Integrated resources for everyone with cancer

Patient Navigation Services™ in Illinois Annual Report 2010

Patient centers statewide

77

Patients and caregivers served in 2010

31,200

Average yearly growth in number of people served since 2004

20%

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onsider the courage it takes

just to show up for another round of chemotherapy – to bear up with dignity through the fears and physical challenges of a treatment regimen – every morning, every night.

Is there anything in life more inspiring than one who is willing to fight so hard for it? Or more worthy of our total support?

Thanks to your partnership, no one facing cancer in Illinois has to fight alone.

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even years ago we envisioned a “circle of care” that would embrace every individual touched by cancer in our state, delivering crucial resources for patients, caregivers and families.

With the steadfast support of medical partners and leading donors like you, we have worked to transform this vision into reality. Today our Patient Navigation ServicesTM network offers caring, effective services for anyone touched by cancer in Illinois. In 2010, we continued to deliver integrated, hands-on services for tens of thousands, with special emphasis on the uninsured and medically underserved. Strong partnerships with hospitals, cancer clinics and media partners statewide helped us reach a greater share of newly diagnosed patients with timely, personalized services. We are gratified to witness all we have achieved since our program’s founding – yet we know there is much more to be done.

122,000
patients and caregivers have been assisted since 2004. Nearly

In the past 12 months alone, an estimated 65,200 people living in Illinois have heard the devastating words, “You have cancer.” Please join us as we recommit ourselves to the vital work of offering them the best possible chance to get well.

2/3
of uninsured and Medicaid patients with cancer in Illinois received free resources through our program in 2010.
Katherine L. Griem, MD, FACR President Mary E. Pierce, SPHR Chair of the Board Steven M. Derks Chief Executive Officer

Comprehensive resources for those with cancer
Our patient service program follows these principles:
Timeliness Working closely with medical caregivers, we seek to reach patients immediately after diagnosis in order to give them the best possible chance to get well. Patient focus We begin by listening and identifying the unique needs of each patient and caregiver. We then respond with carefully chosen resources to reduce stress and remove barriers to quality treatment. Partnership We foster close relationships with medical professionals to deliver effective services. Society staff members work as a team to ensure access to resources for all patients, regardless of where they live. Ease of access In addition to our Web site and our 24/7 cancer information call center, we have resource centers conveniently located inside the hospitals and clinics where Illinois patients receive their medical care. This comprehensive approach ensures that patients and caregivers can find help anytime, day or night.

What we provide:
Reliable cancer information
• Clear, accurate answers for questions about cancer • Helpful explanations that overcome language and literacy barriers • Clinical trials matching service

Day-to-day help
• Transportation to and from treatment appointments • Lodging assistance for those needing treatment far from home • Links to financial resources for patients in need • Prescription program to provide pain and nausea medications for those who cannot afford them • Free wigs, hats and temporary prostheses

Emotional support
• Outreach programs pairing patients with survivors of the same diagnosis • Classes helping patients restore appearance and self-confidence following treatment • Case management and psychosocial counseling for patients and caregivers

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Service highlights for 2010
0

72,000
Total number of requests for information and resources

61,000
Rides to and from treatment provided for patients in need

3,000
Patients who received free wigs, hats, scarves and temporary prostheses

2,600
Patients who attended free classes to help restore their appearance and self-esteem following cancer treatment

$800,000
Direct assistance to patients to reduce barriers to effective treatment

6,000
Patients who received in-depth case management services through Society social workers

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Difference makers 2010
Helping us reach every new patient, every day
Roger Crawford Director, Radiation Oncology, OSF St. Francis Hospital, Peoria “Cancer patients don’t do well when they face extra burdens. I’ve seen the difference a free ride or a caring, personal conversation can make. So we refer 100% of our new patients to the American Cancer Society on the first day they come in. We value the Society’s role in helping our patients feel confident and engaged in their own healing.”

A new resource center opens in Chicago
Stephanie Logan Cancer Survivor and Volunteer, Chicago “I was honored to speak at the opening of the new patient center at the University of Illinois Cancer Center. When I first heard the words ‘you have breast cancer’ in 2009, I had no idea how I could fight my disease and still provide for myself and my son. Diane, my Society navigator, made me feel she would move heaven and earth to find the resources I needed. Now I am cancer-free … and I am thankful to the Christopher Family Foundation for the generous gift that has helped this invaluable program grow at UIC.”

Survivor-caregiver team eases the journey for others
Paul and Shirley Killinger Patient Support Volunteers, Peoria “We work as support volunteers at St. Francis Hospital and Methodist Hospital,” Paul explains. “We introduce ourselves to patients, who are often there with their caregivers, and ask them to share their stories with us.” Compassionate listening, a warm hug and the encouragement of those who have walked the same road can make a real difference, Shirley says. “We find ways to offer Society services that we know will be helpful. We hope other survivor-caregiver couples will consider volunteering … Paul and I find it a rewarding way to share what we’ve learned with others.”

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Meet some of the medical partners, volunteers and supporters
who strengthened our program statewide.
Expanding our program’s effectiveness
K. Thomas Robbins, MD Director, Simmons Cancer Center at Southern Illinois University, Springfield “As clinicians, we focus on delivering the best possible treatment for our patients, yet we know they have needs that go beyond medical care. This is where our Society navigator makes a critical difference. She works closely with our 13 oncology teams to deliver services in a seamless, coordinated way. We are so convinced of the value of Patient Navigation Services that we have made a significant grant to support the program’s expansion at SIU.”

State-of-the-art software boosts call center efficiency
Kim Hammonds Chief Information Officer, The Boeing Company, Chicago “Boeing is an enthusiastic partner in the American Cancer Society’s patient support efforts. Our information technology team has provided software programs to enhance operations at the Society’s patient call center in Chicago. It is our hope that the program will help navigators track hundreds of service requests and dispatch resources in the most efficient way for the benefit of patients.”

Creative partnership links patients with our services
Luke Eimerman Manager, Secure Start Program, Hollister, Inc., Libertyville “As a manufacturer of ostomy products, we provide call-in support for our customers. When we learn that a customer has undergone cancer surgery, we actively share information about Patient Navigation Services. This is just one of the ways we’re spreading the word about your valuable services among our customers and employees.”

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Through the eyes of patients and caregivers
New home, new hope
Cancer had uprooted the life of a Rockford area woman who came to the Society in search of support. While battling her illness, she had lost her job and was living with her daughter while struggling to care for her own aging mother. A Society navigator made a timely referral that helped her find a new apartment. The navigator also fitted her with an attractive new wig and enrolled her in a Look Good…Feel Better® session. Volunteers provided free rides to treatment, reducing the pressures felt by her daughter, who served as her sole caregiver. “Thank you for providing so many helpful services for me and my family,” the patient said.

“I was so glad to learn I could call the Society’s ‘800’ number anytime. They are there to help with any problem relating to my dad’s cancer, or just when I need someone to talk to.”
– Caregiver, central Illinois Finding financial solutions
A central Illinois man came to the Society carrying a sheaf of medical bills and insurance statements, which he was struggling to organize. Five-day-a-week cancer treatments had made it impossible for him to work. His employer had recently changed hands, and as a result, the disability benefits he had counted on were no longer available. A Society navigator helped him sort through the papers and identify ways to manage his expenses. She helped him apply for grants that would provide income during treatment. “You have no idea how much you’ve helped me … not only with my bills but in coping with my diagnosis. I am forever grateful,” the patient said.

“My volunteer driver was wonderful. I consider him a friend for life.”
– Patient, southwestern Illinois

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Every day, we receive heartfelt notes, calls and e-mails
from people touched by our program. Here are the words and stories of some we helped in 2010.
Easing a survivor’s pain
Following surgery and chemotherapy for Stage 4 breast cancer, a Chicago area woman continued to suffer chronic pain. Doctors prescribed a drug that gave her substantial relief. In 2010 she learned her Medicaid benefits would no longer cover her prescription. A Society navigator arranged a special grant to pay for the needed medication and arranged for an immediate refill through a pharmacy near her home.

From patients to volunteers: survivors pay it forward
A central Illinois man fighting Stage 4 cancer felt called to help others. He joined our Road to Recovery® program as an active volunteer, recruiting other drivers and promoting Patient Navigation Services in conversations with local media, church and retiree groups. Though cancer eventually claimed his life, his good work continues through the many new volunteers he brought to the Society, who provide rides for patients and, as their friend did, seek to engage even more patient volunteers to keep the momentum going.

“Thank you for listening to me cry. So many people told me I would be OK, but with cancer, no one really knows for sure. You gave me the emotional space I needed at a difficult time.”
– Patient, northern Illinois Embracing life
A DuPage County man had just finished treatment for esophageal cancer. Doctors had declared him cancer-free, but he continued to worry about his health. He called his Society navigator for perspective. She sent him her favorite book on survivorship and offered support groups – but mostly, she says, “what he needed was someone to listen. By the end of our conversation he told me, ‘I feel better already.’ ”

“Even though it hurts so much to realize my cancer has spread, I am glad I found someone I could really talk to. I am determined to fight and I believe I can win.”
– Patient, Chicago

200+
Illinois volunteers work every day with Society staff to help patients and caregivers.

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A statewide resource for everyone with cancer
77 convenient locations in Illinois

Rockford

Chicago

Rock Island Moline Peoria

Champaign Springfield

Right where patients and caregivers need us most
The distribution of Patient Navigation Services in Illinois follows population patterns and the incidence of cancer cases across the state.

Maryville

Our Comprehensive Navigation Centers are located at major medical centers and are staffed full-time by licensed social workers or registered nurses. Our Patient Resource Centers are located at hospitals and cancer clinics and staffed part-time by Societytrained patient service specialists and volunteers. Our American Cancer Society Regional Offices serve as resource centers and wig banks to meet patient and caregiver needs in Illinois communities.

Marion

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Comprehensive Navigation Centers Illinois CancerCare, Peoria
John H. Stroger, Jr. Hospital of Cook County, Chicago Loyola University Medical Center, Maywood Northwestern Memorial Hospital, Chicago Rush University Cancer Institute, Chicago Simmons Cancer Institute at Southern Illinois University, Springfield University of Chicago Medical Center, Chicago University of Illinois Medical Center at Chicago, Chicago

Patient Resource Centers
Adventist Hinsdale Hospital, Hinsdale* Adventist La Grange Memorial Hospital, La Grange Advocate Christ Medical Center, Oak Lawn Advocate Condell Medical Center, Libertyville Advocate Good Samaritan Hospital, Downers Grove Advocate Illinois Masonic Medical Center, Chicago Advocate Lutheran General Hospital, Park Ridge* Alexian Brothers Medical Center, Elk Grove Village* Alton Memorial Hospital, Alton Anderson Hospital, Maryville Blessing Cancer Center, Quincy Cancer Care & Hematology Specialists of Chicagoland, Arlington Heights* Cancer Care & Hematology Specialists of Chicagoland, Winfield CDH Delnor Hospital, Geneva* Center for Comprehensive Cancer Care, Mount Vernon DuPage Medical Group, Naperville* Edgar County Health Department, Paris Edward Cancer Center, Naperville Edward Hines, Jr. VA Hospital, Hines* Edward Hospital, Naperville* Elmhurst Memorial Center for Health, Elmhurst Evanston Hospital, Evanston Glenbrook Hospital, Glenview Gottlieb Memorial Hospital, Melrose Park Hematology-Oncology Associates of Illinois, Berwyn Hematology-Oncology Care Center of the Quad Cities, Moline Highland Park Hospital, Highland Park* Illinois CancerCare, Macomb

Illinois CancerCare, Pekin Iroquois Memorial Hospital, Watseka Kishwaukee Community Hospital, DeKalb* Lake Forest Hospital, Lake Forest Little Company of Mary Hospital, Evergreen Park Medical & Surgical Specialists, Galesburg Medical Arts Associates, Ltd., Moline Memorial Medical Center, Springfield Mercy Hospital & Medical Center, Chicago Methodist Medical Center of Illinois, Peoria* Mid Illinois Hematology & Oncology Associates, Pontiac OSF Saint Anthony Medical Center, Rockford OSF Saint Francis Medical Center, Peoria OSF Saint Joseph Medical Center, Bloomington-Normal Perry Memorial Hospital, Princeton* Provena Saint Joseph Hospital, Elgin* Resurrection Center for Cancer Care, River Forest Rockford Memorial Hospital, Rockford* Rush-Copley Medical Center, Aurora* Saint Alexius Medical Center, Hoffman Estates SwedishAmerican Medical Group, Rockford Swedish Covenant Hospital, Chicago Trinity Cancer Center, Moline Vista Medical Center, Waukegan Weiss Memorial Hospital, Chicago West Suburban Medical Center, Oak Park

American Cancer Society Regional Offices
Chicago Regional Office DuPage Regional Office, Oak Brook Terrace Eastern Regional Office, Champaign Fox Valley Regional Office, Batavia Lake County Regional Office, Lincolnshire Metro East Regional Office, Maryville North Shore Regional Office, Evanston Northern Regional Office, Rockford Northwest Regional Office, Rock Island Northwest Suburban Regional Office, Arlington Heights Prairie Land Regional Office, Tinley Park Southern Regional Office, Marion West Central Regional Office, Peoria West Cook Regional Office, Riverside Western Regional Office, Springfield *New in 2010
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Campaign of Hope fuels program growth
aunched in 2006 with a visionary matching grant from The Duchossois Family Foundation, the Campaign of Hope sought to gather critical support for Patient Navigation Services. The campaign gained even greater momentum when the Coleman Foundation pledged matching funds for all gifts received in rural areas of

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Illinois, encouraging support for a wider network of care in all communities. These matching gifts meant that campaign supporters could double and even triple the value of their donations, moving us closer to our goal. In December 2009, a generous gift from the John and Editha Kapoor Charitable Foundation carried the campaign to its successful conclusion.

The American Cancer Society extends its sincere gratitude to the many leadership donors whose gifts have helped build the strongest cancer support network of its kind in the nation.
With the continued support of our donors throughout the state, we will reach an even greater share of those who urgently need our help.

Coleman Foundation

The Duchossois Family Foundation

John Kapoor, PhD

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Noble Laureate ($1,000,000+)
The Duchossois Family Foundation

Maureen Beal Anna and Greg Brown Debra and Ira Cohen Andrew Dick Barry Eccleston Richard Fitzgerrell Hospira Inc. Irene L. Eagleston Foundation James McWethy Foundation Murray Johnson Max Goldenberg Foundation Sue McWilliams National Van Lines Inc. Edward Schreck Phyllis Trostrud United Airlines Corporate Giving Program Wendy Larks Foundation Westlake Health Foundation Anonymous (1)

Cecile Gagan Gary Garrabrant Mark MacDonald H&M Machining Inc. John Hauser Health Care Service Corporation Hussey Foundation Lavin Family Foundation Ronald Limbrick Lorelei Foundation Luster Products Black Heritage Foundation Dora McDonald Peter McDonald Richard Owens Paine Family Foundation Linda Pavel Peggy Klein Trust Pfizer Inc. Rags for Riches Foundation Red Lodge Foundation Katherine Sawyer Scheck Family John Seffrin Frank Shisler Sanford Shkolnick Seattle Sutton John Tague Takeda Pharmaceuticals North America Inc. The Hartford The Illini 4000 for Cancer Jacqueline and Glenn Tilton Uline Inc. Uplift Inc. Anonymous (1)

Leadership Laureate ($500,000 - $999,999)
AstraZeneca Pharmaceutical Company Anonymous (1)

Distinguished Laureate ($100,000 - $249,999)
Advocate Lutheran General Hospital Coleman Foundation Community Memorial Foundation John and Editha Kapoor Charitable Foundation Judith and Robert Sack

Grand Laureate ($50,000 - $99,999)
A.G. Cox Charity Trust Austin E. Stoll Foundation Annette Bacola and Robert Cummings Mary Jo and John Boler Bowman C. Lingle Trust Crown Family Philanthropies Laura and Steven Derks Natel and Nick Gouletas Grant Healthcare Foundation Healthcare Foundation of Northern Lake County Stuart Townsend Washington Square Health Foundation

Laureate ($10,000 - $24,999)
Richard Almeida Anne and Mead Montgomery Family Foundation Susan and Ermilo Barrera Andrew Berlin Nathan Brown Cardinal Health Inc. Central DuPage Hospital Robert Clarke Deloitte & Touche LLP Demetrick Coleman E. Thomas Collins Concord Asset Management Byron Deneberg Mark Faber Zachary Fortsch Frederica Herriman Pederson Trust

Honorable Laureate ($25,000 - $49,999)
A.E. Staley Foundation Alfred Bersted Foundation Barnes Foundation

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Sustaining Donors ($5,000 - $9,999)
Amateur Bowlers Tour Keith Bank Howard Bernick Kevin Buggy Circle of Hope Bracelets Citigroup Thomas Cole Community Foundation of Central Illinois Heidi Dalenberg Dellora A. and Lester J. Norris Foundation Delta Tau Delta Jennifer Downey Dayle Duchossois-Fortino Evelyn C. Carter Foundation Rita and Brian Forden Gerhard and Patricia Weiler Family Foundation Dennis Greenspan William Hartsell Kazma Family Foundation Thomas Liebman Gerry Lopez Barbara Luce-Turner Thomas Marano Don Morrissey Nexstar Broadcasting Inc. Gregory Pacelli Ronald Paul Pomeroy IT Solutions Punch Grafix Americas Inc. Suzannah Ragen Roman Cultural Society of Central Illinois Jasper Sanfilippo Schneider Electric Smith Barney

Bob Stanojev UPS Foundation Inc. Matching Grant Jeff Vilker Karen Virnoche-Brown David Vitale Greg Ward Lisa Weier Wohlers Family Foundations

Glenn Lefkowitz Edward Liddy Edward Lorgeree Ruth Lucera Jean Maddrell Alan McNally Brian Meister Miners Charity Heidi and Jim Mitchell Mary Molo Morgan Stanley Smith Barney Global Impact Fund Linda and Dennis Myers Susan Noyes Martin Ozinga David Peterschmidt Prior Family Trust Stuart Reed Allegra Rich Rockford Health System Timothy Romenesko Ronald McDonald House Charities Rotary Club of Carol Stream Linda Saulnier Schwab Fund for Charitable Giving Maria and Bill Smithburg Barry Stoughton TAP Pharmaceutical Products Inc. Jeff Taylor The Pampered Chef Richard Townzen Weiler Family Foundation Ellen and Boniface Wittenbrink John Yanney

Donors ($2,500 - $4,999)
Ashley Furniture Anjan Asthana Aurora Employee Club Cheryl Beebe Terry Belian Lori Bonelli James Borders Manny Brown Donald Byus Charles Foundation James Claxton Greg Cook Carl Demasi Mike Flannery June and Fred Gold Greater Springfield Chamber of Commerce Heart of Experian Foundation Phoebe Helm James Hofmockel Hometown Huddle John W. and Barbara A. Dant Charitable Fund Inc. Timothy Keating John Klacking Knights of Columbus No. 11091 Doug Kreuzkamp Lancaster Family Foundation Steven Lanzer

An additional 1,974 donors have each invested up to $2,499 toward our patient services program.

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Actively growing in 2011 and beyond

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s we move toward 2015, we want to be the first resource people reach for after they hear the words, “You have cancer.” Our goal in the year ahead is to serve 33,000 new patients and caregivers, including a larger share of those fighting cancer without insurance or sufficient financial resources.

n We will work to expand enrollment in clinical trials by providing information and hands-on support for patients considering this form of cancer care. n We will work closely with medical caregivers to create a uniform method for assessing the non-medical needs of newly diagnosed patients as recommended by the American College of Surgeons.

n We will make continuous improvements to our program by gathering critical data and measuring the effectiveness of our outreach efforts. n We will address the needs of cancer survivors by linking them with resources to help them stay well and enjoy the best possible quality of life.

Patient Navigation Services™ Having cancer is hard. Finding help isn’t.
For free patient or caregiver resources anytime:
1.800.227.2345 IllinoisCancerHelp.org

For health professionals seeking more information:
Cathy Galligan Director, Health Initiatives Illinois Division, Inc. 1.312.279.7364

To make a gift:
Fred Greenberg Director, Major Gifts Illinois Division, Inc. 1.312.279.7203

cancer .org IllinoisCancerHelp.org

1.800.227.2345

Illinois Division, Inc. @2011 American Cancer Society, Inc.

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