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: Nelson Otowoma (Absent with apologies) Alternate Board Member: Gracia Violeta Ross Quiroga firstname.lastname@example.org Report of FAC (Finance and Accountability Committee) self assessment
+++Ethics committee Recalling the call of the chair in the 17th Executive Board minutes (pp18): “The CHAIR noted that there are ethical issues in relation to confidential information. He suggested that setting up a UNITAID ethics committee would be helpful” The Communities Delegation expresses its strong interest on participating on the conformation and work of such committee. With concern we noted that UNITAID has a conflict of interest policy which has been approved 6 years ago and has not been updated since. We all have conflicts of interest and it is very important we address and disclose those regularly and implemented for all board members. Having made an analysis of our involvement on this board, we note that as communities living with HIV, TB and malaria we have an interest, which is LIFE, ACCESS, EQUITY and HUMAN RIGHTS for all people in need. +++Fundraising Strategy and Resource Mobilization Plan ready by the end of 2013 Secondly, we noted the UNITAID strategy will have a Fundraising Strategy and Resource Mobilization Plan ready by the end of 2013; the Community Delegations wants to be engaged considering our experience in fundraising and engagement of country level stakeholder, use the expertise of us who are living with the diseases every day. Proposal Review Committee (PRC) Evolution
In regards to the potential new members in the PRC, we want to remind the board of the experience that lies in COMMUNITY MEMBERS LIVING WITH THE DISEASES, there are many global organizations such as UNFPA, UNAIDS, UN Women that are beginning to acknowledge the experience of
community based individuals and organizations, because we are on the ground, we know what works and what does not, we accumulated years of experience living with the diseases to the point that we have, sometimes, better expertise than the experts themselves, this is why consultants come to our countries and ask us what to do for HIV, TB and Malaria. We want this knowledge to serve UNITAID. We take the medications that UNITAID pays for. We want to stress the importance of having and independent group of experts that are conscious of UNITAID conflict of interest policy, this is essential for our accountability as a leading global entity in HIV, TB and malaria. The Communities Delegation would like to be involved in the nomination of the PRC members in whatever format it comes to be. KPI (Key Performance Indicators)
The Communities Delegation welcomes the document but need to see a focus on a framework more than words and terminology, the links with: The Strategy and its implementation plan A M&E plan And the Resource and Mobilization Plan which is meant to be ready by the end of 2013, this link is essential.
In addition, the KPIs have to integrate aspects of: results framework impact assessment
…even considering unintended consequences of UNITAID interventions, specially the one related to market interventions. Management response to the 5 Year Evaluation
+++Communities living with the diseases as strong UNITAID partners Thanks for the inclusion of civil society among UNITAID partners at country level, especially communities living with the 3 diseases. This re affirms in practice the important role that UNITAID places in communities in country responses. Some of you might know the Communities Delegation has a Community Support Team whose ToR are being up dated in order to support better the work of UNITAID`s work at country level. We can help in all the areas UNITAID works, but especially in those related to resource mobilization and advocacy that favors all the issues contained in UNITAID`s mission.
+++Work of UNITAID with MICs (Middle Income Countries) for market impact interventions In regards to the response to the 5 year evaluation, the Communities Delegations welcomes the document, but we want to make a plea in relation to Recommendation No. 3, and the work of UNITAID across income country groups. The 5 Year Evaluation stated that our weakest area is market intervention, this is the heart of UNITAID and we want to remind you that in order to achieve this goal, we have to work with Middle Income Countries (MICs) in a more proactive way. We commend UNITAID for co-sponsoring a meeting with MICs together with Brazil and the Medicines Patent Pool (MPP) ad UNAIDS, next week in Brazil, we are confident, this meeting will give us insights, strategies on how to work better with these countries and not only the BRICS (Brazil, Russia, India, China, South Africa) countries but also the small MIC countries. Improvement of HIV first line treatments
This proposal is critical for us living with HIV, so many years we have seen our friends and colleagues dying of lactic acidosis, peripheral neuropathy, suffering and dying needlessly. This proposal will improve our quality of life and we want t thank you for this great idea. I wish the science and funds had been available before The Communities Delegation thanks the reference to the Treatment 2.0 WHO strategy in the document, and we would like to remind board members about 1 of the 5 pillars of the Treatment 2.0 strategy without which, success might be slow, we are referring to the pillar on MOBILIZATION OF COMMUNITIES, because we are essential for: Community based work for treatment adherence including literacy and preparedness for the switch of ARV (antiretroviral) regimes Advocacy for treatment policies at country level and mobilizing country ownership, mobilizing policy changes in our national HIV programs to speed the process of the adoption of the most up to date ARV guidelines Oppositions to potential intellectual property barriers which are mentioned in the proposal, we are very concerned about ongoing free trade agreements between India and the European Union and the potential impact of that for the entire developing world. We can also evaluate and monitor programs, prevent potential frauds, watch the supply chain, pricing or over pricing of these drugs, stock outs, quantifications, and specially creating a massive demand of communities for having a better and less toxic regime.
Being the last link in the supply chain, because we decide every day if we will take the ARV medications or not, our involvement in such programs that pursue and will accelerate the switch of ARV regimes is of paramount importance. We know this work with communities is not something that is currently done by CHAI (Clinton Health Access Initiative). We also know currently UNITAID does not fund community led initiatives, you may consider this in the future because it is in the best interest of UNITAID to secure the investment we are making in purchasing tenofovir, will reach the last link of the supply chain, us when we take the medication and remain adherent to tenofovir. Even in a context of new WHO (World Health Organization) ARV guidelines, some of our governments might not be so quick in implementing those, unless we are there demanding for this to happen. In regards to the proposal, we still have to ask what will happens to other 2 thirds that are not going to be taken of stavudine? Who will see what happens to those staduvine not used in the 1 third of the market? Someone has to follow on what will happen, someone has to watch an illegal market of stavudine is not created as a result of 1 third getting off from it. We can do this because we are the communities living with the disease every day, right there on the ground. We also need to see better strategies to boost generic competition so that we don`t put the destiny of our lives in one single supplier. Therefore, we strongly support the urgent revision of the proposal by the PRC. Update on Operations
The Communities Delegation congratulates Raquel Child for her work in UNITAID, it is so refreshing to see people from Latin America working in UNITAID, sometimes we get the feeling as if UNITAID was created only for African countries, we know this is not right and we are eager to see more work of UNITAID in Latin American countries as well as in other regions. In regards to the Update on Operations, just had a clarification question, in Table 1 there are more than 3 projects that have an end note that says “ended in December 2012” but these are still appearing as active projects. What is our mechanism to face out UNITAID projects once our support is finished? Just a clarification of what is our good bye to countries, especially considering follow up, country ownership of whatever initiatives we had started in countries. Mozambique country visit
In regards to the report on the country consultation in Mozambique, we welcome this especially because our strategy and its Core action area 4, relates
to “Strong relationships with global partners, countries, and civil society”, especially communities (pp 16). We already told you about our Community Support Team and our efforts to make it more functional in order to support the monitoring of UNITAID projects at country level. A country visit is or can be very important but we really need to build a strong community network right there, because at the end of the day, any of us who could have joined or not that meeting (nor myself or the board member of the Communities Delegation had attended this meeting, presumably due to a funding limitation), but if we attended, then we are gone right? We get on the plane and go back to our home countries and offices and the people of the communities are left there, and they are the ones who have to deal with whatever problems come on their care. This is why, my personal vision is that more important than a country visit, for me as only the first phase of a process, we need to invest in the empowerment on that people living with the disease, so that they carry on the follow up of these projects. I can seat here in this board because someone invested on me, on my empowerment. This takes me to my earlier point, if we want successful continuation of UNITAID projects after we finish a country visit or after a projects ends, we need to empower that communities living with the diseases right there because they will have to fight for their lives every day. NOTE: UNITAID Board documents are confidential documents and therefore can`t be shared but these talking points made by the Communities Delegation are already public. Once the UNITAID secretariat uploads the Board Resolutions I will send a link where those can be read. Gracia Violeta Ross email@example.com