections with nonautistic people Whether and when to disclose your autism to new people Using art and performance as social tools
Some people believe that autistic people arent interested in making connections with others.
Spoiler: Its not true.
There is a percentage of people in the autistic population who are introverted and/or 'antisocial'. It's important for people to remember that there are plenty of non-autistic people who are also introverted and/or antisocial.
Many of us do want to connect, however, many of us have expressed that trying to follow 'unsaid rules' that are standard for non-autistic people is problematic. Following the general social etiquette and rules can be easy for some people on the spectrum and much more difficult for others.
Before I was diagnosed in my forties, every single social encounter I had was fraught with terror. My brain was filled with so many distractions!
Can You Spot a Fellow Autistic on Sight? (Or, Hows Your A-dar Working?)
Rocking back and forth or side to side Bobbing head even when theres no music Flapping hands or feet (when sitting) Sitting unusually still, even when everyone else is moving Moving around a lot even when everyone else is sitting still Staring into space or at the floor or at a random object (especially when the room has a focus like a speaker or musician) Averting eyes when talking to people Having either a monotonous or unusually animated (as if imitating non-autistic people) vocal delivery, or putting emphasis on words like a and the
Toying fairly obviously with clothing or jewelry Biting hands or fingers or lips Twisting or wriggling fingers around repetitively Not being able to mask physical discomfort like a stomachache or headache (clutching head or stomach) Staring intently around the room like theyre trying really hard to read whats going on Staring intently at the people theyre talking to, like theyre trying really hard to read those people Being visibly startled by sudden loud or high-pitched noises Looking like theyre holding something in Laughing a few seconds after everyone else gets a joke
So What Do I Say?
Some things that might work when trying to connect with someone:
Joel Smith, on the now-defunct blog NTs are Weird, once said that when his own A-dar goes off, he flaps where the other person can see it. Not all autistics flap, but if indeed you have similar mannerisms to that person, it couldnt hurt to mirror them silently in that persons presence and smile at them. (I wouldnt, however, mimic a mannerism that doesnt come naturally to you.) Crack a joke in their presence, if you have the natural ability to do so (I do this often). Or, you could repeat a joke someone else has told at that gathering, or a line from a song or movie related to the event, that you found amusing. Some autistics are humor-challenged, but many are not, and simply have a different sense of humor from most people they know. Maybe theyll find the same thing funny that you do!
If the person is wearing a button or article of clothing or has a bumper sticker on their vehicle that resonates with you, compliment them on it, ask where they got it, or start talking about the subject of the button or t-shirt or bumper sticker if you know something about it. (If you can, try to pause a few seconds after youve said one or two sentences, so they can have a chance to respond. It might take them an extra moment to figure out what they want to say.) Slip them a note. Be careful about this, because you dont want to overwhelm them. But sometimes it can be easier to tell someone in writing that youd like to meet them than tell them face to face. Make it brief, something like, Hi, I saw you kind of grooving to those J-pop songs. I love J-pop too. We might be the only ones here who do! If you want to come over and talk to me, please do.
THERE IS NO NORMAL.
Some kinds of people accept eccentricity and difference more than others.
Be Yourself
Self-Disclosure
If people ask what you do, you can tell them, Im a disability self-advocate. If you belong to a group like ASAN (Autistic Self-Advocacy Network), or some other disability rights group or disabilityrelated social group, you can mention that. You can do a presentation or performance that mentions your autism, if its the right venue for it. If people mention their diagnoses (e.g. ADHD, depression, anxiety), thats a great opening for you to mention your own.
Sometimes its easier to write it, play it, paint it, or sing it than say it.
If you go to school, taking out a guitar or other portable instrument at school and playing while not in class. Creating murals. Being involved in some form of dance. Writing plays or scripts (theatre and film are collaborative media).
Remember: While connections are sometimes instantaneous, usually they arent. Let things unfold in their own time.
Letting new people in your life can be scary and stressful. But it can also be enriching, profound, and even profitable! And autistic people deserve friends and colleagues as much as anyone else does, if you want them.
Questions?
Andee Joyce andeejr@gmail.com
Continue the discussion through our FORUMS! You will receive an email shortly with a link to our discussion board. The PowerPoint and recording will also be provided in this email. Email Phuong (pnguyen@autismnow.org ) if you experience any issues.
Website: www.autismnow.org Information & Referral Call Center: 1-855-828-8476 Next Webinar: Tuesday, September 18, 2012, 2:00-3:00 PM, EDT Moving Beyond Subminimum Wages, presented by SABE