AboutFace USA - AboutFace USA is a non-profit organization dedicated to providing information, emotional support, and educational programs

to individuals who have a facial disfigurement, and to their families. National Alopecia Areata Foundation - The mission of the National Alopecia Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease, and to educate the public about alopecia areata. Alpha-1 Foundation - The Alpha-1 Foundation provides leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Anititrypsin Deficiency (Alpha-1). Alpha -1 is a genetic disorder that can cause liver and lung disease in children and adults. The ALS Association - The mission of the ALS Association is to find a cure for and improve living with ALS. Alstrom Syndrome International - This mission of Alstrom Syndrome International is to provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome. Alzheimer's Association, Inc. - The mission of the Alzheimer's Association is to eliminate Alzheimer's disease through the advancement of research and to enhance quality care and support for individuals, their families and care partners. American Autoimmune Related Diseases Association - The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner. Lance Armstrong Foundation - The Lance Armstrong Foundation (LAF) believes that in the battle with cancer, knowledge is power and attitude is everything. Founded in 1997 by cancer survivor and cycling champion Lance Armstrong, the LAF provides the practical information and tools people living with cancer need to live strong. Arthritis Foundation - The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Asthma and Allergy Foundation of America - The Asthma and Allergy Foundation of America (AAFA) is the premier patient organization dedicated to improving the quality of life for people with asthma and allergies and their caregivers, through education, advocacy and research. Prevent Blindness America - Founded in 1908, Prevent Blindness America is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Network of Strength - National Breast Cancer Organization - The mission of Network of Strength National Breast Cancer Organization is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone. American Cancer Society - The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and lessening the suffering from cancer, through research, education, advocacy, and service. Chromosome Deletion Outreach, Inc. - Chromosome Deletion Outreach's mission is to provide support to parents of children born with rare chromosome disorders, gather and disseminate information and promote research and a positive community understanding of these disorders. Cleft Advocate- The mission of Cleft Advocate is to educate, inspire and empower families whose lives are touched by cleft lip and palate or other craniofacial anomalies. American Diabetes Association - The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. National Down Syndrome Society - The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy. International Mosaic Down Syndrome Association - International Mosaic Down Syndrome Association is designed to provide emotional support, information and research to those touched by mosaic Down syndrome.

information. patient support.Easter Seals has been helping individuals with disabilities and special needs. a major voluntary health organization. Inc.The National Marfan Foundation is dedicated to saving lives.With more than 200 chapters. seeks to prevent kidney and urinary tract diseases. tobacco control and environmental health. Interstitial Cystitis Association .The National Kidney Foundation. National Hemophilia Foundation . .The mission of the National Hemophilia Foundation is education. Kidney Cancer Association . and find the causes and cure. Their mission is to improve the diagnosis and treatment of lupus. Hodgkin's disease and myeloma.The American Liver Foundation (ALF) is a national. comprehensive education. support individuals and families affected by the disease. compassionate support and information to people who are experiencing infertility and to increase awareness of infertility issues through public education and advocacy. education.The Huntington's Disease Society of America (HDSA) is dedicated to finding a cure for Huntington's Disease (HD) while providing support and services for those living with HD and their families. providing emotional support.The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research. branches and support groups in 30 states. improve the health and well-being of individuals and families affected by these diseases. RESOLVE: The National Infertility Association . physicians.Founded in 1984. This Web site is provided as a free public service by the American Health Information Management Association (AHIMA). American Health Information Management . advocacy and services. Epilepsy Foundation . and other health professionals. The Leukemia & Lymphoma Society . American Lung Association . and their families.The Kidney Cancer Association is a membership organization made up of patients. researchers.Easter Seals . Lupus Foundation of America. treatment. National Eczema Association for Science and Education . Marinesco-Sjogren Syndrome . while raising public awareness of the disease. American Liver Foundation . Huntington's Disease Society of America . public awareness and. the Interstitial Cystitis Association (ICA) is a not-for-profit health organization dedicated to providing patient and physician educational information and programs. family members. The AHIMA is a national non-profit professional association dedicated to the effective management of personal health information needed to deliver quality healthcare to the public. lymphoma. The Society's mission: Cure leukemia. nonprofit organization dedicated to the prevention.The American Kidney Fund is the nation's leading voluntary health organization serving people with and at risk for kidney disease through direct financial assistance. education. . and improve the quality of life of patients and their families.. education and patient services. with special emphasis on asthma.A guide to understanding and managing your personal health information. research and advocacy on behalf of people with bleeding disorders. and resources to those who have the disease as well as their loved ones.The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences. live better lives for more than 80 years. National Marfan Foundation . and cure of hepatitis and other liver diseases through research. research funding. and community service programs. clinical research. control and cure epilepsy through research.The National Eczema Association for Science and Education (NEASE) works to improve the health and the quality of life of all persons living with atopic dermatitis/eczema.The American Lung Association fights lung disease in all its forms. most importantly. and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.The mission of RESOLVE is to provide timely.The purpose of this website is to provide information and support to families affected by Marinesco-Sjogren Syndrome and to encourage communication between doctors and researchers interested in this disorder. American Kidney Fund . the Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. and increase the availability of all organs for transplantation. and will prevent. increase awareness of lupus among health professionals and the public. Inc. and advocacy on behalf of those at risk of or affected by liver disease. National Kidney Foundation .

medical research.The Osteogenesis Imperfecta Foundation's mission is to improve the quality of life for individuals affected by OI through research to find treatments and a cure. through research. research and service. a cure. Canavan. and to find a cure. peer counseling. to promote public awareness and education through patient and health professional seminars. education.The American Tinnitus Association (ATA) is the national champion of tinnitus awareness.The International Pemphigus Foundation is a non-profit. ultimately. American Tinnitus Association . and advocacy. physician referrals.The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. Myasthenia Gravis Foundation of America.The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders. and related diseases. The organization's goals are to increase awareness of Restless Legs Syndrome (RLS).National Mental Health Association . . awareness. women. their families and friends. prevention. literature. . Through education and advocacy.The National Mental Health Association is dedicated to promoting mental health. and children who live with this often devastating disease. tax-exempt organization whose mission is to increase awareness of pemphigus/pemphigoid. to find a cure. professional education. National Sleep Foundation . Osteogenesis Imperfecta Foundation . they promote awareness and understanding. to help improve the lives of those affected by osteoporosis and related fractures. and by supporting education. public information. and. sleep-related research. as well as the public at large. treatments and cure. advocacy and patient care. and to provide information and support services to individuals and families affected by these diseases. and treatment. to provide emotional support to patients living with these diseases.The National Tay-Sachs & Allied Diseases Association (NTSAD) is dedicated to the treatment and prevention of Tay-Sachs. to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.The mission of the National Psoriasis Foundation is to improve the quality of life of people who have psoriasis and psoriatic arthritis. In addition. Inc. preventing mental disorders and achieving victory over mental illness through advocacy. National Tay-Sachs & Allied Diseases Association . ensure access to treatment and support research that will lead to effective management and. diagnoses. and mutual support. and educational information. The Sjögren's Syndrome Foundation . family members and health professionals.The Sjögren's Syndrome Foundation provides patients practical information and coping strategies that minimize the effects of Sjögren's syndrome. education. The International Pemphigus Foundation .The Restless Legs Syndrome Foundation is a nonprofit 501 (c)(3) agency that is dedicated to improving the lives of men. while serving those affected by these diseases. National Multiple Sclerosis Society .The National Osteoporosis Foundation's mission is to prevent osteoporosis. The Paget Foundation . the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren's syndrome. both among the general public and the medical community. and publicity campaigns. National Osteoporosis Foundation . to improve treatments. Spina Bifida Association of America .The Paget Foundation is a national voluntary health agency whose mission is to provide information on Paget's disease and other bone disorders and the effects of certain cancers on the skeleton to patients. and to advocate research into causes.The mission of The Myositis Association is to find a cure for inflammatory and other related myopathies. Restless Legs Syndrome Foundation . The Myositis Association . to promote lifelong bone health.The Scleroderma Foundation's mission is three-fold: To help patients and their families cope with scleroderma through mutual support programs. National Psoriasis Foundation .The Mission of the Foundation is to facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and closely related disorders and to improve their lives through programs of patient services.The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. Scleroderma Foundation .

Health Care Liability Alliance The HCLA is a group of medical organizations dedicated to rescuing the nation's health care system from an out-ofcontrol legal system that is severely damaging the delivery of health care and hurting patients Hepatitis C Multicultural Outreach. The LDF is the first. We welcome all types of contributions.generally refers to the cancer of the mesothelial organs that form the protective lining of the lungs.� Often stigmatized as merely "painful periods. advocates.a Washington-based "think-tank. Mesothelioma Applied Research Foundation. as health disparities flourish in these communities. and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. It is NOT a commercial enterprise. nonprofit research center -." Institute for Safe Medication Practices. Inc." Endometriosis is more than just "killer cramps. We promote critically-needed research to develop more effective treatments and ultimately a cure! Mesothelioma. find the cure for and control the effects of Tourette Syndrome. and the tools to communicate with each other.The Foundation works to promote better health for all Hungarians with special regard to the deprived.non-profit collaboration of patients and families. including a description of the illness and the medical treatments and social supports necessary to manage the disability and maintain a reasonable quality of life.here for support of those who suffer from or know someone with Adhesive Arachnoiditis. We are expanding from the need for natural beef and pork insulins to cover all phases of diabetes care.Our mission is to provide protocols for a variety of disabling conditions. and continues to lead efforts to improve the medication use process.Tourette Syndrome Association. Institute for Health Freedom Our mission is to present the ethical and economic case for strengthening personal health freedom. personal experiences and scientific material. Circle of Friends with Arachnoiditis COFWA. Inc. non-communicable diseases." Family-Friendly-Fun. Endometriosis Research Center. .LDF is a nonprofit medical healthcare agency dedicated to finding solutions to tick-borne disorders. and patient advocacy. The Foundation will try to develop innovative methods to be used for fighting chronic. free testing and counseling services for clients living in the greater Kansas City/Metropolitan area (15 counties).The Institute for Safe Medication Practices (ISMP) is the nation's only 501c (3) nonprofit organization devoted entirely to medication error prevention and safe medication use. Hispanic/Latino and Native American populations.The mission of the American Foundation of Urologic Disease is the prevention and cure of urologic diseases through the expansion of research. physicians.What we as Neuropathy patients hope to accomplish with this site is to promote knowledge of Neuropathy. to educate and support medical professionals. . disadvantaged and the poor. largest. Inc. Trisomy 18 Support Foundation. and to create a caring worldwide community for affected families. cure and management. .Endometriosis is a reproductive and immunological illness affecting over 70 million women and girls throughout the world.The Tourette Syndrome Association's mission is to identify the cause of.This site is dedicated to the hundreds and millions of diabetics in the world.Family friendly fun and special needs resources � enhancing the quality and fun of family life for special needs families. Canadian Neuropathy Association. American Foundation of Urologic Disease .We provide Hepatitis screening. Diabetics International Foundation. most influential. education. with special emphasis on the African American. Health 21 Hungarian Foundation. heart and abdominal organs kills thousands of people every year. its diagnosis (see Mesothelioma Diagnosis). This site offers all the information you may need on mesothelioma.The Trisomy 18 Support Foundation's mission is to guide the search for a cure and treatments. treatment (see Mesothelioma Treatment) and legal matters (see Mesothelioma Law).. and most scientific such organization. BC Disabilities. ISMP represents over 30 years of experience in helping healthcare practitioners keep patients safe. give you some resources to understand it better. The Institute is a nonpartisan. Lyme Disease Foundation.

California Nurses Association/National Nurses Organizing Committee (CNA/NNOC).American issue advocacy campaign dedicated to making high-quality. American Medical Student Association. Our activities include investigating questionable claims. The CNA/NNOC is a primary national organizational advocate of the United States National Health Care Act (HR 676).The primary goal of the NPA is re-establish the professionalism in medicine through ―service. It was formed by Carol after her mother. as a result.provides comprehensive information about the history and current practices of multilevel marketing. educational programs and public policy initiatives. Campaign for Children's Health Care. Society for the Prevention of� Cruelty to Patients. Health Care for America NOW! (HCAN). People both in recovery and in need of addiction recovery services face many hardships. Pennsylvania Medical Society.The mission is to create a new space for civic engagement outside our traditional legislative and governance structures to advance solutions to the common problems we face – starting with the crisis in the U. and advocacy.Health is a state of complete physical. .AMSA's action committees and interest groups help expose medical students to information on subjects not generally covered in traditional curricula. affordable health insurance coverage for all of America's children a top national priority. improving the quality of health information on the Internet. Archimedes Movement. reporting illegal marketing. Zoe. quality health care system that provides for the health care needs of all Illinoisans. disability rights organizations. reporting illegal claims for products to regulatory agencies. and helping people seek legal redress against MLM companies..grassroots coalition of more than 300 local and statewide organizations representing consumers. religious organizations. World Health Organization. seniors. The Medicare Rights Center. and other citizens to help create and advocate for an accessible. labor.S. Our activities include analysis of health claims made for multilevel products. Labor Campaign for Single Payer. The campaign will join with others in the national single-payer coalition in educating and mobilizing broad support for HR 676 and.the professional association for the state’s physicians and physicians in training. and professionalism. etc. The bill would establish a single-payer national public health care insurance plan.The California Nurses Association is well known for its long history of advocacy for direct care registered nurses and patient care protections. fads. died in Bradenton.nonprofit organization. Campaign for Better Health Care (CBHC).. practice. Florida. she discovered the following.works to ensure access to affordable health care for older adults and people with disabilities through counseling and advocacy.� The stigma or belief that people who have experienced alcohol or other drug abuse and addiction are somehow less deserving of medical carethan those who have experienced other chronic disease must change. During her dying (which should have been recovery) and following her death. health care system. Physicians for a National Health Program (PNHP). myths. CNA/NNOC has drawn national attention for campaigns on behalf of patients denied medical treatment recommended by their physicians. It focuses on four guiding principles—patients. and single-payer financed. also known for its members' substantial contributions to scientific research on the uninsured.progressive political campaign of organizations that promote health care reform in the United States. Quackwatch. health system economics and international health systems. National Physicians Alliance (NPA). essentially an improved equal-treatment Medicare for all Americans. medical students. educate our elected officials to the necessity of a health care system that is democratically controlled. and health professionals who support a single-payer system of national health insurance. democratic organization governed by its physician members. and is the only major national medical organization in the US that accepts no sponsorship or funding from any pharmaceutical company. We Recover.MLM Watch. mental and social well-being and not merely the absence of disease or infirmity.There are too many people suffering from alcohol and other drug abuse and addiction. politics. health care workers and providers. community organizations. a victim of a stroke and malpractice and greed.nonprofit corporation whose purpose is to combat health-related frauds. HCAN supported the passage of the Patient Protection and Affordable Care Act and in June 2009.The Campaign's goal is to promote active engagement in the struggle for a single-payer ―Medicare for All‖ national system at the state and local level among union members and others.an advocacy organization of physicians. integrity. and fallacies.. publicly administered. Inc.

Our advocacy program has three leading objectives: To assist in the development of programs designed to prevent obesity. AIDS United promotes scientific and evidence based HIV prevention policy to reduce the spread of new infections. improved access to quality treatment.non-profit. affordability for families and individuals. To increase funding of obesity research. is dedicated to the prevention of sudden infant death and the promotion of infant health through an aggressive.The American Heart Association/American Stroke Association will advocate for strategies that promote sound public policy aimed at reducing heart disease and stroke.statewide coalition of organizations and individuals in Ohio. and the ability to continue health care coverage through changing circumstances. The Obesity Society has worked with the United States Congress. American Sudden Infant Death Syndrome Institute. home care. American Speech-Language-Hearing Association.AIDS United is dedicated to the development and implementation of sound public health policy in response to the HIV/AIDS epidemic. mental health care.The National Eating Disorders Association (NEDA) is a non-profit organization dedicated to supporting individuals and families affected by eating disorders. National Eating Disorder Association. It is the world's largest network of breast cancer survivors and activists as well as the largest source of nonprofit funds dedicated to the fight against breast cancer in the world. vision care. prescriptions. Universal Health Care Foundation of Connecticut. longterm care. hospitalization. clinical services. Single Payer Now!. CanCare. dental care. To this end. grassroots group of volunteers working since 1994 for single-payer health care: a health care plan without private.non-profit organization to raise money for research and awareness of breast cancer. We work with partners and volunteers to develop programs and tools to help everyone who seeks assistance. and speech and hearing science. is the development of a comprehensive National AIDS Strategy to end the HIV/AIDS crisis in the United States. HMOs and others. Through our advocacy efforts. Single-Payer Action Network Ohio (SPAN Ohio). Komen for the Cure. At the top of AIDS United' policy agenda. This includes the full range of medical services.non-profit cancer support network with a mission to improve the quality of life for cancer survivors and their families. we work to ensure an adequate investment of resources to meet the needs of those living with and at risk for HIV/AIDS. Aids United. We work to advance federal policies that improve the quality of life and ensure access to treatment and care for all those living with HIV/AIDS. To ensure patients have access to quality medical care for obesity treatment.[4] The foundation says it believes health care is a fundamental right Susan G. comprehensive nationwide program of research. and family support. The organization insists on certain benchmarks: universality. for-profit insurance companies.promote the interests of and provide the highest quality services for professionals in audiology. We campaign for prevention. Their stated purpose is to seek fundamental health care reform in Ohio and the United States so that every resident is guaranteed full and comprehensive coverage through universal health care. the Centers for Disease Control and Prevention. American Heart Association. speech–language pathology. American Obesity Association. This support comes from trained volunteers who themselves have experienced and survived a cancer diagnosis or have been a caregiver to someone who has. the US Surgeon General. and to advocate for people with communication disabilities.ShoutAmerica.The foundation has several ideas for universal health care that it believes can be enacted and be affordable for government. and increased research funding to better understand and treat eating disorders. and care for all injuries and illnesses.non-profit organization that seeks to protect the long-term interest of the nation through the achievement of sustainable healthcare reform.ational nonprofit health care organization. . consumers and businesses. high quality care. education.The Obesity Society is committed to advancing policy changes that address the current epidemic of obesity.

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