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Stemcellagencysresponsetoquestionsaboutits
performance
BYDAVIDJENSEN POSTED05.23.2017

TWITTER EdsNote:HereisthefulltextoftheresponsefromtheCaliforniastemcellagencytoaqueryaboutthefivemost
importantthingsthatitthinksCaliforniansshouldknowaboutthe$3billioneffort.Theinformationwasprovided
(HTTPS://TWITTER.COM/SHARE)
byKevinMcCormack,seniordirectorforcommunicationsattheagency.
FACEBOOK

EMAIL Itshardtolimititto5becausewehavedonesomanydifferentthingsthat,intheirownway,arepioneeringand
(MAILTO:? groundbreaking.Itslikeaskingsomeonetochoosetheirfavoritechild.Welovethemallequally.
SUBJECT=STEM
CELL 1)Researchwehavesupportedhascuredmorethan30childrenofafatalrareimmunedisorder.Thatsame
AGENCYS approachhasalsocuredayoungmanofanotherrareimmunedisorderandisnowbeingusedtohelpfindacurefor
RESPONSE sicklecellanemiaaconditionthataffectsmorethan100,000peopleintheUS,mostofthemAfricanAmericans
TO
QUESTIONS
ABOUTITS 2)Wehavefunded29projectsinclinicaltrialsforavarietyof
PERFORMANCE&BODY='HTTP://CAPITOLWEEKLY.NET/STEMdiseasesincludingheartdisease,cancer,diabetes,HIV/AIDS,spinal
CELL
cordinjuriesandtheleadingcauseofvisionlossandblindnessinthe
AGENCY
US
RESPONSE
TO
3)Wearefocusedonaddinganother40newclinicaltrialsby2020,
QUESTIONS
ABOUTITS includingrarediseasesandthoseaffectingchildren
PERFORMANCE/')
4)Weplacepatientsattheheartofeverythingwedoandevery
decisionwemake.NothinggetsdoneatCIRM,includingwhatwefund
andhowclinicaltrialsaredesigned,withouttheinputofpatientsand
patientadvocates.Theyknowbestwhatneedstobedoneandtheir
voicesareessentialinmakingdecisionsabouttreatmentsthatcouldchangetheirlives,evensavetheirlives

5)CIRMhasmadeCaliforniaaworldleadersinstemcellresearch,attractingsomeofthemosttalentedscientiststothestateto
developnewtreatmentsandfundingworldclassresearchfacilitiesinwhichtheresearchisconductedfreefromfederalrestrictions

6)WehavecreatedtheCIRMAlphaStemCellClinicNetworkandtheStemCellCenter,twouniqueinstitutionsthatcombinedcan
improvetheabilityofresearcherstogettheirproductsapprovedforclinicaltrials,andtoincreasethechancesthoseclinicaltrialswillbe
successful.ThesearealreadyattractingbothCIRMandnonCIRMfundedprojectstoCalifornia,andwillbeanenduringcontributionto
thedevelopmentofstemcellprojectsofallkinds.

InadditionwecreatedtheiPSCBankwhichisdevelopingarepositoryofmorethan3,000differentcelltypesforresearchintothe
causes,andpotentialtreatmentsfordiseasesasvariedasAlzheimersandautism,heartdiseaseandvisionloss.

Wearehelpingcreatenewjobsandgeneratenewtaxes.A2014economicimpactreportshowedthatbythatyearalonewehad
generated$284millioninnewtaxesforthestateandhelpedcreate38,000newjobyears(thatseconomistspeakfor38,000jobsthat
lastoneyear,19,000thatlasttwo,etc.)

WechangedthewayourBoardvotestoensuretherewouldbenomoreconcernsabouttheperceptionofconflictofinterest.By
preventingheadsofinstitutionswhocouldreceivestemcellfundsfromvotingonanyfundingissue,wetookthatoffthetablesothatwe
canfocusonourmaingoal,helpingpatients.
WehavecreatedleadershipandtraineeprogramssuchasourBridgesprogramthatarehelpingtrainthenextgenerationofstemcell
scientists.

Weplayedakeyroleinadvancingthe21stCenturyCuresActandthattwoofthefirstprojectsapprovedforacceleratedreviewand
approvalareCIRMfundedclinicaltrials.HumacytewastheveryfirstprojectgrantedRegenerativeMedicineAdvancedTherapyandlast
weekjCytewasgrantedRMATdesignationforitsworkintreatingretinitispigmentosa(heresafabulousblog
(https://blog.cirm.ca.gov/2017/05/03/jcytegetsfdagoaheadforfasttrackreviewprocessofretinitispigmentosastemcell
therapy))aboutthat).

Dontforget,wehavearound$650millionlefttospend,thatsfarmorethananyotherstatehasavailable(NewYork,forexamplehas
$50mayear,Connecticutjust$10m)andmorethanmanycountries,andweintendtousethatmoneytocontinuetoacceleratethe
researchthatwillprovidenewtreatmentsandcures.

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