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Newsletter Spring 2017

If you would like a printed copy of this Newsletter then Just Pass the Mic
please contact us:
Email: james@cambridgeshirealliance.org.uk Did you know that worldwide, there are over 1.86
Tel: 0300 111 2301 billion monthly active Facebook users? (Source:
Facebook as of 02/01/17) I like to remind myself
Newsletter Contents: of such statistics when I find that I’m sat scrolling
through pictures of people's children, people's
 Just Pass the Mic
pets or people’s most recent culinary
 The Equality Pledge achievements. I was however drawn to a quote
that a friend of mine had shared as it resonated
 Partnership Board News with the work that we do here at CAIL and how
that work is sometimes misunderstood.
 Voices4Choices – Building Awareness of
Direct Payments "You don't have to be a voice for the voiceless.
Just pass the mic".
 An Interview with Mark Mason

 Talking with Anne Streather Cam Sight,
Outgoing Chief Executive Officer

 A Word from Our New Trustee - Nigel
Fenner

 Exploring how we can Raise Awareness of
Hate Crime

 Hidden Voices
Over the past year CAIL has been asked to
 New Website & New Information Bulletin! consult on a number of things for example
training session content, planning, tenders for Our Trustee Board meeting in March saw us
new services. Now much as I value the thoughts welcoming two new Trustees, Nigel Fenner has
of Sally, Graham, Leisha, James and Stevie on written in to say hello and our new Treasurer
these things, in most cases it is not our voices Justin Oldham will be introducing himself in the
that matter. As staff members we are the ones next Newsletter.
who are visible, but it is the voices of people with
Lived Experiences of disability, or being a carer, We also have a few staff changes coming up too,
or being an older person, especially those Hidden with Leisha O’Brien changing roles and
Voices from communities or groups that are recruitment currently taking place for her
seldom heard from, that we need to be seeking replacement.
out. As you can read later on in the newsletter
we had an event in February on exactly this So as we approach the new financial year we
theme and will be using the things that we learnt have new work streams, new faces and new
from it as a focus for a new work stream in the challenges. The thing that remains the same is
coming year. that we are a User-Led organisation, so please
do get in touch. What are the issues that are
affecting you? What do you think we should be
doing about them? Whether it’s ideas for new
projects, fundraising, an interest in volunteering
or letting us know
where you think we
could do better,
your voices are
what matter. So
with that in mind I’ll
sign off at this point,
it’s over to you, I’m
passing you the
mic.

Alena Taylor - Chief Executive Officer

The Equality Pledge

On 14th February 2017 CAIL were very pleased
to sign The Equality Pledge.

The Equality Pledge is a simple pledge that
An event held at Anglia Ruskin University in commits signatory organisations to appreciate
January on the theme of Direct Payments gave and value the benefits that different communities
us an opportunity to talk to a wide range of contribute to Cambridge and the surrounding
people, many of whom we had not spoken to region.
before. You can read more about this event
further on, but if you or anyone you know has any The Equality Pledge simply states “We believe in
experiences of using Direct Payments for Social the dignity of all people and their right to respect
Care then please do get in touch. and equality of opportunity. We value the
strength that comes with difference and the  Fenland District Council
positive contribution that diversity brings to our  Cambridgeshire County Council
community. Our aspiration is for Cambridge and  South Cambridgeshire District Council
the wider region to be safe, welcoming and
 Cambridgeshire Fire and Rescue
inclusive”.
If you would like to know more about the Equality
Pledge you can email:
equalities@cambridge.gov.uk.

Partnership Boards News

As you almost certainly know CAIL is funded by
Cambridgeshire County Council to deliver four
Partnership Boards which bring together statutory
services (health and social care) with voluntary
sector organisations and most importantly,
people with lived experience of disability, being
an older person or a carer.

In the last edition of the newsletter Leisha
O’Brien wrote about the work of the Older
(Paul Taylor, Chair of the CAIL Board of Trustees, signing
the Equality Pledge) People’s Partnership Board and the Learning
Disabilities Partnership Board.
Individual people and organisations (public,
voluntary or private sector) are invited to sign up It is now my turn to talk about the work of the
to the Equality Pledge. Boards that I support!

Key institutions that have signed the Equality Carers Partnership Board (CPB)
Pledge are:
The CPB identified concerns about the Strength
 The University of Cambridge Based Approach to assessment and also relating
to Home Care services. A meeting was held with
 Cambridge City Council
Cambridgeshire County Council to learn more
 Cambridge University Hospitals NHS Trust
about these areas of work, exploring the
 East Cambridgeshire District Council concerns and enabling the County Council to
 Police and Crime Commissioner for relay these back to their teams to ensure that
Cambridgeshire actions were taken to minimise any negative
 Cambridgeshire Constabulary impact.
 Huntingdonshire District Council
The CPB is an all age Partnership Board in that it workers. This issue was taken up through the
represents the needs of not just adult family Adult Social Care Forum (a group which is able
carers but also of young carers and young adult to talk directly to members of Senior
carers. In February 2017 the Board dedicated a Management in Social Care) and the County
meeting to the needs of Young Adult Carers as Council has set up a working group to gain a
they transition from school to work or further greater understanding of the situation from all
education and the support needs that they have sides.
to achieve not only positive outcomes for
themselves but also for their family. Graham Lewis - Development Officer

Voices4Choices – Building Awareness of
Direct Payments

As the Voices4Choices project moves into its
second year, CAIL has some exciting new
developments to share with you all. The project
aims to make people in Cambridgeshire more
aware of Direct Payments. Direct Payments are
Physical Disabilities and Sensory Impairment amount of money for you to arrange and
(PDSI) Partnership Board purchase your care and support yourself, putting
you in control of your personal budget.
The PDSI Partnership Board has continued to Voices4Choices has achieved its goals in a
raise concerns relating to transport and variety of different ways such as through
highways, as there is great concerns about how organising workshops, through doing radio
people get to (and from) their homes and interviews and most importantly through using
services/work/social activities. As part of this a the lived experiences of people already using
complaint was made to Stagecoach regarding the Direct Payments.
visual display on the Guided Bus route B buses
which was moving very fast and always showing The workshop
the next and the previous stop as one – very that CAIL
confusing. In response to the complaint undertook at
Stagecoach were Anglia Ruskin
able to advise that University on
they had a 18 January
software glitch proved to be a
and this was huge success.
fixed. There was good mix of people wanting to find out
more about Direct Payments, people already in
The PDSI Partnership Board also continues to receipt of Direct Payments and professionals who
raise concerns about Home Care services and attended the workshop.
issues relating to missed appointments and the
way that people are engaged with by the support
The workshop was split into two parts, first being CAIL is aiming to do further radio interviews in
a light lunch and a video on the history of 2017 to promote Voices4Choices and awareness
disabilities in Cambridgeshire and the second of Direct Payments.
being an in-depth look at what Direct Payments
are and how they work, with an informative However, one of the biggest aims of the
question and answer session at the end. The Voices4Choices Project is to use the Lived
question and answer session highlighted various Experience of real people who are already using
issues for people which CAIL feedback to Direct Payments to help inform and guide those
Cambridgeshire County Council. CAIL are who are thinking about applying for Direct
currently working with Cambridgeshire County Payments. CAIL is currently undertaking
Council to address these issues and make interviews with people in receipt of Direct
improvements to our next workshop. Payments to help build up a Library of Lived
Experience which anyone will be able to access.
CAIL would like to thank Turtle Dove, Penderels
Trust, Cambridgeshire County Council, all the Here are some things that people have told us:
staff at Anglia Ruskin and all the members of the
public who gave up their time to make our “Direct Payments is very much a case of
Voices4Choices event successful. swings and roundabouts but it is an option,
and that’s the point to have an option.”
CAIL also participated in a radio interview with
Phil Rowe from Cambridge 105 to promote the
Voices4Choices project. You can listen to the “I knew somebody who was retiring who
radio interview here: wanted to continue doing care work.
https://cambridge105.co.uk/phil-rowe-04-01- Employing her through Direct Payments
2017/ seemed like it would be a good
opportunity for her and for me ”
“I wanted to live independently. For that I An Interview with Mark Mason:
needed fully trained staff who knew what
I recently met up with Mark Mason, one of CAIL’s
they were doing and not someone
long running volunteers, in the Botanic Gardens
different showing up on my doorstep
to discuss his experiences with the Direct
every day. Direct Payments were a way
Payment process for our Voices4Choices project.
for me to do this.”
At the same time, I thought it would great to get a
quick interview with him on his experiences
volunteering with CAIL, which you can read for
The Library of Lived Experiences will be yourself below.
available from our new website: www.cail.org.uk
James - Tell us a bit about yourself. Mark
CAIL is planning four more workshops in June/
July: Mark - Well I’m 46 years old. I live in Cambridge.
 22 June - Huntingdon I always describe myself as the good looking one
 29 June - March with the wheelchair. I work as a piano teacher.
 06 July - Sawston I’ve been in a relationship with my partner for
thirteen years. I enjoy life.
 13 July - Ely
James - How did you find out about CAIL and
If you’re interested in coming to one of these
made you decide to start volunteering with us?
events then please get in touch with us to find out
more! More details to follow soon in our new and
Mark - I think I found out about CAIL because
improved information Bulletin.
somebody approached me about the film, The
Model Conversation. Somebody asked me if I’d
We’d love to hear from you:
like to be involved in that film. I can’t remember
 If you think you might be eligible for Direct
who that was initially but I found out about CAIL
Payments or know someone that might be
through that. Justin was working for CAIL on that
eligible for Direct Payments.
project and it seemed like a good organisation. I
 If you can add to our Lived Experience Library enjoyed meeting all the people and we had a
by telling us of your stories and experiences good laugh. So yeah, that was it really.
of the Direct Payment process.
 If you would like to know more about CAIL’s James - What work have you done whilst you
work in this area and how you can support it. have been working with us.

Please contact: Mark - *Laughs* You’ve got to remind me James.
James Saunders –
james@cambridgeshriealliance.org.uk James - Well obviously, you’ve done The Model
or Conversation which we’ve just been talking
Leisha O’Brian – about. How was that?
leisha@cambridgeshirealliance.org.uk
Mark - Taking part in a film about yourself, when
Tel: 0300 111 2301 oneself is such a perennially interesting topic of
conversation. Yeah that was really enjoyable. I
James Saunders - Project Leader never thought of that as being voluntary work for
CAIL but I suppose it was really. It seemed like
an interesting thing to be doing and I enjoyed
meeting the other people that were doing it.

James - Fantastic and if we can link this
interview back into our conversation about Direct
Payments that we’ve just had. You’ve come to a
couple of events with various presentations
where CAIL has talked about Direct Payments
and you have relayed your experiences from a
personal perspective. How have you found doing
that?

Mark - It’s been good to have some people who
are interested in hearing what happens because
most people aren’t really. It’s been nice and if
what I say is of any benefit to anybody else who
is going though or considering going through the
Direct Payment process then all the better really.

James - What do you like about volunteering with
us?

Mark - It’s just a nice way to meet people and it’s
a nice bunch of people to be involved with.

James - Do you feel you’ve learned anything
from volunteering with us?

Mark - Yes definitely. It’s hard to say x and y but
every time you meet a new person you learn
something about life, hearing about their life. I
think meeting Warren on The Model James - What would say to someone else if they
Conversation film and learning a lot about what were thinking of volunteering with us?
it’s like having difficulties with vision and the way
he manages his life, that was very informative to Mark - *Laughs* Oh don’t do it for goodness
me and quite valuable. That made me realise sake, bunch of charlatans. No not really. Of
which bits of me are working pretty well which is course, of course come and play with us, it’s a
good. I met up with him a couple of weeks ago great time and you’ll meet a lot of fantastic
so his name is still fresh in my mind but also people. Just avoid Graham! *Laughs* No again
meeting Audrey and Barbara during The Model not really… but you can tell him I said that if you
Conversation was very interesting. They’re both like. *Laughs*
that bit older and they have more experience of
how things were for disabled people in decades James - My CEO put a question on here as a bit
gone by. They are both characters and have got of a joke but I’ll ask it anyway. How have you
stories. So yeah you learn a lot just through found James’ interviewing skills?
mixing with people like that.
Mark - *Laughs* James is very agreeable and In her time at
pleasant. He listens and gives you time to say Cam Sight, Anne
what you need to say. He doesn’t interrupt, he a has been a
very good interviewer. member of the
Physical
James - Thanks very much Mark, of course Disability and
you’re always welcome to post my boss some Sensory
real feedback when I’m not around! And thank Impairment
you very much for talking to me this afternoon. (PDSI) and Older
People’s
Mark - Thank you. Partnership
Boards. Anne
You’ll be able to find Mark experiences of Direct says “…the input
Payments and more about Voices4Chocies and facilitation by
within the next couple of months on our new CAIL has been
website: www.cail.org.uk extremely
positive and individual members with lived
James Saunders – Project Leader experience have a greater role in leading and
driving the work of the Boards. This means that
issues that affect people’s daily lives can come to
Talking with Anne Streather Cam Sight, the forefront and are addressed. Having
Outgoing Chief Executive Officer established a more user-led PDSI Partnership
Board, there could perhaps be potential for
Anne Streather has over ten years of service at strengthening the discrete sensory and the
Cam Sight and will be leaving at end of April. (A physical disability elements of this Board to focus
little declaration for your interest – Graham and on their differing needs in a more targeted
Anne have worked with each other in the local way. Other independent members might also be
voluntary sector for nearly twenty years). attracted as it could feel of greater relevance to
them...”

Another aspect of CAIL that has been of
particular benefit to Cam Sight members is its
role in representing people in a variety of
situations. As a pan-disability organisation, CAIL
has the capacity, overview and influence to raise
awareness of issues that affect many people
locally, including those with a visual impairment.

Anne wanted to express her real gratitude to
CAIL for all their support and guidance over the
years which was greatly appreciated.

Anglia Ruskin University recently honoured Anne
by making her an Honorary Fellow. Anglia
Ruskin University benefits from their relationship
with Cam Sight in many ways. An example of this
is that all final year Optometry students take part
in a Cam Sight training session, which introduces and housing solutions to and with vulnerable
them to the full range of voluntary sector services young adults.
available to the visually impaired.
Whilst at the YMCA I worked with Graham Lewis,
From everyone here at CAIL we wish Anne the currently employed by CAIL – so I look forward to
very best of luck in all of her future endeavours. working again with him. In addition I look forward
to working with all the staff and trustees at CAIL
If you would like to contact Cam Sight: as well as meeting the very many people it
Tel: 01223 420033 serves.
Email: info@camsight.org.uk

Graham Lewis - Development Officer

A Word From Our New Trustee - Nigel Fenner

My name is Nigel Fenner and I am delighted to
be joining the CAIL as a trustee. I hope I can help
it continue to deliver the excellent service that it
does, as well as explore how best to meet the
major challenges ahead, which so many charities
are facing.

I bring to the role of trustee my current
experience as Chief Executive of Red2Green that
provides a range of services for and with adults
with learning disabilities, adults with autism, and
adults with mental health challenges – in the
south and east of Cambridgeshire. I can also call
on 6 years experience of managing Hertfordshire
PASS, a user-led charity mostly providing a Nigel Fenner - CAIL Trustee
service for adults with disabilities who used Direct
Payments to employ their own care staff or
Personal Assistants, so enabling them to live at Exploring how we can raise awareness of
home. Hate Crime

Following this experience I set up my own social
enterprise called SEMPA Community Interest
Company that provided video training /
educational materials and a payroll service in
‘Supporting Employers Managing Personal
Assistants’.
Do you remember our event in February 2015? It
Before these experiences I managed a charity was called Crime, Prevention and Safety and
taking relationships education into schools and took place in Ely. We had looked at some of the
prisons, and for 12 years I was a manager at issues that people face and one of the areas of
Cambridge YMCA delivering fitness, youth work
concern was hate crime against people with Hidden Voices
disabilities.
Held at the Netherhall School in Cambridge on
Since then CAIL has been exploring what it can Tuesday 14th February 2017, this year’s Cross
do to raise awareness of hate crime and the Board event took a slightly different turn to past
support available to people who experience it. events. Through presentations, films and
As part of this exploration I have been attending activities, ‘Hidden Voices’ explored how lived
the Cambridgeshire Police Hate Crime Steering experiences due to hidden characteristics might
Group; talking with Police Officers, deter or delay people from seeking care and
representatives from the Police and Crime support from local services. The event aimed to
Commissioners Office and with other make people think “Would I feel marginalised?
organisations about the issues and looking to see Are services for me? Do they understand my
what we can do. needs? Do the Boards speak for me?”

What I would like now is to hear from you! Oral histories of
 Do you understand what Hate Crime is? discrimination,
Have you heard of Mate Crime? rejection,
 What do you think we could do to raise abuse and loss
awareness? of family
 If you’ve experienced Hate Crime, did you connections
know who to tell? Did you get the support you from people
needed – in a way that worked for you? Can who are
you tell me more about this? lesbian, gay,
bisexual and
The more information we have, the better we can transgender
plan and successfully apply for funding to deliver (LGB&T)
a project across the county. people were
unearthed through the Kite Trust’s film
If you want to talk about this, either give me a call 20:20 Vision and guest speaker, Dr Paulina
or drop me an email Palmer’s recounting setting up and running a
Graham telephone helpline service for lesbians in
Graham@cambridgeshirealliance.org.uk Cambridgeshire in the 1980s and 90s. The
0300 111 2301 author of “The Queer Uncanny: New
Perspectives on the Gothic” and retired lecturer
Graham Lewis - Development Officer in Gender and Sexuality shared stories of women
often not seeking care or ‘go back
into the closet’ due to worrying about
discrimination from care staff.

“Before the care company came
round I de-gayed my house. I
took down all the pictures of my
late partner and removed any
sign that I had been in a life-long
relationship with a woman”

Shared research about concerns
from ageing people who are LGB&T

“At what stage of my life will I be
by the time I need support? Will I
be in or out of the closet? Will I
have transitioned or will I want to
be my natural gender?”

Returning to one of the original aims
of the day - to explore the questions
‘Are services for me? Do they
understand my needs?’ – delegates
at Hidden Voices looked at marketing
and promotional brochures from local
leading double lives – married with children yet in nursing and residential homes for older people
same-sex affairs hiding their sexuality in their for signs of being gay-friendly. Not a single
local communities. brochure had a photograph of a same sex couple
or any reference to links to the gay community.
You can watch the Kite Trust’s film, 20:20 Vision
on their YouTube channel at this address: The second theme of the day was ‘Working with
www.youtube.com/watch?v=wQripMGak4w BAME communities’. Shama Kanwar (Project
Lead – Well Pathway for Dementia, CPFT)
The oral histories opened up our minds to how wowed delegates with stories of her approach to
different things were in the past – these people engaging with ‘hard to reach communities’ to be
had grown up through times where same-sex able to increase recording the prevalence of
relationships were illegal and could result in dementia through GP health checks, raise
imprisonment or forced ‘aversion therapy’ in old awareness and increasing community resilience
mental health institutions. about dementia in the South Asian and Traveller
Communities.
At the event I presented latest research about
how previous generations are now ageing but are
Shama explained Healthwatch presented their work with Travelling
that in some Communities. They stated that the work had
cultures, unlike taught them many lessons in meaningful
western values, engagement with all communities – not just those
dementia is not that are ‘hidden’.
seen as a normal
and expected part Healthwatch have found that to really get true
of ageing and engagement that questions need to be specific
often is not even and focussed. We need to be flexible with our
acknowledged or approach in how you engage – it’s important to
it can be viewed ‘go to them’ rather than asking people to attend
as ‘madness’ meetings away from their local communities.
which can cause Giving something in return like a gift voucher and
shame and staying vigilant in making sure that people are not
stigma. Key to her out of pocket.
success was not only overcoming obvious
barriers such as language, but throwing herself
into understanding different cultures and why this
might mean that they don’t want to access GP
Health checks or access care and support when
someone does develop dementia.

A striking example was understanding different
communities’ concept of ‘time’ and that in some
cultures it is not usual to book appointments – “I
will attend in the morning” could be any time
between from sunrise to lunch – which makes an
allocated appointment time not particularly
appealing, useful or appropriate.

Shame and stigma of ‘madness’ also drives
people to not seek help and support, even within
their family and community. For other people, it is
not usual in their culture for anyone outside the
family to provide care for loved ones.

Using what she had
learnt, Shama has
worked closely with
GP practices to
modify how they These events are always great opportunities to
promote and provide support local social enterprises. With food
health checks. The provided by Winter Comfort’s social enterprise
programme has been so effective that the team Food4Food and event hosting by Turtle Dove,
are continuing to exceed their targets. not only did we get great food and great service
but satisfaction that we’re working together in the
third sector.
With all the individuals and organisations sharing
their stories and experiences on Principles of
Engagement, CAIL has a lot to reflect upon with You can find us on social media:
regards to how we structure the Partnership
Boards. With any luck Hidden Voices has given
others some food for thought as well.

Facebook
Leisha O’Brian - Engagement and Participation
Development Officer

New Website & New Information Bulletin!
Twitter
CAIL have launched our brand new website.
Check it out here:

 www.cail.org.uk Website

YouTube

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pendent Living, All rights reserved.
Charity no: 1132290

Our mailing address is:
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