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In Control’s Quarterly Newspaper >

uk > issue 09 > Winter 2010

In issue Julie Stansfield Editorial: Pigs at the Children

09 appointed as
CEO > p.19
The future of
care > p.4
hotel? > p.7
starting to see
benefits > p.13

Is this ‘a good use

People like new
In Control NOW!
We invited

of public money’?
readers of  
In Control Newsletter > > issue 08 > July August 2009
In issue a bit of text and a bit of text a Take me to a bit of text a

08 an accompanying
bit shorter for
this one?
the river, to
the rrrrr river
bit shorter for
this one?

Personalisation In brief…

makes you safer

Bold heading rolling into

the first
the text sus sumet ium
quis se simet eum andam
Millaut volorro doloriost
enis secteniet volut quae
nisquatur, quias accabor
mosa dunte odit, ipient.
In the early days of In Control, it was common to
Bold heading rolling into
hear people say ‘Self-Directed Support? Nice idea but the text Imus sumquo
ipis erem dic toribustibus
people will be so vulnerable to abuse’. Actually, it’s still dolupta tquam, quibus,
untiatiosti rerum cus simus
common to hear such statements. es cume vel in por aceate
rerumquatia sam nim

nam faceper ovidende et
Control confident in claiming voluptas dolora dolorro endi
that ‘Personalisation makes you aperitibus eos pernam, quae
safer’. This was the message of prehent.
In Control’s submission to the
review of the government’s No Bold heading rolling into
Secrets guidelines carried out the text Debisit atiunditis
earlier this year. magnis ercipsam, ist,
odion eum veniet dolut
Dangerous dolorunt dit doluptas
eos es quidelique venit
assumptions aut alit praepernam,
Simon Duffy and John Gillespie, sandeni mendem ium
authors of In Control’s fugia iuntionsent labo.
paper Personalisation and Nemporum quae nescipsam

issue of
Safeguarding, say that the qui que simus.
assumption that Personalisation
is less safe is based on Bold heading rolling into
misunderstandings. For the text Um idi to que
example, some people believe occus, ommolore, auta
Personalisation is simply about quidel mo bereicatium
removing control from people autem doluptatem facit
who need support and that it is eat postrum rerrovid et de
not about reducing risk. If you dolupta voluptas con nusae
believe this is true, it’s easy to volestrum non nat alitis
jump to another conclusion: utemquo diatemq.
Personalisation is no longer than 70,000 others have Direct Personalisation can only work
an idea. Over12,000 people Payments. There is now an for people who don’t need much
have Personal Budgets. More evidence base that makes In support. cont. p.2 >

In Control

NOW! to tell us what they

thought. Everyone who
Are we forgetting the point of personalisation? Re-ablement, wrote in received an
In Control memory stick
universal services, social capital and a dozen other jargon words: loaded with useful
all useful terms in their own way. But could the words cloud resources.
‘As a single parent carer of a
the original, simple idea that we openly tell people how much disabled teenager, I found the

money they have for their support so they can spend that
content of In Control NOW!
really empowering. Personal

money in a way that makes sense to them?

stories about service users and
carers are inspiring and give
hope. I feel more confident
has been very poor at using about the future knowing
public money effectively. Forty that there are positive options
pence in every pound is spent available to me.’
on back-office functions and NB, Lancashire
bureaucracy. The system can’t
carry on in the old way, especially ‘Well presented and accessible
when we are living longer and – a breath of fresh air.’
our expectations are higher.
GB, Middlesex

Outcomes – simple ‘Crammed full of useful

information. I find it very
helpful. The new tabloid
The answer lies in trusting and format is easier to read.’
supporting people to know the
outcomes they want to achieve LM, London
and letting them take the lead.
It doesn’t really matter how ‘I work for Plymouth City
Council. I found the articles
Can alcohol ever be a good use of public money? they achieve their outcomes.
on social change interesting
But trusting people is easier said
and challenging. I’m looking
In the confusion about to find ways of making sense of a than done. It means real culture
forward to the next issue.’
what’s right and wrong in complicated change. change for all of us – we have to
personalisation, we often see behave differently, not just talk ID, Plymouth
professionals drawing made- However, falling back on the differently.
up lines around the ‘good seemingly safe territory of the
use of public money’. This is ‘good use of public money’ won’t Even the word ‘outcomes’ is
understandable. We are all trying get us anywhere. The old system being steadily absorbed Cont. P2

In Control Newspaper > > issue 09 > Winter 2010

illustration: cathy balme

Publishing information
In Control NOW! is a newspaper
produced by In Control, a not-for-profit
organisation and registered charity
working for social change.

Registered office:
Carillon House, Chapel Lane, Wythall,
West Midlands, B47 6JX

Subscribing to In Control NOW! is free.
For an electronic copy please email:
or visit:
In Control NOW! is published by
In Control Publications, PO Box 45377,
into the abstract world created by jargon repay Jean for her help – coming in up to London SE14 5JU
– reviews and assessments are now often six times a day, making the meals, sorting Distributed by In Control NOW!  
‘outcomes-based’. out washing and keeping the house clean. Carillon House, Chapel Lane,  
She knew Jean would never accept money. Wythall, West Midlands, B47 6JX
If we trust people to know what they Barbara joined a wine club and every
need, we quickly find out the real meaning
of outcomes and the good use of public
month Jean received a selection of fine
wines. Production
money. Bill, 81, was sprightly until he had a Editor: Carl Poll
fall caused by a stroke. Before his discharge Barbara pays £35 a month from her Personal
from hospital, the occupational therapist Budget. She feels much better now she is Design: Henry Iles
said he would benefit from a stair lift – giving something to Jean. All that support
especially to get to the toilet at the top of would obviously cost a lot more. But can Print: Quotemeprint
his steep stairs. buying alcohol ever be a good use of public
money? Surely, the answer in this case is ‘yes’.
Getting the stair lift would take a few
months, so a commode was delivered and
a home care worker came to empty it three
times a day. Bill said he just wanted to sleep
We are on our way...
in his bedroom upstairs, not on a mattress in
... but we still have some fundamental culture. It is important to change operating
the living room. After a six-month wait, Bill
changes to make, writes Richard Jones. systems to manage personal budgets and
asked if the money spent on the home care
worker could be used to buy him a stair lift. acute resources.
Transforming social care is a significant
The answer was no. The cost of home care journey. We have to move from a place However, nothing will really change unless
was £5,460 a year. The stair lift would have where people take what we offer to a those whose job it is to support citizens
cost £1,200. Would this have been a good world where universal services support all can relinquish long-held views about what
use of public money? We don’t need to think citizens, and those with additional needs it means to be a professional.
long to know what Bill would have done if he can exercise choice and control.
had had a Personal Budget. Services have to change fundamentally if
It is positive that we are on our way. Some people are to lead lives they value.
Wine – a good use of citizens are beginning to experience a
different response from professionals and
We have made a good start but the journey

public money? organisations who are there to support

we are on is not about ticking boxes and
tinkering with our current system. It is
about fundamental reform which turns
Jean has lived next door to Barbara for over
We should recognise the early progress what we do on its head.
35 years. She has always popped in to see
Barbara, who would never have managed that has been made but not kid ourselves
Richard Jones is Lancashire County
after her husband died – Barbara has an about the distance still to be travelled.
Council’s Executive Director of Adult and
increasing need for support because she Personalisation is about a deep change of Community Services.
has MS. Barbara wanted to find a way to

In Control Newspaper > > issue 09 > Winter 2010

Membership Back to our roots

means more In Control has launched public membership for
New In Control individuals and families.
Membership options authorities and PCTs that family member or friend.
they should change their It’s not a specialist issue
are now available for systems. Personalisation is about a minority. It’s an
government policy now. issue for everyone. So,
organisations, individuals we have launched public
We are proud of the part we membership to create a
and families. have played in this policy united voice.’

change. But, because it’s
In Control’s new Membership booklet offers policy, it’s easy to lose sight Public membership:
a wide variety of options to help you on the of the ethics and principles
journey of transformational change. Options
include Whole-life Membership that encourages
across all statutory
Power! that should drive the

The only measure of success

 is a voice for individuals
and groups who believe
people matter
 works for a decent
services – the single
Become a is whether there are real entitlement for people
public member
In Control
most effective way of improvements in people’s who need support
creating sustainable lives.  is a membership
Membership booklet change.
of In Control community
 develops better ways for
Building Self-Directed Support together  Helping people to
get choice and control  Making citizenship happen

Many of the products

This booklet explains how
individual people and Registered charity number 1130761 Who can join? people to be in control
and programmes  draws together a
organisations can benefit from
In Control Membership.
Everyone can!
bring together national overview of
It tells you about the three

The move represents

kinds of In Control Membership

If you think people deserve a life

and a whole variety of In

experts from leading best practice

Control programmes.

Join this vibrant network of

committed individuals and a return to In Control’s and not just a service, become a
organisations  is based on a belief that
Public Member.
roots in a movement of
including Demos, individuals, families and that common sense
Paradigm, the Office for Public Management and, allies of people who need must prevail.
of course, In Control. support – a movement that
declared that the system Members will receive
Members of In Control have been at the heart simply did not work. In Control is for everyone benefits that include:
of the move to Self-Directed Support and Perhaps you are someone:
personalisation since the organisation began The system must  who wants to make sure you don’t end up  membership pack, DVD,
work in 2003. in residential care when you’re older
lapel badge, post-its etc.
make sense  whose support isn’t provided in a way that
works for you  In Control NOW!
 who is in control and wants to keep it
As a Member of In Control, you can ensure In Control always believed that way  local, regional and
the national implementation of Self-Directed that any system changes national support
 who wants to contribute time, ideas or
experience but you’re not sure how

Support remains firmly attached to core values must make sense to people  who wants to be part of something bigger.
and an ethical framework. Membership brings a in their real lives. Whoever you are, if you support
In Control’s aims, you can join.  priority notice and
public commitment to ensuring that people have discounts on events. 
a good life, not just a service. Julie Stansfield, In Control’s
Chief Executive, says: Sooner or later, every one More information:
More information and download the brochure at: www. ‘In Control no longer of us will need additional needs to persuade local support for ourselves, a membership

In Control Newspaper > > issue 09 > Winter 2010

The future of care

Will the proposals proposals. We don’t much responded with a detailed paper.

Editorial  in the Green Paper

like the term ‘National Care
Service’. It sounds too much
like the NHS, and we believe
We believe the main points
remain valid a year later.

Shaping the future of care together that citizen control implies

local control. Nor do we think
In Control suggests a ten-step

help to bring more choice and control that the funding proposals in
the Green Paper follow from the  Set entitlements with clear

to ordinary people? strong vision set out in the early

rules, using a Resource
Allocation System.
 Reform charging policies. 
The Government’s strengths, abilities and In Control would not adopt any  Reform eligibility rules.
consultation on connections with others in of the suggested funding options  Simplify the funding
the future of social family and community. The – pay for yourself; partnership streams.
care in England has early chapters also recognise (the individual pays some,  Establish a common
ended. In Control some concerns that people the Government pays some); framework for local
was pleased with the overall have expressed to In Control, insurance; comprehensive Resource Allocation
aims of the Government’s for example, the need for (people pay into a Government Systems.
Green Paper: new arrangements public bodies to work together insurance scheme); or paid by  Tune entitlements to reflect
for social care that are fairer, so that someone has just one taxes. local prices.
simpler, more affordable and ‘assessment’ for a Personal  Keep leadership local.
‘personalised’ – tailored to Budget, and that assessment There is a real issue about  Improve support for
each individual’s needs and remains valid if they move to how we pay for social care in families.
circumstances. another part of the country. Most the coming decades but, in  Reduce the financial impact
important is the central place offering these closed options, on disabled people.
We were also pleased to see a given to Self-Directed Support as the Paper stifles real debate and  Integrate the tax and benefits
vision for a new way of offering the route to genuine choice and creativity. system.
support. This vision (clearly control.
built around the approach Last year, the Government asked In Control’s full response
In Control has championed But In Control has serious In Control for recommendations. is at:
for six years) looks to people’s reservations about other Simon Duffy and John Waters greenpaperresponse

‘Really rather significant!’

The Association of Directors of Adult Social Services has
launched a Common Resource Allocation Framework.
To those who don’t know what it endorsed by the respected a group of citizen leaders The focus on outcomes of
is, ‘resource allocation’ may sound Association of Directors of Adult (comprising disabled people In Control’s RAS were by no
dull. To professionals creating the Social Services (ADASS) is, as the and family members). The means guaranteed a place in the
systems of personalisation, the Guardian’s public services editor, project benefited from the Common Framework, but we are
Resource Allocation System (RAS) David Brindle, puts it, ‘really expert advice of In Control’s pleased to report that outcomes
may be a technical challenge rather significant’. RAS lead, John Waters. The RAS feature strongly in the final
(and perhaps occasional tools in the final Framework version.
nightmare). are based on materials
A focus on outcomes developed by In Control. So, David Brindle comments
To people directing their own this new Framework will feel that their inclusion takes ‘the
support, though, the RAS is the Launched at ADASS’s October familiar to In Control Members. assessment process way beyond
way they get control over money conference, the Framework The Framework also includes the feel of a limited checklist of
and support. So a national, was the product of a project useful and pragmatic legal basic services for basic human
common assessment framework involving 18 councils and advice. functions’.

In Control Newspaper > > issue 09 > Winter 2010

shop4support taking off

ADASS backs online support shop shop4support and Harrow Council
shop4support excited much bring communities together
interest among delegates at Harrow Council has been working with
October’s Conference of the shop4support to create the site’s first local
Association of Directors of Adult authority homepage and Community Catalogue.
Social Services. 60 Directors
attended a fringe dinner
organised by In Control and shop4support.

Directors were enthusiastic reported ‘Directors were keen

about shop4support’s potential to come on board. Some are
as presented by Jeff Dandridge interested in joining together
of Valueworks, which created on a regional basis to create
and manages the technical maximum efficiency.’
platform for shop4support.
More information:  
Caroline Tomlinson, Consumer or
Support Director for In Control, email:

Online community
shop4support launches My Life in bid to build
social capital
shop4support continues and receive advice in The Harrow page gives easy early in 2010. People will then
to be the leading online the Forum. access to up-to-date information be able to buy care services and
shopping facility for social about social care in the Borough, products, liaise with providers
care products and Laurence Clark, useful contacts and information and manage their Personal
services. acclaimed writer about Self-Directed Support. Budgets.
The site will and comedian, Users can click through to the
soon boast will be My Life’s Community Catalogue which Deven Pillay, Chief Executive
a new area – Editor. Laurence advertises a range of community of Harrow Mencap says
My Life – where says ‘I’m really services, voluntary groups, ‘shop4support is an excellent
people can looking forward events and other local resources, idea. I am looking forward to
create social to becoming the for example: exercise classes, working with the Council, other
networks Editor of My Life.  art workshops and home library voluntary sector colleagues and
and online There will visits. of course individuals to turn this
communities. be regular idea into reality.’
My Life will go blogs from Akbar Dhalla, an Independent
live early in 2010. me, a lively Broker for Harrow Council There has been keen interest in
discussion service users, comments ‘I can the new Harrow homepage and
My Life users will forum, reviews see that shop4support will really Community Catalogue. Work is
be able to share ideas and much help me to help my clients get now underway with a number
about support planning, more.  See you the most out of their personal of other councils that want heir
Self-Directed Support, there.’ budget and their life.’ own shop4support pages.
entertainment and leisure –
anything that helps people to Photo: Comedian and My Life editor, The second stage of Harrow’s See:
live a rich life. They can also offer Laurence Clark shop4support site will launch or

In Control Newspaper > > issue 09 > Winter 2010

Time banking: one good turn…

One market trader at the In Community
Event was Time Banking UK. In Control
has long been an admirer of time
banking. Here, Martin Simon takes us on
a quick tour of this straightforward way
of creating relationships and building
social capital.
Time banking helps people to currency every bit as real as
make new friends and to become money, that will help to put
part of a social network they can mutuality back into the DNA of
rely on and trust. society.

It can profoundly change people’s Time banking is a vital ingredient

lives and their neighbourhoods of both ‘personalisation’ and
for the better. The process is ‘prevention’. It is a tool ready to
simple. be used in the transformation of
social care.
Time banking is a way of building
social capital. It recognises that Time banking provides new
everyone has the capacity to opportunities for people
contribute in some way to the currently receiving services and
care and wellbeing of others. their families, neighbours and
the wider community to:
It provides a safe framework for
community capacity building,  feel connected and
and incentives and rewards for committed to the place where  help make life safer and more Martin Simon is CEO of Time
people to help each other and to they live secure for everyone Banking UK
share their skills.  share skills, care and support  deal with emergencies and get
and look out for neighbours extra help when they need it For more information and to sign up for
The long-term aim of time  meet others with a wide range  have happier lives and more the time banks bulletin visit:
banking is to provide a social of experience and knowledge rewarding relationships.

How time banking works

People list the skills and People don’t exchange skills
experience they can offer and directly. They can earn a credit
those they might need. Each from one person and spend
person who joins the time it on services from a different
bank agrees to both give and member.
receive help.
A record is kept of all the time
Everyone’s time and skill are credits earned and spent.
valued equally – one hour The Time Online computer
always equals one time credit. programme makes it easy to
Everyone has something they keep track. This may be done
can offer. by a paid Timebroker.

In Control Newspaper > > issue 09 > Winter 2010

Pigs refused entry to Market sharing

the Marriott hotel

In Community event features town crier, a market
square, a comedian and (nearly) pigs.
This event has been really relevant. Our
In Control’s October 30 market stalls. whole social system is changing. People are
community event was Sadly, ‘health and asking for different things. I’ve been talking
no ordinary conference. safety’ prevented one to people here who are doing what we want
There were no plenaries stallholder bringing to do. I’m taking this knowledge back.
or workshops. pigs and chickens.
Judy Bitton, Community Connector, West Sussex
Instead, 250 The unusual format
participants spent responded to feed-
the day in a market back from many
place with stripy stalls isolated people to be part conferences: ‘The best
where community groups of community, which was thing was meeting other
advertised their wares. launched at the event. people – networking.’
And they lounged on park There was the occasional
benches, talking to the The Marriott hotel had speech from the
authors of In Community – dealt kindly with requests bandstand, but no-one
Practical lessons in supporting to build a bandstand and was obliged to listen.
In India we sometimes put the institution
first. Putting people first is attractive to us

In Community book launched at

as social workers. We are building a new
approach to working with people with
learning difficulties and older people in our

In Control conference area of India.

We can learn from the citizenship model

An important new book – In Community: practical lessons in presented here today.
supporting isolated people to be part of community – was launched at
Linta Behnan, Occupational Therapist, Asha Bhavan,
In Control’s conference of the same name in October. Kottayam, Kerala.
Mathew Kanamala, Head of Department of Social
mainly in the UK, but also ‘All too often, social policy Work, St Joseph’s College, Kottayam, Kerala
the US and India. The 23 debates are about barriers
authors break down what and the reasons we can’t
In Community they have learned in years of do something.  In contrast,
dedicated and painstaking this book is an inspirational
work supporting isolated account of what people
people to connect to their have been doing and what
communities. is already possible within
current structures.’
This is not an unapproach-
able text book. Chapters Jon Glasby 
Professor of Health
Practical lessons in supporting isolated people to be part of community
have a common structure and Social Care, 
Co-Director, A great forum to share ideas. That is what
Edited by Carl Poll, Jo Kennedy and Helen Sanderson
that enables the reader to Health Services Management community is all about. Community is not
get straight to ideas they Centre, University of Birmingham about place. It’s about relationships, building
can immediately apply in something that’s sustainable and less
The book’s 13 chapters set their own work: the prob- Available from dependent on specialised services.
out practical lessons learned lem, what was tried, what
from innovative work in was learned, suggestions or In Control Support Centre: Paul Swift, Foundation for People with Learning
community connecting – for others. Tel. 01564 821650 Disabilities

In Control Newspaper > > issue 09 > Winter 2010

Who will know Joe’s story?

Why we need Our Futures by Caroline Tomlinson
This November,
we organised the
first gathering
of families at
a weekend in
Stratford Upon
Avon. Ted Kuntz,
a Canadian
family member
Ted Kuntz from Canada: of PLAN, and
‘Take responsibility’ author of Peace
Begins with Me,
gave an inspiring presentation about how
taking responsibility is the key to making a
sustainable life happen.

We have the capacity to involve many

more families and a section 64 grant to
make it happen. However, we need a small
investment by local organisations in each
region to fund small community venues so
we can bring together real people who want
Having a good time now. But what does the future hold for Joseph? to create a sustainable life for their relatives
and build a real user-led organisation that
You may know of Joseph Tomlinson. Some say he is an icon of Self- can help other people in their communities.
Directed Support and personalisation. He was the first person in the
If you want to be part of Our Futures: contact
country to have an individual budget. and put
Partners in Personalisation in the subject line.
But what does the future hold for Joe? Will being attacked. Perhaps Joe might have been
enough people know and care about him carted off as a danger to the public, never to
that they are involved in his life when we, his be seen again!
parents, are no longer here. UK
We families are always walking on the edge, Our Futures
Bag snatch living in fear. As long as we’re here, it’s ok.
But what happens when we’re not? Who will
Recently, Joe was with his team on the be there for Joe and in for the long haul?
tube in London. He has an obsession with ‘Caring is a family affair’
There is a way
Our Futures
carrier bag handles and he especially loves
Sainsbury’s bags. On the train was a teacher
with a small group of pupils. The teacher had In Control has a strategy to help people to
his lunch in a Sainsbury’s bag. Joe lurched build sustainable lives. A couple of years ago,
forward and grabbed the bag to pull off the we visited PLAN in Canada to learn how to  Future planning
handles. Very quickly, Joe and his friends create lasting circles of support.  Personal networks
could explain what was happening.  Family support and advocacy
In Control has now created five family-  Social enterprise
The sandwiches were saved and Joe’s led organisations across England that are  Lifetime commitment
supporter even offered a replacement bag. In making the PLAN approach happen here. We
a few seconds, the problem was solved and are discovering that people both with and For more information about Our Futures
everyone laughed about it. But what would without families can have circles of friends (formerly called PLAN Federation UK)
have happened if no-one had really known and networks of support that can last a visit:
Joe? The man might have thought he was lifetime.

In Control Newspaper > > issue 09 > Winter 2010

the International Big Kill the puppies!

Event 2010
Comedian Laurence
Clark raises
money for
International Personalisation Conference exterminating
cute labrador
16 March 2010, Liverpool pups.
At In Control’s In
Community event
in October, Laurence
Clark delighted the audience with a video
of his fundraising efforts for a surprising
campaign: Kill the puppies!

Laurence could be seen on the street,

in his wheelchair, shaking a bucket for
increasingly ludicrous causes. It seems that
pity motivated passers-by to give money
to someone in a wheelchair regardless
of how outrageous the disabled person’s

the International Mark Pollock

Adventurer, athlete, author.

Big Event 2010 The first blind man to ski to

the South Pole.
International Personalisation Conference
Professor Chris Hatton
BT Convention Centre, Liverpool Professor of Psychology,
Health and Social Care at
16th March 2010 Lancaster University. It’s a scam!
Supporting people to get a life, not just a service
Workshops include: Laurence started with the relatively
reasonable collecting motto ‘Pay off
 Safeguarding my mortgage!’ Encouraged by the cash
The event that brings Dame Jo Williams  Getting real jobs accumulating in the bucket, he moved onto
together all those united Chair of In Control’s Board  Social capital the catchy slogan ‘It’s a scam!’ and still the
by a common aim – to help of Trustees. ‘The most  Personalisation and the money piled up.
people to be fully in control influential person in social law
of their lives. care’ (Community Care  Personal health budgets But, surely, not even the most pitying
magazine, 2005).  Research and evaluation passer-by would give to someone collect-
The 2009 Big Event was a  New ways of ing money for the destruction of cuddly
huge success, so this year’s Matthew Taylor commissioning pets?
event will be twice as big. Chief Executive of the RSA.  e-marketplaces
The 2010 Big Event event wil Former Chief Adviser on  Support planning ‘Kill the puppies’ shouted Laurence and
have: Political Strategy to the  Personal Budgets for people put money in the bucket. The
Prime Minister. children penny still didn’t drop though, even when
 an international theme  Developing user-led Laurence berated donors: ‘You b******s! You
 2,000 delegates Philip Collins organisations want me to kill puppies!’
 100 exhibitors Chair of Demos’s Board  People leadership.
 50 workshops of Trustees. Former Chief More information about the In Community event:
 live entertainment Speech Writer to the Prime Download the booking form: see page 7, Pigs at the Marriott
 high-profile key speakers. Minister.

Ben Pelham on
Ben uses his
Personal Budget
to live life to the
He says he
plans to become
a famous rap
singer and
break dancer.

Photo: Charlotte Morse

In Control Newspaper > > issue 09 > Winter 2010

‘Light shining in’

All Together Better course delegates speak of increased confidence
In Control’s national All Together Better course brings This new-found confidence has
enabled Raakhee to organise a
together family carers with people who work in formal review and assessment
services (including social care, health, education and for Liam and join a black and
minority ethnic (BME) panel to
the voluntary sector). Funded by the Department help other black carers consider
of Health, the course is the latest successful family what action they can take. ‘You
must press on’, she says. ‘I know
leadership programme run by Lynne Elwell, who
what Liam needs and I got what I
started Partners in Policymaking in 1996. wanted after my third phone call
to Social Services.’ Nita Devabhai

All Together Raakhee and her friend,

Nita, attended a conference
now is to convert some of the
principles and strategies that I’m

organised by the National learning on this course to the BME
Black Carers & Carers Workers communities that I work with and
A national course
togeth er fam ily carers, Network (NBCCWN) to get BME represent. I have to find language
in social
people who work
care, health servic
es, communities’ views on the Green that will be meaningful.’
and other
education, leisure Paper, Shaping the future of
The course consists
of five 2-day
sessions held in Loug
hborough on: social care. Raakhee had a one- Lynne Elwell is impressed by
29 –30 September
20 –21 October 200
9 to-one meeting with Phil Hope, the group’s progress: ‘They’re
Minister of State for Social Care – amazing people, with rich
19 –20 November
21 –22 January 201

something she would have never stories to tell. More than 100
16 –17 February
pack and more
For an application

contemplated before. She came people applied for a place and,

se contact:
information, plea
In Control Support

home feeling proud of what she if we can secure further funding,

pel Lane,
Carillon House, Cha
lands B47 6JX
Wythall, West. Mid
/ Fax: 01564 824260
had achieved on that day! I’m determined to repeat the
Tel: 01564 821 650
programme next year.’
Raakhee’s friend, Nita Devabhai,
is another All Together Better
The six-month programme courage to apply for a place on delegate. She is Manager
offers participants information this course. When I got one, I felt of the NBCCWN. She comes
and strategies so they can excited but a bit overwhelmed’. from a close community in
work in partnership to build Nairobi. ‘The concept of “carer”
a better future for the people and “circles of support” don’t
they support. At the end of the translate easily for the people I
programme, the 49 delegates will work with. Back home, people
graduate and become a national came from natural circles – they People and
network of champions. had inherent family values
in their community. There’s families lead
no word in Punjabi, Hindi or
Plucking up courage Gujurati for learning disability, All Together Better is just one
physical disability or carer.’ of the courses run by Partners
Participants on the course are in Policymaking. Hundreds of
people like Raakhee McNulty Nita heard about All Together people around the country have
Raakhee McNulty
from Leicester. Raakhee cares for Better when she met Lynne gained skills and confidence on
her son Liam, 21, who has both After two sessions, Raakhee’s Elwell. ‘Lynne is not one of these Partners’ courses. They have gone
learning and physical disabilities. confidence has grown: ‘It is as professionals who glaze over on to make positive changes for
Raakhee says ‘In our culture you if a light is shining in. I’m not when you start talking’ says Nina. themselves and others.
don’t ask for help. You just have just getting up everyday and ‘I knew then I wanted a place
to get on and do it. This can be surviving. I know what I have to on this course. I went home and More information:
really hard. I had to pluck up the do, and what I can ask for.’ told Raakhee about it. My job

In Control Newspaper > > issue 09 > Winter 2010

and young people

Children starting how much money is available


for their son or daughter as they

to see benefits…
turn 18. Young people and their
families can plan ahead rather
than ‘dropping off the edge of
Taking Control, the the cliff’ as they wait for adult
services to respond.
In Control programme For Matthew and his family,
for children’s and young being able to plan ahead meant
that he could organise weekend
people’s services, is breaks with his girlfriend,
Josephine. Matthew was able to
starting to gather ensure that people he knew and
trusted could support him on
evidence of outcomes these trips. The adult social work
team manager said it was ‘the
for disabled children and  Stay safe – 77% improvement (including 1
easiest transition ever’.

young people who have not applicable)

 Be healthy – 85% improvement
Paul Connolly (Senior Practitioner Transition,
Newcastle Children’s Services and a member
an Individual Budget.  Make a positive contribution – 77%
improvement (including 1 not applicable)
of In Control’s Children’s Team) comments:
‘This is very encouraging but there are
 Enjoy and achieve – 92% improvement definitely areas where we need to break new
Though we are just beginning and the  Achieve economic well-being – 54% ground. For example, adult services need to
numbers of returns are still small, there are improvement (including 3 not applicable). start giving an indicative budget at the age
already signs that there is a clear case for of 16. Also, if we are to make real progress
Individual Budgets and Self-Directed Support More information: around transition, we have to get to grips
for children and young people. with safeguarding. It’s time for a debate

There are now 200 live Individual Budgets …and taking about safeguarding and a problem-solving
approach that supports young people and

them into
and we sent out forms to areas where their families to have safer control over
families have been managing Budgets decisions that affect their lives. And we need

for their sons and daughters for over two flexible education monies and student-led
months. health resources that promote preventative
health and well-being. Then we’ll see a more
Thirteen completed forms have been The first young people with Individual positive use of public money, better outcomes
returned and these indicate improvements Budgets are making their move from and young disabled people as active citizens.’
in outcomes against the Every Child Matters children’s to adult’s services. Families say
outcomes: that life is proving easier because they know More information:

In Control Newspaper > > issue 09 > Winter 2010

C h i l
n g
e o
p le
and yo

A commissioner’s view Six young people in

Alison Cathles, Commissioner for Disabled Children and Middlesborough get
Young People, Gloucestershire Children’s Services individual budgets
I used to think that commissioning was young people wanted were not available, Middlesborough Children’s
mainly done through reports that circulated then looking for providers interested in Services now have six live
between senior management groups, developing them
councillors, legal services and specification  supporting disabled young people and individual budgets for disabled
writers. Budgets were juggled, tenders parents to commission pilot activities children and young people.
managed and contracts, once in place, were  commissioning high spec public toilets
rarely scrutinised. (Changing Places) and all terrain
wheelchairs and buggies to help disabled
Then we began to work differently with children get out and about
disabled children and their families. We  working out how to pay hundreds of small
started with what their lives were like, what providers.
was good, what was difficult, and what
outcomes we agreed we needed to achieve. It is endlessly challenging, inspiring and
Commissioning became something that exhausting. The system was not set up for
could make these outcomes happen. It was personalised commissioning. But it’s worth it
no longer a bureaucratic, technical process. because it works.

It became a creative process: Alison Cathles works for the In Control children’s
team one-day a week. She links with the work of On 24 November, six families joined
 finding people and organisations that can the Department of Health and the Office for Public professionals from Middlesborough Social
make things happen as locally as possible Management on the development of a whole-life Services to share their experiences of having
 balancing appropriate risk-taking with the approach to commissioning. an Individual Budget. The families made
protection of vulnerable children presentations about the difference Self-
 setting up pilot activities if the things More information: Directed Support had made to them.

Total input – pretty cool!

It was a ‘brilliant day’. There was a lot of
emotion as well as discussion about some of
the trickier decisions and plans to be made:
Kieran has a Personal Budget and support But that’s how it works and it really makes money, funding, budget cuts and demands
from a Budget Holding Lead Professional you think carefully about using the service on children’s services. 
(BHLP) to ground you and think about what’s
important to you. Middlesborough is now proud to be able to
My name’s Kieran. I want to say how the
I don’t always get what I want and say that the Council is practising a whole-
BHLP program has made a difference to me.
sometimes it’s a disappointment, but I’m life approach to Individual Budgets and
As a young person that has moved round never scared to ask and when things are Self-Directed Support. There are live budgets
a bit, it hasn’t always been easy to settle really tough I know I can ask my rep and for adults. Agreements are in place to work
at anything much. Sometimes being able they’ll look after my basic needs too! through transition and there are live budgets
to ask for help has been difficult. The BHLP for children from the age of nine.
program has changed that. I’m working now. I’ve passed my bike test
and I’m living in my own flat. There are still The families who presented on the day  
I was able to choose my own rep and have changes to be made and things I want to have generously agreed to share their
total input into deciding the things I need achieve. stories. Their powerpoint presentations  
and how to achieve personal ambitions. can be downloaded from:  
The biggest difference to me though is
It’s pretty cool being able to ask for things feeling much more confident and able to
and sometimes actually getting them! decide my own future.
More info:

In Control Newspaper > > issue 09 > Winter 2010

Whole people: personalisation in Health

Staying In Control is embarking on a programme of active testing of its
personalisation Health model.
Local authorities and Primary Control’s paper, Citizenship in groups and individual on-site
Care Trusts (PCTs) have joined Health, developed during the support. Membership places
together to further explore how first phase of work that involved on Staying In Control are still
Self-Directed Support can work 37 PCTs and their local authority available.
in Health. partners.
More information:
This new phase will test the Staying in Control will support
model set out in Staying In this work through small focused Tel. 07811 176 708

Direct Payments in Health consultation

Rita Brewis who leads Staying
The Department of Health is now consulting on the Government’s proposals for In Control
piloting Direct Payments for health care. Staying In Control considers legislation
that would grant even a few people more power over their health support needs
to be a very significant step.

Subject to Parliamentary In Control is a strategic partner Department’s work, and brings

approval, the Health Bill and member of the Department In Control’s unique approach,
will provide power to make of Health’s Personal Health values and aims.
regulations that would allow Budget Pilot Board.
Staying In Control publishes its
the use of Direct Payments in The consultation finishes on 8 January
Health model: Citizenship in Health
a number of authorised pilot The Staying In Control Health 2010. It is available at:
schemes. Programme complements the en/Consultations/index.htm

New Horizons consultation

The Government recently issued New Horizons, a draft new mental health policy.
While In Control supports much for example, that mental health relationships, community and
of the draft policy’s overall aims, services should aim to support home life.
we emphasise that several crucial people in sustaining connections
elements are currently missing. in their life outside of services, In Control’s response can be found at: Staying In Control is moving into its
The draft policy does not indicate including their jobs, friends and second phase: active testing

In Control Newspaper > > issue 09 > Winter 2010

News from Scotland

Nicola Sturgeon hosts in the Scottish Government. 100 guests were New Leadership and
invited to the reception, including other
In Control Scotland Members of the Scottish Parliament. Change programmes
parliamentary event Individuals and families who have an In Control Scotland is funded
individual budget told inspiring stories that
entirely from Membership.
Last November, In Control Scotland showed the difference being in control has
made to their lives. Rosemary, a family carer The organisation works with
celebrated its establishment as
and one of the speakers said ‘Being in receipt local authorities, provider
an independently constituted of In Control money has given us a life again.’ organisations and people who
organisation. Nicola Sturgeon summed up the evening: ‘A
wonderful event for a wonderful cause.’
use social care services and their
Peter Bollen spoke about the benefits for his
son and their family at a time of transition: Almost half the local authorities in
‘In Control has put Michael at the centre. He Scotland are now Members of In Control
is part of all decisions and chooses what he Scotland, along with a significant number
wants. He has a home programme, support in of social care providers.
a college placement, various opportunities in
music, social activities and a full life. Michael
is happier, more contented. In Control has Public membership
replaced doubt with security. It’s a tailor-
Nicola Sturgeon MSP (right) receiving a gift made solution. He doesn’t just have to take In Control Scotland is also exploring a
from Karoline Carmichael on behalf of In Control what is available. In short, In Control has system of public membership to enable
Scotland enabled Michael to live the life he wants to greater contribution by individuals and
lead.’ families.
A celebration reception was held in the
Scottish Parliament, hosted by Nicola During the presentation, Michael One of the organisation’s major strands
Sturgeon, MSP for Glasgow Govan and demonstrated his musical skills by playing a of work is the Leadership and Change
Cabinet Secretary for Health and Wellbeing tune on the chanter! programmes that are run for local
authority and provider organisation staff.

This year, the programmes started in

New national strategy late Autumn 2009 and run to April 2010,
presenting opportunities for participants
for Self-Directed to come together and share learning and

Support in Scotland
address challenges.

More information:
A draft of the new national strategy
for Self-Directed Support in
Scotland is due to be published for
further consultation.
In Control Scotland
In Control Scotland was initiated and
In Control Scotland has been represented developed through a partnership
on the reference group that considered the between Altrum and the Scottish
draft strategy and has advocated that the Consortium for Learning Disability.
strategy should promote a flexible system of It was formally constituted as an
Self-Directed Support available to all. (The an independent organisation in
original draft strategy focused on increasing April 2009, linked to developments
the take up of direct payments.) The final elsewhere through its membership of
version of the strategy is expected in the In Control Scotland’s Frances Brown and Catriona In Control International.
spring of 2010. Campbell at the parliamentary reception

In Control Newspaper > > issue 09 > Winter 2010

All change at Hartlepool

In Control’s new report charts Hartlepool’s journey to total transformation
Photo: Andrew Tyson

Support in
by Andrew Tyson

Hartlepool, a town of 90,000 on the Tees the project leader initially...later, I was more common and business sense really helps
bay in the northeast, has made huge supportive.’ families and individuals to get a better deal.
strides towards total transformation – I have witnessed Nicola focus on intricate
personalising all support. A new report Sarah Ward, Social Care Transformation detail of an individual family’s need and
by In Control’s Andrew Tyson captures the Manager, talks about the process of change: then use the outcome as an exemplar of
story of this demanding change process. ‘We wrote the basic process with the help practice and utilise it to negotiate strategic
The report is based largely on the words of of staff from different disciplines, including implementation for policy.’
managers and staff. Below are quotes from admin, social care etc. All were mixed in
people who have led the change. sessions; this gave them a good sense of The contents of the report are below:
ownership, the feeling of having contributed
Nicola Bailey, Director of Child and Adult to the process.’ Contents
Services, led the process. She says that, in
Foreword by Nicola Bailey and  
2006, the Department was ‘very much an Jeanette Willis, Principle Finance Manager/
Julie Stansfield ����������������������������������������������������������������������������������������������� 1
older people’s Department’ – working-age Personalisation Lead comments on the
Introduction ������������������������������������������������������������������������������������������������������������� 2
people got support that was ‘good-enough’ budget issues: ‘We can say that we can
but there was no aim to help anyone fulfil guarantee every penny of value in Hartlepool. Chapter One: Preparing for  
Self-Directed Support ��������������������������������������������������������������������������� 4
their dreams or deeper aspirations. We couldn’t say that with the old system.’
Chapter Two: The tools for transformation ������������� 13
Bailey immediately focused attention Geraldine Martin, Head of Service says Chapter Three: Changes to the way 
on the Direct Payments scheme and ‘Challenges remain but all the social care support is provided ���������������������������������������������������������������������������� 18
succeeded in generating a new level of staff I have spoken to say that they are more Chapter Four: Looking ahead ������������������������������������������������������� 25
energy and excitement about change. ‘I confident working with Personal Budgets and Acknowledgements and last words ���������������������������������� 35
set up the Direct Payment steering group to they have a clearer and more optimistic view Endnotes ������������������������������������������������������������������������������������������������������������������� 36
provide a bit of structure. After a couple of of their role going forward.’ Appendix: Who uses Self-Directed  
months we joined In Control and then the Support in Hartlepool? ������������������������������������������������������������������� 37
Total Transformation programme. In the Julie Stansfield, In Control’s CEO, reflects
beginning, my role was to be very directive; on her role in supporting Nicola Bailey
I told them what was to be done. ... I was and her team: ‘Nicola’s combination of For the full report go to:

In Control Newspaper > > issue 09 > Winter 2010

Creative consultation in High performance

Northumberland Northants races towards whole-life transformation

Northumberland has hosted three creative days Participants at the event were
entertained by theatre company
on personalisation and Self-Directed Support Moveable Feast and comedian
with individuals and families. In Control’s Caroline Liz Carr. Liz interrogated a
panel comprising local senior
Tomlinson introduced the event and emphasised managers, Simon Duffy
the positive impact Self-Directed Support has had (In Control’s former CEO) and
Phil Hope, Minister for Social
on real people around the country. care. about their knowledge of
Participants discussed how Self- the Putting People First agenda.
Directed Support could work for
the people of Northumberland. The event marked a public
Part of the day was dedicated commitment by organisations
to creating a Northumberland across the County – adult and
patchwork quilt. Everyone made children’s services, health and
Moveable Feast entertain
a patch representing what social care – to personalise their
would work and what they Northamptonshire’s Rockingham approaches.
were worried about. The quilt Speedway usually resounds to
will be prominently displayed the roar of muscle-car engines. John Parkes, PCT CEO, announced
somewhere in the County. For one day in October, though, that Northamptonshire had
the site played host to a different been selected as a Department
Feedback was positive. A few kind of high performance event. of Health ‘deep dive’ evaluation
people arrived saying they were Hundreds of managers, staff site for personal health budgets.
sceptical, but they left feeling and local people gathered to This development, he said, took
excited. A report is being written celebrate Northamptonshire’s the County’s ambition to create
Northumberland consultation: from about the days. It will soon whole-life implementation of a whole-life approach one step
scepticism to excitement appear on the In Control website. Self-Directed Support. closer to fruition.

The numbers: who, where, how many?

Each issue of In Control NOW! has reported an increase in the number of Personal Budgets.
This data is supplied by in Control steadily: 25,000. However, the to have been allocated a Personal
Members who have visited   current rate of uptake is well Budget in their own right. below that to meet an aspiration
of 30% of people by 2012.
To be counted as someone with a
Personal Budget, you need to: Uptake of Personal Budgets

 know how much money you 20000

can have for your support Personal Budgets are being made

 be able to spend the money in


5000 available to all social care groups.

ways and at times that make 0
Older people take up nearly half
June 2006

October 2006

January 2007

April 2007

June 2007

October 2007

January 2008

April 2008

June 2008

October 2008

January 2009


October 2009
July 2006
August 2006
September 2006

November 2006
December 2006

February 2007
March 2007

May 2007

July 2007
August 2007
September 2007

November 2007
December 2007

February 2008
March 2008

May 2008

July 2008
August 2008
September 2008

November 2008
December 2008

February 2009
March 2009

May 2009

September 2009
JUly 2009
August 2009

November 2009
April 2009

sense to you of all budgets. A large number of

 know what outcomes must be family carers (16%) are reported
achieved with the money. The City of Manchester has
The number of local authorities reported the highest number of
Figures submitted by local which are making Personal allocations – 4943. This figure
authorities enable us to provide Budgets available to people represents 20 % of the national
the following statistics. continues to grow. On average, total. 65% of those reported
one ‘new’ authority each month to have a Personal Budget are
The number of people with a reports that it is making an living in just ten local authority
Personal Budget is growing allocation. areas.

In Control Newspaper > > issue 09 > Winter 2010

5 minutes with... In Control Chief

Executive appointed
In Control’s Board of Trustees
Julie Stansfield, CEO In Control has announced that Julie
Stansfield, the organisation’s
Managing Director, has been
Just a few weeks after appointed as Chief Executive,
her appointment, the post held by Simon Duffy
Julie tells In Control until May this year.
NOW! about the Dame Jo Williams, Chair of Trustees, broke
future and the past the news by saying ‘The Board of Trustees
has announced Julie Stansfield as the new
(not becoming an Chief Executive Officer of In Control. The
actress). Board were unanimous in congratulating
Julie and this appointment acknowledges
the work Julie has done since In Control
What are your immediate was formed.’
Finalising In Control’s new Julie accepted the job, saying ‘This is an
whole-life strategy. This exciting time for In Control. I am proud of
incorporates all the work the organisation’s pioneering work.’
we’re doing within Health,
social care, communities
and, most importantly, with
A commitment to change
individuals and families. Julie was one of the founders of
In Control. She started her working
What is the main life with older people and her interest
challenge facing the in rehabilitation and preventing long
health and social care stays in hospital or quick admissions to
sectors? residential care homes led her to become
The economic climate. Public a manager of older people’s services by
services have to make the the time she was 21.
highest efficiencies for a
long while at the same time How do you relax If you ruled the world? Later, she worked in support of people
as trying to completely after work? I wouldn’t be doing it alone. with mental health issues, helping them
transform what they offer. Work is life and life is work. to be resettled back into their community
My greatest enjoyment What was your most from long stay institutions. She then
Hopes for 2010? is spending time with my embarrassing moment? supported many people with learning
A greater voice for people daughter Penny, my family Some years ago, I had a disabilities to be resettled from hospitals
who have intensive direct and friends. phone conversation with my and hostels.
experience of services. old boss. I disagreed with
What are you most what he wanted me to do. Julie studied management and business
What inspires you? satisfied about? at Huddersfield University and her
People with passion and Knowing some of the After I put the phone down, interest in managing change grew as she
perseverance! innovations that I am I ranted and raved to a developed more effective ways to put
involved in have really made colleague about how I was theories into practice.
All-time hero or heroine? a difference in people’s lives going to do what I thought
Marsha Forest. She was a and my own family’s life. was right. She applied this commitment to change
remarkable leader, advocate at a regional level as she started to train
and champion of inclusion. What did you want to do I hadn’t replaced the receiver and mentor others in managing change
Her energy and enthusiasm after school? properly. Luckily he had a through innovation in her role in the
for change was contagious I wanted to become an sense of humour! North West Training and Development
and her work still has a great actress or a youth worker. Team, an organisation which she later led
international impact. But I have done neither! before starting work with In Control.

In Control Newspaper > > issue 09 > Winter 2010

Who’s new at In Control? In Control

Susan Harris is
a Partners in
works at the In Control Support
Centre. Helen works on events,
Cath Round
works with pioneer
Policymaking Partners in Policy Making Jenny Pitts as
graduate. She courses, communications and joint Regional
works with administration.   Co-ordinator
In Control and for the east
the Yorkshire Julia Woods is a and west
and Humber Partners in Midlands.
JIP. Her main focus is research Policymaking Cath’s particular interest is
and creating links with the main Graduate. She working with youth and commu-
user-led organisations, carers’ has wide nity services, developing partner-
groups and family contacts in experience in ships and opportunities outside
the region. leading change of mainstream services.
and delivery of
Clare Roberts services that promote real choice Laura Bimpson
joined and control. Laura joined
In Control in In Control in
February 2009. She joined In Control’s regional September as
She facilitates team for the south east and Communica-
Lyn Jenkins, the local social
Public London. Her main role is to tions Manager,
services manager who first
Membership, manage relationships with local overseeing
introduced Self-Directed
and helps with authority members, facilitate all internal and
Support in Cambridgeshire,
Organisational Membership, forums and work closely with external communications. 
retired in October.
exhibitions and events and with existing networks such as the
In Control recognised
the Speaker Finder service. She Department of Health JIP. Laura has held various
Lyn’s achievements by
has a varied background in communication positions within
awarding her honorary life
health, neurological Nigel Devine. the health, education, not-for-
membership of In Control.  
development, education and, Until recently, profit and public sectors.  Her
more recently, behaviour analysis Nigel worked experience includes strategic Lyn’s pioneering work was
and intervention. with Paradigm PR and marketing, crisis captured in the In Control
and the Valuing communications, stakeholder report, Steering my own
Adrian Smith People Support management, media relations course.
joined Team. and internal communications.
In Control in
summer 2009. He is the Provider Development
He leads the Lead for In Control and site
and regional
support manager for York.
Previously, Nigel was a senior
manager with a local authority
From Citizenship
work for London and the south in the north east and has a
east. Adrian has extensive senior history of promoting and
management experience in local developing person-centred
to Community
authorities and has successfully
led on the implementation of
Community capacity, building
Individual Budgets. Jenny Pitts is
Regional Co-
social capital, universal services,
ordinator for
the east and
prevention, whole life, health: what
worked as
Coordinator of
west Mid-
lands.  Jenny
does personalisation really mean?
In Control has worked in
Wales before local govern- In Control’s next major report will be
deciding to ment in partnership with the
relocate to voluntary sector and families to
launched at the Big Event in March 2010.
Birmingham where she now deliver personalised support.