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Cerebr al Palsy Assoc i ati on of Bri ti s h Col umbi a summ er 2009

Words from the President
I hope everyone has had a great summer. We deĮnitely have had some very nice weather, too hot at Ɵmes. Well, this will be a summer that I will not soon forget. As many of you know, I live on the second Ňoor and I was trapped in my apartment for two weeks due to the elevator in my building being out of service. If that was not bad enough, this all happened during the heat wave late July and early August. AŌer numerous delays from OƟs Elevator and lack of communicaƟon from the Co-op, I decided to take my story to the media. That sure got people scrambling to repairing the elevator. I contacted the media on Tuesday August 11/2009 and the elevator was Įxed the very next day. The Vancouver Sun Newspaper printed the arƟcle on Thursday August 13/2009. You can google my name and the arƟcle should be near the top of the page. The arƟcle was also picked up by other newspapers across Canada. It was unfortunate that it took going to the media to have the elevator repaired. Fortunately, I was safe and being well taken care of with the help of friends and my daily home support workers. I was hugely inconvenienced by not being able to come and go from my home. My situaƟon is not unique as I have heard stories

from others who have been without elevators from two to four weeks. This I consider a bit disturbing. There was also a situaƟon about one or two years ago about a housing co-op, in Vancouver’s False Creek, where the elevator needed to be replaced. The Co-op did not have the necessary funds and CMHC refused to help out. That building was without an elevator for almost a year. I cannot even imagine how those trapped folks managed for such a long period of Ɵme. Clearly, there needs to be improvements made to the standard of repairs and customer service from the elevator industry to reduce the wait Ɵme of repairs to residenƟal buildings. This was a bit of a reality check for me as we sƟll encounter situaƟons where people with disabiliƟes, like myself, are struggling and baƩling barriers to be able to come and go as they please from their homes. We sƟll have work to do! Another cause of concern is the recently announced Įnancial challenges of the BC Government and the impact this will have on CPABC. There was a scare with the freezing of BC Gaming funds. These funds have now been unfrozen and most nonproĮt organizaƟons, like CPABC, are siƫng on pins and needles as to the future use and distribuƟon of said funds over the next few years. I have to say that I am worried

that CPABC will receive a signiĮcant reducƟon (if any) from the province. At the moment, CPABC is doing Įne Įnancially and should be okay for the next year - aŌer that, we just do not know… there is sƟll too much uncertainty and many unanswered quesƟons. We will explore any, and all other, applicable funding sources - this includes our members and exisƟng donors. With this in mind, I ask that you conƟnue, increase, or start to include, CPABC in your charitable donaƟons. Consider a commitment to making regular monthly contribuƟons. Every dollar – every cent will help CPABC conƟnue to reach our goals and be there for you. What can you contribute?? CPABC conƟnues to be involved in the community with representaƟon of Board members to the Provincial Equipment & AssisƟve Device CommiƩee and the Emergency Planning and Preparedness IniƟaƟve. I conƟnue to proudly serve you and this organizaƟon to the best of my ability. I very much appreciate the diligence and support of the Board of Directors. I also want to acknowledge the dedicaƟon of our staī and to our volunteers that help us week aŌer week, THANK-YOU!! Your President, Craig Langston

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CPABC news

My Dance Story
By Julia Halipchuck

When I was six months old I was diagnosed with cerebral palsy. Despite very limited use of my right arm and leg, my parents and I were determined that I live a normal childhood where I would be involved in sports and other team acƟviƟes. When I was three years old I wanted to dance. The Highland dance club was the only dance class available in town. It was a perfect Įt. I was doing what I wanted geƫng exercise, meeƟng people and learning skills I would carry with me for the rest of my life. I’ve been very fortunate to the degree at which cerebral palsy has aīected me, only hampering the use of my right limbs. It has always been a part of my life; so from a very young age I’ve adapted to only using one arm and compensaƟng for my weak leg. Highland dance strengthened my leg and forced me to work with my arm. Without this exercise and muscle building, there would have been a much more noƟceable diīerence between the two sides of my body.

Dance conƟnues to be a very important part of my life. I love the ability to express emoƟons and stories in a whole new way, creaƟng art and bringing beauty to the world. I love the feeling of moving to the beat of a song and painƟng a picture with my body. Its always been my favorite way to express myself, a chance for me to escape and just let my body speak for itself. When I was in the fourth grade, my friends and I decided to choreograph a contemporary dance for our school’s spring talent show. AŌer many lunch hours and a lot of work we came up with something we could show to the school. We were all so happy it worked out that it became a kind of tradiƟon, unƟl eleventh grade when the common pressures of high school caused most of the girls to decide they were “too cool” for a dance we made up ourselves. This didn’t stop me and despite the cauƟon of a couple of caring people not to dance, I couldn’t stop myself. Dance is in me and the chance for me to come up with something that expresses who I am is something I will never pass up. Some people made fun of me for doing a self choreographed dance alone, on stage, in front of a small town audience; however, I never looked back. In the end it was worth it, the people that maƩered supported me. I was proud of myself for sƟcking to my beliefs. “Dance as if no one is watching” is a phrase that became my mantra over the ĮŌeen years that I spent Highland dancing. Due to the limited use I have of my right arm and leg, when I dance I never look like the other girls that have complete control of their bodies. I feel like I dance the same, but I can't jump as high, point my toes as deĮniƟvely, move as gracefully, or place my arm and Įngers in the exact posiƟons. For this reason some people thought I shouldn’t dance. I never placed in any of the few compeƟƟons I went to, and didn’t pass any dance exams aŌer the Įrst level. I never let this stop me because of the joy I felt when I moved on the Ňoor. I was sƟll able to dance with the other girls in my

class and reached the second highest level in my dance theory exams. To my teacher Janet, I was just Julia. She never let the fact that I was diīerent from others stop me from doing what I wanted. I think I can do anything. I plan to complete my Civil Engineering degree, aƩain a Structural Engineer designaƟon; then become an architect. I wouldn’t have this conĮdence in my ability without the great support I have had from people like my dance teacher and others. The people that have Įlled my life have always supported me in dancing and dealing with my disability. My parents never treated me diīerently than my sister. They were understanding when I didn’t always feel comfortable doing something. They encouraged me, paid for dance lessons and took me to events. My sister has helped me, understood challenges I faced and kept me humble. My best friend named my right hand “Henry” as it very much seems to have a mind of its own! The most inŇuenƟal person in my dedicaƟon to highland dancing was my dance teacher. She was always supporƟve and understanding of my abiliƟes, without pampering me, or leƫng me take the easy route out. She pushed me to do what she knew I could and for that I am grateful. Highland dance has taught me many things - how strong my body really is, the responsibiliƟes of a commitment and to never stop trying to make myself beƩer. I’ve learned about a dance form that is a part of my heritage. It connects me to something bigger than myself. The lesson I’ve learned, that I’ll never forget, is that with a liƩle determinaƟon and good humor you can do anything you set your mind to; no one can stop you from doing what you want, especially if it’s something you love, as I do dance. Cerebral Palsy AssociaƟon of BC awarded Julia Halipchuk a bursary in 2008. She was one of our seven bursary recipients in summer 2008 and is currently studying architecture at UBC.

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“Just try!”
Words to Live By
By Trish McKay
“If you have cp, or any disability, just try; you never know what you can do unƟl you try. Just do it!” These are the words of Trish McKay, a Cerebral Palsy AssociaƟon of BC Board Member. Trish was born and raised in Prince Rupert, BC. A diĸcult birth leŌ her with brain damage leading to a diagnosis of cerebral palsy. Doctors iniƟally gave her only 24 hours to live, then 48, and Įnally a month. “And here I am,” smiles the now 36-year-old. Growing up with a physical disability in Prince Rupert was frustraƟng for Trish. She recalls being the Įrst child of inclusion at her elementary school – the only kid with a physical disability to be integrated into a regular classroom. Trish states, “it took a long Ɵme for real integraƟon to happen” – that’s where she Įrst learned to interact with peers. And high school was where she met two people who recognized her never-give-up aƫtude. Both oīered the encouragement she needed to push beyond the obvious limitaƟons that others were someƟmes too quick to point out. “I faced a lot of negaƟve comments, a lot of ‘who do you think you are – you can’t do it’ kind of stuī, mainly from counsellors and teachers”, Trish recalls, “But a grade eleven math teacher and a peer counsellor both believed in me…” It was the peer counsellor who turned those comments and aƫtudes inside out with words of encouragement. “You know beƩer than to listen to them! Prove them wrong”, she was told. “Do it behind their backs – show them what you can do.”

Those words of encouragement led to Trish’s involvement in long-distance running, a sport at which she excelled. She ran her Įrst race at twenty-three, when she decided out of the blue that she’d like to give it a try. “It was a Ňuke”, she states. “It was aŌer an all-night bash, the day of the race. It was a Įve k. run, and I Įnished it in an hour and ten minutes. That was my best Ɵme ever; my Įrst race, and I haven’t been able to top it!” Trish went on to enjoy great success in the BC Disability Games in 1997 and 1998, running the 400, 800, and 1500 meter. Running brought its own lessons. Trish considers running “a great way to get rid of negaƟve energy. Use that negaƟve energy to run, and you feel so good aŌer… I just kept at it.” The same persevering aƫtude and the remembered words of her high school peer counsellor, led to Trish’s long history of volunteering, and inŇuences both her long and short-term goals. She counts giving back among her goals. Trish intends to be a contribuƟng member of society, and, in her own words, “Pay my own way. People have been good to me; I want to pass it on.” RecreaƟon is important. Trish goes out dancing every second weekend, and she also paints. Trish laughs when asked about favourite quotes. She remembers a slogan stuck up in a far corner of her grade eleven math classroom. “What are you looking up here for?” it queried. When asked what words of encouragement she’d like to oīer to others, Trish reiterates, “If you have cp, or any disability, just do it, just try, you never know unƟl you try.” Oh, and “What are you looking up here for?”

Putting the Puzzle Together
Understanding Needs and Making Inclusion Work
Published by the Cerebral Palsy AssociaƟon of BC
Understanding Needs and Making Inclusion Work. Ever wondered how to treat a child with a terminal illness… or how to communicate with a person with a hearing impairment? How would you explain Prader-Willi Syndrome to your class? What educaƟonal techniques would you use to aid that student? These are a few of the challenges addressed in our revised ediƟon of Puƫng the Puzzle Together where thirty-three diīerent condiƟons are discussed and, in many cases, input from parents given. This invaluable teaching aid oīers informaƟon on communicaƟon devices, classroom eƟqueƩe, Ɵps, support groups and organizaƟons. This is an excellent resource for parents, educators and rehabilitators. Purchase your copy for $30 by calling the Cerebral Palsy AssociaƟon of BC at 604-408-9484, toll free 1-800-663-0004 or emailing info@bccerebralpalsy.com.

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Adults

Bear Essentials Fund Ask the Med Student
Vancouver Island & Gulf Islands
The Queen Alexandra FoundaƟon for Children Bear EssenƟals Fund assists children and youth with special needs from birth to 19 and their families who are experiencing Įnancial hardship and/or shortterm crisis. Examples of eligible expenditures: emergency food, clothing, toiletries, short-term shelter costs, personal items, medical or therapeuƟc equipment, adventure therapy ouƟngs, etc. Funds available to only Vancouver Island and Gulf Island residents. For more informaƟon and an applicaƟon phone 250-338-4288 or visit www.cvcda.ca and click on ‘News’.

By Catherine Ho
How to be a Star PaƟent Feel like you are always forgeƫng what you wanted to ask your doctor when you Įnally get to see them? Here are some Ɵps on how to make the most out of your doctor appointments! 1) Make a list of your quesƟons to bring with you so that you won’t forget the things you wanted to talk about 2) Think through your concerns ahead of Ɵme so that you can provide as much detail as possible. This will help your doctor make the correct diagnosis and begin the appropriate treatment to address your symptoms. a. Time frame: Try and remember when exactly your symptoms started. Was there a precipitaƟng event? Was it a sudden or gradual onset? b. DescripƟon: How would you describe your symptoms? Is it a sharp or dull pain? How intense is it? Is it always there or does it come and go? What makes it beƩer or worse? c. LocaƟon: Where exactly are your symptoms located? Can you point to it with one Įnger or is it diīused? Does the pain spread anywhere else on your body? Is it associated with any other symptoms? d. Your feelings: What are you most worried about? How are your symptoms aīecƟng your life? Are you sƟll able to do the things you enjoy? 3) Know your current medicaƟons and doses. Don’t forget to include over the counter medicaƟons and herbal supplements. Also, in case your doctor might want to explore other opƟons, know which treatments you have previously tried for your symptoms and whether or not they have helped. 4) It is not uncommon for you to see mulƟple doctors and specialists. Have a list of their names, specialƟes, and addresses so that your doctor can copy all your leƩers and reports to them so that every one is kept in the loop!

5) Don’t be afraid to ask quesƟons. SomeƟmes doctors have handouts that you can bring home and read. If not, have your doctor suggest some good websites that you can use as resources. 6) At the end of the appointment, make sure you are clear on what instrucƟons your doctor has given you, whether it be dosage modiĮcaƟons, tests that need to be done, or when to book your follow-up visit. You and your doctors make up a team dedicated to help you be healthy as can be. Hopefully these Ɵps will help both you and your doctors maximize your health! *General medical quesƟons can be emailed to wh@bccerebralpalsy.com – subject line: newsleƩer or mail to CPABC 801 - 409 Granville Street, Vancouver, BC V6C 1T2

Caregivers come and take a break with us! Sidney
This is an informal get-together for family caregivers to meet with each other and chat. Take a break in your busy day and join others who are also caring for family and friends. We meet on the 4th Tuesday of each month starƟng Sept. 22 from 2 – 3 pm in the meeting room at Shoal Centre - 10030 Resthaven Drive. No charge and no registraƟon required. For more informaƟon call 250-384-0408.

Medical Questions? Ask the Med Student
Hi my name is Catherine. I am currently in my 4th year of Medical School at UBC hoping to pursue a career in the specialty of RehabilitaƟon Medicine. I have a parƟcular interest in Cerebral Palsy. I'd love to get to know you all and I am hoping that I can be of service to you! We're starting an "Ask the Med Student" column in the newsleƩer; so if you have any medical quesƟons, please don't hesitate to drop me a line! QuesƟons can be emailed to wh@bccerebralpalsy.com – subject line: newsleƩer or mail your quesƟons to CPABC 801-409 Granville Street, Vancouver, BC V6C 1T2

The Disability FoundaƟon has launched a website, within the Metro Vancouver Region, that promotes the skills of self-employed people with disabiliƟes. The AbiliƟes Business CooperaƟve is free to join. If you have a product or service that you are currently involved with, or would like to start your own homebased, contract-based or other small business, contact Stephen Street at 604-688-6464, or go to www.abcoop.org.

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to raise to reach to realize

Free Workshop
What would a Hopeful Parent Do?
Hopeful PerspecƟves for Families of Children with Special Needs . Burnaby
When: Where: Thursday, October 1, 2009 – 5:30 to 9 p.m. Shadbolt Centre for the Arts Studio 103 – 6450 Deer Lake Ave., Burnaby, BC

Independent Lifestyle Store Opens Maple Ridge
In need of a scooter, wheelchair, walker, cane, commode, hip kit, arthriƟc cutlery, wriƟng aid, medical stockings or anything else in that line? Visit the newly opened Independent Lifestyle Store at 22353 Lougheed Highway, in Maple Ridge (near Tim Hortons on 224th) They are open Monday to Friday from 10 am to 5pm, do home deliveries and can be reached at 604-477-1212 or email independentlifestylestore@yahoo.ca.

This workshop is sponsored by the Auxiliary to Sunny Hill Health Centre for Children. It is a FREE event for parents. Dinner is included and will be provided at 5:30 p.m. Register: Contact Maria Robichaud at 604-453-8300 ext 8211 Email mrobichaud@cw.bc.ca Deadline: RegistraƟon deadline is September 21, 2009 (If you cannot aƩend due to child care expenses, contact Maria to explore your opƟons.)

Special Needs Find Calm and Martial Arts Course Comfort with has Expanded! The Magic Blanket
Two New LocaƟons . Richmond & Surrey Studies have shown that deep pressure CongratulaƟons to Master Michael Sirota touch releases serotonin in the brain who has recently been inducted into the which in turn creates a feeling of calm MarƟal Arts Hall of Fame for his pioneering within us. This deep pressure touch can and developing work for people with be achieved by the use of The Magic special needs. His programs have now Blanket. been oĸcially recognized by The Ministry The general rule of thumb is that a of Children and Family Development. Go weighted blanket be ten percent of a to www.sirotasalchymy.com to Įnd out person’s body weight plus one pound. about classes in self-defense for individu- Blankets can be made in any size or als with mobility disabiliƟes, special needs weight to meet your needs. They are marƟal arts and one-on-one training machine washable and available in six opportuniƟes. Classes available at Guild- fabric choices from chenille to Ňannel. ford RecreaƟon Centre Surrey These blankets have been found to be (604.502.6360), Richmond Centre for beneĮcial to those with sensory integraDisability (604.232.2404) and at Sirota’s Ɵon disorder, restless leg syndrome and Alchemy Richmond (604.244.8842). If other condiƟons. your organizaƟon is interested in partner- For more informaƟon, or to receive a ing with Sirota’s Alchymy to oīer programs quote, phone toll free 877-711-2020, or for the special needs community contact email Keith at keith@TheMagicBlanket.net. Master Michael Sirota at 604.244.8842.

Maintaining Your Spirit – Caregiver Conference Cranbrook
For: anyone who provides unpaid care and support to someone living with a disability or who is chronically ill, elderly or palliaƟve When: October 21, 2009 – 9 am to 4 pm (MST) Where: Heritage Inn, Cranbrook, BC Cost: $20 – includes lunch Morning Workshop – Coping with TransiƟons explores loss and grief issues in caregiving. A focus on usable strategies will result in beƩer mechanisms to help caregivers cope. AŌernoon Workshop – The Lighter Side of Caregiving will explore humour and how to incorporate it into one’s life as a communicaƟon tool and stress release. Look at various styles and expressions via cartoons, stories, comedies and discover how one can be more playful within our roles as caregivers. Fun is the key ingredient. Register by mailing in your payment along with your name, phone number and address to Cranbrook Mental Health, 20 – 23 Ave. S. Cranbrook, BC V1C 5V1. For more informaƟon call 250-420-2210 or 1-888-426-7566.

Early Intervention Therapy Workshops
Vancouver
Fine Motor Skills for the Preschool Child (Sept. 22nd) Toilet Teaching for Children with Special Needs (Oct. 14th) Sensory Processing in Infants & Preschoolers (Nov. 17th & 24) (2-part workshop) LocaƟon: Time: BC Centre for Ability 2805 Kingsway, Vancouver 6:30-8:45 p.m.

RegistraƟon required – phone 604-451-5511 Childcare is not available.

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Leisure

Calling all Soccer Players
The Canadian men’s cerebral palsy (paralympic) soccer team has just returned from its Įrst Įve day camp of the season held in Las Vegas. Fourteen players parƟcipated in camp one which included a daily training regiment as well as six mini matches against the local Vegas Academy OrganizaƟon. If you are 16 or older, have mild cerebral palsy, have had a stroke or brain injury, and are interested in playing as a member of Team Canada, email coach Drew Ferguson at dferguson@soccercan.ca. There are no costs to join the team and as an athlete your expenses will be paid.

Library without Walls
Save Ɵme and footsteps by using the services of Library without Walls – the comfortable way to check out library resources from home. All you need is an internet connecƟon and a library card and you are on your way to downloading e-books, audio books, videos and music. Your resources will automaƟcally expire at the end of the lending period. No more late fees to worry about! For a tour on how to use this resource, Google “Library Without Walls”; then click on download digital media GUIDED TOUR, found on the leŌ side of your screen.

Exercise for People over 50
Begin by standing on a comfortable surface, where you have plenty of room at each side. With a 5 pound potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute, and then relax. Each day you’ll Įnd that you can hold this posiƟon for just a bit longer. AŌer a couple then try 50 pound potato bags and then eventually try to get to where you can liŌ a 100 pound potato bag in each hand and hold your arms straight for more than a full minute. (I’m now at this level.) AŌer you feel conĮdent at that level, put a potato in each bag.

Trout Creek Farm Accessible Fishing
April to October
31474 Townshipline Ave. Mission
Welcome to our wheelchair accessible U-Catch. Our two ponds are stocked with lively, tasty rainbow trout, 12 inches to over 24. We provide Įshing tackle and bait and we can clean your Įsh too. We have BBQs, picnic tables; a wheelchair accessible washroom and children’s play area with swings and slide. We host company parƟes, Įshing tournaments, birthday parƟes etc. Come and enjoy. Open April 1 to October 31, 9 am to dusk. Booking required. Two dollar per person admission fee and a cost for each Įsh caught. Closed Wednesday. For more informaƟon phone: 604-826-5640 or email Įshingplace@gmail.com

Whistler Adaptive Ski & Ride Program
Whistler
At Whistler Blackcomb the belief is that all guests are enƟtled to enjoy the beauty and beneĮts of winter recreaƟon. A team of trained and cerƟĮed instructors, guides and assistants help those with both physical and cogniƟve disabiliƟes access the slopes. The Whistler AdapƟve Ski and Ride Program provides individualized ski or snowboard instrucƟon to meet the needs of clients with all types of special needs. A bursary of up to $750 per winter season, for Canadian residents who are in need of, and qualify for Įnancial assistance, is oīered through the Whistler AdapƟve Sports Program. Programs will be fully operaƟonal during the 2009/2010 ski season and 90% of the terrain will be open to the public during the Olympic and Paralympic games. For more program informaƟon visit www.whistleradapƟve.com, call 1-800766-0449.

Special Needs Dance Classes Courtenay
Pantuso Dance Studio is oīering Friday dance classes for children and youth with special needs: Down syndrome, cerebral palsy, auƟsm spectrum disorders, developmental delays and wheelchair users. Classes are designed for parƟcipants to aƩend independently without an aid, however, wheelchair parƟcipants need a buddy in order to aƩend. Classes are held at Pantuso Dance Studio, 2659 Moray Place, Courtenay. For more informaƟon contact Lindsay Sterk at 250-338-4441 or email pantusodance@shaw.ca.

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General Interests

to raise to reach to realize

Adventure Therapy
By Tim Ashwood

Team Joshua
Josh is a smart, happy, fun-spirited eight year old boy. He has an undiagnosed brain disorder which has resulted in a signiĮcant neurological motor deĮcit. Josh is unable to walk or talk and needs help to do just about everything. He is very social and loves to parƟcipate in what others are doing. Some of our favorite acƟviƟes are swimming, adapƟve snow skiing and therapeuƟc horseback riding. Last year Josh and I ran the ScoƟabank Half Marathon using a borrowed jogger. It was a great experience. Josh loved it. People were fantasƟc. He wore his medal all day long and let me know he wanted to race again. My reason for running the Vancouver Marathon pushing Josh was to give him a special experience and to share the joy and excitement of parƟcipaƟng in a compeƟƟve sporƟng event. He can’t play hockey and soccer as he longs to do with his friends at school but this is something he can do and it will be unique to him. The marathon is also a way for us to be involved in our community, to raise awareness for the disabled and hopefully, to encourage others We decided to run this year's BMO Vancouver Full Marathon on Sunday, May 3rd, 2009, but we needed wheels. Due to the distance of the marathon, 26.2 miles/42 km, the jogger had to be a perfect Įt for both Josh and me. The one we borrowed last year was too big. This meant raising $2,000 for a custom adapted, ergonomically correct, long distance jogger. I sent out a request to almost everyone I knew. The response was unbelievable!

Prospect Mountain Estes Park CO Climbing and hiking has helped to improve my cerebral palsy. I call my climbing and hiking adventure therapy when I get a chance to do it full Ɵme. My therapy consists of climbing, hiking, working out with weights and stretching for 30 to 40 hours a week. My balance, coordinaƟon, gate, range of moƟon, Ňexibility, strength and endurance have all improved. Both before my second and third adventure therapies, I had BOTOX injecƟons. These injecƟons along with all my exercise have dramaƟcally reduced the spasƟcity in my upper arm and leg. These improvements are sƟll with me. I hope this helps to moƟvate others to reach for their dreams. I have always believed in going for my dreams, even when people said it wasn’t possible. You never know what is possible unƟl you try. Tim would love to hear from you. He can be reached at info@Ɵmsashwood.com. (Previously published on Climbing.com)

Want a Small Business?

Lower Mainland Bulk candy vending route for sale! Established 15 years in the Lower Mainland. A porƟon of proceeds beneĮt the Cerebral Palsy AssociaƟon of BC. For more informaƟon on this exciƟng opportunity phone 604-594-3017.

In my email request I menƟoned that any surplus funds raised would go towards therapeuƟc horseback riding for Josh and a touch screen monitor so he could use the computer at home. When we had raised almost the full amount, a friend called to say that the Kinsmen FoundaƟon wanted to donate the enƟre amount of the jogger so that the other funds raised could go to the other special needs menƟoned in my fundraising appeal! One of the most important lessons that I am learning, in this unexpected journey of having a signiĮcantly disabled child, is that I can't do it alone. I have come to deeply appreciate the strength of a supporƟve community. I used to be so individually minded and determined to manage on my own that I had diĸculty accepƟng the oīer of car service at Safeway! Not anymore. I am so grateful for my family, friends and others in our circle who help in many ways, big and small. I couldn't manage without them. Everyone is busy and working hard these days - but if you know a family with a signiĮcantly disabled child, please know that they are making a heroic daily eīort just to manage the basic funcƟons of everyday living. You can't imagine what a diīerence it would make if every now and then you oīered to bring them a home cooked meal, mow their lawn or bring the kids over on a Saturday morning to wash their car or take their garbage out. Every liƩle bit of help makes a big diīerence. And maybe, most importantly, it will warm their heart to know that somebody is willing to go a liƩle out of their way to lighten the load. (RewriƩen with permission -www.teamjoshua.ca)

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General Interests . CPABC summer 2009

Let’s Talk Camp!
Now, more than ever before your membership will help to

“Realize equality in a diverse society!”
Become a Member today! Membership fee: $20 DonaƟon: I would like to make a donaƟon to support the services and programs of the Cerebral Palsy AssociaƟon of BC. Income tax receipts are only issued for donaƟons of $10 or more, unless requested.

The Cerebral Palsy AssociaƟon is proud to report that due to two generous grants, from the Hamber FoundaƟon and The F.K. Morrow FoundaƟon, we were once again able to assist children, teens and adults across BC, realize their dream of aƩending a camp of their choice. Out of nine applicaƟons received, seven were given funding for a combined total of $3,389.70! Thirteen year old Olivia, from Prince George, wrote that Kelowna’s Camp WinĮeld is a special place for “special” kids like her. It was Olivia’s ĮŌh year of aƩending this camp and she said that she is well looked aŌer and has so much fun! JusƟn, age 19, came home from the Leader in Training Challenger Program in Squamish with lots of itchy bites. The weather was cool and wet but that didn’t detour this go-geƩer from bringing home some valuable lessons on communicaƟon, trust, team work, celebraƟon and leadership. Anja, 24, from Abbotsford - enjoys living life on the edge. She says, “Camp Bethesda (Cultus Lake) has been one of the biggest highlights of the last two years. I want to be in an environment in which I can be free to be who I am and have some adventures that are typically not possible in my daily life. Waking up in a cabin in the forest is glorious!” Ten year old Braiden loves to try everything from trails to kayaking. He wanted to aƩend camp because he knew his needs would be respected and understood. At camp Braiden is allowed to be himself and part of the group. Thank you to everyone who wrote in and sent us your pictures!

$100
My choice:

$75

$50

$25

Method of Payment: I have enclosed a cheque payable to the CPABC or: Visa # Expiry Date Name on Card Today’s Date Signature Please mail to: Cerebral Palsy AssociaƟon of BC 801-409 Granville Street Vancouver, BC V6C 1T2 Charitable RegistraƟon Business Number 10690 4204 RR0001

JusƟn

Braiden

ANNOUNCING
The 55th Annual General MeeƟng of The Cerebral Palsy AssociaƟon of BC

Date: Time: Speaker: Topic: LocaƟon:

Friday, September 18, 2009 6:30 – 8:30 pm Dr. Mulpuri Hip Health and Cerebral Palsy Bonsor Community Centre MulƟ Purpose Room 1, 2nd Floor 6550 Bonsor Avenue Burnaby, BC V5H 3G4
CPABC STAFF
FERI DEHDAR Director of Programs & AdministraƟon TAMMY VAN DER KAMP Family & Individual Support Worker WENDY HAWRYZKI AdministraƟve Assistant

Members, community partners & new members are all welcome to aƩend. Call our oĸce to RSVP or to Įnd out more informaƟon 604-408-9484 or toll free in BC at 1-800-663-0004 www.bccerebralpalsy.com

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CPABC BOARD MEMBERS
CRAIG LANGSTON President TRISH MCKAY Vice President JONN OLLDYM Treasurer RONALD BLACKMORE LIZ CALDER TERREANE DERRICK LES EBL DANIELLE GUERTIN TONY KRUSE

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Cerebral Palsy AssociaƟon of BriƟsh Columbia 801-409 Granville St. Vancouver, BC V6C 1T2 Phone: 604.408.9484 Toll-Free (Enquiry CP): 1.800.663.0004 Fax: 604.408.9489 Email: info@bccerebralpalsy.com Oĸce Hrs: 9 AM to 5PM, Monday to Thursday

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