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Antea Worldwide Palliative Care Conference

Rome, 12-14 November 2008

ABSTRACT FORM

Presenting author CIVIC ENGAGEMENT IN THE STRUGGLE AGAINST UNNECESSARY SUFFERING
Teresa Petrangolini
Author: Teresa Petrangolini
Email:
mail@cittadinanzattiva.it
It is now commonly accepted the need to change the culture surrounding pain and suffering
Phone though there remains much to do in deconstructing the myths and prejudices regarding Pain
Therapy.

Mobile phone Since 2001 Cittadinanzattiva – Tribunal for Patients’ Rights has been promoting numerous
activities such as: research and monitoring, information campaigns, interlocution with public
institutions with the aim to increase awareness among institutions, health workers and citizens
alike in order to prioritize the struggle against unnecessary suffering in hospitals and home care.
Please underline the most
appropriate category for your In 2005 Cittadinanzattiva together with an expert working group, in which Antea participated,
abstract drafted a Charter on the Right against unnecessary suffering
1.Right to not suffer needlessly
• Pain and other symptoms
2.Right for pain to be recognized
• Palliative care for cancer patients 3.Right to access pain therapy
• Palliative care for non cancer 4. Right to qualified assistance
patients 5. Right to continual assistance
• Paediatric palliative care
6. Right to informed and free choice
7. Right for children, elderly and other people whom may have “no voice”
• Palliative care for the elderly
8. Right to not feel pain during invasive or non invasive diagnostic exams
• The actors of palliative care
• Latest on drugs The adoption of the Charter and the formal inclusion of its proclaimed rights would permit the
• Pain modifying of clinical practice regarding pain to fit the real needs of patients. This would have
specific impact on those services that have been slow in responding to this problem. The data
• Illness and suffering through coming from the Audit Civic Report for 2005 shows the following:
media
16% of health agencies do not have Pain management services
• Marginalisation and social stigma
Only 6% deliver this care to all levels of assistance
at the end of life ...............Only 45% use guide lines for pain control
• Palliative care advocacy projects ....Only 55% have specific training on pain therapy
• Prognosis and diagnosis
communication in For these reasons, the priority is to strengthen the Network on Pain therapy, integrating it in the
different cultures different levels of care, with the aim to have real continual service and care. Lastly, adequate
measures are required in order to overcome the unequal access to pain therapy between the
• Communication between doctor- different regions.
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
palliative care policies
and law
• Palliative care: from villages to metropolies

• Space, light and gardens for the
Session: Advocacy, Marginalization and social stigma
terminally ill patient
• End-of-life ethics Chair of the session: Prof Aldo Morrone
• Complementary therapies
• Education, training and research
• Fund-raising and no-profit
• Bereavement support
• Volunteering in palliative care
• Rehabilitation in palliative care
• Workshop on core curricula