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Antea Worldwide Palliative Care Conference

Rome, 12-14 November 2008

ABSTRACT FORM

Presenting author Palliative Care for People with AIDS
Joan Marston
Authors (max 6, presenting author included): Joan Marston
Email:
joan@hpca.co.za
Palliative interventions for people with HIV infection should be introduced from the time of
Phone diagnosis to promote the best possible quality of life and relieve their holistic distress . People
with HIV require psycho-social support to promote resilience and strengthen their capacity to
cope with multiple loss. Research in South Africa shows that 98% of people with AIDS will
Mobile phone experience pain from a variety of sources. Holistic pain and distress require a holistic approach to
care. Palliative care should be provided along with anti-retroviral therapy as the person with HIV
may still require pain and symptom management as well as supportive care.
Children with HIV are especially vulnerable and require health-promoting and preventive
Please underline the most interventions as part of palliative care, such as co-trimoxazole prophylaxis from birth to 12
appropriate category for your months and nutritional support.
abstract In Africa, social circumstances such as living with sick parents; orphan hood; poverty and lack of
adequate care act as barriers to the provision of palliative care and access to anti-retroviral
• Pain and other symptoms
therapy. Elderly grandmothers and older siblings struggle to meet the child’s basic requirements
• Palliative care for cancer patients ,and children often die of diarrhoeal disease, severe malnutrition and tuberculosis. Children
• Palliative care for non cancer require pain management during the course of the condition and at the end of life, but few can
patients access the necessary drugs. Access to morphine is difficult in most countries in Africa and few
• Paediatric palliative care people are trained to provide adequate palliative care. Even fewer have the skills to provide
palliative care and pain relief for children. A new textbook for palliative care for children in
• Palliative care for the elderly
Africa has been completed together with a Toolkit for the provision of palliative care for children
• The actors of palliative care
in Africa. These will be the basis for a training curriculum for members of the multi-disciplinary
• Latest on drugs team
• Pain Loss and bereavement related to AIDS may often be complex due to the stigma attached to the
condition, and families where many members are infected and die of AIDS. Large numbers of
• Illness and suffering through children left orphaned has meant bereavement interventions must reach many children Palliative
media care and hospice programmes include prevention education, advisory services, counselling and
clinical care for people living with AIDS and support into the bereavement period as well as for
• Marginalisation and social stigma
children orphaned and made vulnerable by AIDS..
at the end of life
• Palliative care advocacy projects

• Prognosis and diagnosis
communication in
different cultures
• Communication between doctor-
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
palliative care policies
and law
• Palliative care: from villages to metropolies

• Space, light and gardens for the terminally ill patient
• End-of-life ethics
• Complementary therapies Session: Non Cancer palliative care
• Education, training and research
• Fund-raising and no-profit Chair of the session: Dott. Fantoni
• Bereavement support
• Volunteering in palliative care
• Rehabilitation in palliative care