立法院公聽會 健保與醫療資料加值

TH Schee
http://opendata.tw 2012.05.04 Taipei, Taiwan

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http://digiphile.wordpress.com/2010/03/28/transparency-camp-2010-government-transparency-open-data-and-coffee/

技術
Hadoop Cassandra Big Data MapReduce the R

開放資料
國情統計 商情登記 議事記錄 行政預算 地理空間資 天氣資料 交通情報 活動事件

社群
公民團體 國會監督 新創事業 學研組織 開放街圖 OSM 創用 CC

人權
個資 隱私 著作權

媒體
資料新聞學 資料視覺化 新媒體

s台 v


Apps

EMR/EHR?!


PSI

TW

電子治理 E-Gov

地理空間資
Geospatial

雲端運算 World 基礎資通建設

政務透明
Transparency

責信
Accountability

at D

ls ta or P a
Repository Country Austria Belgium Czech Republic Spain Ireland United States Australia United Kingdom Finland United Kingdom Thailand Finland UN Worldbank United Kingdom Slovakia Denmark Hungary Ireland Italy Hungary Category Country Country Country Region City Country Country Country Region City Country Country Organization Organization City Country Country Country Country Country Country

Number Of Datasets 18 2 145 137 92 4770 704 >7400 559 ~458 24 ~45 5413 5500 214 42 750 7 265 220 183

http://at.ckan.net/ http://be.ckan.net/ http://cz.ckan.net/ http://dadesobertes.gencat.cat/ http://data.fingal.ie/ http://data.gov http://data.gov.au/ http://data.gov.uk/ http://data.hri.fi/ http://data.london.gov.uk/ http://data.pm.go.th/ http://data.suomi.fi/ http://data.un.org/ http://data.worldbank.org/ http://datagm.org.uk/ http://datanest.fair-play.sk/datasets http://digitaliser.dk/ http://hu.ckan.net/ http://ie.ckan.net/ http://it.ckan.net/ http://kozadat.neumannhaz.hu/Fooldal/Adatforrasok

http://wwwdb.inf.tu-dresden.de/opendatasurvey/

Local Governments

Central Governments

New Economy

Raw Data
Aggregation and organization Porcessing, editing and packaging

Final Product
Marketing and delivery

Data Creation

ICT Infrastructure

Source: REVIEW OF RECENT STUDIES ON PSI RE-USE AND RELATED MARKET DEVELOPMENTS

MyDataCan™ puts your data under your control to improve your life.You can collect, assemble, and distribute your own personal data, across data silos, including health information, without a fee, and optionally elect to participate in activities that use your data to improve the quality of your life.

哈佛健康記錄銀行 Harvard Health Record Bank
MyDataCan™ 讓個人資料在 生活。 遞 的掌握之中,以促進健康的 可以蒐集、組合、以及在不同資料集間,免費的傳 生活的品質。
http://mydatacan.org

自己的醫療資料,並且選擇性地使用個人資料,以增進

資安 ≠ 個資 ≠ 隱私
哈佛健康記錄銀行 Harvard Health Record Bank
- data scientist - social scientist - privacy researcher - policy maker - patient

張冠李戴 國際接軌?
Open Data? Cloud Computing?

http://www.bikehacks.com/bikehacks/2012/04/rail-bike.html

Privacy Haven 公認的隱私天堂

via a friend

原則
- privacy by design - simplified choice for business and consumers - greater transparency

FTC: Final Commission Report on Protecting Consumer Privacy

行動要點
- do-not-track - mobile - data brokers - legal platform providers - promoting enforceable self-regulatory codes

Privacy Matters!

Special thanks to...

a lot of people on G+
&

因為我不確定是否未經告知可以揭露他們的網路身分

台灣人權協會

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