You are on page 1of 8

1

Spring has finally arrived. Happy Easter
to everyone.
The last few months I have worked with
Kimberley Yanko and others with the
‘Stop the CLBC Cutbacks’ campaign &
rallies. It sƟll shocks me to think about
how the lack of accountability and
lack of adequate oversight of CLBC has
caused unnecessary and tremendous
turmoil for many individuals and fami-
lies with developmental disabiliƟes.
The $40M (half the amount of what’s
truly needed) and the AcƟon Plan,
promised by the BC Government back
on Jan.19th, is a good start - yet, there
are sƟll many (too many) with urgent
unmet needs on waitlists for services.
The really scary part is the govern-
ment is not even able to determine
exactly how many people are waiƟng
for services; thus, I worry about the ef-
fecƟveness of the AcƟon Plan. CPABC
supports the Campaign’s call for CLBC
and the BC Government to do the fol-
lowing:
Conduct an external review of CLBC •
so that the lack of accountability can
be truly addressed.
Another $40 million new money im- •
mediately and a commitment of $40
million annually.
Restore family representaƟon on the •
Board of Directors of CLBC.
Re-establish the CLBC Self Advocate •
representaƟon on the Board of
Directors of CLBC.
Establish a provincial independent •
advocate for people with disabiliƟes.
Currently, the children’s advocate is
only available for those with disabili-
Ɵes between the ages of 19-25; aŌer
the age of 25, BriƟsh Columbians with
disabiliƟes will conƟnue to have no
voice and no re-course when needs
are not being addressed by govern-
ment and/or service providers.
Eliminate the 70 IQ criteria for CLBC •
services. The score of 70 is arbi-
trarily too low and is exclusionary. A
person’s IQ score by itself does not
provide meaningful details about
their daily needs and challenges far
too many are being denied services
solely based on the 70 IQ criteria.
I have met many people with disabili-
Ɵes, their families and advocates that
conƟnue to be involved with ‘Stop the
CLBC Cutbacks’. Our message is reach-
ing people beyond BC’s borders, like
Jeffrey Moncrieff from OƩawa, who is
supporƟng the campaign. Jeffrey has
CP. He found us on Facebook. I would
like to share his story with you.
Jeffrey Moncrieff is 28 and grew up in
OƩawa, Ontario. He has cerebral palsy
and auƟsƟc tendencies. Jeffrey has a
CP speech accent and is difficult to un-
derstand. He can walk short distances,
uses a power wheelchair or a 3-wheel
electronic bike to get around.
Jeffrey’s mother was his primary
caregiver and fought for him to be
mainstreamed in school. At 15, Jeffrey
was placed in an OƩawa group home
because his care needs were too great
for the family due to their ill health.
His mother died of cancer in February
2002; thus, when Jeffrey turned 18
there was no transiƟon plan in place.
Over the years, Jeffrey and his brother,
Andrew, tried geƫng support from
Service CoordinaƟon in OƩawa. They
were turned away because Jeffrey did
not supposedly meet the DSM criteria
for auƟsm or have a low IQ. He was
deemed ineligible for services in On-
tario. Last November Jeffrey was sup-
posed to have an auƟsm assessment
but this never did occur. He would sƟll
like to have this done.
CEREBRAL PALSY ASSOCIATION OF BRITISH COLUMBIA
issue
SPRING 2012
PRESIDENT’S
WORDS
2
LET’S TALK ABOUT CAMP!
The Cerebral Palsy AssociaƟon of BC is excited to be able to offer a Special Needs
Summer Camp Subsidy to assist children, teens and adults with cerebral
palsy, across BC, in aƩending a summer camp. Money is available to
help pay the camp fee and/or transportaƟon charges. You must be
a member of CPABC to apply for this fund. Completed applicaƟon
must be received, at our office, no later than May 31, 2012. To re-
ceive an applicaƟon please email Feri at info@bccerebralpalsy.
com , or call her at 604-408-9484, toll free 1-800-663-0004.
Jeffrey has lived in his own apartment
but that became unmanageable for
him to maintain on his own due to his
limited life skills. He does not know how
to cook or care for himself and has lost
a lot of weight. Despite the efforts and
assistance from Andrew, Jeffrey was sƟll
not able to stay in his own apartment.
Andrew has been concerned for Jeffrey’s
safety and well-being due to the lack of
proper supports that Jeffrey requires.
Jeffrey lacks discreƟon with strangers
and as a result things have been stolen
from him. He had spent most of his Ɵme
alone and scared. Andrew has been the
only person that makes Jeffrey feel like
he is worthy.
Andrew will be moving to Vancouver
later this year for work. Jeffrey wants
to move here as well and contacted
Kimberley Yanko for assistance. He has
aƩempted to go through CLBC for as-
sistance; however, they have turned him
down. The Vancouver Coastal Health
Authority is now involved to arrange the
supports to meet Jeffrey’s needs.
Jeffrey has now started a new life in
Vancouver with a beƩer climate and
beƩer accessibility. He has some experi-
ence with computer programming and
now volunteers at Free Geek Vancouver.
He also now communicates with an
inverted augmentaƟve communicaƟon
device using open source soŌware. We
will conƟnue to assist and support Jef-
frey to reach his highest potenƟal.
Jeffrey is a prime example of many indi-
viduals (maybe you too) that are being
caught in the grey area, falling through
the cracks, and not receiving the ser-
vices intended for them. Canada must
do beƩer. BC must do beƩer. CLBC must
do beƩer. We all must do beƩer.
Sunday, May 13/2012 at 11am, ‘Stop
the CLBC Cutbacks’ will have provincial
rallies in South Surrey, Maple Ridge,
Kamloops, Victoria, the Okanagan and
Vancouver. If you want to start a rally in
your own community, let us know and
we’ll assist you. Come out and join in.
Your President, Craig Langston
$10,000
AVAILABLE
IN CPABC
BURSARIES
CPABC NEWS SPRING 2012
Do you have CP? Are you planning
to aƩend a post-secondary insƟtu-
Ɵon or training program in the fall of
2012? If yes – then why not apply
for our Tanabe Bursary. Thanks to
the generous support of the Kins-
men FoundaƟon, the CPABC will be
giving away ten, one thousand dollar
bursaries!
For a full list of requirements, and an
applicaƟon form, go to our web page
at www.bccerebralpalsy.com. You
will find all the informaƟon you will
need by clicking on the services tab,
then service informaƟon. Once there
scroll down to educaƟon bursaries.
If you would prefer to have the
informaƟon mailed, or faxed to you,
please give us a call at 604-408-9484
or toll free 1-800-663-0004.
ApplicaƟon deadline is July 27,
2012.
SCHOLARSHIPS &
BURSARIES
aimed specifically towards support-
ing students with a disability hƩp://
www.disabilityawards.ca/ - check it
out - deadlines fast approaching!
up to $1,500 annually (per recipient) for eligible students
with significant physical disabiliƟes (i.e. - require a personal
aƩendant, use a mechanical device for mobility, or require
conƟnuing major therapies) to aƩend credit course at a post-
secondary insƟtuƟon on Vancouver Island - applicaƟon dead-
line May 31, 2012 – applicaƟon at www.queenalexandra.org
quesƟons on eligibility Annie at pkhuus@telus.net
LISA HUUS MEMORIAL FUND BURSARY
3
TO RAISE . TO REACH . TO REALIZE
CEREBRAL PALSY ASSOCIATION OF BRITISH COLUMBIA
MEMBERSHIP SURVEY MARCH 2012
About the survey:
The Cerebral Palsy AssociaƟon of BC is planning for the future. Cuts to gaming grants and the reducƟon of revenue
from our clothing boxes over Ɵme has meant that we must be very thoughƞul about how we spend our scarce
resources. We would like your help in planning for the future. Please take a moment to answer a few quesƟons
about what we do, how we do it and where we go from here.
Before compleƟng the survey, please note that:
You may find the survey on our website or hƩp://app.fluidsurveys.com/surveys/cpabc-carol/cpabc-social- •
media-survey/ . The link to this survey can be forwarded to anyone you think may have an interest in the
Cerebral Palsy community in BriƟsh Columbia. Thank you for your help!
The survey could be mailed not later than June 15, 2012 to the CPABC office at 801-409 Granville Street, •
Vancouver, BC, V6C 1T2.
ConfidenƟality will be respected. •
Answer only those quesƟons you feel comfortable answering •
ParƟcipaƟon in this survey is voluntary. •
The Cerebral Palsy AssociaƟon of BriƟsh Columbia will benefit from the survey results by being able to improve •
support to their membership and the Cerebral Palsy Community.
If you have any quesƟons regarding survey please feel free to contact: •
Feri Dehdar, Director or Programs and Services
Tel: (604) 408-9484 Toll Free: 1-800-663-0004
Email: info@bccerebralpalsy.com
A summary of the survey results will be posted in a future CPABC newsleƩer. •
Survey QuesƟons:
Region: IdenƟfying where our community lives helps the CPABC idenƟfy, recognize and support our mem- 1)
bers in these regions. Please indicate what part of the province you live:
Vancouver Island:
Lower Mainland:
Interior:
Northern BC:
RelaƟonship to the Cerebral Palsy Community: 2)
I am a person with Cerebral Palsy:
- Gender: Male Female
- Age range: 19 - 30 yrs. 31 - 45 yrs. 46 - 60 yrs. 61 yrs. - up
I have a child or other family member who lives with Cerebral Palsy:
I am a caregiver to a person with Cerebral Palsy:
I am a professional who works with people who live with Cerebral Palsy:
Other:
4
CPABC NEWS SPRING 2012
Membership 3)
I am a current member of the CPABC
I am a former member of the CPABC:
I have never been a member:
If you are not currently a member of the CPABC, can you tell us why? 3a)
You may skip this quesƟon if you are a current member.
It is too expensive
The benefits and services do not interest me
Other
Do you currently or have you ever used any of these CPABC programs or services? 4)
Please check all that apply:
NewsleƩer:
Tanabe Bursary:
Campership grant:
CPABC event, e.g. Annual General MeeƟng or Open House:
Family or individual support, e.g. by phone, email or in-person:
Printed publicaƟons, e.g. library book/video or a CPABC guide:
Free disability awareness presentaƟon at school or work:
Website:
Other: (Please specify)
_______________________________________________________________________________________
_______________________________________________________________________________________
_______________________________________________________________________________________

I have never used any CPABC resources or services: (please go to quesƟon 7)
Please tell us which programs, resources or supports have been the most useful to you. 4a)
Please include all services you have used.
NewsleƩer:
Tanabe Bursary:
Campership grant:
CPABC event, e.g. Annual General MeeƟng or Open House:
Family or individual support, e.g. by phone, email or in-person:
Printed publicaƟons, e.g. library book or a CPABC guide:
Free disability awareness presentaƟon:
Website:
We welcome your thoughts:
_______________________________________________________________________________________
_______________________________________________________________________________________
5
TO RAISE . TO REACH . TO REALIZE
If you have never used CPABC resources or services can you tell us why: 4b)
Not aware of them:
Not the type of services I need:
I do not meet eligibility requirements:
I receive support from another organizaƟon:
Other:
We welcome your thoughts:
_______________________________________________________________________________________
_______________________________________________________________________________________

How would you like to communicate with the CPABC: 5)
Visit the CPABC head office
Mail/Post
Phone
E-mail
CPABC web site/Facebook
Other

Please tell us about your access to the internet: 6)
I have NO access to the internet
I have good access via a cable/adsl connecƟon
I have a slow (e.g. dial-up) connecƟon
I use public portals, e.g. library, an internet café or use a friend’s
The CPABC is considering hosƟng on-line support, peer support and networking meeƟngs. 7)
Would you be interested in parƟcipaƟng in on-line meeƟngs?
Yes, I am very interested and can make myself available:
Maybe, if they were at a convenient Ɵme or the topic interested me:
Yes, but I do not have internet access or my connecƟon will not support this type of acƟvity:
No, this does not interest me at all:
The AssociaƟon is considering becoming more involved in Systemic Advocacy efforts to support beƩer 8)
services and supports for people who live with Cerebral Palsy in BriƟsh Columbia. This would include
improvements or changes to government programs and policies. Do you agree that the AssociaƟon should
increase their Advocacy efforts?
I agree:
I disagree:
I have no opinion:

We welcome your thoughts:
_______________________________________________________________________________________
_______________________________________________________________________________________
6
CPABC NEWS SPRING 2012
What to advocate for? If we increase our advocacy efforts we need to know what services and supports 9)
you currently require but do not receive? Please check all that apply:
Financial Assistance/Support:
Social Support/RecreaƟon
EducaƟonal Support
EmoƟonal Support or counselling
Access to InformaƟon/Resources/Materials
Specialized Equipment
VocaƟonal support or training
Treatment/Therapies
Personal Care or Medical Care
Housing Support/Assistance
TransportaƟon Support/Assistance
We welcome your thoughts:
_______________________________________________________________________________________
_______________________________________________________________________________________
Can the CPABC be more helpful to you? What services and supports would you like the see the CPABC offer to the 10)
Cerebral Palsy Community in BriƟsh Columbia?
More peer to peer support, e.g. Organize support and informaƟon groups for individual and families
More direct financial support e.g. Financial support for housing, transportaƟon, recreaƟon or equipment

NewsleƩer should be more frequent
NewsleƩer should have more content
BeƩer access to individual advocacy and support
EmoƟonal Support or counselling
Access to InformaƟon/Resources/Materials
Make the website easier to navigate
Add more content to the website
We welcome your thoughts on how the CPABC can be more helpful to you:
_______________________________________________________________________________________
_______________________________________________________________________________________
Thank you for taking the Ɵme to complete this survey!
We would like to invite you to parƟcipate in the follow-up to this survey. If you would like to be contacted in
the future by the Cerebral Palsy AssociaƟon please leave your contact informaƟon and your preferred form of
contact here (e.g. Jane Smith, please phone 250-250- 2502 between 7 and 9 PM or please email me at janey@
anymail.com) or if you prefer to keep this survey confidenƟal, please email your contact informaƟon under to:
info@bccerebralpalsy.com
_________________________________________________________________________________________
_________________________________________________________________________________________
Sincerely,
Cerebral Palsy AssociaƟon of BriƟsh Columbia / Volunteer Board of Directors
7
TO RAISE . TO REACH . TO REALIZE
SHOULD I GET A
SERVICE DOG?
There’s one ques-
Ɵon I hear just
about every day:
should I get a ser-
vice dog?
And that was what
I had to carefully consider before I ap-
plied for a PADS (Pacific Assistance Dog
Society) service dog. The decision to
get a dog was the right one for me, but
it isn’t the right one for everybody.
Choosing to get an assistance dog or any
dog for that maƩer, should not be taken
lightly. An adorable puppy or beauƟful
adult like PADS Service Dog Breeze tugs
at our heartstrings constantly, but a
dog requires a significant investment
of Ɵme and money. I must admit I was
one of those people who love dogs to
the baby-talk point. But I never really
considered the effort and Ɵme it takes
to properly care for one.
Breeze has been part of my life since
June of 2007. She is an aƩracƟve blonde
Golden Retriever who has become my
right-hand dog. She is an integral part
of both my personal and professional
life. Breeze helps me with some physi-
cal tasks for which I’d have had to rely
on human assistance in the past. She
can take off my jacket, turn the lights
on and off, acƟvate elevator buƩons,
open and close doors, pick up items
that I’ve dropped on the floor, give my
bank card to a clerk, and retrieve the
telephone when it rings. Her eager
aƫtude means she’s
happy to show off
these skills – and as a
result, I have greater
independence and
enjoy a beƩer qual-
ity of life.
As a cerƟfied service dog, Breeze has
public access rights under BC law. This
means that while working with me she
can enter public spaces such as airports,
restaurants, and shopping malls, buses
and taxis. She even accompanies me to
the denƟst.
Breeze got her educaƟon at PADS in
Burnaby,. www.pads.ca. PADS raises
and trains assistance dogs to work with
people who have physical disabiliƟes or
are deaf or hard-of-hearing. PADS also
trains facility and therapy dogs who
go on to work in the animal-assisted
therapy field.
Breeze and I have been a team for
years now. And one thing I’ve learned
is that while she is a great source of
independence and support for me, it
can be extremely challenging physically
and emoƟonally to be around her all
day every day. It’s my job to make sure
all of her basic needs are met; and like
a mom, I’ve got an emoƟonal
investment in her, too. I need
to know that she’s happy as
well as healthy. Just like us,
she needs food, water, ex-
ercise, and shelter. And just
like us, she needs love and
nurturing in order to thrive
and succeed.
It might sound funny, but caring for
a dog is much like being a parent to
a two year old human child, except
a dog never grows up. My good dog
needs frequent supervision to protect
her from some of the hazards that she
might encounter. Dogs really don’t
have much common sense; they can
get into mischief that a kid may never
dream of. Breeze once ate a sock for a
snack, and ended up in surgery to have
it removed.
And whether or not I’m exhausted from
my own work day, she requires regular
walks and toilet breaks. These can be
three Ɵmes a day or more - rain or
shine. A depressed or bored dog won’t
give peak performance, any more than
a depressed human will!
But what a difference she has made in
the way people interact with me. I’m
a lady who has cerebral palsy; I use
a wheelchair, and in the past people
either spoke to me like a toddler, or
avoided eye contact and conversaƟon
altogether. Now, I’m the lady with the
service dog, not just the lady in the
wheelchair. And people want to know
about her, which means people now
speak to me. It makes my day to see
smiles, where I used to see only careful
blankness on the faces around me.
She is a natural icebreaker who warms
my clients up right away and helps
them open up about their own needs.
I wouldn’t trade her for the world.
So, having a service
dog certainly works
for me, but before
you rush headlong
into a human-canine
relaƟonship ask your-
self:


Would I mind going outside with my
dog in all weather, at least three Ɵmes
every day?
Am I prepared to allocate a porƟon
of my monthly income to grooming
and maintenance? Have I considered
unforeseen vet expenses?
Can I maintain the protocol and train-
ing provided by PADS? Are the people
around me willing to support and
follow that training? Am I ready with
my public educaƟon pitch every Ɵme a
stranger tries to interact with my work-
ing dog?
Am I ready for this commitment?
ConƟnued on page 8
8
Cerebra| Þa|sy Assoc|anon of 8r|nsh Co|umb|a
801-409 Granville St. Vancouver, BC V6C 1T2
Þhone: 604.408.9484
1o||-Iree (Lnqu|ry CÞ): 1.800.663.0004
Iax: 604.408.9489
Lma||: info@bccerebralpalsy.com
Cmce nrs: 9 AM to 5PM, Monday to Thursday
ÞLLASL kLC¥CLL 1nIS
kCUND1A8LL 8¥ ÞASSING
I1 ALCNG 1C SCMLCNL LLSL!
VCLUN1LLk 8CAkD MLM8LkS S1AII
CkAIG LANGS1CN lteslJeot
1kISn MCkA¥ vlce lteslJeot
AND¥ ¥U 1teosotet
CAkCL S1INSCN 5ectetoty
kCNALD 8LACkMCkL
1LkkLANL DLkkICk
1CN¥ kkUSL
ICNN CLLD¥M
ILkI DLnDAk
1AMM¥ VAN DLk kAMÞ
WLND¥ nAWk¥2kI
ultectot of ltoqtoms &
AJmlolsttouoo
lomlly & loJlvlJool
5oppott wotket
AJmlolsttouve Asslstoot
CPABC NEWS SPRING 2012
Be honest with yourself, because
this dog will require your full aƩen-
Ɵon for perhaps the next ten years.
If you are primarily interested in a
companion, or a house pet to alert
you when someone’s at your door,
then you might want to consider
one of PADS released dogs instead.
These are dogs that have met
nearly all of the criteria for the
service dog training program, but
for one reason or another, haven’t
quite made it.
Bear in mind that a dog cannot be stuck in a closet when
you’ve had enough of its company, or when you don’t need
it. Like most everything else in life, the more you put into
your relaƟonship with your dog, the more you’re going to
get out of it.
And if you aren’t prepared to put quite a bit into it, maybe
you should go for a build-a-bear - ooops, I mean build-a-dog,
instead…
So I did dive into my relaƟonship headfirst and without
much forethought. And it turned out to be one of the most
rewarding decisions of my life. I oŌen state that I wish I’d
known beforehand the level of commitment my dog would
require - the truth is that people did try to make that clear to
me, but I was so enamored with the idea that I didn’t hear
any of the negaƟves.
Now I dread the day that I have to think of dear PADS Service
Dog Breeze’s reƟrement. And the fact is, aŌer a decent
mourning period, I’ll probably apply for another service dog.
For more informaƟon about whether a service dog is right for
you, see hƩp://www.pads.ca/apply-for-an-assistance-dog/
is-an-assistance-dog-right-for-you/
$100 $75 $50 $25
My cho|ce:
V|sa #
Lxp|ry Date
Name on Card
1oday's Date
S|gnature
Þ|ease ma|| to:
“REALIZE EQUALITY
IN A DIVERSE SOCIETY!”
Now, more than ever before your membersh|p w||| he|p to :
8ecome a Member today!
Membersh|p fee: $20
Donanon: I would like to make a donaƟon to support
the services and programs of the Cerebral Palsy
AssociaƟon of BC. Income tax receipts are only issued
for donaƟons of $10 or more, unless requested.
Method of Payment: I have enclosed a cheque
payable to the CPABC or:
Cerebral Palsy AssociaƟon of BC
801-409 Granville Street Vancouver, BC V6C 1T2
(cbotltoble keqlsttouoo 8osloess Nombet 10690 1201 kk0001)
ConƟnued from page 7
CPABC Staff, Tammy van der Kamp