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Mission, History and Founding:

Mission Statement:

SOFT inspires hope and respects ALL on their Trisomy journey.

History and Founding:

SOFT began with Kari Deanne Holladay (1977-1988) who was born with trisomy 18 and survived longer than
predicted. Kari’s mother, Kris Holladay, and Dr. John C. Carey (Professor of Pediatrics/Medical Genetics,
University of Utah) co-founded SOFT in 1980. Dr. Carey, medical advisor for SOFT, suggested that SOFT
include both trisomy 18 and trisomy 13 families as the life span and issues of care are similar in both disorders.
SOFT members also include many families having children with related disorders. Kris has written SOFT
Beginnings which explains how SOFT was created and became the organization it is today. Kris also continues
to inspire families and professionals with her stories about Kari. Read Gifts of the Heart [Holladay K., the SOFT
Times, 2012].

Hearing that their baby has a diagnosis of any chromosome condition is so difficult for parents. In trisomy 18 and
13, statistics burden families with the anxiety of probable loss, the uncertainty of a tomorrow for those who do
survive, and the sad news of mental and physical disability. Accurate and current information about these
disorders and the survivors (newborn and long-term) is important for decision making, but unfortunately is not
always made available to these parents. With over three decades of helping families, SOFT is uniquely able to
educate parents and professionals about long-term survivors and the issues of care and coping.

SOFT holds annual conferences in different cities around the country. The 2012 conference was in St. Louis, MO
and the 2013 conference will be in Providence, RI. A list of prior conferences, and the cities in which they were
held, can be found here.
Logo Usage:

Branding: How the Logo Can Be Used:

Nonprofits and companies using the SOFT branding are encouraged to use the SOFT logo on their websites, The full SOFT logo can be used. Pieces of the logo can be pulled out, for different looks. The rainbow and
brochures, packaging, and elsewhere. You may not use the logo or its likeness as a company logo or for any balloons can be tweaked to fit different letters.
other commercial purpose without permission from SOFT. User groups may use the logo in their materials, as
long as they don’t make any profit from it and comply with usage guidelines.


The logo size will change, depending on how it’s used. Gauge the spacing around the SOFT logo by using the
balloons in the “O”.

soft soft
How the Logo Shouldn’t Be Used:

Don’t Switch or Change the Colors of the Logo:
Don’t Stretch the Word SOFT:

soft soft

Blue Red Yellow White

Pantone: Pantone: Pantone: CMYK:
Pantone Reflex Blue U Pantone 187 U Pantone 116 U C: 0 | M: 0 | Y: 0 | K: 0


C: 91.53 | M: 83.04 | Y: 2.4 | K: 0 C: 24.99 | M: 78.53 | Y: 56.46 | K: 8.46 C: 0 | M: 34.19 | Y: 95.47 | K: 0 R: 255 | G: 255 | B: 255

RGB: RGB: RGB: Websafe:

R: 54 | G: 73 | B: 155 R: 177 | G: 82 | B: 90 R: 255 | G: 182 | B: 7 R: B1 | G: 52 | B: 5A

Websafe: Websafe: Websafe:

R: 36 | G: 49 | B: 9B R: B1 | G: 52 | B: 5A R: FF | G: B6 | B: 07
Font: Teaser:

Insignia Roman
For Questions About SOFT’s Brand:

Visit, and fill out their contact form.

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