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PART 1

What we want to know:

1. The impact of cleft and lip palate repair on parents’ ability to return to work,
2. The ability of a child to becoming a contributing part of their society (school, workforce, church,
etc)
3. The ability of the family to contribute to their country’s economy, once parents are able to return
to work.

What we need to determine:

1. The number of surgeries needed and
2. The additional support required a child to make a full recovery,
3. The type of support system available to the patient and their family.

Drafted Questions

1. How many household members live in your home?
2. What are their ages?
3. What is their level of education?
4. How many members of the family work?
5. What is their occupation?
6. How much do they earn per day/week/month/year
7. Are there any barriers on your ability to earn a higher income?
8. What are those barriers?
9. How much more could you earn if barriers were removed?
10. How has having a child with cleft lip/palate deformity affected your life?
11. How will your child’s life be impacted after surgery?
12. How will your family’s life be impacted after surgery?
13. How many surgeries will your child need to fully recover?
14. What other services does your child need to fully recover?
15. How do you visualize your child’s life if no surgery was conducted?
16. How will you visualize his/her life after surgery?
17. How will you visualize his/her life after all surgeries and services are provided?
18. How do you think your community will react to your child after surgery?
19. Who is your support system?
-In your family
-in your neighborhood
-in your community

Thank you, Teresa V. Cox
PART 2-Thoughts for Future Studies

For full-impact wrap around solution service delivery:

Elements to take into account for future wrap around solution for the patient

1. Surgeries (types and number)
2. Speech Therapy
3. Dentistry
4. Social Work
5. Mental Health
6. Educational support

Elements to take into account for future wrap around solution for the family

1. Mental Health
2. Community Resources
3. Financial Support
4. Job training
5. Spiritual support
6. Family support

Elements to take into account for the medical community

1. Professional training in-country
2. Specialized facilities
3. Specialized service delivery(speech, orthodontist, mental health, etc)
4. Training incentive

Elements to take into account for societal solution

1. Education and awareness about cleft lip and palate
2. Anti-bullying and anti-discrimination campaigns
3. Financial support by private and public sector
4. Advocacy and legislation