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Antea Worldwide Palliative Care Conference

Rome, 12-14 November 2008

ABSTRACT FORM

Presenting author PALLIATIVE CARE DEVELOPMENT IN AFRICA
Faith M. Powell
Authors (max 6, presenting author included): Faith M. Powell
Email:
faith.mpowell@apca.co.ug
By December 2004 an estimated 39.4 million people globally were living with human immuno-
Phone deficiency virus / Acquired Immuno-deficiency Syndrome (HIV/AIDS).1 Sub-Saharan Africa
continues to be the worst affected region, with an estimated 65% of people living with HIV/AIDS
originating from this resource-constrained region. The majority of the 2.3 million sub-Saharan
Mobile phone Africans who died from HIV/AIDS in 20041 received inadequate care and pain alleviation for
their physical and psycho-social conditions, whilst simultaneously enduring minimal dignity
throughout the disease trajectory.2 As with all health care services, people in Africa have a
disproportionate need for and access to palliative care services3 compared to people in developed
Please underline the most countries that has to be addressed.
appropriate category for your The number of patients affected by cancer across the continent is also increasing rapidly. With
abstract delayed diagnosis for some forms of curable cancers, inadequate available resources to treat those
diagnosed in time, and with limited access to ARVs for HIV/AIDS patients, many die in pain and
• Pain and other symptoms
without support. Palliative care, which is both affordable and appropriate therefore becomes a
• Palliative care for cancer patients critical component of the total response to life-limiting illnesses in sub-Saharan Africa but it
• Palliative care for non cancer remains under-developed.
patients
• Paediatric palliative care Palliative care has been advocated as an essential component of the spectrum of care for people
living with HIV/AIDS ‘because of the variety of symptoms they can experience – such as pain,
• Palliative care for the elderly
diarrhoea, cough, shortness of breath, nausea, weakness, fatigue, fever, and confusion. Palliative
• The actors of palliative care
care is an important means of relieving symptoms that result in undue suffering and frequent
• Latest on drugs visits to the hospital or clinic. Lack of palliative care results in untreated symptoms that hamper
• Pain an individual’s ability to continue his or her activities of daily life. At the community level, lack
of palliative care places an unnecessary burden on hospital or clinic resources.’ 4 Moreover, a
• Illness and suffering through recent systematic review of patient outcomes in HIV palliative care found significant
media improvements in pain and symptom control, anxiety, patient insight, and spiritual well-being.5
• Marginalisation and social stigma
Despite being pivotal to HIV/AIDS care, and the supportive evidential base, current palliative
at the end of life
care service provision across Africa is at best inconsistent and at worst wholly inadequate, often
• Palliative care advocacy projects
reduced to isolated centres of excellence.
• Prognosis and diagnosis
communication in The whole presentation provides an overview of palliative care development in Africa offering
different cultures some of the success stories, challenges and opportunities of scaling-up palliative care in Africa.
• Communication between doctor-
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
palliative care policies
and law
• Palliative care: from villages to metropolies

• Space, light and gardens for the
Session: Palliative care around the world
terminally ill patient
• End-of-life ethics Chair of the session: Dott. Davi Praill, Dott. Lukas Radbruch
• Complementary therapies
• Education, training and research
• Fund-raising and no-profit
• Bereavement support
• Volunteering in palliative care
• Rehabilitation in palliative care
• Palliative care around the world