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Antea Worldwide Palliative Care Conference

Rome, 12-14 November 2008

ABSTRACT FORM

Presenting author DEBATING THE EFFICACY OF RESEARCH METHODS IN PALLIATIVE CARE: THE
CONTRIBUTION OF PSYCHOLOGY
Sheila Payne
Email: Authors (max 6, presenting author included): Sheila Payne
s.a.payne@lancaster.ac.uk

Phone Aim:
This session will enable participants to have:

Mobile phone • An introduction to the main research designs and methods used in psychology and their
application to palliative care
• An appreciation of the methodological and practical challenges of conducting research
in palliative care
Please underline the most • A discussion of the ethical sensitivity of research with patients and families who are
appropriate category for your nearing the end of life
abstract • An overview of the strategies to successfully develop a research grant proposal and
obtain funding
• Pain and other symptoms
• A debate on how to establish a research group and the role of psychologists within the
• Palliative care for cancer patients group.
• Palliative care for non cancer
patients Discussion:
• Paediatric palliative care
The session will employ interactive techniques to engage participants in addressing the five aims.
It will draw upon the international expertise of the participants to help develop core curriculae on
• Palliative care for the elderly
research designs and methodologies based on sound psychological principles that may be used in
• The actors of palliative care
palliative care contexts. Using a series of structured questions for debate including: what
• Latest on drugs research designs are suitable for answering psychological questions in palliative care? This will
• Pain include advice on how to develop appropriate research questions. What are the methodological
and practical challenges of conducting research in palliative care, including sampling,
• Illness and suffering through recruitment, gate-keeping, and attrition. There will be a discussion on ethical issues in palliative
media care, including consent, ascent and confidentiality, and cultural sensitivities. There will be
practical tips on how to develop grant applications and discussion of potential sources of funding.
• Marginalisation and social stigma
Finally the session will end with a debate on the role and contributions of psychologists in
at the end of life research groups in palliative care.
• Palliative care advocacy projects

• Prognosis and diagnosis Conclusions:
communication in Improving the quality and quantity of research in palliative care is an urgent requirement and it
different cultures will be argued that psychological research methods and techniques provide a strong foundation
from which to build.
• Communication between doctor-
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
palliative care policies
and law
• Palliative care: from villages to metropolies

• Space, light and gardens for the
Session: Workshop on core curricula
terminally ill patient
• End-of-life ethics Chair of the session: Dott. Junger Saskia
• Complementary therapies
• Education, training and research
• Fund-raising and no-profit
• Bereavement support
• Volunteering in palliative care
• Rehabilitation in palliative care
• Workshop on core curricula