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Antea Worldwide Palliative Care Conference

Rome, 12-14 November 2008

ABSTRACT FORM

Presenting author DEMENTIA: ILLNESS AWARENESS AND DECISON-MAKING CAPACITY IN
PALLIATIVE CARE
Daniela Tarquini
Email: Author: Daniela Tarquini
dtarquini@tele2.it
The problem of dementias is achieving more and more importance in Western Countries, due to
Phone the increasing number of patient affected, age being the principal risk factor. It has been
calculated that the prevalence could be of 1000000 patients in Italy, in 2025.
We know that physicians are required by law and medical ethics to obtain the informed content
Mobile phone before initiating any kind of treatment or taking any decision about life of patients. The premise
of obtaining a valid informed consent is giving appropriate information to a competent patient.
With the progression of dementia all individual eventually lose their decison-making capacity,
but this disease has different stages and in the mild one, as in a number of patients in the
Please underline the most moderate one, we can still have decision-making capacities preserved, often related to the
appropriate category for your difficulty of the task. The instruments that can help to assess the patient’s competence are the
abstract neuropsychological bacteries, the simplest of which is MMSE, and the MacArtur Competence
Assessment tools for treatment, a structured interview. Both must be integrated by other data
• Pain and other symptoms
coming from the clinical assessment. Respecting the autonomy of patients is universally
• Palliative care for cancer patients considered a basic principle of ethics, thus our main goal should be to encourage the patient
• Palliative care for non cancer makes his/her own decison about treatment, particurarly about the end of life . Often demented
patients patients, even aware of their illness, are not given a clear diagnosis by physicians. We take for
• Paediatric palliative care
granted that patients do not want to know. Communication of the diagnosis is the first step that
enables the patient to make advance directives, according to medical deontological code, or to
• Palliative care for the elderly
designate what we call in italian “amministratore di sostegno” who could have his will
• The actors of palliative care
respected.
• Latest on drugs

• Pain

• Illness and suffering through
media
• Marginalisation and social stigma
at the end of life
• Palliative care advocacy projects

• Prognosis and diagnosis
communication in
different cultures
• Communication between doctor-
patient and patient-
equipe
• Religions and cultures versus
suffering, death and
bereavement
• Public institution in the world:
Session: Neurology in palliative care
palliative care policies
and law Chair: Dott. Ignazio R. Causarano

• Palliative care: from villages to
metropolies
• Space, light and gardens for the
terminally ill patient
• End-of-life ethics
• Complementary therapies
• Education, training and research
• Fund-raising and no-profit
• Bereavement support
• Volunteering in palliative care
• Rehabilitation in palliative care
• Palliative care quality indicators
• Neurology in palliative care