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Inclusion North Bulletin

Issue Number 110


24th February 2016
23rd September 2015
In this bulletin you will hear about some of the
work Inclusion North is doing and information
about what is happening across the country.

Find Inclusion North on Facebook and Twitter

You can find out more about all the work we are
doing by following us on Facebook and twitter at:

Facebook: www.facebook.com/InclusionNorth

Twitter: @InclusionNorth

2015 Family Carers Survey Summary


In September 2015 we did a simple survey to try to find
out a bit more about what family carers think. We also
wanted to know more about how Inclusion North makes a
difference to people.

This gives us some ideas about the sort of work we need


to do and whether we’re doing it right.

You can see the summary report of what people said on


the link below

http://bit.ly/1LDSEaX

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Reflecting on Good Partnership Working by
Gateshead Partnership Board
Gateshead were committed and determined to make the
best of their partnership working with Inclusion North and
set out on a journey to make it a success…..
Thoughts from the board……
We wanted to have a committed, driven, strong board
that understands what it’s job is and is a place of
expertise and respected opinion so people come to us for
support in the direction and delivery of our learning
disability services.
We set out to check up on all the members who were on
paper committed, but who often didn’t come along to the
meeting. We asked people to commit by signing up to our
working together agreement.
We got a brilliant committed new chair who was
independent of the council and who had been a long
standing active member of the board for years.
We agreed a working group to design an action plan to
drive forward change and get the views of people living in
Gateshead.
All of this work has created a more dynamic, focused and
committed partnership in Gateshead. This has given
Gateshead the ability to drive forward change that is
wanted and needed for their local population. They are
able to gather this information from people and families
from being well connected and supportive – this is
highlighted in the response to the 100 voices work we
have just done across the region.
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We believe that this shows that with a determination to
working alongside people with learning disabilities,
families and other professionals, the partnership board
are a brilliant driver for change and better services.

New Winterbourne View report

Sir Stephen Bubb is leading the work looking at new


safeguards and support for adults with learning
disabilities after the abuse that happened at
Winterbourne View.

Sir Stephen has now published his latest and final report
called Time for Change – The Challenge Ahead.

You can read the full report here

http://bit.ly/1SN6eAo

And here is the EasyRead of the report

http://bit.ly/1QbH3p7

The report looks at the progress made in the last year by


the transforming care programme, and also looks at the
big challenges ahead and what the best way to meet
them might be.

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Making sure people get better care and
support

The Royal College of Nursing (RCN) supports nurses,


people training to be a nurse, midwives and health care
assistants.

The RCN give them advice and support and help make
their work the best it can be.

They have made a report called Connect for Change,


which is about what the Royal College of Nursing think
needs to happen to help move people out of hospital and
into homes.

You can read their Connect for Change report here

http://bit.ly/1PV8lhX

You can see the EasyRead report here

http://bit.ly/1PV8lhX

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Positive Behavioural Support Resources
The PBS Academy is a group of organisations and
people who are working together to promote Positive
Behavioural Support (PBS) for working with children and
adults who are at risk of behaviour that challenges.

There are booklets for people with learning disabilities


about having a good life, which you can download on the
link below
http://bit.ly/1QtvSE1
There is new information for Commissioners and Care
Managers about best practice and contracts which you
can see here
http://bit.ly/1Q5B95o
There is also a checklist for Service Providers which you
can see here
http://bit.ly/1oXBIHO

The PBS Academy hope to have more resources for


Family Carers available soon.
You can find out more about the PBS Academy on their
website at
http://bit.ly/1LCyi1U
You can also follow PBS Academy on Twitter
@PBSacademyUK

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Making Freedom Real – Makaton for Adults

Makaton is an important way of communicating for many


people with learning disabilities or communication
problems.
It has a strong track record in helping people
communicate and this is a basic requirement of human
rights and the right to personal freedom.

It is a concern that good work in schools appears to be


too often stopped as people become adults.

The Centre for Welfare Reform have published a report


which suggests that there is a basic failure in adult social
care to support people who use Makaton to use and build
on their skills as adults.

You can find out more on the Centre for Welfare


Reform’s website at
http://bit.ly/20SFCgJ

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Housing Guide for Families

The Housing and Support Alliance (H&SA) has been


funded by NHS England to write a guide for families on
how they can change their surroundings or housing to
better meet the needs of their child with learning
disabilities and challenging behaviour.

H&SA is also writing a guide and producing a training


video for housing, health and social care organisations so
that they can better help families get the housing they
need.

They want to make sure that the guide and videos are as
useful as possible to families and professionals, so they
are asking for people’s help to tell them about the areas
in which they most need advice, support and information
when it comes to getting the right housing.

H&SA have made a survey for families to tell them about


their experience of getting the housing they need

http://svy.mk/1SQfhAD

They have also made a survey for people who work in


housing, health and social care to share examples of
what does and does not work

http://svy.mk/1QAg4FR

H&SA also want to hear from family networks that they


can meet with in February 2016. To take part in this,
contact Kate at

kate.newrick@housingandsupport.org.uk
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Challenging potentially unlawful decisions by
public bodies

Housing and Support Alliance are also running a session


that will help care providers understand how to address
potentially unlawful decisions by public bodies about the
provision of services to disabled people.

The session will have particular focus on the legal duties


under the Care Act 2014.
As well as looking at legal rights and obligations, the
session will focus on useful ways that decisions by public
bodies can be challenged, including the role of judicial
review.
A judicial review is when a court can look at an action
made by a public body to decide if it was lawful or not.
The session will have plenty of time for questions and
discussion. Attendees with specific questions are
welcome to send them in advance to Steve at
sbroach@monckton.com
As many questions as possible will be addressed during
the session.

The session takes place on

14th April in London

There are a limited number of free places for people with


learning disabilities and family members. If you would like
to go to the session, contact Mariana at

mariana.ortiz@housingandsupport.org.uk

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Workshop for siblings in Leeds

Sibs want to start a support group for adult siblings of


people with a lifelong learning disability and/or autism.
They are having a workshop where you will have the
opportunity to share experiences with other adult siblings
locally and learn more about developing a sibling group
in Leeds.
Sibs hope you will come to the workshop and join the
growing community of adult siblings in the UK.

The workshop takes place on

9th March

From

7.00pm to 9.00pm

You can find out more on the event flyer here

http://bit.ly/1WG6jnZ

You can book a place on their website at

http://bit.ly/1TCP5JU

You can contact Sibs on

info@sibs.org.uk

or by calling

01535 645453
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CQC Regional Event in Sunderland

Sunderland People First are holding a Care Quality


Commission (CQC) day. The event is for people with
Learning Disabilities, their families / carer’s and
supporters.

CQC are very keen to get feedback, good or poor, about


any service that people have used.

There will be a presentation about CQC and how they


carry out inspections.

A CQC Inspector will also be here to talk about a day in


their life.

The event takes place on

29th March

From

10.00am to 3.00pm

A Buffet Lunch will be provided and travel costs paid.

There will also be a £15 Love to Shop voucher available


to each participant.

If you would like to come along, please contact Donna


Johnson at

donna.johnston@skillsforpeople.org.uk

or call

0191 281 8737

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Uncut Cords: Changing Families, Changing
Carers
Uncut Cords is a genuine and passionate new book
written by seven York mothers of teenage and adult
children with learning disabilities.

Each chapter is themed and composed of short, self-


contained stories.

As part of York Literature Festival, Dame Philippa Russell


will be supporting the authors as a speaker at an event
on

18th March

from

2.00pm to 4.00pm

at

Quaker Meeting House


Friargate
York
YO1 9RL

You can find out more on the event flyer here

http://bit.ly/1TwEzmk

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Durham County Carers

Durham County Carers Support are a voluntary


organisation that provides free high quality services and
support to unpaid carers over the age of 18 who support
someone living in the County Durham area.

You can see their newsletter Caring Matters on the link below
http://bit.ly/1Qvks2H

You can find out more about Durham County Carers on their
website at
http://bit.ly/1PUTLaq

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Good Practice in Looking After Your Weight
The Improving Health and Lives (IHaL) team are
preparing their next 'reasonable adjustments' report.

They know that many people with learning disabilities are


either underweight or overweight. Both of these can lead
to poorer health.

The focus of the next IHaL report will be about looking


after your weight for people who are overweight.

The aim of the report is to share information, knowledge


and best practice throughout the country to support
people in improving services and care.

They would like to include as many good case studies as


possible in this report so that other people can benefit
and use this information to support people with learning
disabilities to look after their weight.

If you would like to share your stories, examples of your


work or resources with IHaL, please send them to
anna.marriott@ndti.org.uk

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Doctors, Talk to me
A group of young people with learning disabilities have
been working with Harriet at Healthwatch, along with
Fixers, Paperworks and Youthwatch.

They have made a short film called ‘Doctors, Talk to me’


which is aimed at doctors, dentists and other people in
healthcare.

The film was made to give people an idea about how


scary going to the doctors can be if they don’t explain
what they’re doing.

This is a free resource to share with people who work


with people with learning disabilities.

You can see the film on the link below


http://bit.ly/1RYUGJB

There is a poster to go with the film, which you can


download at
http://bit.ly/1QAAqi6

Higher quality printed copies of the poster are available


by emailing Harriet at
harriet@healthwatchleeds.co.uk

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Mixed Ability Sport Survey
Mixed Ability Sports want to find out people’s views on
bringing together disabled and non-disabled people who
take part in regular sports and activities.

They are asking both groups of people to complete their


Mixed Ability Sport Survey.

You can take the survey online at

http://bit.ly/1QXKBaT

Or you can download an electronic copy of their survey


form here

http://bit.ly/1TwC03F

and return it to

m.corazza@mixedabilitysports.org

You can also find out more about Mixed Ability Sports on
their website at

http://bit.ly/21c6qhH

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'Talk About Taking Part’ survey
Wheelpower have made a survey will find out what can
be done to help more wheelchair users lead healthy
active lives and take part in sport and physical activity.

People who use a wheelchair in everyday life, or who


would use one for sport, are urged to complete the
survey.

They are keen to find the views of those who don’t take
part in any sport as well as people who already lead
active lives.

The survey takes around 10 minutes to complete and


aims to find out what activities wheelchair users currently
take part in, what they would like to try or do more of in
the future, and how Wheelpower can support them to do
that.

You can do the survey on the link below

http://bit.ly/1VBGRQ1

The last day that you can do the survey is

6th May

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Free access and transport to Newcastle
museums
Disabled Access Day is for all disabled people and their
families, friends and carers.

People take part by going to a place they haven’t visited


before, taking photos of themselves there and telling
people about their experiences on Twitter or Facebook.

Disabled Access Day 2016 takes place on

12th March

Rob Latham at Tyne & Wear museums tells us that all of


their events for Disabled Access Day are free and so is
any communication support.

Free transport can be arranged, for any deaf or disabled


person who does not have access to a car and / or
cannot use public transport comfortably.

You can see a list of events that this offer is open for
here

http://bit.ly/1Uk4Pkw

You can also find out more on the Tyne & Wear
museums website at
http://bit.ly/24n37mW
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Dance Syndrome’s Thunderclap campaign
Dance syndrome are an Inclusive dance group led by
people with learning disabilities, and which was started
by Jen Blackwell.

Jen has written a message to the trustees of


DanceSyndrome that they want your help in sharing on
social media for their ‘thunderclap’ on 8th March.

Jen’s message is:

"Thanks very much for everything that u are doing for


DanceSyndrome and I really can't believe it as I am
changing other people’s lives through dancing. I couldn't
have done it without support and u guys have touched
my heart and for that I am very thankful"

Jen want’s people to share this on

8th March

because it is also International Women’s Day

You can take part by sharing this on one or all of the links
below

Twitter

http://bit.ly/1QXwBhk

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Facebook

http://on.fb.me/1mUzDL3

And here is the Thunderclap page that also tells you


more about Dance Syndrome

http://bit.ly/1UjX3ab

Self Advocates Health Action Heroes


York Advocacy were able to get a grant from NHS
England on behalf of the Self-Advocates Forum.
They used the grant to help find a creative way to show
some of the work self-advocates had been engaged in
around access to healthcare.

For the project they created a ‘Superheroes Comic’ with


characters based on themselves and villains intent on
stopping them being involved and included in issues
around health!

You can read the comic here


http://bit.ly/1OskHKs

And here is the story about how the comic was made
http://bit.ly/21nGg8d
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What is coming up next at Inclusion North
24th February North East Family Carers Network
25th February Yorkshire and Humber Family Carers
2nd March Yorkshire & Humber Lead Officers
14th March South Tees Provider Forum
17th March Yorkshire & Humber Leadership Group
22nd March Care Act session Darlington
23rd March Care Act session Newcastle

If you would like to know more about any of these events


contact Marie on 0113 244 4792
marie@inclusionnorth.org

If you would like any information on any of our


meetings, training or projects you can contact the
office on:

Tel: 0113 244 4792

E-mail: info@inclusionnorth.org

Or you can write to us at:


Inclusion North CIC
Woodhouse Community Centre
197 Woodhouse Street
Leeds, LS6 2NY

You can visit our website at:


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www.inclusionnorth.org
Or you can contact any member of the Inclusion North
team:

Samantha Clark
Tel: 07823 536 603
Email: Samantha@inclusionnorth.org

Kellie Woodley
Tel: 07876 145 390
Email: Kellie@inclusionnorth.org

Lucy Virgo
Tel: 07944 185771
Email: Lucyvirgo@inclusionnorth.org

Angela Ellis
Tel: 07487 729237
Email: Angela@inclusionnorth.org

Marcella Celli
Tel: 07767 776125
Email: Marcella@inclusionnorth.org

Kirsty Morgan
Tel: 07539 729237
Email: kirsty@inclusionnorth.org

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Inclusion North Member Areas 2015-16
If you live in one of these areas you can come to our
member events.
Yorkshire and the Humber
Barnsley
Bradford
Calderdale
Doncaster
Hull
Leeds
North Lincolnshire
North Yorkshire
Sheffield
Wakefield
York
North East
Darlington
Durham
Gateshead
Hartlepool
Middlesbrough
Newcastle
North Tyneside
Northumberland
Redcar and Cleveland
South Tyneside
Stockton
Sunderland

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