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Clinical Practice in Pediatric Psychology © 2014 American Psychological Association

2014, Vol. 2, No. 4, 400 – 411 2169-4826/14/$12.00 http://dx.doi.org/10.1037/cpp0000077

An Emerging Opportunity for Pediatric Psychologists: Our Role in a


Multidisciplinary Clinic for Youth With Gender Dysphoria

Melissa K. Cousino Ajuah Davis, Henry Ng,


Case Western Reserve University and Boston and Terry Stancin
Children’s Hospital and Harvard Medical School MetroHealth Medical Center, Cleveland, Ohio, and
Case Western Reserve University
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

An increasing number of youth are identifying themselves as gender variant (e.g.,


This document is copyrighted by the American Psychological Association or one of its allied publishers.

transgender) or nonconforming with culturally defined biological sex-based norms.


Children with persistent gender dysphoria (GD) are at risk for psychological distress;
subsequently, there has been a rise in the number of families, schools, and health-care
providers seeking mental health services and advice regarding medical interventions for
youth experiencing significant GD. Pediatric psychologists are well positioned to fulfill
this need given their expertise in child development and child emotional and behavioral
functioning in addition to their experiences working alongside medical teams and with
patients undergoing medical treatments. This article describes the development and
implementation of a hospital-based multidisciplinary clinic for gender-variant youth.
Particular emphasis is paid to the role of the pediatric psychologist within the clinic. A
case example is illustrated. Obstacles and future directions for pediatric psychologists
working in this area are highlighted.

Keywords: gender dysphoria, gender variance, transgender, multidisciplinary clinic, program


development

The American Psychological Association Statistical Manual of Mental Disorders, Fourth


Task Force on Gender Identity and Gender Edition (DSM–IV; American Psychiatric Asso-
Variance (APA, 2009) reported that psycholo- ciation, 2000) described children and adults
gists are in increasingly greater demand as who experience “strong and persistent cross-
awareness and support for persons identifying gender identification” and “persistent discom-
as gender variant increase. The terms gender fort with his or her sex or a sense of inappro-
variant, gender noncomforming, or transgender priateness in the gender role of that sex” (p.
are used to describe those whose self-identity or 581) as having gender identity disorder (GID).
self-expression does not conform to culturally However, the Diagnostic and Statistical Man-
defined norms for one’s biological sex (APA, ual of Mental Disorders, Fifth Edition (DSM-5;
2009). For the past decade, the Diagnostic and American Psychiatric Association, 2013) re-
cently replaced GID with “gender dysphoria
(GD),” which places focus on the clinically
significant distress associated with the condition
This article was published Online First October 27, 2014.
Melissa K. Cousino, Department of Psychological Sci-
rather than on the behavioral manifestations. To
ences, Case Western Reserve University, and Division of be diagnosed with GD, there must be a marked,
Psychiatry, Boston Children’s Hospital and Harvard Medi- persistent, and verbalized discrepancy between
cal School; Ajuah Davis and Henry Ng, Department of the child’s expressed gender and the gender
Pediatrics, MetroHealth Medical Center, Cleveland, Ohio, assigned to him or her by others that causes
and Department of Pediatrics, Case Western Reserve Uni-
versity; Terry Stancin, Departments of Pediatrics and Psy- clinically significant distress or impairment in
chiatry, MetroHealth Medical Center, and Department of functioning. Children and adolescents with GD
Pediatrics, Case Western Reserve University. express strong desires to be treated as the other
Correspondence concerning this article should be ad- gender and to be rid of their biologic sex char-
dressed to Terry Stancin, Division of Child and Adolescent
Psychiatry and Psychology, MetroHealth Medical Center,
acteristics. They often describe having feelings
2500 MetroHealth Drive, Cleveland, OH 44109. E-mail: and reactions typical of a different gender
tstancin@metrohealth.org (American Psychiatric Association, 2013).
400
PEDIATRIC PSYCHOLOGY AND YOUTH GENDER DYSPHORIA 401

Youth with GD and transgender adults may be sexual or bisexual at follow-up, with sexual
identified by their preferred (or reassigned) gen- orientation classified in accord with natal sex
der as “male-to-female” (MTF) or “female-to- (Wallien & Cohen-Kettenis, 2008). Of note,
male” (FTM). 30% of participants could not be reached at
The prevalence of childhood GD is very dif- follow-up; thus, they were not included in fol-
ficult to determine, and no epidemiologic stud- low-up analyses. Similar to these recent find-
ies have been performed to date (Institute of ings, other studies suggest that approximately
Medicine, 2011; Zucker & Lawrence, 2009); 12–27% of early childhood cases of GD persist
however, it has been established that more fam- into adolescence and beyond (Drummond,
ilies are seeking services to address the psycho- Bradley, Peterson-Badali, & Zucker, 2008;
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

social and medical needs of children, adoles- Zucker & Bradley, 1995). Thus, although the
This document is copyrighted by the American Psychological Association or one of its allied publishers.

cents, and young adults who are increasingly most likely outcome of childhood-onset GD is
more likely to indentify themselves as gender homosexuality or bisexuality (Wallien & Co-
variant (APA, 2009). For example, a Canadian hen-Kettenis, 2008) in adolescence and adult-
gender clinic reported a near tripling in number hood, there is no clear way to predict which
of referrals since 1976 (Zucker, Bradley, Owen- children will have persisting GD in later years.
Anderson, Kibblewhite, & Cantor, 2008). Like- Emerging research from a study of 127 adoles-
wise, the first U.S.-based multidisciplinary gen- cents with childhood GD suggests that greater
der clinic has experienced a 4-fold increase in intensity of GD in childhood is correlated with
the number of patients seen annually since 1998 higher likelihood of GD persistence (Steensma,
(4.5 patients/year; Spack et al., 2012). This may McGuire, Kreukels, Beekman, & Cohen-
be attributed to growing media attention and Kettenis, 2013).
public awareness about gender variance in For children with GD, the mental health-care
childhood and adolescence (APA, 2009; Zucker needs are often great. Psychosocial distress may
et al., 2008) and the increasing availability of also intensify with the onset of puberty and the
care options (Olson, Forbes, & Belzer, 2011), emergence of secondary sex characteristics
such as medical interventions to suppress pu- (e.g., American Academy of Pediatrics, 2013).
berty. With this increased awareness and inter- Youth who are distressed by their biological sex
est in the experiences of gender-variant youth, and/or assigned gender role are at increased risk
health-care providers must carefully consider for depression and anxiety. Suicidal ideation
and reexamine how care is to be delivered. As and self-injurious behaviors are also higher
Edwards-Leeper and Spack (2012) recently among children and adolescents with GD
noted, we are amid a time of transition and (Spack et al., 2012; Wallien, Swaab, & Cohen-
development with regards to the treatment of Kettenis, 2007). For example, among a sample
gender-variant youth. of children and adolescents with GD, 44% had
However, the lack of longitudinal and treat- received a previous psychiatric diagnosis, 35%
ment outcome studies in this area brings about were prescribed psychiatric medications, 20%
several challenges for treatment providers reported a history of self-injurious behaviors,
(Olson et al., 2011). Although data are limited, and 9% reported a past suicide attempt(s) and
GD may not persist into adolescence for many psychiatric hospitalization. Of those with a pre-
children. For example, of the 77 children ages vious psychiatric diagnosis, depression (25%),
5–12 years with GD followed prospectively by generalized anxiety disorder (7%), and bipolar
Dutch researchers, 43% denied persistent dys- disorder (7%) were most common among the
phoria as an adolescent. Among this group, all sample (Spack et al., 2012). Externalizing prob-
of the natal girls reported a heterosexual orien- lems are also more common among youth with
tation and half of the natal boys reported a GD as compared with children without GD
heterosexual orientation. Greater intensity of (Saewyc et al., 2006). Many children and ado-
GD at baseline as measured by various parent- lescents with GD experience teasing, bullying,
and child-reported questionnaires and semi- and peer rejection. Furthermore, physical and
structured interviews was found to be associated sexual abuse is often greater among this popu-
with persisting GD in adolescence. Of the 77 lation (Saewyc et al., 2006).
participants, 27% reported persisting GD and Given the psychosocial risks, medical inter-
nearly this entire group self-identified as homo- vention that facilitates an adolescent’s transition
402 COUSINO, DAVIS, NG, AND STANCIN

to a more desired gender appearance may be undergoing medical treatments and procedures.
considered. The first multidisciplinary pediatric Moreover, pediatric psychologists are skilled in
gender specialty clinic in North America was helping children and families navigate challeng-
the Gender Management Service (GeMS) at ing medical decisions. These skills are particu-
Boston Children’s Hospital. The GeMS pro- larly important within the context of pediatric
gram, which includes representatives from pe- gender clinics. In addition, pediatric psycholo-
diatric endocrinology, urology, psychology, gists are well versed in working alongside pe-
psychiatry, and social work, was founded in diatricians and as members of medical teams.
2007; however, the hospital has provided med- As the need for multidisciplinary pediatric gen-
ical-based services to transgender youth since der clinics increases, the services of pediatric
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

1998 (Spack et al., 2012). On the basis of their psychologists will be in greater demand. Given
This document is copyrighted by the American Psychological Association or one of its allied publishers.

work at GeMS, Edwards-Leeper and Spack its novelty, especially in the realm of pediatric
(2012) reported the following psychological psychology, the purpose of this article is to
benefits of reversible pubertal suppression: pre- describe a multidisciplinary specialty clinic for
venting and/or reducing psychological sequelae, gender-variant youth with particular emphasis
having extended time to meet with a mental given to the important role of pediatric psychol-
health professional for assessment and self- ogists in this area of clinical practice. Guide-
exploration of gender identity, and allowing for lines for clinical practice are highlighted and a
an easier full transition in adulthood if desired. case example is provided.
Emerging research from other centers supports
these clinical findings. Moreover, of 70 adoles- The KIDz PRIDE Clinic at MetroHealth
cents diagnosed with GD following a compre- Medical Center
hensive psychological intervention to determine
appropriateness for medical intervention who Who We Are
were subsequently treated with puberty-
suppressing hormones, all continued with their MetroHealth Medical Center is an urban,
transition to the desired sex by pursuing addi- public, academic medical system affiliated with
tional treatment options (i.e., cross-gender hor- Case Western Reserve University in Cleveland,
mone therapy) (de Vries, Steensma, Doreleijers, Ohio. Most pediatric patients served at Metro-
& Cohen-Kettenis, 2010). Although research is Health Medical Center qualify for Medicaid
beginning to suggest that medical intervention health insurance coverage. Initiated in 2008, the
can promote improvements in psychological KIDz PRIDE Clinic at MetroHealth Medical
functioning of youth with GD, the treatment Center is dedicated to the care and support of
options are complicated with considerable eth- gender-variant and transgender children, ado-
ical and developmental considerations. lescents, and their families. The KIDz PRIDE
On the one hand, there is significant dis- Clinic was developed in response to the needs
tress and risk for psychological morbidities of gender-variant children who presented for
that may be reduced with medical interven- initial consultation through the adult LGBT
tions (e.g., Edwards-Leeper & Spack, 2012). PRIDE Clinic at MetroHealth Medical Center,
However, as research shows, it is difficult to which was established in 2007 as the region’s
determine for whom GD will persist (Wallien first specialty clinic devoted to the health-care
& Cohen-Kettenis, 2008). Therefore, given the needs of the lesbian, gay, bisexual, and trans-
psychological risks present among this popula- gender (LGBT) communities. The clinic model
tion, developmental considerations, limited ev- was developed in accordance with the guide-
idence-based guidelines, and complicated med- lines set forth by the World Professional Asso-
ical treatment options, pediatric psychologists ciation for Transgender Health (WPATH) and
are well positioned to work as leaders and mem- the Endocrine Society (Coleman et al., 2012;
bers of multidisciplinary specialty teams for Hembree et al., 2009; Meyer, Bockting, Cohen-
gender-variant youth. In addition to having ex- Kettenis, & Harry Benjamin International Gen-
pertise in child development, family systems, der Dysphoria Association, 2011). Emerging
and the treatment of childhood psychological research from GeMS at Boston Children’s Hos-
disorders, pediatric psychologists have special- pital and the VU Medical Center in Amsterdam,
ized training in serving children and families the Netherlands provides additional guidance
PEDIATRIC PSYCHOLOGY AND YOUTH GENDER DYSPHORIA 403

for the medical and psychological services pro- of children with early or late pubertal develop-
vided in our clinic; however, albeit similar, our ment and disorders of sexual differentiation.
clinic is not a direct replication of these previ- Graduate-level trainees in psychology and med-
ously established clinics. Our program was de- icine also participate in the provision of clinic
veloped in response to a need in a varied setting services. Although each specialist sees patients
from those previously established given the and families during separate visits, attempts are
largely under-resourced population serviced by made to coordinate for same-day appointments
our hospital. when possible. The team meets monthly to dis-
The KIDz PRIDE Clinic is serviced by a cuss cases and treatment plans. The team con-
multidisciplinary team that includes specialists tinuously works together to assess and monitor
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

and trainees from the areas of pediatric psychol- each child’s psychological and physical appro-
This document is copyrighted by the American Psychological Association or one of its allied publishers.

ogy, pediatric endocrinology, internal medicine/ priateness and readiness for medical interven-
pediatrics, and social work. To date, the KIDz tion.
PRIDE Clinic has provided care for 20 youth Given that many cases of childhood GD do
and their families ranging in age from 7 to 19 not persist into adulthood (Wallien & Cohen-
years seeking gender-related medical and men- Kettenis, 2008), medical care for children ne-
tal health-care services. The mean age of cur- cessitates a different approach from that of
rent patients is 14.5 years (⫾3.0), with 50% adults (Coleman et al., 2012). The Endocrine
identified as FTM and 50% as MTF. Families Society’s Transgender Task Force (Hembree et
most commonly learn of our services via social al., 2009) recommends that a diagnosis of GID
media, Internet searches, and by word of mouth. be made by a mental health professional before
We have not formally advertised or marketed considering medical intervention, albeit this
our clinic, which may explain the small patient will likely be updated given the recent DSM-5
population, in addition to the unknown inci- changes. Specifically, for children and adoles-
dence rate of GD in children. Because there are cents, the task force notes that this diagnosis
so few similar programs in the country, and should be made by a trained mental health pro-
none to our knowledge that serve a predomi- fessional with expertise in developmental psy-
nantly Medicaid population, patients and fami- chopathology (Hembree, 2011; Hembree et al.,
lies travel from all over the state to receive the 2009). The diagnosing mental health profes-
multidisciplinary, specialized care offered by sional refers the child to medical providers for
the KIDz PRIDE Clinic. the consideration of medical interventions, such
as pubertal suppression, only after thorough as-
Summary of Medical Services, Clinical sessment has been performed. In addition to a
Guidelines, and Competencies diagnosis of GD, other eligibility criteria for
pubertal suppression include increases in GD at
The pediatrician is often the initial point of the onset of puberty, available psychosocial
contact for families with gender-variant chil- support, absence of serious psychiatric comor-
dren who seek gender-related services. The pe- bidities, and awareness and understanding of
diatrician conducts the initial biopsychosocial pubertal suppression treatment outcomes
interview with parent(s) and child and a physi- (WPATH Guidelines; Meyer et al., 2011).
cal exam. The pediatrician introduces the family Reversible pubertal suppression starting at
to our clinic, educates the family about their the onset of puberty (i.e., Tanner stage II), in
options, explains the roles of all team members, combination with a societal role change to the
and provides resources (e.g., local community- desired gender, is recommended as the first
based support groups for transgender people, form of medical intervention (Hembree et al.,
web-based references on gender and sexuality). 2009). It is recommended that pubertal suppres-
It is recommended that all patients and families sion begins at the first sign of puberty (Tanner
are seen by the team’s pediatric psychologist stage II sexual development), which is typically
before beginning medical intervention for a indicated by breast development (age range
thorough assessment, which is detailed below. 8.25–12.1 years) in girls and testicular enlarge-
For those considering medical intervention, a ment (ages 9 –13.5 years) in boys (Hembree et
referral is made to the team’s pediatric endocri- al., 2009; Hughes, 2008; Rosenfield, Cooke, &
nologist who has expertise in the management Radovick, 2008). These changes are detected by
404 COUSINO, DAVIS, NG, AND STANCIN

physical examination and confirmed by labora- hormones earlier than age 16 for adolescents
tory and X-ray studies. This intervention allows with appropriate screening that includes mental
an individual time to more fully experience their health and social supports. Ongoing psycholog-
desired gender role before the initiation of ical assessment should confirm that the individ-
cross-gender hormone treatment or the develop- ual continues to meet criteria for GD and that
ment of irreversible physical changes (Coleman confounding psychosocial and medical prob-
et al., 2012; Hembree et al., 2009). The task lems have been addressed. The adolescent
force recommends that gonadotropin releasing should ultimately be able to make an informed
hormone (GnRH) therapy be used to suppress decision about their medical treatment and ac-
the pituitary-gonadal axis before the onset of tively engage in therapy. Individual responses
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

full biological puberty (Hembree et al., 2009). to cross-gender hormone treatment may vary
This document is copyrighted by the American Psychological Association or one of its allied publishers.

Leuprolide acetate (i.e., Lupron), given as a and require adjustment until the desired effects
once-monthly or once every 3 months intramus- are achieved (Hembree et al., 2009). Clear ex-
cular injection, is the most widely used GnRH pectations about the extent and timing of phys-
agent in the United States. A subcutaneous his- ical changes are important because there is in-
trelin acetate implant, which provides continu- dividual variability. To date, 5 of our 20 patients
ous hormonal suppression for 12 months, is also have been treated with cross-gender hormone
available. As a result of these treatments, sec- therapy, but many others are beginning to make
ondary sex characteristics regress or are halted such requests as they get older.
in their progression (Lee, 1994; Rosenfield et Some, but not all, transgender individuals
al., 2008; Wheeler & Styne, 1991). For these desire surgical interventions. It is important to
reasons, in addition to the emerging research note that the WPATH and Endocrine Society’s
highlighting the psychological benefits of this guidelines recommend that surgical interven-
approach (de Vries, Doreleijers, Steensma, & tion be deferred until the adolescent has reached
Cohen-Kettenis, 2011; Spack et al., 2012), pu- legal adulthood (18 years or older). In addition,
bertal suppression is the most common medical the individual must feel completely satisfied
intervention currently utilized in our clinic. Of with their societal role change to the desired
our 20 patients, 6 are being treated with GnRH gender and the cross-gender hormone effects
to suppress puberty. (Hembree et al., 2009; Meyer et al., 2011).
Throughout this intervention course, the Although surgical intervention is not provided
team’s pediatric endocrinologist provides close in our clinic, we do make referrals to surgeons
monitoring of the hormonal regimen so that the if a patient requests. For example, we have
desired outcomes are reached based upon an supported efforts by one of our FTM patients
adapted treatment protocol for central preco- (age 19) to obtain breast reduction (a.k.a. “top”)
cious puberty (Coleman et al., 2012; Hembree surgery.
et al., 2009; Rosenfield et al., 2008). Endocrine Of note, each of these medical interventions
follow-up is recommended quarterly for the first involves active and ongoing management deci-
year and 1–2 times annually in following years sions. Side effects are possible. For example,
to monitor for adequate pubertal suppression GnRH agonists used for pubertal suppression
and any negative side effects. may cause drug sensitivity reactions and abnor-
Once an adolescent is past the age for which mal weight gain. Moreover, because of a lack of
puberty is expected, questions about partially insurance coverage, these interventions are
reversible cross-gender hormone therapy may costly. For example, Lupron, which is com-
arise, although this is not true for all youth with monly used in our clinic to suppress puberty,
GD. Given research suggesting that GD may would cost most of our families $2,100 –$2,500
not persist for some adolescents beyond child- monthly without insurance coverage. This sig-
hood, WPATH and the Endocrine Society ad- nificant expense, in addition to the expectations,
vise that cross-gender hormone treatment not be limitations, and side effects of treatment, should
introduced until approximately 16 years of age be thoroughly discussed with each individual
(Coleman et al., 2012; Hembree et al., 2009; and family. To date, no controlled clinical trials
Meyer et al., 2011). We interpret this guideline exist evaluating the safety or efficacy of cross-
as allowing for some flexibility when making gender hormones, and long-term adverse effects
decisions regarding initiation of cross-gender are unknown (Gooren, Giltay, & Bunck, 2008).
PEDIATRIC PSYCHOLOGY AND YOUTH GENDER DYSPHORIA 405

The Role of Pediatric Psychology chology treatment plan is discussed. Currently,


the pediatric psychologist provides three levels
Therefore, in addition to assessing for and of service depending on the needs of the child/
managing psychological comorbidities and de- family: (a) ongoing (biweekly to monthly) in-
velopmental level, pediatric psychologists are dividual child psychological treatment related
critically important for helping youth and fam- to GD, comorbid psychiatric problems, and/or
ilies understand and navigate difficult decisions other identified needs; (b) ongoing (biweekly to
regarding the complex medical interventions monthly) family psychological treatment to pro-
available for youth with GD. The role of pedi- mote family support around gender-related is-
atric psychology in our multidisciplinary clinic sues; and (c) gender-specific consultation (2– 4
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

varies from case to case. Several factors, such as sessions annually) to supplement outside psy-
This document is copyrighted by the American Psychological Association or one of its allied publishers.

child age, degree of familial support, level of chological/psychiatric services. The level of
child distress, and stage of medical treatment, psychological intervention needed is discussed
influence the ways in which pediatric psychol- by all team members and in collaboration with
ogy is involved. All children and families seek- patients and caregivers. Those with comorbid
ing gender-related services in our clinic are seen psychiatric problems and/or greater family con-
by the pediatric psychologist for an initial men- flict around gender-related issues are most often
tal health assessment and psychoeducation. The recommended for ongoing psychological treat-
assessment phase ranges from two to four ses- ment. Treatment goals can include those fo-
sions. The pediatric psychologist first meets cused on gender-related issues in addition to
with parents/guardians to complete a clinical other common psychiatric presentations, such
interview to obtain in-depth child and family as depression and anxiety.
history. Level of familial support around the Overall, the treatment approach utilized in
child’s expressed gender preferences is as- our clinic for psychological services is one that
sessed. Consistent with psychological practice is supportive and affirming in nature; however,
in the founding pediatric gender clinics in North as discussed below, no cross-comparison treat-
America and the Netherlands, parents/guardians ment studies or randomized controlled trials
complete a battery of measures to assess the have been conducted to support which treat-
child’s level of GD and psychosocial function- ment approach is most beneficial. Especially
ing. Parents and teachers are asked to complete with the youngest children (in which the even-
broad-based child emotional/behavioral rating tual outcome is most ambiguous), the pediatric
scales. If psychiatric comorbidites, such as at- psychologist works closely with parents who
tention-deficit/hyperactivity disorder, are sus- may be struggling with making decisions about
pected, then additional measures are given. how to respond to the child’s request to present
At the second session, the pediatric psychol- as the opposite gender. Should they permit the
ogist typically meets with the child for further child to wear gender-variant clothes and engage
clinical interviewing and assessment, including in activities only at home? Do they allow the
administration of the 12-item Gender Identity child to display gender-variant appearances and
Interview Schedule (Zucker et al., 1993). Chil- activities in public? Should they support the
dren at least 11 years of age complete broad- child in “going stealth”—presenting in all set-
based child emotional/behavioral self-rating tings as the desired gender? Questions regarding
scales. Some initial psychoeducation about GD school responsibilities and sibling issues are
is usually provided for children. If a child has frequently explored. Most often, the psycholo-
been seen for mental health services elsewhere, gist works with the child and family to recog-
then records are obtained and reviewed, and nize the struggle, tolerate and understand the
collateral is made. range of outcomes for the child, and to support/
Subsequent assessment sessions may be con- affirm all possible outcomes (Perrin & Stancin,
ducted, and then the family is brought together 2013). As the child approaches adolescence, the
to review assessment results. Feedback on the psychologist provides support for emerging
mental health status of the child is discussed, challenges, especially with peers and pubertal
and education is provided to the family includ- development.
ing information about the unknown develop- All clinic patients meet with the pediatric
mental trajectory of GD. At this time, a psy- psychologist before beginning medical inter-
406 COUSINO, DAVIS, NG, AND STANCIN

vention, such as pubertal suppression or cross- broad-based and gender-specific assessment


gender hormone therapy. Follow-up sessions measures with parents, the child, and teachers;
are conducted throughout the course of medical and provided feedback and education.
treatment to assess the need for additional ser- Alex presented with mild anxiety and a mild
vices. For example, referrals to child and ado- reading disorder. Alex and his parents reported
lescent psychiatrists are made when the child that he was well liked at school by other stu-
and family are likely to benefit from a psycho- dents and adults. Alex was male appearing in
pharmacological consult. The pediatric psychol- dress, grooming, and mannerisms. Initially ret-
ogist works closely with psychiatry in these icent to talk about gender issues, Alex had little
instances to provide the combination psycho- difficulty talking about family, friends, and
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

therapy services. In addition, parents are regu- school. During the interview, Alex said “I want
This document is copyrighted by the American Psychological Association or one of its allied publishers.

larly referred to a parent/family support group to be a boy” and added “I feel like I am a boy,
facilitated by a collaborating social worker. To not a girl and I always have.” Later, Alex added
date, 6 clinic patients are followed regularly by “I don’t like the way I am growing” and rated
pediatric psychology for ongoing treatment and how badly he felt about having breasts devel-
14 patients have been seen on a consultative- oping as a “10” on a 1–10 scale. Alex expressed
only basis by the psychologist. To illustrate the interest in “getting the shots so they stop grow-
various roles of pediatric psychology in the ing.”
multidisciplinary KIDz Pride Clinic, a case vi- Alex was then evaluated by the team endo-
gnette is presented. crinologist, who reviewed the medical history,
conducted a physical exam, and obtained a bone
Case Vignette age X ray and baseline hormone laboratory lev-
els. Alex was assessed to be in Tanner II stage
“Alex” of development and considered to be a candi-
date for pubertal suppression. After team com-
Although cases vary considerably in presen- munication, Alex was diagnosed with GD by
tation, consider the following child1 who serves the pediatric psychologist and a follow-up
as an example of the patients and services pro- meeting was arranged with Alex’ parents and
vided in KIDz Pride Clinic. “Alex” is a biologic the team. Information about known outcomes of
female (i.e., FTM) who was described by par- gender-variant children was shared with his par-
ents as showing distress at an early age when in ents including the very real possibility that Alex
a dress. As a very young child, Alex preferred to would not persist with a desire to alter physical
play with cars, balls, and male action hero toys, gender. Treatment options including pubertal
showing no interest in dolls or anything “pink.” suppression and later cross-gender hormone
Alex verbalized by age 3 “I am a boy” and treatments were discussed, along with recom-
persistently sought male friends and sports ac- mendation for ongoing mental health support
tivities. Alex refused to wear dresses or girl’s for Alex and the family. Although both parents
bathing suits and became anxious or angry
were supportive of Alex’s male gender expres-
when placed in groups or told to “line up” with
sion, initially the mother was reluctant to agree
girls. In addition, Alex refused to use the girls’
to puberty-suppressing hormone treatments, and
bathroom in public, leading to enuresis. Before
decisions about treatment were delayed for sev-
the parents seeking gender-related treatment for
eral months. However, at a return visit, both
Alex, he endorsed intermittent suicidal ideation.
parents had agreed to puberty suppression,
At age 10 years, Alex presented to the KIDz
prompted by concern that Alex was so dis-
Pride Clinic for evaluation and was first seen by
tressed about developing breast buds that he
the team pediatrician who obtained a thorough
medical and social history, conducted a physical began expressing suicidal ideation.
exam of Alex, and provided education about the Alex began pubertal suppression at age 11.
program and treatment options. The parents and The family struggled with insurance companies
child followed up on three subsequent appoint- who refused to pay for the expensive GnRH
ments with the pediatric psychologist, who con-
ducted diagnostic interviews with parents and 1
Cases are composites or have been altered so that the
child (separately and together); administered individual patient or family cannot be identified.
PEDIATRIC PSYCHOLOGY AND YOUTH GENDER DYSPHORIA 407

treatment. Now at age 13, Alex is pleased with our experiences support the notion that many
the results, but he describes his discomfort with youth view the psychologist as the “one to get
the painful injections. Mild anxiety has sub- past.” For example, a 14-year-old MTF patient
sided, and Alex’ performance in school has presented to her appointment and said, “I am
improved. He is involved in extracurricular ac- here to convince you that I am ready for cross-
tivities, including basketball and soccer, and his gender hormones.”
middle school permits him to use male rest- Moreover, there is a lack of evidence-based
rooms. Alex has persisted in his identification as research to guide and inform treatment deci-
male and in his interest in continuing the pro- sions. To date, treatment literature in this area
cess of altering his body to match his gender has many gaps and is lacking in conclusiveness
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

identity as male. Alex and family have fol- (APA, 2009; Byne et al., 2012). For example,
This document is copyrighted by the American Psychological Association or one of its allied publishers.

low-up appointments with the pediatric psy- some behavioral-based interventions, also re-
chologist every 4 – 6 months for support. The ferred to as reparative or conversion therapies,
family receives additional support from their have been used to reinforce behaviors typical of
involvement in local and nationwide Internet- the child’s biological sex (Zucker & Bradley,
based support groups for families of children 1995). Others argue that this form of interven-
indentifying as transgender or gender variant. tion could be detrimental and advocate for an
Pubertal suppression is likely to continue until approach that is supportive and strength-based
Alex turns 16, when the next difficult set of in nature and encourages family acceptance and
decisions will be made regarding the initiation affirmation of the child’s gender identity
of cross-gender hormones. He and his parents (Burnes et al., 2010; Meyer et al., 2011).
have expressed concerns that other boys his age In addition, as in the case of Alex and nearly
are beginning to display signs of pubertal all youth seen in our clinic, reimbursement is-
changes and that without cross-gender hor- sues are commonly present. Medical treatment
mones Alex may begin to lag behind, especially for GD is currently not covered under most
with sports. insurance policies and/or Medicaid. Moreover,
a diagnosis of GD made by a pediatric psychol-
Challenges Faced by the Pediatric ogist may be payable by mental health benefits,
Psychologist in Clinic but it could exclude a child from receiving
coverage for medical treatments. Some families
Even in the case of Alex, in which his family have been successful at convincing employers
was generally supportive of his desire to be to include medical coverage for GD medical
male and no significant psychiatric comorbidi- and psychological services on health benefit
ties were present, obstacles and challenges have plans, but this remains the exception rather than
presented for the pediatric psychologist. Given the rule in our experience. Thus, health-care
the nature of childhood GD and the guiding coverage for families and reimbursement for
eligibility criteria, which states that a diagnosis providers treating children with GD continues
of GD be made by a mental health professional to be an area of concern. It is interesting to note
before initiating medical intervention (Hembree that psychological services for children with
et al., 2009; Hembree, 2011), the decision to GD in our clinic have been covered more read-
treat often weighs heavily on the initial assess- ily than have some medical services. The ability
ment of the team’s pediatric psychologist. Thus, to pay out of pocket for GD services varies
it has been our experience that the pediatric considerably among families. Some of the fam-
psychologist may be seen by patients and fam- ilies seeking our services do find resources to
ilies as the “gatekeeper” to access puberty sup- cover medical expenses, but many cannot. We
pression or cross-gender hormone treatment. have encouraged parents to take steps to con-
Youth sometimes present as guarded and un- vince employers to add transgender medical
willing to discussing underlying ambivalence care to insurance plans as a covered service, and
about gender-related issues and concerns. De- some have done so successfully.
spite attempts to develop strong rapport with Practice in this area is also fraught with eth-
youth and their families, assuring them that the ical issues. The initiation of medical treatment
role of the psychologist is to assess, support, acknowledges the acceptance of informed con-
consult, and treat based on their personal needs, sent on the part of a child who is unlikely to
408 COUSINO, DAVIS, NG, AND STANCIN

fully comprehend all implications. For example, the plan and treatment and the other is ada-
GnRH agonists reverse and delay progression in mantly against treatment.
pubertal development. The child is ideally tran-
sitioned from gonadal suppression to cross- Lessons Learned
gender hormonal therapy without a break in
treatment. This means that full gonadal maturity When initiating a new service or clinic, les-
will not occur, and the possibility of future sons are learned along the way. In our case,
fertility is compromised. Hormonal suppression youth and their families began presenting to the
also means that the child has an artificially PRIDE clinic with “nowhere else to go.” The
delayed onset of puberty, which is typically a director of the PRIDE clinic, a general internist
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

source of stress for teens who are anxious to fit and pediatrician with additional training in
This document is copyrighted by the American Psychological Association or one of its allied publishers.

in with their peers. Furthermore, in our clinic, transgender health, sought to meet this need by
some patients under the age of 16 years have bringing together a pediatric multidisciplinary
presented having already been started on cross- team. However, at the time, our team psychol-
hormone therapies by other providers and re- ogist had little experience working with chil-
quest that we take over managing their care. In dren with GD. Thus, consultation with experts
some instances, diagnosis of GD was uncertain, nationwide was critically important. The pedi-
and there was no evidence of ongoing involve- atric psychologist sought guidance from psy-
ment with a qualified mental health profes- chologists and pediatricians with expertise in
sional. Some patients had unrealistic expecta- treating children and adolescents with gender-
tions for treatments or did not understand the related problems. As pediatric gender clinics
extent of medical follow-up and ongoing treat- become increasingly popular (e.g., Ann and
ments required. When families have become Robert H. Lurie Children’s Hospital of Chicago
emotionally invested in their child’s treatment, recently received national attention for their ini-
tiation of the Gender Identity Clinic), pediatric
a change in plan, even if based on safety and
psychologists will likely be called upon to pro-
drug interactions, may be unwelcome. In other
vide consultation and treatment-related ser-
cases, children stopped or had less frequent
vices. Thus, it will be important to seek out
mental health services and medical follow-up
consultation from those working in established
than recommended, but they continued with clinics and providing pediatric GD treatment
their hormone suppression. In these cases, the services. As ethical dilemmas present, consul-
team was faced with deciding whether or not to tation with hospital and/or state ethics boards is
withhold medical care until psychological sup- also highly recommended.
port was resumed, which could result in further Specifically, the following competencies are
psychological trauma if puberty progressed. If recommended by WPATH (Meyer et al., 2011):
the child and family did not see a need for (a) a Masters- or doctoral-level degree and li-
psychological services, could the medical team cense to practice in the mental health field; (b)
ethically withhold treatment? expertise in child and adolescent developmental
Other ethical challenges include parental ob- psychopathology; (c) proficiency in the assess-
jectives versus child welfare. In one instance, ment, diagnosis, and treatment of common
the team worried that a parent, who appeared childhood psychological disorders; (d) knowl-
distraught by the child’s biological sex, was edge about gender-related presenting problems
seeking medical treatment for their child with- in children, adolescents, and adults; (e) experi-
out the child expressing genuine GD. In these ence in the assessment and treatment of GD;
cases, it can be difficult to discern the child’s and (f) continuing education to continuously
actual gender-based feelings and experiences. build expertise in working with individuals with
Other ethical issues include working with GD. On the basis of our experiences, it is also
school systems because many are reluctant to strongly recommended that the pediatric psy-
support a youth’s full immersion into the de- chologist (or mental health professional) be
sired gender (i.e., using a female bathroom as a knowledgeable of the various medical interven-
biological male). Family conflict can put care tions, treatment courses, and side effects. Expe-
providers in difficult and ethically complex sit- rience in helping youth and families navigate
uations in which one parent is in agreement with difficult medical decisions is desirable. Compe-
PEDIATRIC PSYCHOLOGY AND YOUTH GENDER DYSPHORIA 409

tency in working as a member of multidisci- ical teams, lends itself well to serving the di-
plinary teams is also very important because verse and complex needs of youth with GD and
team meetings and frequent communication their families.
have been critically helpful for us as providers In addition, there is a critical need for re-
and for our patients. search in this area. Long-term follow-up stud-
Our team meets in person once monthly (at a ies, treatment satisfaction studies, and quality
minimum). Trainees may also be present in improvement studies are needed to improve the
meetings. All active cases are discussed, and development and delivery of interventions and
each team member provides updates regarding treatment for youth with GD. Specifically,
recent patient appointments. Concerns are dis- building upon the recent work of Spack and
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.

cussed among the team. For example, the psy- colleagues (2012), among others, further exam-
This document is copyrighted by the American Psychological Association or one of its allied publishers.

chologist may raise concerns with the team ination of long-term psychosocial outcomes of
about parents differing in level of support for youth with GD who undergo medical interven-
initiating medical treatments and request that tions and their families is needed. Given high
the endocrinologist and psychologist meet to- rates of bullying and negative psychological
gether with parents before any medical deci- sequelae among youth with GD, further re-
sions are made. Together, treatment plans are search is needed to identify risk and resilience
collaboratively developed and reformulated as factors among this population. We must also
needed. Recent articles and guidelines are advance our evidence base for understanding
shared among the group. All team members which children are most likely to persist with
participate in continuing education related to GD and which will not. In the 5 years since we
working with and treating children with gender- have started evaluating and treating children in
related concerns. Thus, these experiences are our clinic, every child diagnosed with GD has
also discussed during team meetings to ensure persisted in interest to alter physical features to
that all team members are aware of the latest transition as the opposite gender. This is not
research and clinical guidelines from the vari- consistent with a literature that predicts a much
ous disciplines of practice. lower rate of persistence. This may be because
Lastly, we have found that local, regional, most of our patients are approaching adoles-
and national support groups have been very cence when we first meet them. It will also be
beneficial for our families. Beyond the general critical that resources for parents, families, and
support families receive from connecting with school systems be developed and distributed to
others with similar experiences, the networks aide in generating support for gender-variant
have helped families find an initial provider or youth. Furthermore, parental stress and family
point of entry for care and learn strategies for conflict associated with youth GD is an addi-
advocating for their child. We recently initiated tional area in need of investigation.
a parent group in our setting to meet the impor- Lastly, despite the increased demand for psy-
tant need for parent support. Our patients have chologists in this area, the APA (2009) reports
also enjoyed attending special youth programs that only 27% of psychologists feel sufficiently
for gender-variant youth, such as Camp trained in LGBT issues. Of note, LGBT issues
Aranu’tiq, an overnight summer camp for trans- are different than childhood GD-related con-
gender and gender-variant children and adoles- cerns and treatment. It is likely that even fewer
cents. psychologists have training in this area. Thus, it
is important that psychology graduate school,
Future Directions internship, and fellowship programs provide
training opportunities in these areas. In our
With referrals to pediatric gender clinics on clinic, psychology trainees have opportunities
the rise, pediatric psychologists may find their to be involved in psychological interviews and
skills and services in greater demand. This is an subsequent follow-up sessions as well as to
area of emerging opportunity for pediatric psy- observe patient’s medical appointments during
chologists. Our specialized training in working which treatment options are discussed and fol-
with children undergoing medical treatments low-up medical care may be provided. Students
and procedures, in addition to our experiences have reported that these experiences have pro-
working as members of multidisciplinary med- vided excellent clinical training in multidisci-
410 COUSINO, DAVIS, NG, AND STANCIN

plinary collaboration, developmental psychol- Edwards-Leeper, L., & Spack, N. P. (2012). Psycho-
ogy, family and community systems, and logical evaluation and medical treatment of trans-
clinical practice with LGBT youth. gender youth in an interdisciplinary “gender man-
agement service”(GeMS) in a major pediatric
center. Journal of Homosexuality, 59, 321–336.
doi:10.1080/00918369.2012.653302
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