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Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) NHS Scotland Policy

Objectives
Key points of the policy Framework for resuscitation decisions The DNACPR form Patient Information Leaflet

The Policy:
Based on integrated DNAR policy implemented by NHS Lothian In line with revised Joint statement on CPR decisions by BMA/RCN/RC(UK) 2007 and GMC guidance (2010) Fully integrated between Primary and secondary care services Supported By Scottish Ambulance Service Recommended in Living and Dying Well the Scottish Government Action Plan for Palliative and End of Life Care Requested by Public Audit Committee
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Why does it have to be integrated?


Example 1:
Patient with DNACPR form whilst in-patient discharged home to die Patient died that evening more suddenly than expected Family panicked 999 called Ambulance crew attempted resus Police attended, confiscated patients drugs, body removed to police mortuary GP from out-of-hours service attended but unable to prevent this
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Why does it have to be integrated?

Frequent examples of:


Inappropriate resus attempts Nursing staff putting out 2222 call when they know patient was expected to die Inconsistent and varied documentation causing confusion DNACPR decisions delayed in futile clinical situations because it hasnt been discussed Doctors offering CPR as a choice to dying patients (or their relatives) where it would clearly be unsuccessful Medical staff asking relatives to make DNACPR decisions
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Hospital issues:
Increased movement of staff and patients between hospitals Patients being looked after by increased numbers of different staff (shifts, teams, hospital at night etc.) DNACPR documentation deferred due to belief that all patients must be asked about DNACPR decisions

Community issues:
Existence of DNACPR order needs to be communicated to GP, DN, care home staff and OOH on discharge

Existence of DNACPR order at home needs to be communicated to hospital/hospice team on admission GPs often unsure when to sign DNACPR orders
For DNs, Marie Curie nurses and other experienced palliative care nurses a default of attempting CPR in the absence of a DNACPR form is impractical

Ambulance issues:
Existence of DNACPR form needs to be communicated to ambulance personnel Mechanism needed for informing emergency and OOH service about DNACPR order

Clear instructions are needed about what to do in the event of death in transit Who to contact Where to take the patient

NHS Scotland DNACPR policy:


Single, high visibility, widely recognisable, selfexplanatory DNACPR form designed to follow the patient and contain all info needed by community, acute and ambulance services Decision making framework to assist medical and nursing staff in all settings
Patient information booklet to improve patient and relative awareness, and assist discussions

Picture of framework

Available in all areas Quick reference of the policy Extra guidance notes on the reverse

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When do you need to make a decision about resuscitation ?

Can a cardiac or respiratory arrest be anticipated for this patient?


NO:
No further thinking about DNACPR is required
Do not burden the patient with having to make a decision about resuscitation In the unlikely event they have a cardiac arrest attempt resuscitation unless it clearly would not work

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When do you need to make a decision about resuscitation ?

Can a cardiac or respiratory arrest be anticipated for this patient?


YES:
Are you as certain as you can be that CPR could realistically have a successful outcome (in terms of medically sustainable life)

Yes
decision to have DNACPR order rests with competent patient Sensitive exploration of patients wishes if appropriate Set in context of patients illness, end of life care wishes 12 and likely outcome of successful CPR

Explanation of successful CPR should be realistic - remember patient and family perception of it is not!
Will it work and how will I be if it works? Patients/relatives yes definitely with a cup of tea afterwards to help recover to full health (TV survival to hospital discharge = 63%) Doctors/Nurses possibly (Drs overestimate prognosis by factor of 5 when discussing with patients/relatives) Reality probably not / definitely not (survival to hospital discharge 13-14%)
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If CPR might realistically be successful but patient lacks capacity to make a decision
A decision about what will be of overall benefit for the patient must be made by the clinical team or legally appointed welfare guardian A benefit vs burden judgement must be made about CPR and its likely outcome for that patient Relatives must not be made to feel that they are making the decision but can offer opinions about what the patient would have wanted.

The discussions and decision-making process must be documented


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When do you need to make a decision about resuscitation ?


Can a cardiac or respiratory arrest be anticipated for this patient?

YES:
Are you as certain as you can be that CPR could realistically not have a successful outcome ( in terms of medically sustainable life)

Yes
decision to have DNACPR order rests with senior clinician (Dr or nurse) responsible for the patient Actively seek opportunities to sensitively make patient aware of this as part of information about illness and prognosis DNACPR form can be completed without discussing 15 with patient

Do I need to discuss DNACPR when CPR will not work?


If CPR would not restart the heart and breathing it should not be attempted

In most cases the patient should be informed but for


some patients, for example those who are approaching the end of their life, such information will be unnecessarily burdensome and of little or no value
Decisions relating to CPR a joint statement from the BMA, RC(UK) and the RCN Oct 2007
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Nursing Roles & Responsibilities

Taking clinical responsibility for a DNACPR decision

In certain settings an experienced nurse may be the most senior responsible clinician decision for the patient (eg nurse consultants or senior clinical nurse specialists). Such a decision may be recorded on a DNACPR form and signed by the experienced nurse.

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Nursing Roles & Responsibilities


Discussing DNACPR
Experienced nurses may be best placed to initiate this conversation with a patient but any nurse may also have an important role in supporting the patient during and after these discussions. Clinical judgement at the time of cardiopulmonary arrest Where there is no DNACPR form and the patient has a cardiac arrest, experienced nursing staff can decide not to attempt CPR on a patient who is clearly in the terminal phase of an illness.

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Picture of DNACPR form (front)

Communication tool (Decision should still be clearly documented in notes) Clearer instructions

Only need to complete one of the three boxes


File in front of notes

No form does not automatically mean CPR must be attempted


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Review when clinical responsibility changes and at individualised clinically appropriate intervals Complete Ambulance Crew Instructions before transfer

If the form is going home with the patient it must be the original
Inform GP / community nurses / OOH before discharge home If form not going to patients home but patient still DNACPR send to GP
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DNACPR patients being discharged home:


Review if DNACPR decision is still valid Clinical team should decide whether it is of benefit for patient to have DNACPR form at home likelihood of sudden death importance of ensuring dignified, peaceful, natural death where possible If appropriate; sensitive discussion is needed to explain forms positive role to patient and family Unscheduled Care Service should be informed via patients GP (electronic Palliative Care Summary ePCS) and/or special notes system THE FORM SHOULD NEVER BE SENT HOME WITH A PATIENT IF THEY ARE NOT AWARE OF ITS EXISTENCE 21

If form isnt discussed with patient/relative.


WIFES FURY AT ORDER TO ENSURE NATURAL, PEACEFUL AND DIGNIFIED DEATH AT HOME.. doesnt have quite the same headline impact!!!

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ePCS - What is it?


An electronic Palliative Care Summary
An extension to Emergency Care Summary (ECS) & GPs palliative care registers - Gold Standards Framework Scotland (GSFS) For use both In Hours & OOH Allows GPs & Nurses to record in one place - Diagnosis, Rx, Pt Understanding & Wishes, Anticipatory Care Plans, review dates, DNACPR decision etc ePCS replaces current faxed communications Info available to NHS24, paramedics, A&E, Acute Receiving Units etc
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Example of Mobile ePCS information

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DNACPR patients being discharged home cont:


If not felt appropriate for the patient to have a DNACPR form at home but CPR would clearly be futile the GP should be informed - they may then choose to discuss the form at a more appropriate time No need to reverse the DNACPR form prior to discharge document why it wasnt sent with the patient and either file original copy in notes or send to GP NB. IF A DNACPR PATIENT IS AT HOME WITHOUT THE FORM THERE IS ALWAYS A RISK OF INAPPROPRIATE PARAMEDIC AND POLICE INTERVENTION
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Patient with DNACPR order being transferred by Scottish Ambulance Service:


Ambulance control must be told if there is a DNACPR order in place for the journey The ambulance section must be completed and shown to the crew prior to transfer If the form is going home with patient the crew must be told that the patient and family are aware of the form before they are given the original copy If original form being kept or sent to GP the crew should be shown the original form prior to the journey so they are certain of the information.
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When no DNACPR decision has been made and the patient arrests:

It is presumed staff would attempt resuscitation

However, it is unlikely to be considered reasonable to resuscitate a patient who is clearly in the terminal phase of illness
Experienced medical or nursing staff are therefore not obliged to initiate resuscitation in a patient whos death is clearly expected

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Patient Information Booklet


Based on joint BMA, RCN,
RC(UK) document Available to all clinical staff

Used to improve patient and relative awareness and assist discussions Worth reading if you dont know where to start with DNACPR discussions
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Remember: DNACPR Orders only refer to cardiopulmonary resuscitation, not to any other treatments.
Unexpected deterioration should always be assessed and managed appropriately irrespective of DNACPR status

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Any Questions ?

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