22nd Annual

Chronic Illness and Disability Conference:

Transition from Pediatric to Adult-Based Care

VIRTUAL CONFERENCE
October 28-29, 2021

Co-provided by:
 PLANNING COMMITTEE
Albert C. Hergenroeder, MD – Activity Director

Cecily L. Betz, PhD, RN, FAAN Peggy McManus, MHS

Jackie Czyzia, MPH Diane Murrell, LMSW
Amanda Garey, MSN, RNC-OB, C-EFM Diane Scardino, MBA, MHA, FACHE
Scott Garner, MBA Shelley Townsend, MSW
Ivy Goldstein Sherry Vinson, MD
Albert C. Hergenroeder, MD Laura Warren
Elaine Hime Chava White, LMSW-AP
Siripoom McKay, MD Audrey Young, MPH

ACTIVITY FACULTY
All faculty are located in Houston, Texas, unless otherwise noted.

Chadi Calarge, MD Catherine Gordon, MD, MS

Professor of Psychiatry, Chair, Department of Pediatrics,
Baylor College of Medicine Baylor College of Medicine
Deena Chisolm, PhD Andy Hardwick
Director, Center for Child Health Equity and Public Affairs Specialist,
Outcomes Research, Abigail Wexner Research Institute, Social Security Administration, Area III
Nationwide Children’s Hospital
Colleen Horton, MPAff
Associate Professor of Pediatrics, Ohio State University Director of Policy, Hogg Foundation for Mental Health,
College of Medicine and Public Health The University of Texas at Austin,
Columbus, Ohio Division of Diversity and Community Engagement
Mary Ciccarelli, MD Austin, Texas
Professor of Clinical Medicine and Pediatrics, Peggy McManus, MHS
University of Indiana School of Medicine, Co-Project Director, Got Transition
Indianapolis, Indiana Washington, DC
Kristin Cleverly, RN, PhD Beth Sufian, JD
CAMH Chair, Mental Health Nursing Partner, Sufian & Passamano
Assistant Professor, University of Toronto
Toronto, Ontario Tiphanie Vogel, MD, PhD
Assistant Professor, Section of Rheumatology,
Mark Del Monte, JD Rheumatology Transition Program,
CEO, American Academy of Pediatrics Baylor College of Medicine
Washington, DC
Karen Weigle, PhD
Susan Fernbach, RN, BSN Licensed Psychologist
Assistant Professor, Department Molecular
Associate Director, The Center for START Services
and Human Genetics,
at the University of New Hampshire Institute
Baylor College of Medicine
on Disability
Beth Garland, PhD Concord, New Hampshire
Associate Professor of Pediatrics,
Brynne Willis, M.Sc.
Section of Adolescent Medicine and Sports Medicine,
Research Assistant, JD/MBA Candidate,
Baylor College of Medicine, Department of Pediatrics
Case Western Reserve University School of Law
Cleveland, Ohio
NEEDS STATEMENT
Skill preparation and planning for healthcare transition for children and youth with special healthcare needs is inadequate.
Less than fifty percent of families nationwide indicate that their children with special healthcare needs have received the
services necessary to make appropriate transitions to adult healthcare, work, and independence. One of the major hurdles to
receiving this care is the lack of a workforce, including physicians, nurses, social workers, mental health providers and all who
provide services to youth and young adults with special healthcare needs trained to provide the services necessary to make the
healthcare transition. There is a strong need for physicians to have the knowledge and skills to provide the services needed to
facilitate a successful transition from pediatric to adult-based care and services.
Because of increased awareness of transitioning to adult-based care, clinicians are required to update their knowledge of the
changing strategies for integrating emerging adult-based care into practice.
For all conference participants, there will be a discussion of the legal issues involved in healthcare transition, as well as time
to meet and talk with faculty in small groups, to exchange ideas among participants, and to share knowledge and information
about how best to plan for a successful transition to adulthood.

TARGET AUDIENCE
Physicians in internal medicine, family practice, pediatrics, psychiatry, and physiatry; other healthcare providers including
psychologists, social workers, nurses, dietitians, case managers, counselors, and primary care providers; and youth and young
adults who have a chronic illness or disability and their parents or guardians.

LEARNING OBJECTIVES
At the conclusion of the conference, participants should be able to:
• Describe the legal and ethical issues involved in HCT for adolescents and young adults with special health care needs.
• Discuss payment challenges and options for HCT services.
• Implement advances in HCT services for adolescents and young adults with psychiatric illness.
• Outline an example of the structure, processes, evaluation and outcomes of a sub-specialty transition program based
in a large children’s hospital.

EDUCATIONAL METHODS
Lectures • Small Group Breakout Sessions • Question and Answer Sessions • Audience Response System • Role Play

ACTIVITY EVALUATION
Evaluation by questionnaire will address program content, presentation, and possible bias.

ACCREDITATION/CREDIT DESIGNATION
Physicians
Baylor College of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide
continuing medical education for physicians.
Baylor College of Medicine designates this live activity for a maximum of 12.50 AMA PRA Category 1 Credits™. Physicians
should claim only the credit commensurate with the extent of their participation in the activity.
The presentation, Legal Issues in the Transition from Pediatric to Adult-Based Care, has been designated by Baylor
College of Medicine for 1.0 credit of education in medical ethics and/or professional responsibility.

Social Work
Texas Children’s Hospital is an approved continuing education provider for Social Workers through the Texas State Board
of Social Worker Examiners. Social work continuing education units provided, 12.50 hours of continuing education including
0.75 hour of ethics.
Nursing
Texas Children’s Hospital is accredited with distinction as a provider of nursing continuing professional development by the
American Nurses Credentialing Center’s Commission on Accreditation. This continuing nursing education activity awards up
to 12.50 contact hours.
This nursing continuing professional development activity awards up to 12.50 contact hours.
This includes 1.0 out of the 2.0 contact hours required for Nursing Jurisprudence and Ethics Continuing Nursing
Education Requirement.

Occupational Therapy and Physical Therapy

This activity has been approved by the Texas Board of Physical Therapy Examiners for 12.50 CCUs for PTs and PTAs.
Continuing Competency Units (CCU) have been applied for this conference through Texas Occupational Therapy Association
(TOTA) 12.50 hours credit. Texas Children’s Hospital is an Approved Provider for the Texas Occupational Therapy
Association. The assignment of TOTA CE hours does not imply endorsement of a specific course, content, products, or
clinical procedures by TOTA.

FEE, REGISTRATION AND CONFIRMATION INFORMATION

Refer to the online registration form at cpd.education.bcm.edu/chronic2021 for the fee schedule. Your registration will
not be processed until payment is received. Your registration will be confirmed. If you have not received confirmation at
least 5 business days before the activity start date, contact the Baylor College of Medicine (BCM) Division of Continuing
Professional Development (DCPD) immediately.
A limited number of scholarships are available for adolescents and young adults with special health care needs and their
parents or guardians. For complete details, please contact Lauren Warren at laura@txp2p.org.
The DCPD reserves the right to limit the number of participants in an activity and will not be responsible for any expenses
incurred by an individual whose registration is not confirmed and for whom space is not available.
To register/pay for the conference, visit our website at cpd.education.bcm.edu/chronic2021.

CANCELLATION/REFUND POLICY
Requests for registration refunds must be in writing and received by the DCPD at least 10 business days before the activity
begins. The date the request is received by the DCPD will be considered the cancellation date. Requests received after the
refund deadline will not be processed. Cancellations are subject to a $50 administrative fee to be deducted from the paid
registration fee to cover guarantees and other expenses. Requests should be emailed to cpd@bcm.edu.
The DCPD reserves the right to cancel activities, not less than 10 business days before the scheduled date, if extenuating
circumstances make it necessary. Registrants will be notified at the contact number indicated on the registration form and
again in writing. If an activity is cancelled, the DCPD’s liability is limited to the paid registration fee. Note: If the registration
payment was made by check, a Social Security number is required to process the refund.
 22nd Annual Chronic Illness and Disability Conference:
Transition from Pediatric to Adult-Based Care

AG E N DA 10:00 Advocacy for Adolescent Access to Care

Mark Del Monte, JD
THURSDAY, OCTOBER 28, 2021 CEO, American Academy of Pediatrics
Goal: (TBD)   
7:50 a.m. Waiting Room (Zoom)
Objective: (TBD)
8:00 Welcome and Announcements
10:45 Break
Albert C. Hergenroeder, MD
11:00 Legal Issues in the Transition From Pediatric to
8:10 Introduction and Welcome
Adult-Based Care
Catherine Gordon, MD
Beth Sufian, JD
Chair, Department of Pediatrics, Baylor College of Medicine
Partner, Sufian & Passamano
8:15 Inspirational Video Goal: The audience will be able to understand guardianship
and supportive decision making; and, practical methods of
8:25 Houston City Council Proclamation ensuring legally mandated insurance coverage during the
David Robinson, Houston City Council health care transition.
Stephen Williams, Director, Houston Health Department Objective: The audience will be able to discuss health care
transition in the context of the current health care landscape.
8:35 The State of Health Care Transition (HCT) • Guardianship/supportive decision making/power
in 2021 of attorney.
Mary Ciccarelli, MD • Health insurance and supplemental security income (SSI)
University of Indiana School of Medicine non-medical eligibility.
Goal: The audience will understand the state of health care
11:50 Q&A
transition in 2021.
Objectives: The audience will:
Noon Lunch
• Appreciate the advances that have been made in the field
pertaining to health care transition science and practice.
12:15 Meet-the-Faculty Lunch
• Gain awareness of the successful strategies that have
• Karen Weigle, PhD
contributed to the development of health care transition
• Mary Ciccarelli, MD
science and practice.
• Beth Sufian, JD
• Understand the future challenges that confront the
• Susan Fernbach, RN, BSN (family speaker)
widespread implementation of health care transition
• Got Transition
service models.
• Recognize the unique features of health care transition
1:00 Conclusion of lunch sessions
field of science and practice and its potential for effecting
improved outcomes for adolescents and emerging adults
with Special Healthcare Needs (SHCN) and disabilities.
(Continued)
9:20 Paying for Transition
Peggy McManus, MHS
Got Transition
Goal: The audience will understand the importance of
current payment options for HCT services.
Objectives: The audience will be able to describe:
• Current fee-for-service and value-based payment
strategies that can be used to support HCT.
• Quality performance options to align with payment.
• Applying payment and quality innovations to support
a successful transfer of care.
1:20 BREAKOUT SESSIONS I, WITH FACULTY
Attendees, please choose from one of the following
six sessions:
IDD, Trauma, and Mental Health: 
Addressing the Mental Health and Wellness of
Adolescents and Young Adults with IDD
Colleen Horton, MPAff
Director of Policy, Hogg Foundation for Mental Health
The University of Texas at Austin, Division of Diversity and
Community Engagement
Goal: To increase our capacity to support individuals with
IDD who experience mental health conditions and/or the
impact of trauma.
Objectives: The audience will be able to discuss:
• The need to recognize mental health conditions in
individuals with IDD – it’s not always about “behavior!” Deena Chisolm, PhD
• The impact of trauma and the importance of creating
trauma-informed environments.
• The barriers that exist for individuals with IDD who need
mental health treatment.
• Additional resources to further explore the mental health
of individuals with IDD.
Legal Issues
Beth Sufian, JD
Partner, Sufian & Passamano
Goal: The audience will be able to understand guardianship
and power of attorney as a teenager transitions into
adulthood.
Objectives: The audience will be able to discuss:
• The difference between guardianship and power
of attorney.
• The pros and cons of guardianship and power
of attorney from the perspective of the patient
and guardian.
• Health insurances and SSI non-medical eligibility.
Targeted Programs to Improve Transition
Outcomes for YA with Psychiatric Illness
Kristin Cleverly, RN, PhD
CAMH Chair, Mental Health Nursing
Assistant Professor, University of Toronto
Toronto, Ontario
Goal: (TBD)   
Objective: (TBD)
Social Security Insurance
Andy Hardwick
Public Affairs Specialist, Social Security Administration,
Area III
Goal: The audience will understand the importance of
successful application for supplemental security income (SSI)
and supplemental security disability insurance (SSDI) benefits
as the young adult transitions into adult-based care.   
Objective: The audience will be able to describe:
• The process of applying for these benefits.
• The timeline for preparing the application.
• Common reasons why people are turned down in
their application.
• The types of services these benefits cover.
Health Disparities and Health Care Transition
Director, Center for Child Health Equity and Outcomes
Research; Abigail Wexner Research Institute,
Nationwide Children’s Hospital; Associate Professor of
Pediatrics, Ohio State University College of Medicine and
Public Health
Goal: The audience will understand the health disparities that
exist in the transition from pediatric to adult-based care for
youth and young adults with special health care need.
Objectives: The audience will be able to discuss:
• The evidence of health disparities during the
transition period.
• Potential solutions to address these health care disparities.
Operation of the START Program
Karen Weigle, PhD
Licensed Psychologist
Associate Director, The Center for START Services (Skills,
Trauma, Anxiety, Rehabilitation, and Treatment (START),
University of New Hampshire Institute on Disability
Goal: The audience will understand an overview of the
START model’s role in systems change, crisis prevention, and
crisis intervention. 
Objectives: The audience will be able to discuss:
• Values of the START model.
• Structure of a START program.
• Outcomes so far.
2:20 p.m. BREAKOUT SESSIONS II,
WITH FACULTY
Attendees: please choose from one of the six sessions
offered from Breakout Sessions I (see previous page).
3:05 Break
3:20 Improving Mental Health Outcomes for
Individuals with Intellectual Disabilities: What Works
Karen Weigle, PhD
Licensed Psychologist
Associate Director, The Center for START Services,
University of New Hampshire Institute on Disability
Goal: The audience will understand the diagnosis and
treatment of mental health conditions in transitioning adults
with IDD.
Objective: The audience will be able to:
• Describe vulnerabilities/common issues associated with
transition from youth to adult mental health care for
people with IDD in North America and U.K.
• Describe the START model in the U.S., research
associated with the model, outcomes, and
recommendations.
• Describe a guide to promote an integrated approach to
adult mental health care available to all participants.
4:05 Q&A
4:15 Evaluation
4:20 Adjournment
AG E N DA
FRIDAY, OCTOBER 29, 2021
7:30 a.m. Waiting Room (Zoom)
8:00 Announcements
Albert C. Hergenroeder, MD
8:15 Addressing Patient Adherence with Motivational
Interviewing Maybe as a Mental Health Transition
Problem
Beth Garland, PhD
Associate Professor of Pediatrics,
Section of Adolescent Medicine and Sports Medicine,
Department of Pediatrics, Baylor College of Medicine
Goal: The audience will understand MI techniques as a way
of addressing non-adherence.
Objectives: The audience will be able to discuss:
• MI techniques they could implement in their practice.
• How MI could be used to address non-adherence in
self-management for Adolescent/Young Adult with special
health care needs (AYASHCN) in transition.
9:00 Q&A
9:10 Young Adult Perspective
Brynne Willis, M.Sc.
Research Assistant, Case Western Reserve School of Law,
Cleveland, Ohio
Goal: The audience would understand how social stigma and
chronic grief impact young adults with chronic medical illness
transitioning from adolescence to young adulthood.
Objective: The audience will be able to describe:
• How social stigma impacts mental health and behaviors in
adolescents and young adults during transition
• The process of chronic grief.
• How these dynamics are addressed by the medical
community.
9:40 Q&A
9:55 Break
(Continued)
10:05 Anxiety and Depression in the Transition –
A Clinical Perspective
Chadi Calarge, MD
Professor of Psychiatry, Baylor College of Medicine
Goal: The audience will be able to understand the clinical
course of anxiety disorders and major depressive disorder
between adolescence and young adulthood.    • Methods to improve health literacy.
Objective: The audience will be able to describe:
• Evidence-based treatments for Generalized Anxiety
Disorder (GAD) and Major Depressive Disorder (MDD)
adolescents and young adults.
• The natural history of GAD and MDD in patients
successfully treated with medication and psychotherapy.
• The interface of anxiety and depressive disorders and
other chronic medical illnesses in adolescents and
young adults.
10:50 Transition Advances in the Mental Health Field
Kristin Cleverly, PhD
Senior Scientist, Margaret and Wallace McCain Centre
for Child, Youth & Family, Mental Health Division;
Assistant Professor, Lawrence Bloomberg Faculty of Nursing
and Department of Psychiatry, University of Toronto
Goal: The audience will understand the current state of
transition from pediatric to adult-based care for adolescents
and young adults with psychiatric illness.
Objectives: The audience will be able to describe:
• The state of transition to adult-based care for youth and
young adults with psychiatric illness in the United States
(international and in U.S.)
• Models for transition, with outcome data.
• Educational and career outcomes for patients after
they transition.
11:35 Q&A
11:45 Exhibitors and lunch
1:00 p.m. Health Literacy and Transition • The outcomes
Deena Chisolm, PhD
Director, Center for Child Health Equity and
Outcomes Research; Abigail Wexner Research Institute,
Nationwide Children’s Hospital
Associate Professor of Pediatrics, Ohio State University,
College of Medicine and Public Health
Goal: The audience will be able to understand the
importance of health literacy in developing transition
readiness.
Objectives: The audience would be able to describe:
• Methods to assess health literacy.
• Relationship between health literacy and transition
readiness.
• Epidemiology of health illiteracy and its health and
economic consequences.
1:45 Q&A
1:55 Break
2:05 From Stress to Strength
Susan Fernbach, RN, BSN
Assistant Professor, Department of Molecular and
Human Genetics, Baylor College of Medicine
Goal: Provide the audience methods to improve self-care for
Caregivers of teens/young adults with IDD as they transition
to adult care.
Objective: The audience will be able to describe a program
for improving self-care for caregivers, including specific tips
gathered from one session. This session includes a brief
overview of the From Stress to Strength program model and
qualitative results from the program, as well as specific
discussion from one session of Positive Adult Development
curriculum:  “From Conflict to Collaboration.”
2:45 The Rheumatology Transition Program at Texas
Children’s Hospital: Structure, Processes and Outcomes
Tiphanie Vogel, MD, PhD
Rheumatology Transition Program, Texas Children’s Hospital
Goal: The audience will be able to understand the structure,
process and outcomes of this transition program.
Objectives: The audience will be able to describe the
following elements to this transition program and how they
have developed over several years:
• The structure
• The processes
• How data for these metrics were collected
3:30 Q&A
3:40 Closing Comments/Evaluation