09 appointed as
CEO > p.19
The future of
care > p.4
Marriott
hotel? > p.7
starting to see
benefits > p.13
of public money’?
readers of
In Control Newsletter > www.in-control.org.uk > issue 08 > July August 2009
In issue a bit of text and a bit of text a Take me to a bit of text a
08 an accompanying
illustration
bit shorter for
this one?
the river, to
the rrrrr river
bit shorter for
this one?
Personalisation In brief…
the first
the text sus sumet ium
quis se simet eum andam
Millaut volorro doloriost
enis secteniet volut quae
nisquatur, quias accabor
mosa dunte odit, ipient.
In the early days of In Control, it was common to
Bold heading rolling into
hear people say ‘Self-Directed Support? Nice idea but the text Imus sumquo
ipis erem dic toribustibus
people will be so vulnerable to abuse’. Actually, it’s still dolupta tquam, quibus,
untiatiosti rerum cus simus
common to hear such statements. es cume vel in por aceate
rerumquatia sam nim
newspaper
nam faceper ovidende et
Control confident in claiming voluptas dolora dolorro endi
that ‘Personalisation makes you aperitibus eos pernam, quae
safer’. This was the message of prehent.
In Control’s submission to the
review of the government’s No Bold heading rolling into
Secrets guidelines carried out the text Debisit atiunditis
earlier this year. magnis ercipsam, ist,
odion eum veniet dolut
Dangerous dolorunt dit doluptas
eos es quidelique venit
assumptions aut alit praepernam,
Simon Duffy and John Gillespie, sandeni mendem ium
authors of In Control’s fugia iuntionsent labo.
paper Personalisation and Nemporum quae nescipsam
issue of
Safeguarding, say that the qui que simus.
assumption that Personalisation
is less safe is based on Bold heading rolling into
misunderstandings. For the text Um idi to que
example, some people believe occus, ommolore, auta
Personalisation is simply about quidel mo bereicatium
removing control from people autem doluptatem facit
who need support and that it is eat postrum rerrovid et de
not about reducing risk. If you dolupta voluptas con nusae
believe this is true, it’s easy to volestrum non nat alitis
jump to another conclusion: utemquo diatemq.
Personalisation is no longer than 70,000 others have Direct Personalisation can only work
an idea. Over12,000 people Payments. There is now an for people who don’t need much
have Personal Budgets. More evidence base that makes In support. cont. p.2 >
In Control
1
money they have for their support so they can spend that
content of In Control NOW!
really empowering. Personal
1
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
Registered office:
Carillon House, Chapel Lane, Wythall,
West Midlands, B47 6JX
Subscribe
Subscribing to In Control NOW! is free.
For an electronic copy please email:
admin@in-control.org.uk
or visit: www.in-control.org.uk/news
In Control NOW! is published by
In Control Publications, PO Box 45377,
into the abstract world created by jargon repay Jean for her help – coming in up to London SE14 5JU
– reviews and assessments are now often six times a day, making the meals, sorting Distributed by In Control NOW!
‘outcomes-based’. out washing and keeping the house clean. Carillon House, Chapel Lane,
She knew Jean would never accept money. Wythall, West Midlands, B47 6JX
If we trust people to know what they Barbara joined a wine club and every
need, we quickly find out the real meaning
of outcomes and the good use of public
month Jean received a selection of fine
wines. Production
money. Bill, 81, was sprightly until he had a Editor: Carl Poll
fall caused by a stroke. Before his discharge Barbara pays £35 a month from her Personal carl.poll@in-control.org.uk
from hospital, the occupational therapist Budget. She feels much better now she is Design: Henry Iles
said he would benefit from a stair lift – giving something to Jean. All that support henry.iles@in-control.org.uk
especially to get to the toilet at the top of would obviously cost a lot more. But can Print: Quotemeprint
his steep stairs. buying alcohol ever be a good use of public www.quotemeprint.com
money? Surely, the answer in this case is ‘yes’.
Getting the stair lift would take a few
months, so a commode was delivered and
a home care worker came to empty it three
times a day. Bill said he just wanted to sleep
We are on our way...
in his bedroom upstairs, not on a mattress in
... but we still have some fundamental culture. It is important to change operating
the living room. After a six-month wait, Bill
changes to make, writes Richard Jones. systems to manage personal budgets and
asked if the money spent on the home care
worker could be used to buy him a stair lift. acute resources.
Transforming social care is a significant
The answer was no. The cost of home care journey. We have to move from a place However, nothing will really change unless
was £5,460 a year. The stair lift would have where people take what we offer to a those whose job it is to support citizens
cost £1,200. Would this have been a good world where universal services support all can relinquish long-held views about what
use of public money? We don’t need to think citizens, and those with additional needs it means to be a professional.
long to know what Bill would have done if he can exercise choice and control.
had had a Personal Budget. Services have to change fundamentally if
It is positive that we are on our way. Some people are to lead lives they value.
Wine – a good use of citizens are beginning to experience a
different response from professionals and
We have made a good start but the journey
2
Membership
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
People
change. But, because it’s
In Control’s new Membership booklet offers policy, it’s easy to lose sight Public membership:
a wide variety of options to help you on the of the ethics and principles
journey of transformational change. Options
include Whole-life Membership that encourages
transformation
across all statutory
Power! that should drive the
changes.
Support remains firmly attached to core values must make sense to people who wants to be part of something bigger.
networks
and an ethical framework. Membership brings a in their real lives. Whoever you are, if you support
In Control’s aims, you can join. priority notice and
public commitment to ensuring that people have discounts on events.
a good life, not just a service. Julie Stansfield, In Control’s
Chief Executive, says: Sooner or later, every one More information:
More information and download the brochure at: www. ‘In Control no longer of us will need additional www.in-control.org.uk/
in-control.org.uk/membership needs to persuade local support for ourselves, a membership
3
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
help to bring more choice and control that the funding proposals in
the Green Paper follow from the Set entitlements with clear
4
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
Online community
shop4support launches My Life in bid to build
social capital
shop4support continues and receive advice in The Harrow page gives easy early in 2010. People will then
to be the leading online the Forum. access to up-to-date information be able to buy care services and
shopping facility for social about social care in the Borough, products, liaise with providers
care products and Laurence Clark, useful contacts and information and manage their Personal
services. acclaimed writer about Self-Directed Support. Budgets.
The site will and comedian, Users can click through to the
soon boast will be My Life’s Community Catalogue which Deven Pillay, Chief Executive
a new area – Editor. Laurence advertises a range of community of Harrow Mencap says
My Life – where says ‘I’m really services, voluntary groups, ‘shop4support is an excellent
people can looking forward events and other local resources, idea. I am looking forward to
create social to becoming the for example: exercise classes, working with the Council, other
networks Editor of My Life. art workshops and home library voluntary sector colleagues and
and online There will visits. of course individuals to turn this
communities. be regular idea into reality.’
My Life will go blogs from Akbar Dhalla, an Independent
live early in 2010. me, a lively Broker for Harrow Council There has been keen interest in
discussion service users, comments ‘I can the new Harrow homepage and
My Life users will forum, reviews see that shop4support will really Community Catalogue. Work is
be able to share ideas and much help me to help my clients get now underway with a number
about support planning, more. See you the most out of their personal of other councils that want heir
Self-Directed Support, there.’ budget and their life.’ own shop4support pages.
entertainment and leisure –
anything that helps people to Photo: Comedian and My Life editor, The second stage of Harrow’s See: www.shop4support.com/harrow
live a rich life. They can also offer Laurence Clark shop4support site will launch or www.harrow.gov.uk
5
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
6
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
7
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
8
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
Event 2010
Comedian Laurence
Clark raises
money for
International Personalisation Conference exterminating
cute labrador
16 March 2010, Liverpool pups.
At In Control’s In
Community event
in October, Laurence
Clark delighted the audience with a video
of his fundraising efforts for a surprising
campaign: Kill the puppies!
9
Ben Pelham on
Bournemouth
beach.
Ben uses his
Personal Budget
to live life to the
full.
He says he
plans to become
a famous rap
singer and
break dancer.
Better
rg.uk/partners/
www.in-control.o
organised by the National learning on this course to the BME
Black Carers & Carers Workers communities that I work with and
bringing
A national course
togeth er fam ily carers, Network (NBCCWN) to get BME represent. I have to find language
in social
people who work
care, health servic
es, communities’ views on the Green that will be meaningful.’
and other
education, leisure Paper, Shaping the future of
providers.
The course consists
of five 2-day
sessions held in Loug
hborough on: social care. Raakhee had a one- Lynne Elwell is impressed by
29 –30 September
20 –21 October 200
2009
9 to-one meeting with Phil Hope, the group’s progress: ‘They’re
Minister of State for Social Care – amazing people, with rich
2009
19 –20 November
0
21 –22 January 201
something she would have never stories to tell. More than 100
2010
16 –17 February
pack and more
For an application
12
Children
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
to see benefits…
turn 18. Young people and their
families can plan ahead rather
than ‘dropping off the edge of
Taking Control, the the cliff’ as they wait for adult
services to respond.
In Control programme For Matthew and his family,
for children’s and young being able to plan ahead meant
that he could organise weekend
people’s services, is breaks with his girlfriend,
Josephine. Matthew was able to
starting to gather ensure that people he knew and
trusted could support him on
evidence of outcomes these trips. The adult social work
team manager said it was ‘the
for disabled children and Stay safe – 77% improvement (including 1
easiest transition ever’.
There are now 200 live Individual Budgets …and taking about safeguarding and a problem-solving
approach that supports young people and
them into
and we sent out forms to areas where their families to have safer control over
families have been managing Budgets decisions that affect their lives. And we need
adulthood
for their sons and daughters for over two flexible education monies and student-led
months. health resources that promote preventative
health and well-being. Then we’ll see a more
Thirteen completed forms have been The first young people with Individual positive use of public money, better outcomes
returned and these indicate improvements Budgets are making their move from and young disabled people as active citizens.’
in outcomes against the Every Child Matters children’s to adult’s services. Families say
outcomes: that life is proving easier because they know More information: paul.connolly@in-control.org.uk
13
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
C h i l
u
d
n g
r
p
e
e o
n
p le
and yo
It became a creative process: Alison Cathles works for the In Control children’s
team one-day a week. She links with the work of On 24 November, six families joined
finding people and organisations that can the Department of Health and the Office for Public professionals from Middlesborough Social
make things happen as locally as possible Management on the development of a whole-life Services to share their experiences of having
balancing appropriate risk-taking with the approach to commissioning. an Individual Budget. The families made
protection of vulnerable children presentations about the difference Self-
setting up pilot activities if the things More information: alison.cathles@in-control.org.uk Directed Support had made to them.
14
Health
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
15
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
Support in Scotland
address challenges.
More information:
A draft of the new national strategy keith.e@in-controlscotland.org.uk
for Self-Directed Support in
Scotland is due to be published for
further consultation.
In Control Scotland
In Control Scotland was initiated and
In Control Scotland has been represented developed through a partnership
on the reference group that considered the between Altrum and the Scottish
draft strategy and has advocated that the Consortium for Learning Disability.
strategy should promote a flexible system of It was formally constituted as an
Self-Directed Support available to all. (The an independent organisation in
original draft strategy focused on increasing April 2009, linked to developments
the take up of direct payments.) The final elsewhere through its membership of
version of the strategy is expected in the In Control Scotland’s Frances Brown and Catriona In Control International.
spring of 2010. Campbell at the parliamentary reception
16
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
Self-Directed
Support in
Hartlepool
2006-2009
by Andrew Tyson
Hartlepool, a town of 90,000 on the Tees the project leader initially...later, I was more common and business sense really helps
bay in the northeast, has made huge supportive.’ families and individuals to get a better deal.
strides towards total transformation – I have witnessed Nicola focus on intricate
personalising all support. A new report Sarah Ward, Social Care Transformation detail of an individual family’s need and
by In Control’s Andrew Tyson captures the Manager, talks about the process of change: then use the outcome as an exemplar of
story of this demanding change process. ‘We wrote the basic process with the help practice and utilise it to negotiate strategic
The report is based largely on the words of of staff from different disciplines, including implementation for policy.’
managers and staff. Below are quotes from admin, social care etc. All were mixed in
people who have led the change. sessions; this gave them a good sense of The contents of the report are below:
ownership, the feeling of having contributed
Nicola Bailey, Director of Child and Adult to the process.’ Contents
Services, led the process. She says that, in
Foreword by Nicola Bailey and
2006, the Department was ‘very much an Jeanette Willis, Principle Finance Manager/
Julie Stansfield ����������������������������������������������������������������������������������������������� 1
older people’s Department’ – working-age Personalisation Lead comments on the
Introduction ������������������������������������������������������������������������������������������������������������� 2
people got support that was ‘good-enough’ budget issues: ‘We can say that we can
but there was no aim to help anyone fulfil guarantee every penny of value in Hartlepool. Chapter One: Preparing for
Self-Directed Support ��������������������������������������������������������������������������� 4
their dreams or deeper aspirations. We couldn’t say that with the old system.’
Chapter Two: The tools for transformation ������������� 13
Bailey immediately focused attention Geraldine Martin, Head of Service says Chapter Three: Changes to the way
on the Direct Payments scheme and ‘Challenges remain but all the social care support is provided ���������������������������������������������������������������������������� 18
succeeded in generating a new level of staff I have spoken to say that they are more Chapter Four: Looking ahead ������������������������������������������������������� 25
energy and excitement about change. ‘I confident working with Personal Budgets and Acknowledgements and last words ���������������������������������� 35
set up the Direct Payment steering group to they have a clearer and more optimistic view Endnotes ������������������������������������������������������������������������������������������������������������������� 36
provide a bit of structure. After a couple of of their role going forward.’ Appendix: Who uses Self-Directed
months we joined In Control and then the Support in Hartlepool? ������������������������������������������������������������������� 37
Total Transformation programme. In the Julie Stansfield, In Control’s CEO, reflects
beginning, my role was to be very directive; on her role in supporting Nicola Bailey
I told them what was to be done. ... I was and her team: ‘Nicola’s combination of For the full report go to: www.in-control.org.uk
17
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
Northumberland has hosted three creative days Participants at the event were
entertained by theatre company
on personalisation and Self-Directed Support Moveable Feast and comedian
with individuals and families. In Control’s Caroline Liz Carr. Liz interrogated a
panel comprising local senior
Tomlinson introduced the event and emphasised managers, Simon Duffy
the positive impact Self-Directed Support has had (In Control’s former CEO) and
Phil Hope, Minister for Social
on real people around the country. care. about their knowledge of
Participants discussed how Self- the Putting People First agenda.
Directed Support could work for
the people of Northumberland. The event marked a public
Part of the day was dedicated commitment by organisations
to creating a Northumberland across the County – adult and
patchwork quilt. Everyone made children’s services, health and
Moveable Feast entertain
a patch representing what social care – to personalise their
would work and what they Northamptonshire’s Rockingham approaches.
were worried about. The quilt Speedway usually resounds to
will be prominently displayed the roar of muscle-car engines. John Parkes, PCT CEO, announced
somewhere in the County. For one day in October, though, that Northamptonshire had
the site played host to a different been selected as a Department
Feedback was positive. A few kind of high performance event. of Health ‘deep dive’ evaluation
people arrived saying they were Hundreds of managers, staff site for personal health budgets.
sceptical, but they left feeling and local people gathered to This development, he said, took
excited. A report is being written celebrate Northamptonshire’s the County’s ambition to create
Northumberland consultation: from about the days. It will soon whole-life implementation of a whole-life approach one step
scepticism to excitement appear on the In Control website. Self-Directed Support. closer to fruition.
can have for your support Personal Budgets are being made
15000
October 2006
January 2007
April 2007
June 2007
October 2007
January 2008
April 2008
June 2008
October 2008
January 2009
june2009
October 2009
July 2006
August 2006
September 2006
November 2006
December 2006
February 2007
March 2007
May 2007
July 2007
August 2007
September 2007
November 2007
December 2007
February 2008
March 2008
May 2008
July 2008
August 2008
September 2008
November 2008
December 2008
February 2009
March 2009
May 2009
September 2009
JUly 2009
August 2009
November 2009
April 2009
18
In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
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In Control Newspaper > www.in-control.org.uk > issue 09 > Winter 2010
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