"

Doma|n-spec|f|c d|g|ta| eth|cs, pract|ces, and convent|ons

Lxamples complled for Lhe
Lth|cs of Data Conference, Stanford Un|vers|ty, September 1S-16, 2014


As||omar Convent|on: Lth|ca| dec|s|on mak|ng |n h|gher educat|on research
hLLp://asllomar-hlghered.lnfo/

A man|festo for the future of the 'r|ght to be forgotten' debate
hLLp://www.Lheguardlan.com/Lechnology/2014/[ul/22/a-manlfesLo-for-Lhe-fuLure-of-Lhe-rlghL-
Lo-be-forgoLLen-debaLe

8e||ag|o Iramework for Lth|ca| kes|||ence
hLLp://popLech.org/sysLem/uploaded_flles/66/orlglnal/8ellaglolramework.pdf

1he Consumer Þr|vacy 8||| of k|ghts (USA)
hLLp://www.whlLehouse.gov/slLes/defaulL/flles/prlvacy-flnal.pdf

Compend|um of Lth|cs and Standards for Nonprof|ts
hLLp://www.lndependenLsecLor.org/compendlum_of_sLandards?s=eLhlcs

1he Data 8||| of k|ghts
hLLp://baLLellemedla.com/archlves/2007/04/Lhe_daLa_blll_of_rlghLs.php

Data Co||ect|on |n numan|tar|an kesponse: A Gu|de Ior Incorporat|ng Þrotect|on
pqdl.care.org/ÞracLlce/uaLa CollecLlon ln PumanlLarlan 8esponse, A Culde for lncorporaLlng
ÞroLecLlon.pdf

Lth|ca| Þr|vacy Gu|de||nes for Mob||e Connect|v|ty
hLLp://blogs.oll.ox.ac.uk/pollcy/eLhlcal-prlvacy-guldellnes-for-moblle-connecLlvlLy-
measuremenLs/

Iedera| 1rade Comm|ss|on Ia|r Informat|on Þr|nc|p|es (USA)
lalr lnformaLlon ÞracLlce Þrlnclples

Iree Speech Debate
hLLp://freespeechdebaLe.com/en/

Independent Sector Code of Lth|cs
hLLp://www.lndependenLsecLor.org/code_of_eLhlcs?s=Code°20of°20LLhlcs&s=eLhlcs


#
Internat|ona| Med|ca| Informat|cs Assoc|at|on (2013) Code of Lth|cs for nea|th Informat|on
Þrofess|ona|s
hLLp://www.lmla-medlnfo.org/new2/pubdocs/LLhlcs_Lng.pdf

Nat|ona| Counc|| of Nonprof|ts Code of Lth|cs
hLLp://www.councllofnonproflLs.org/resources/resources-Loplc/eLhlcs-accounLablllLy

Nat|ona| Sc|ence Ioundat|on Counc|| for 8|g Data Lth|cs
hLLp://www.daLasocleLy.neL/lnlLlaLlves/councll-for-blg-daLa-eLhlcs-and-socleLy/

CLCD Gu|de||nes on the Þrotect|on of Þr|vacy and 1ransborder I|ows of Þersona| Data
hLLp://www.oecd.org/lnLerneL/leconomy/oecdguldellnesonLheproLecLlonofprlvacyandLransbor
derflowsofpersonaldaLa.hLm
LLhlcs code examples (conLlnued)

Soc|ety of Þrofess|ona| Iourna||sts code (|n draft form, for ed|t|ng)
hLLp://sp[.org/pdf/eLhlcs-code-mark-Lhrough-drafL-3.pdf and blog on nonproflL verslon
hLLp://www.pbs.org/medlashlfL/2010/01/how-Lo-avold-eLhlcal-snags-ln-non-proflL-
[ournallsm004/

Lducause: Gu|de||nes for Data De-Ident|f|cat|on
hLLps://wlkl.lnLerneL2.edu/confluence/dlsplay/lLsg2/Culdellnes+for+uaLa+ue-
ldenLlflcaLlon+or+AnonymlzaLlon