WORLD ALZHEIMER S DAY , 21 St, September,2012 theme DEMENTIA: LIVING TOGETHER at Jawaharlal Nehru Institute of Medical Science, Imphal

Jonitly Organised by : Alzheimer s and Related Disorder s Society of India,Manipur Chapter & National Alliance for Elder s People Livelihood Research Advocacy and Chronic Diseases of India
Kmr. Ak. Mirabai Devi Hon'ble Minister, Social Welfare & Co-operation Manipur Smt. Okram Landhoni Devi Hon'ble M.L.A, Khangabaok A/C Smt. R.K. Nayansana Devi Chief Editor & Chairperson, Manipur State Social Welfare Board Govt. of Manipur. Dr. M. Shyamo Singh OSD & Prof.and HOD, Anatomy, jnims, Imphal Dr. K. Shantibala Devi Vice- Chairperson & Scientific Chief Patron Editoral Member, National Alliance for Elder's People Livelihood ResearAdvocacy & Chronic Disease of India

PROCEEDINGS OF THE WORLD ALZHEIMER'S DAY PROGRAMME ON 21ST SEPTEMBER 2012 At JAWAHARLAL NEHRUINSTITUTE OF MEDICAL SCIENCE (JNIMS),IMPHAL, MANIPUR(INDIA).

The World Alzheimer s Day 21st September 2012 was observed in the theme of Dementia: Living Together with the main focus of this year on STIGMA AND ALZHEIMER S DISEASE, at Jawaharlal Nehru Institute of Medical Science (JNIMS),Imphal, Manipur. World Alzheimer s Day was conducted and coordination by National Alliance for Elder s People Livelihood Research Advocacy and Chronic Diseases of India & Alzheimer s and Related Disorders Society of India, Manipur Chapter, Imphal

The Programme started with the welcome address to all participants by Shri H. Sanamatum Singh, General Secretary, National Alliance for Elder s People Livelihood Research Advocacy and Chronic Diseases of India & Alzheimer s and Related Disorders Society of India, Manipur Chapter, Imphal. Kmr A.K. Mirabai Devi, Hon ble Minister, Social Welfare and Co-operation Manipur, Smt. Okram Landhoni Devi, Hon ble, MLA Khangabok Assembly Constituency, Smt. R.K. Nayansana Devi, Hon ble Chairperson & Chief Editor, Manipur State Social Welfare Board, Govt. of Manipur Prof.S.Shyamo Singh,OSD&Head,Anatomy Department, Jawaharlal Nehru Institute of Medical Science,Imphal & , Dr. .K. Shantibala Devi, Asst. Prof, Psychiatry Department JNIMS & Vice-Chairperson & Scientific Chief Patron Editorial Team, National Alliance for Elder s People Livelihood Research Advocacy and Chronic Diseases of India, graced the observation programme of World Alzheimer s Day 21 st September 2012 as Chief Guest, President and Guests of Honour respectively. All the dignitaries spoke about the disease, the importance of understanding and need to help Alzheimer s Patient and their care-givers.

The Programme was attended by Doctors and Nurses, staff of institute, Senior Citizens , Social workers, World Vision, CFAR, PFI, SAATHII, EHA, State Programme Manager, Representatives of NGOs, Anganwadi Workers, ASHA Workers and Government Officials besides the Media Groups .

The guest of honour Dr. K. Shantibala Devi, Asst. Prof. Department of Psychiatry, JNIMS & Vice- Chairperson & Scientific Chief Patron Editorial Team, National Alliance for Elder s People Livelihood Research Advocacy and Chronic Disease of India, Spoke at length about Alzheimer s Disease and the Importance of Observing World Alzheimer s Day. A short excerpt is given below: Alzheimer s disease is the most common of all dementing diseases (50% -60%) and affects people who are above 65 years with 15% having mild symptoms and 5% severe type. After 80 years the affected percentage is 20 to 40. In Alzheimer s disease there is an increased degeneration of brain cells or neurons leading to impairment in overall functions of the brain. Alzheimer s disease affects both men and women but a woman suffers more. Genetic factor is important for Alzheimer s disease have family history of parents close relatives having had the disease. The disease starts gradually with the initial complaints of fatigue, low energy and forgetfulness which are of immediate and recent memory. Untreated, the disease progress fast with symptoms of disorientation, personality changes, depression and anxiety (40% -50%), hallucination and delusion (20% - 30%),language problem, inability to carry out motor activities and failure to identify objects . At the terminal stage the patient becomes vegetative, with incontinence, and seizure in about 10%. Survival expectation of Alzheimer s disease is an average 8 years (1-20 years). The need of the hour is awareness that elderly people are at risk of developing Alzheimer s disease and there are 38 million people suffering from Dementia globally and projected to be double by 2030 and more than triple by 2050(115 million). Early detection by family members and medical consultation will help in improving the health status. Though there is no complete cure for Alzheimer s disease, there are several medicines that may delay or arrest rapid

deterioration. Caregivers need to know about the illness so as to give optimum comfort and care to Alzheimer s Patient. Caring for such patient is also very stressful to the family members and therefore requires mental health professionals help and counselling.

Considering the suffering of the Alzheimer s Patients and stress on the caregivers, it s time we join hand to help alleviate the burden, Every section of the society as well as Governmental, non-government, medical community representatives etc need to come up with policies and programmes for elderly people who needs special attention and care.

Let us help the Elderly of our society and particularly Alzheimer s patient live in dignity. They have every right to be loved, cared and respected. Besides the dignitaries, representatives of North East States in India have Specifically recommended the following points:1. Old-age home for the elderly women is to be provided by the Government and separate homes for physically challenged, and mentally retarded, Alzheimer s and Dementia, of elderly women. Provide public information about the symptoms, treatment and course of the disease. Reduce stigma by promoting understanding and awareness. Provide training and tools to healthcare professionals (including social workers) and family caregivers, to encourage early identification, diagnosis, appropriate care, and access to optimal treatment. Provide access to primary and secondary health care services, responsive to the needs of people with dementia. Promote access to and arrangement of options for long-term care that prioritize maintenance of independence, home and community-based care and support for family careers.

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Make all care environments, including (acute) hospitals and long term care institutions safe places for people with the disease. Encourage the fullest possible participation of those living with the disease, in the life of their communities and in decisions about their care. Ensure a standard of living adequate for health and well-being, including food, clothing, housing and medical care for people with the disease. Provide a legislative framework to regulate and protect the rights of those people with dementia who lack the capacity to manage their everyday lives. Media persons should be made aware of and be educated on the issue and challenges faced by the elderly women in the family and society. The Government should provide recreation centres for the elderly women including religious norms and practices to be observed by the elderly women belonging to different religion. Incentives are to be given for the formation of Self Help Group (SHG s) of elderly women by the concerned departments of Manipur and the Central Govt. and other funding agencies. Awareness programmes to promote greater understanding that the risk of the disease can be reduced. Prioritize research into Alzheimer's disease and other dementias. Elderly women s access to Nutritional Support. Alzheimer s/Dementia related information implementation in Education System. Policy for Alzheimer s/Dementia Affected Family Members Livelihood Development Programme.

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Dr. K. Shantibala Devi, Vice-Chairperson & Scientific Chief Patron Editorial Team, National Alliance for Elder s People Livelihood Research Advocacy and Chronic Disease of India

Copy to: 1. 2. 3. 4. 5.

The Hon'ble President, Govt. of India. The Hon'ble Prime Minister, Govt. of India. The Hon'ble Speaker, Lok Sabha, Govt. of India. The Hon'ble Chairman, Rajya Sabha, Govt. of India. The Hon'ble Minister, Health & Family Welfare, Govt. of India. The Hon ble Minister Ministry of Women and Child Development Govt. of India The Hon'ble Minister, Ministry of Social Justice & Empowerment, Govt. of India. The Hon'ble Chairperson, Commission, New Delhi. The Hon'ble Chairperson, Women, New Delhi. National Human Rights

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World Health Organisation, India Office. World Bank, India Office. United Nation Development Programme Office India. The Hon ble Chairperson Social welfare Board whole North East State in India The Director Department of Social Welfare whole North East State in India

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Dr. K. Shantibala Devi, Vice-Chairperson & Scientific Chief Patron Editorial Team, National Alliance for Elder s People Livelihood Research Advocacy and Chronic Disease of India

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