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5th Annual Neuroblastoma 5th Annual Neuroblastoma 5K Run & Walk 5K Run & Walk Saturday
5th Annual Neuroblastoma
5th Annual Neuroblastoma
5K Run & Walk
5K Run & Walk
Saturday March 31, 2012
8:00am to Noon
Presented by
Presented by
Benefiting the Neuroblastoma Program at Meet at Acme Brick Headquarters Food 3024 Acme Brick Plaza
Benefiting the
Neuroblastoma
Program at
Meet at Acme
Brick Headquarters
Food
3024 Acme Brick Plaza
Fort Worth, Texas
Green
Screen
76109
Pictures
Face
Master of Ceremonies:
For additional information:
Painting
Music
Media Celebrity
Mike Sankary 817-347-7038 or
msankary@higginbotham.net
Ice
Scott Murray
Cream
Chip Timed
by RunTIME
nbwalk.org
online
at
Register
USATF
Certified
Awards

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Established in 2008 by Alexa Sankary in memory of Michael Mancuso and in honor of Kyla Moore.

Sydney’s Story

When Sydney was born, she was perfect healthy and beautiful. Sydney was everything you could ever want in a child and more. Shortly after her second birthday and a month of cold-like symptoms followed by some pain in her legs, we discovered a grapefruit-sized tumor in her little tummy. Our family’s world came crashing down. Sydney was diagnosed with stage IV neuroblastoma, a deadly cancer with no known cause or cure. In the days to come, we would learn that Sydney had between a 15% and 25% chance at survival. From that moment on, our lives would become a roller coaster of feelings and emotion.

lives would become a roller coaster of feelings and emotion. We began our journey at Cook

We began our journey at Cook Children’s. There we felt safe because we knew we were surrounded by some of the best doctors and nurses in the business. That wasn’t what made the difference though. No, it was their drive and willingness to find the cure for our daughter, no matter where the answer lied, that truly set them apart.

Over the next four years of our journey, Sydney would endure over nine rounds of high-dose chemotherapy, multiple surgeries, a stem cell transplant, 12 rounds of radiation and an unending barrage of painful immunotherapy and maintenance chemotherapy. We would travel back and forth across the country to receive treatment, and along the way we would meet hundreds of others who were on our same path. Unfortunately, Sydney would lose many friends to cancer, but somehow, against all odds she continued to survive.

Following the guidance of our doctors at Cook Children’s we participated in many cutting edge clinical trials. In fact, years later, it would be discovered that one of those clinical trials that Sydney participated in at Cook Children’s led to an increase in survival of over 20%, almost doubling the current survival rate and today, that may be the very reason she is still with us.

This year Sydney started the fourth grade. She has been blessed. Although diagnosed with stage IV neuroblastoma at the age of 2 and given a 25% chance of survival, 8 years later she is beautiful and whole and continues to be everything we ever wanted her to be. While her future does not hold any guarantees, she is here with us. We can hold her, love her, and share with her as she experiences life. That is all thanks to Cook Children’s, both for their dedication to bringing the most cutting edge science to our children and to having the most dedicated and caring doctors and staff imaginable. It is because of Cook Children’s that our baby was grown up into a beautiful little girl.

Cutting edge clinical trials certainly made the difference in Sydney’s life. She would not be here today without them. Your support will help bring more clinical trials to Cook Children’s. Children fighting neuroblastoma won’t have to travel far from home to receive their treatments and families will be able to stay together. Most importantly, with the incredible work done here at Cook Children’s, your support will help to ensure more children like Sydney live.

http://www.nbwalk.org/2012Walk/TeamSydney